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My 5 week old daughter just got diagnosed with laryngomalasia. She constantly sounds like a high pitch gasp every breath. We saw the ENT who scoped her and said she has it along with GERD (reflux) , she retracts all the time when breathing , the ENT stated this is normal for babies with laryngomalasia and that they only do surgery if the baby isnt gaining weight or turning blue. I dont sleep i constantly am watching her , the sound breaks my heart bc it truly sounds like she cannot breath. Its very hard to go through.

I can understand your feelings I’m also a parent of severe laryngomalacia boy It’s Very hard I’m going through this tough times now

Kudos to you for persisting to get a proper diagnosis. I really don't like it when people minimize a mother and a nurse's observation! He is lucky you are his Mom.

Hi Laura, my baby also has LM . we have started medication esomeprozole. is this medicine safe? Until when did you continue reflux medicine for your baby. Also could you please name which antacid tablet your lo was prescribed

Is there any update

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v nice good job

great party and video ❤

What did you use to hold the crepe paper streamers up? What kind of string was it and what is holding it up on each side? Great party!

My sweet 5 month old was diagnosed with LM around 1-2 months old. She has progressively gotten worse to being on oxygen now and an NJ tube. She wasn’t a really noisy baby not hers was sever omega epiglottis as well as a deep notch and needed stitch placed near esophagus, she has blue spells and bad coughing spells: always congested excessively, aspiration and hospitalized to IcU for aspiration pneumonia. She also has a bicuspid aortic valve and retraction, reflux, lip & tongue tie, lips was corrected but not tongue due to muscle weakness and worried of it dropping back and suffocating her.

My sons name is luke and he was just diagnosed with LM at 8 weeks. I related so much with you during your video. Thank you so much for posting this 💗 im scared but you gave me confidence that we can get through this and luke will be okay. Looking into thickeners now and will request hus pediatrician also cover all bases (heart, GI). I kmew something was wrong. Waited 3 weeks for the appointment with the specialist who did the endoscopy. My gut was right.

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My baby just turned 5 months today, he was born with noises. I knew wasn't normal, was told allergies at first. Went to ENT today and kinda disappointed in doctor. He diagnosed my son with it today and didn't agree with other specialist that said he has stridor because it wasn't loud enough and not constant. He told me to google it so i can understand more. I was little upset, i never had a doctor tell me to google anything nor specialist or nurse. Im so glad I just so happened to come across your video. Alot of what your explaining is what my son is going through. Im at a loss what to do.

I’m watching your video and crying because I can totally understand your situation because right now I’m on this situation I was not ready for this after 12 yrs I got my boy now he is suffering infront of me it’s so hurt 😢😢😢

My baby is suffering now I can’t even express how much pain ful for me I can’t seee like this way my baby even how hardly he can eat I’m helpless I can’t even do anything for my baby he is just 2 month I’m just crying all day night .even my gp his doctor they thought it may be brocolysis even I visit again and again for noise breathing they said it nothing but as a mum my gut feeling just visit and now they find it lyrigomalaisia

Did your baby have retractions?

Ma'am, Was your delivery natural or by c-section?.... I observed that c-section babies are more prone to develop laryngomalacia if they are born in the 38th or early 39th week. What's your view on this?

Thanks for sharing with us your issues, but it would have been more helpful if you told us how you overcame your issues rather than ‘I don’t know if we were using it right…’, ‘it didn’t work for us’ and just default to brushes and rollers. What did you learn from the masking tape? Did you eventually figure out the correct or, at least, a hack for using it? How about the spray gun? Any Lessons learned? Did you buy a cheap paint gun? Airless? Did you thin the paint? I wanted to learn from this video, not watch your remodel.

Hey your video is very helpful i gave birth to my daughter 5 weeks ago, and she was diagnosed with laryngomalacia, and it freaks me out everyday, and I honestly don’t know what to do. But I’ve been monitoring it everyday, but she’s eating well, gaining weight well, but every time she breathes it makes my heart melt cause I can’t really do much to help her ❤

This video is helping me so much. My 8 week old daughter was just diagnosed with LM. (She was also diagnosed with hydrocephalus before she was born)I kept thinking she was just congested because her breathing always seemed different after a bottle. Then her noisy breathing seemed to be getting more frequent so I called her pediatrician and made an appointment for the next day. I had to work so thankfully my mom is my babysitter and she took her to her appointment and called me so I could hear what was being said. They did breathing tests and she passed all of that and her weight gain is going great so he then told me about Laryngomalacia. He told me to look into it since I was at work and the connection was bad. He told me not to worry because she was breathing normally but if her breathing became very rapid and she started to seem like she was struggling to immediately bring her back in. So now I just monitor her breathing. I’m really afraid to even walk out the room majority of the time. The one thing u said that made me cry is what I consistently tell myself “God gave me this baby because he knew I will be able to take care of her”. Thank you so much for sharing your experience ❤

Our child felt with all symptoms as your blessed kid,our Neonatologist had checked with ENT and advised to do Scopy initial we were very feared doing it thinking about risk,over a time seeing ur video moraly boosted us to do diagnosis to confirm its LM or some other issues,done 2 times due to acid reflux bulging at larings and finaly it was LM and now he is in NICU for past 2 weeks and he is 8 weeks old now,he has poor weight gain and struggles in breathing at times,so he was given with formula milk Similac Total comfort along with coconut based oil mixed with milk to boost up his calories,and he is gradually picking up, hopefully our baby will be discharged in coming week,and thankyou for your video and this educates the parents and eradicates unwanted fear,as you said this kids born for us since God decides where they have care there he grow, thankyou,thanks from India 🙏

Hi mam my baby have same problem so docter sujest surgery but some doctors say not need to surgery I am canfuse what to do

Thx for the detailed video, very useful ❤❤

Thankyou

The plastic and sprayer is user error. Don’t give up on them

My son was diagnosed with this at 6 weeks…he’s eating well & gaining weight…🙏🏽🙏🏽🙏🏽

I had this once barely remember what it was like I’m just glad the operation got rid of it

Hi Laura I want help If you could tell me did your son have chest problem again and again,. Because my son has feeding problem and noisy breathing and having chest problem again and again.he is 4 month old and feeding issues are increasing he aLso has lots of mucus in stool and pass stool several times a day.

Thank you so much for sharing this. My son was born five weeks early and in thr nicu and now at 2 months has just been diagnosed with Laryngomalacia and like tou I was also told it was noisy breathing and he was fine. Mom gut told me no so I made my own appointments with speech and PT and ENT. We’re just early in getting the diagnosis from the ENT just last Friday so a week ago today and he also clipped his tongue tie. Lactation told me the same that because it’s so hard for him to breathe he’s struggling to nurse. Your video was so helpful as he’s not doing well with bottle feedings and it’s been a Pt so thank you God bless you and your son

My two month old is also have lryngomalacia it is a tough time for us

My 8 week old baby boy is having very similar issues as yours. He has mild LM. I did not quite understand for your video... What did the thickening help your baby with exactly?

my pediatrician also said, "He's just a noisy breather." Luckily, we went to the ENT for a lip tie and tongue tie and found out he has LM at 8 weeks. The doctor said it's mild. He is gaining weight okay once we started bottle feeding. I worry for him and am trying to figure out how best to help him.

The barefoot, no mask, primer session is priceless!

Thank you so much for to this video I’m in ER for my one moth baby watching your video. My son has cold as well. Wish me luck so my baby gets over it as well.

Everything looks so beautiful and classic

Beautiful

An easier way to do garland backdrops using crepe paper is just to fold over the ribbon/twine/rope than tape it in the back with glue dots or even scotch tape, as for the garland on The wall command strips work great but if you ever forget to get them, just get heavy duty double sided tape

Hi, my baby is 1 month and a couple days old. He has this noisy breathing. And like you said the doctor says he’s just a noisy brother but it’s really bothering me because it seems he’s really struggling. I took videos so that the doctor can see and listen to them on our next visit. My baby seem to choke often while feeding, did your baby experience this too?

God bless you and your family for posting this very useful information!

How your baby is now plz tell me

Your story is very similar to mine. My baby is 3 months and will be having surgery because weight. Her pediatrician diagnosed her first. ENT confirmed she is on nexium for her reflux. We will also be having a sleep and swallow test.

What kind of string did you use for that streamer banner?

Thanks for making this video and sharing your personal experience!

Looks great didnt kniw that hack for the chaulk tube ill have to try it next time i chaulk we arr refoinf our kitchen just waiting for our cabinets to come in also i replaced all door knkbs and hinges on all doors in our house what a differnce it made Oak cabinets will almosr always show the grain even with the filler that is the reason i opted to just get new cabinets

Where is the video of you all putting up the backslash? BTW everything looks good

Wow, what a transformation. A couple of tips for anyone new to painting cabinets. Shellac primer is best for wood cabinets, it adheres like magic and covers everything, and your husband held the sprayer too close. Spraying correctly makes this job so much easier. Anyway, good job.

So great thing mam... I came to know about LM when my child is 7 month 20 days now... No doctor diagnosed this earlier... He has feeding problem till today also... He is 7 kg weight 67cm height with head circumference 41. How can calm him and how can I handle his symptoms? Please reply me mam.

Did u add a little water to thin the paint in the sprayer? And he may have been holding it a little too close.

Inspiring!