- Видео 526
- Просмотров 25 778
M0veForward
Добавлен 17 июл 2013
I’m BAAAAAAACK!
It has been a bit but I’m BAAAAAAACK! After a move, a house sale, change of physicians and injury I am back to fill you in on what’s new in my world!
Просмотров: 165
Видео
Despite the rumors I am not dead
Просмотров 1212 года назад
Oh man selling a house, buying a house and packing is not easy and having MS doesn’t help!
It’s been a bit!
Просмотров 812 года назад
Evusheld and me!
Просмотров 4662 года назад
Are you on Ocrevus like me and FREAKED OUT about COVID19 exposure?? More and more I was hearing about Evusheld as a way to protect against it in addition to your vaccinations (emphasis on IN ADDITION). I am getting Evusheld on Friday for this reason. MS Society: www.nationalmssociety.org/coronavirus-covid-19-information/suspected-covid-19-and-ms/evusheld NIH: www.covid19treatmentguidelines.nih....
Today is Naked Day!
Просмотров 2132 года назад
Three appointments with doctors that require naked time!
Steroids are My Friend!!
Просмотров 412 года назад
Yes, it is true...I want steroids ALL THE TIME!!! I am in rare form with a little help from my friend Prednisone!
Steroids and Booster oh my!
Просмотров 282 года назад
Exacerbations are the worst and thankfully steroids combat them! Bonus feature...they give you energy! This girl also got her booster shot to help my body recognize that darned COVID bug. I think the steroids will also help combat the side effects of that...we shall see! Better living through pharmaceuticals is what I say!
Exacerbation Alert!
Просмотров 2722 года назад
It's happening, MS has put me in my place and I don't like it!
Off Grid and Country Parties
Просмотров 282 года назад
I'm baaaaaaack! I chat about life on the road with the RV for the last week and country parties! Strap in kids, today is a lengthy update!
Urology Appointment Today!
Просмотров 582 года назад
Telemed appointment today with the urologist to talk about my ultrasound. My cysts, are they a boy, a girl, both??! Who knows! Also, on my way to Colorado in the RV this week! Boy oh boy are we getting some use out of that purchase!
I see you Gabapentin!
Просмотров 1682 года назад
My mysterious (not so mysterious because I am eating like I just discovered food) weight gain has been solved! I am planning on new tires (oh the fun of being an adult). AND another RV trip?! Yes!
Be Careful of Your Good Intentions!
Просмотров 342 года назад
Sometimes we plan for conversations ahead of time, sometimes that is with notes, sometimes that is with practice, sometimes that is with planned medication...well that's meeeee! Flying high on some Nuvigil today! Prepare yourself, you've been warned!
Oh Hi! Been a bit!
Просмотров 292 года назад
Been RV'ing and getting ready for tax season (basically me trying to gather everything and hand the madness over to our CPA). So much to do and such little time! Another Urology visit tomorrow (I opt out...but I can't). Que sera sera!
Sweet angel
Statins cause MS! The myelin sheath of nerves is 70% cholesterol. If you block the body from producing it, you get incomplete myelin with scars (=sclerosis).
❤❤❤
great clear my throat
Very nice video. I haven't seen you for 4 years.
Wow, You have been through quite a lot!!! Welcome to Or!!!
Good to see you back. It was really nice seeing and hearing from you. Hope you're walking better after that foot-break.
It as if I never broke it! Nice to hear from you!!
Hello Laura! It's great to see you back. Sorry to hear about your foot. Glad to hear you're getting settled in up there.
Finding my way! Great hearing from you!
Oh and I broke my foot…. 😅😅
But but but I healed and that’s all that matters!
@moveforward Good morning. It's great to see you. I'm glad that you are more settled Have a great week :) <3
Hey Angelo!! Great seeing you pop up! I’m more settled but not done, - que sera sera!
@@moveforward2202 That's okay, it was a big move I am sure. I hope it all transitions well and that you'll feel settled soon It's great to hear from you again Take care my friend 👆❤
What DMT are you on. I take Ocrevus
Ocrevus and likely moving to a new one
Was just giving this and tramadol for an injury today for 5 days..I hope it works
Tramadol was given to me for my L4/L5 back surgery and Baclofen is great for spasticity! Hope it worked great!
@Move Forward it did and I recovered quickly...thanks for the well wishes
It’s been a while since you’ve posted! We’ve missed you !hope you are well ❤
I know it!! Been a whirlwind of moving, finding docs, selling a house, crazy!
Hi, how are you? I haven't seen a vid from you in a while and thought I'd stop by to say hi. I hope your move went well and that you're feeling fine too. Take care, Happy Halloween.
Happy Halloween 🎃!! Just settling in and making the new house my home! Hope all is well with you!
@@moveforward2202 Thabks. Yes I am fairly well. 👍
It’s definitely legit ! I’m Ocrevus and I have a tough Crap gap. I’m Currently dealing with crap gap :-/ I even deal with it after the infusion, it’s like it takes me 3 weeks to get it all back in my system, and feeling energized to do anything. I just feel super fatigued during these times but then once I’m past it I’m good and fire on all cylinders!!! It’s the craziest thing and it makes you feel like your crazy since it’s one of those things that’s not really talked about as much
Wow! You literally just described my exact experience!
