- Видео 13
- Просмотров 826
My Walk with MG
Добавлен 23 ноя 2020
Hello!
Welcome to My Walk with MG (MWWMG) RUclips Channel. We are the only 501c3 nonprofit organization, based in St. Louis, MO that advocate for Myasthenia Gravis (MG). MG is a rare, chronic, and life-threatening autoimmune disease that interrupts the communication between the muscles and nerves. Because of this, it causes mild to sever fatigue to all voluntary muscles. This creates a health crisis that can lead to hospitalization for immediate treatment.
MWWMG channel will highlight the different lives that are impacted by Myasthenia Gravis. It is very important that you not only read the stories we have printed but seeing the faces and hearing the words can help with understanding MG a little better. You will hear from MG warriors and their MG journeys but also family members and friends and how they feel. We are shaping the world one day at a time through our advocacy work!
Please Subscribe to our channel and share!
Donations are welcomed! paypal.me/MWWMG
Thank you!
Welcome to My Walk with MG (MWWMG) RUclips Channel. We are the only 501c3 nonprofit organization, based in St. Louis, MO that advocate for Myasthenia Gravis (MG). MG is a rare, chronic, and life-threatening autoimmune disease that interrupts the communication between the muscles and nerves. