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Kitten Replacement Milk (KMR)

This is my 9th infusion and my stomach is killing me. It's bloated and hurts bad. It's 2 days after

Rhb-104 redhill biopharmaceutical has developed an MS drug based on this. Marketing as a Chrons disease drug now?? Big pharma wants to keep MS patients on their 80k.a year with the worst side effects and they don't give back what's lost.

I don't want to stimulate my immune system with vaccine, it's already screwed up.

I have a thin veins too, which hard to see and head to reach. Try oral session of steroids; some viewed as less effective but there is no pain, no need to go to the hospital,

Dealing with ms hug now. Wish it would end. First infusion 1/9/15..

Hi! I'm Ryan.I did -30 lbs past one month.Go to hddiet.gs\#0ht7

Hi Sarah thanks for posting this. I'll be interested in seeing how you do and will follow your blog. :) <3

How are you now? I have ms also

Hay3 ms sucks I have it, hope your feeling better!!!

I've had MS for almost 10yrs now. I understand your pain and suffering... this Thursday I am seeing my neurologist to document my situation to obtain a disabled parking badge... People don't know what they can't see. I hope that you become better and want to let you know, your not alone. Stay safe =)

you go sista- i feel your frustration - people just don't "get it" hang in there- you explain this disease so well!!! I go to the Mayo Clinic in Arizona- at least they listen- thank YOU for sharing and I hope things work out for you!

I understand everything that you are saying. It's going on a long twelve years at home for me. This whole experience ,especially with doctors, has been frustrating. No hurry for them. They have got to keep the cash flow going. I am glad that you at least got some testing done. I can't even get to that point here in the U.S. Talking to a neurologist is a waste of time. I have seen a few and they are all the same. Take care, Bill

My thoughts and prayers are with you Sarah. I can see you struggling to be upbeat, but it's a blow, and something that your sisters and brothers with MS know exactly how you feel. This is an evil disease, we share together in our hope and prayers that we are on the forefront of a cure, or at least a hope for improvement. Blessings to you.

Thanks for being a brave pioneer & for sharing, this means a lot to me & my family (my brother has MS), our thoughts, prays & love go out to you, know that you are not alone.

I wish the liberation treatment was available to all,sadly,health care will not cover the testing or surgery..The drug companies know they will lose billions in MS drug revenues if this proves to be true.They are already paying off doctors across the US and Canada to shoot down Zamboni's amazing discovery . The doctors and specialists are very cautious as NOT to make it look too obvious.

Sarah....you faced my worst fear.....please breathe deep and know that your situation is merely a stumbling stone that we, unfortunately, have to incurr as we (msers) develop our plan of action to have this malady/insufficience/ crumb CCSVI recognized 'properly' and treated IN CANADA! THANK YOU so much! (I too have lost a ton) Hugs ...Brenda

I feel with you 100% same happend to my 23 years old son i traveld with him to Jordan from UAE and they put us down as we where having a lot of hope .... but . I wish you the best hope still there for all of us

ill be keepen my fingers crossed for you hope it gos well.thanks for the vid good luck. mike

Hi and thanks for the video. I am having a hard time getting my doctors to do anything in the way of looking at CCSVI. They just tell me to get into a study. I think that they are very used to the way of life that they have and are afraid of losing their their income from people like us. I just wonder, if they know so much in order to make a vaccine, why can't they pin-point the problem of "MS"? It just leads me to ask them, what do you know and how long have you known it?

That is very frustrating with the ultrasound and MRV. Anomaly??? What does that even mean - surely they want to know for sure? Venogram risky? That is not what my Vascular specialist says - I am having one on Thursday. I understand your disappointment, I also lost my work and have been folding up my business (after 10 years) since January. Arghhh! You will bounce back I am sure and I hope that each day these doctors/radiologists get better informed. Thanks for sharing. Kerri

Sarah, Thank you so much for posting this. Communicating is iimportant and you have so many people with you. There are many of us in limbo waiting and I know hard but we all knew Nov 21,2009 this was not going to be an overnight process. The more testing and rfesults we can come up with the better, yours included. My ultrasound is sitting waiting to be looked at further. You have to be commended on getting to this point, and boy can I relate to the "funk" I know hard to hear but Hang in there

It's good to see you again Sarah. I can certainly understand your frustration with losing function and your career. I have not been able to work since October of 1999. Being in a funk is a dark hole but I am sure your personality and peristance will bring you up and out. Thanks Sarah.