Howdy, I was diagnosed on September 17 2002. I turned 51 this past June.
@moveforward It's good to see you. I hope you have a good travel experience and settle into your new home soon. Rest well and I hope you'll be able to relax soon Have a great week my sweet friend :)
Thank you for the long awaited update. Congrats on the new house. Hope you enjoy life in a new city.
Bandid, wow, We will be close to each other!!!!
It was great hearing from you! Be safe on your travels!
we should start an MRI dj company
SO MUCH LIFE CHANGE DUDE
Thank you for the update. I've been watching for you every day. Congrats on getting your house sold so quickly. Here's hoping you two find the perfect home when you look in the state you're moving to. And hi to your doggy.
@moveforward Great to see you, I hope all keeps going well for you. Congratulations on selling your home and I hope you find the new perfect home for you. God Bless my dear sweet friend :)
Alan MacDonald : MS is a parasitosis
Ummmm it is very much a real disease with evidence of significant damage to the brain and the spinal cord…
Thanks for the vids. Have you tested positive for antibodies yet, please?
I didn’t get retested but that’s a great idea!
@@moveforward2202 If you do, could you please let me know what the results were? I am a transplant recipient and I haven't been able to generate antibodies with Pfizer or Moderna. Evusheld might be my best hope. Your experience is of great help to me. It offers me hope! So, thanks you sharing your life with us all.
how are you?
All good in the hood! Thanks for asking!!
@moveforward I hope all goes well and the shot proves well for you! God Bless take care and i hope to see you again soon my sweet friend :)
Yay! An hour is soooo long!
Thanks for the update. Hope the rest of your day goes well and you have a wonderful weekend.
Glad you are getting something to help fight off the vidaaaa!
I hope the needles help you well. Have fun raving and I hope all goes well with your move. Take care my sweet friend. ❤🙏👍🙃
No, I'm not freaked out because I didn't know that the vaccinations and booster weren't effective on Ocrevus users.
Agreed your dress is hella cute. Look at you all prepared!
Happy Tuesday. You're dress is very nice. I hope you are having a very good Naked day. I'm going to look into making that an international holiday. Be well my sweet friend :)<3
Good Morning/day! It's great to see you in a very good mood. It's great the steroids' worked so well for you and you had good experiences with the covid vaccines. Have a great RV trip and I hope you have a great day too my sweet friend :)
Yay! Glad you got some helps
I'm glad the steroids' are helping you. You seem very well and with bounds of energy. I hope the good feelings continue endlessly. Have a great day and weekend my sweet friend <3 :)
Geezzz, I hope you manage through this exacerbation and that it ends now! I hope and pray for your wellness my sweet friend <3
“Something” going around! This is the Second post by a friend who is in the middle of an exacerbation! Not a good day for either of you. xoxo
Ugh. That sucks. Booooo on ms!
Seriously sucks, hence why I was having difficulty making a sandwich the other day...
The Rv trips you take sound perfect. Other than the septic shower it sounds like you've had a great time. I hope you feel very well and have a very good weekend my sweet friend. 🙂❤👍
Gabapentin also causes constipation, too. Patients beWARE! Doctors seem to prescribe it with no worry to THEM about what bad problems it will cause US. Glad to hear your disability claim got approved and until your retirement age. I had a different reaction to mine-My employer paid for my long term disability benefits, so IRS treated it as taxable sick pay. I got w-2 forms every year in the amount if my disability benefits. That meant yes, I had to pay income taxes on it, but also I could pay the maximum IRA contributions every year 1996-2014, so from 65 on, I got my maximum Social Security Retirement Benefit, and my IRAs total, invested, paid off my mortgage and still is enough to live pretty well into my late nineties. One of my co-workers, also disabled, he by a terminal disease, kept working longer so HE could pay the premiums on the long term disability policy so it wouldn’t be taxable because he, not his employer, paid for it, like YOU. (When I started writing this, I recalled backwards what you had said about who paid for your LTDB policy, so I just edited my comment here, in case you look, that’s why.) The effect of who paid for LTDB matters, depending on life circumstances. 1996-2002 my household was just me and my daughter, so I was very worried about how I would pay my living expenses after I was retirement age, so I cared a lot about my IRAs, because I knew that plus my Social Security would be my only income.
Have a great time on Your RV Trip!!!
Have a great trip to Colorado.
Hello, good afternooon. I hope you get all good news from your urologist today. Have agreat trip to Colorodo, that sounds like a lot of fun. Take care God Bless you my sweet friend :)
Hi my sweet friend. I'm glad to hear the good news for your disability checks! I hope you're able to manage your meds side effects well. I hope and pray your Mother will be well. Take care, have agreat weekend 😀❤
I can’t function on Gabapentin. I wish I could because it helps with the pain. How many milligrams do you take a day , if it’s not too personal. Sorry about your mom
I take 300mg but I am prescribed to take 600mg. Nothing too personal I am sharing everything about my journey here!
Hi good to see you. Congratulations on your disability funds approval. I'm glad to see you so energized I hope all your doc appointments go well too. Have a great day/night my dear sweet friend :)
Good hearing from ya. Glad that the disability stuff is going well. Hope that you enjoyed (are enjoying?) all that energy you got.
I have a feeling the old adage is true that what goes up, must come down!