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Presentation given by Prof Tim Barrett

Presentation given by John Isherwood, Chair of Trustees for WSUK on the work we are doing as we move forward

Therapeutic Development for Wolfram syndrome - Dr F Urano

Update on TREAT Wolfram clinical trial in Europe

Progress and Progression of Diabetes Mellitus in Wolfram - Dr B Marshall Trim

Information correct as at 1st October 2022. Information about Wills, Trusts, Living Powers of Attorney and Court Protection

Presentations by Tom Bendall from Royal National College for the Blind and Phillipa Bass from British Blind Sports, speaking about sports and activities available to people who are VI

Presentation from Stephanie Gebel, CEO of the Snow Foundation giving an update on the work they are doing. This is followed by a presentation from Pat Gibilisco, Patient Advocacy Liaison Officer at the Snow Foundation, speaking about the WS Global Patient Registry.

Abby - Living independently

Abby talks about how WS helps to build resilience as part of the BDB project

Abby - Life doesn't end when you're diagnosed with WS

Abby talks about how to go about finding and asking for help when you need it.

Clare with her Guide Dog Maggie

Clare on the tandem

Clare - Living with a Guide Dog

Clare's - top tips

Clare - Crown Green Bowling for Visually Impaired

Clare - Tandem cycling

Shane - Living alone with WS

Aya - Using a cane

Gavin - Fatigue

Mr Uddin - Managing my daughter's Diabetes

Shiffa - "We can do anything other people can do"

Shiffa - Supporting my younger brother with his WS

Shiffa - Staying positive at school

Shiffa - Managing mental health issues

Shiffa - Living an independent life with vision problems

Shiffa Finding a job