Thanks for putting on this video, Sarah. Feels like you are doing what all of us (who actually want CCSVI to mean something) would do given the chance. Please keep trying- from my limited experience I think that medical professionals need to be hounded and forced into any action. I really think that you will succeed in this. You have my(and many others') very best wishes. Paul

thank you for the video,i can understand your feelings but let me tell you something don't give up hope! this ccsvi thing is fairly new and many doctors don't have the expertise we have seen the buffalo report and we know it was a lie!and many doctors are against the ccsvi theory because it will put all their research on m.s in a trash can and big pharma too is doing everything to shut it down including giving 4 million to research aspirin and its effect on m.s, i meam ASPIRIN !?what a sick joke

Thank you for your honesty in this video. I understand why you would be frustrated with all of it. I wonder if they would be willing to do the tests again now that they have had proper training? They were misleading it sounds like to me. Maybe just looking at the reports together they will come up with a more informed conclusion. I understand the being at home and staring at the walls, I haven't worked since Feb of last year. It is hard and this disease robs us of so much. Hugs

Please post about how it went. I'm interested to hear! Thanks!!

I live in the U.S. how did you get the False Creek Clinic to test you? Did you just call and make an appt? I have no where to go over here! I want to get tested. Is Yasmeen at the office only allowed to set this up for Canadian citizens do you know?

Ultrasounds are done in Barrie. I am headed there tomorrow. Keep us all updated! We are on our way.

Thanks

Hi! I, too, am from Ontario, London, Ontario, actually. I am very interested in doing what you are doing...getting the mrv, etc. What would my first step be? Is all this info. on that website you mentioned in your video? Many thanks...and good luck!

So glad you are doing this. I have subscribed to your channel and look forward to hearing about your results. Good luck - Kerri

Put MY NAME down for being a Guinea Pig too!

Good to see you and Chiro again! Good luck in Falls Creek! YES! Please let us know how it goes for you!

Hi Sarah; Good to see you back but I am sorry you are still having the effects of a relapse. Yes, the Zamboni study is indeed very exciting and promising, to say the least. I think this is the start of something very good. I haven't gotten the pig flu vaccine and probably won't, but it's good advice to those who are worried about it. I know you have a medical background and your description of the workings of veins is very good. Thanks Sarah!

Great to see you back! Thanks for the good information. I'll definitely make enquiries when I see my neuro next month. I've had 8 infusions of tysabri so far. No relapses since the one I had just between coming off avonex and starting tysabri. Oh, and still waiting for h1n1 vaccine. Scotland is a bit slow I think! Keep well!

Hola Sarah, I was diagnosed with MS on Oct of 2004 and my very 1st symptom was the MS Hug... I really don't know who came up with that name (MS HUG)... yea right !!! it definately doesn't feel like a hug so I understand what U mean... I hope U feel better and that the MS doesn't hug U anymore... Rania =)

i was diagnosed in 1994, a lifetime ago. you will make out ok. no doctor cares more about you than you do. you know your body and what feels right to you. listen to your body. it is a crazy disease that is different for everybody. we are all pulling for you.

hang in there. its a long race. how can your doctors prescribe a treatment without your input? that's no good. you need to be the one deciding. put your foot down. good luck. i am pulling for you.

Yes, Sarah, it IS hard and the companionship of Chiro (in my case, Doug the Pug) is priceless. I found myself shaking my head in agreement with the litany of side effects and symptoms you talked about. It DOES get better and there is a light at the end of the tunnel, although it may be hard to see right now. A BIG HUG from a fellow MS'er in Iowa.

Thanks for the update Sarah. I am glad your infusion was uneventful and I hope you exacerbation goes away real soon. I have had MS since 1998 and can honestly say I have never experienced the MS hug. The other symptoms were overwhelming for me and the "hug" would've been redundant I guess. Thanks Sarah!

Sarah and Chiro; I am so sorry you are feeling crappy. I would assume you won't get your 2nd infusion on schedule. I hope your symptoms calm down and I can understand your reluctance to endure a round of steroids. I have opted out of a steroid treatment in the past because I thought the cure was worse than the disease. Hang in there!

Hi - got your response to my comments, but everything got deleted ? be well, Steve

I am sorry you are having a relapse. I heard that some people do have relapses after they start taking Tysabri. I hope this will pass really fast and that you will feel much better really soon! Tomorrow I am leaving to go to Italy, but I will write when I'll get back home! Take care Angela

Hi Sarah; For what it is worth, I would talk to your Neurologist and let him or her know what is going on, especially because you wrote to Stacy that you are scared. She does speak from experience because she went through a similar situation when she tried Tysabri.

Sarah have you called and talked to your neuro? I know exactly how you feel...I was that way to for 8 months on Tysabri but you still need to keep with it until you are for sure it is definatly NOT helping. Take it easy. Stacy

Yes it is tough to adapt. Being an optimist is crucial! Good for you. :)

That's a great way to demonstrate brain fog. I have had brain fog a LOT in the past, but it is better, much better, with Tysabri. Although I do get a bit foggy again when I get tired, but it clears up when I rest. I hope it clears up for you soon, Sarah!

Sorry to hear about your rough days Sarah. I have never experienced the bad side effects with Ty as you have, in fac I rarely feel anything but a bit tired. Hopefully it will get better for you. Tell Chiro I said "CHIRP!"