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www.ncbi.nlm.nih.gov/books/NBK562242/ Alexander disease is a relatively rare leukodystrophy that generally presents in the infantile period, although other variants are occasionally seen. This disorder has severe morbidity and mortality though it can be minimized if treated effectively in a timely manner. This activity highlights the role of the interprofessional team in evaluating and managing patients with this condition. Objectives: Describe the etiology of Alexander disease. Review the appropriate evaluation of Alexander disease. Outline the management options available for Alexander disease.

I hope you’re doing well:) Best regards.

I do not delete any comment:) I am trying to give updated data regarding for the related audience:)

No, Gilbert's disease does not cause hair loss. Gilbert's disease is a benign condition in which the liver is unable to properly process bilirubin, leading to a buildup of this substance in the blood. Hair loss is not a common symptom of Gilbert's disease. If you are experiencing hair loss, it is important to consult with a healthcare professional to determine the underlying cause.

I think a Pulmonologist could answer you better than me:)

I am gonna try detailing the treatment for LA .

You are welcome:)

Very sad for you!

wish you get well soon.

Please apply to a lung diseases department in your country. The Lung Transplant team should assess you for the possibility of yours for lung transplantation. Best regards.

@@MediMyst , thanks you

My friend from Toronto but livining in Australia could help you:; Prof. Chien-Li Holmes-Liew's, University of Adelaide

How did you find out about it? Like what were your symptoms since when?

Thanks a lot!

What are they?

@@MediMyst Gilbert's

@@MediMyst nausea, fatigue, anxiety belly discomfort

@@erikblomberg625 . Definitely!!! Frequently reported symptoms are: fatigue, tiredness, brain fog, headaches, poor memory, dizziness, depression, irritability, anxiety, nausea, loss of appetite, IBS, stomach pain & cramping, liver/gallbladder pain, abdominal pain, tremors, itchiness, jaundice Then there are also Commonly reported symptoms, sometimes reported symptoms & occasionally reported symptoms.

Close follow-up is so important. Wish you BOOP’less life:)

Not a permanent treatment to my knowledge, but it is manageable for lifelong. Best regards.

Unfortunately, there isn't a single "definite" treatment for Pulmonary Alveolar Proteinosis (PAP) that works for everyone. However, the good news is there are effective treatment options available, and the best course of action will depend on the severity of your case. Here's a breakdown of the current treatment approaches for PAP: * **Whole Lung Lavage (WLL):** This is the most common treatment for PAP. It's a procedure where a sterile saline solution is flushed through your lungs to remove excess protein buildup. WLL is usually performed under general anesthesia and may require multiple sessions depending on the severity of your condition. [Image of Whole Lung Lavage procedure] * **Medications:** While there aren't medications that definitively "cure" PAP, some medications can help manage the condition. Corticosteroids can help reduce inflammation in the lungs, which may improve symptoms. * **Lung Transplant:** In severe cases where other treatments aren't effective, a lung transplant may be an option. This is a major surgery with significant risks and complications, so it's only considered as a last resort. It's important to note that PAP is a complex condition, and ongoing research is exploring potential new treatment options. If you have PAP, it's crucial to work with a pulmonologist (lung specialist) to develop a personalized treatment plan that addresses your specific needs.

Is 9.3 value of GM csf is normal ,,,my husband is also suffering from this so pls tell me how can I take care of him to avoid it

What are your suggestions?

Thanks a lot kuzum:))

Wish you quick recovery:)