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What food you eat?

My mother in law was diagnosed with glioblastoma in May 2023. She passed away in September 2023 due to the collateral effects of chemotherapy treatment (temodal). So sad to be forced to see such a beautiful woman in those horrible conditions in a very short time. She was 60 yo.

To anyone who has Glioblastoma or known someone that had it. What Blood Group were they? I am trying to see if their is a link between blood group and developing Glioblastoma.

Nice one

and now my own 63 yr old sister is suddenly facing exactly the same as Ryan ~ it is shockingly painful & videos such as Ryan's story help understand much more of what is going on and how to cope with it all. Bless everyone who is part of anyone's journey with this

Bye Ryan, don’t randomly arrest people 😅

My dad was diagnosed with Glioblastoma early this year in January. January 23 just a week after his 70 birthday. The location where the tumor was located made it impossible for an intervention to remove any part of it. (Splenium area). There was nothing we could do unfortunatelly. The tumor was so agressive, my dad lasted only two months and passed away on March 26. The worst part was that for the last month my dad was in a kind of coma so could hear his voice. Doctors say that patiens with Glioblastoma don’t have pain. Hope that is true :(

Bullshit

My best friend (age 53) was diagnosed with glioblastoma six months ago and underwent immediate surgery. Just last week he experienced serious symptoms and it was discovered that his tumor has returned...larger and inoperable now...

My husband had a seizure in the night of Nov 27th 2022, we went to ER to check it out and he came back home after 2 months, had gone through 2 surgeries, right side disabled, speech disabled, quality of life zero! The active fun life came to a grinding halt. 6 months of regal got him walking with a quadcane. Radiation, chemo for 1 year, cancer is back now, MRIs every 2-3 months, trips to dr office every other week! It is a horrible disease, worse when you are unlucky to have become crippled as well!

My dad died in 2019 due to gbm, I was only 10 about to turn 11, he lasted 11 months, I wish no kid has to go through this like I did.

I Will Survive This.

my husband 46 has just been diagnosed with a large and aggressive glioblastoma and has had his operation, which went as well as it could, they used the new dye that makes the cancer cells glow pink and the surgeon said it made a huge difference. We are waiting on chemo and Radiotherapy. 4 weeks ago, he was working as a senior nurse in an ITU, now he can barely make himself a cup of tea. I have to admit, I am terrified, we should have had so much longer together. We are renewing our vows in 2 weeks and I just hope that will be possible, and he'll still be here. They said without the operation he had 2 weeks at the most, to live, so it has given us extra time, but we don't know if that's extra days, weeks, or months at this point

This was a great episode. Thank you. I too , have breast cancer and Glioblastoma.

Mi son of 10 yr was disgnosed DIPG on april 27 he finish his 30 radiation rounds i am looking for this trial to my kid 🙏🏼

My husband was diagnosed with glioblastoma at Christmas 2022 he is still here but his cancer has spread he is so brave its a heart breaking illness and I know I'm going to lose him I feel so sorry for all of you out there that are struggling with this awful cancer I pray that one day they will find a cure love to you all 😢

3 years too late for my mother 😢

16.45 Disneyland is not a good Metaphor....

Common sense treatment that has taken an embarrassingly long time to develop.

just seven weeks diagnosed, here in England. I see my consultant for the fist time on Tuesday and hopefully get it out on 10th July. It would have been earlier if not for my Stelara treatment

I'm sorry. My husband struggled with that

Some neuro surgeons have access to gamma tiles. The tile is placed in the cavity left by the resection (removal of the tumor). Gamma tiles appear to have worked at the site for my spouse 6 months out. The tiles were used for Meningiomas.

He is amazing. Thank you

❤

My 66 year old brother died from Glio 5/30/24 after 15 month courageous battle. Celebration of life in Houston TX, June 17, 2024. He was unflappable in his gallant effort. Gonna miss him. R.I.P. Coggs

My twin sister diagnosed GBM in 2020.After RT and chemo she lived until 2024 May but another recurrence in 2024.😢

I have glioblostoma and it hurts so much 😭😭😭😭

beet root as salad , drumstick soup and other healthy food which maintains your Hemoglobin and Protein helps a lot during radiation.

How does it affect the rest of the brain cells (healthy ones)?

My Brother passed from 2 glioblastoma's First tim h seen a doctor in 49 years and was dx with gbm. The doctors could not do anything and he came and lived with me. 3 months and he passed in my arms. There are groups on facebook for people and Families who have or had gbm and also dealing with gbm loss. My heart goes out to you all.

Don’t believe brain surgery is a good idea for cancer It often diminish the quality of life and with all the chemo and radiotherapy it’s torture for patient and the family around. The best would take it slow, change a diet for a more alkaline one and maybe chemo or radio but from experience seeing my sister battling this awful disease: surgery + chemo + radiotherapy is torture

Dr. Sanai saved my life, comforted my family and gave us true hope to continue on with an excellent treatment plan. I worked in healthcare for 43 before retiring. I’ve always been enthralled by the development of medical science over the years. Seeing this team work was an absolute privilege. I lived in the Boston area for 20 years and met some world renowned clinicians but none were like Dr. Sanai and his team.

This has to be one of the worst cancers of them all. I mean, they all suck, but this one especially. It's completely relentless. With so many other cancers there are glimmers of hope. There are testaments of people beating, or living for many years with some Stage IV cancers, but with this one it is literally all just doom - most not living much longer than 1-2 years after diagnosis. There are very few people on this Earth that truly deserve this cruel disease. So unfair. I hope one day there is a breakthrough in medical research of glioblastoma, so that future patients can live longer, and hopefully even one day be cured. RIP Ryan - you gave it your best.

Every time I listen to Dr. Sanai motivates me and teaches me something new. It is an honor to be part of his team and his mission to cure GBM.

Great episode Michelle. Dr. Sanai’s drive will be the reason there is a cure for glioblastoma, he and his team are admirable. Keep on keepin on 💪🏽🩶

My mother was diagnosed with glioblastoma on middle of brain 3 years ago we did her sucessful operation in September 2020 then took 2 months of radiotherapy and then chemotherapy for a year Her left side of body got paralised now a month ago 22 april she died. She survived for 3 years and 6 months i hope may god gave her place in heaven

This is a commercial

It took my Mom in one month.

I am so sorry to anyone affected. My daughter's grandmother passed away several years ago from this nasty disease. She had one brain surgery but a short time later it was back.

My grandmother died from Glioblastoma. She died in exact 2 weeks after the detection. Very hard for me to see her die everyday day a little bit more as her functions reduced gradually but surely. She was also in a vegetative state for 10 days before she took her final breath.

Lost my wife of 33 yrs to Glioblastoma. From diagnosis to death was 10 weeks. What a brutal disease.😔

RIP Ryan.

One causitive factor might be tatoo inks.

Perhaps it is genetic or part of old age

Is GBM curable??? please answer

I am Indian My son is suffering from high grade glioma in stage 4 May I eligible for clinical trial And what will be the procedure for that??? Please reply because here is not so much hopes said doctor 🙏

ruclips.net/video/ppAqoCCa0ZE/видео.html

People stay away from black ink tattoos!!! 😣

Thanks for this. I’ve just been diagnosed with a brain tumour and initial radiology scans suspect glioblastoma

Thank you, medical community please continue to fight for brain cancer patients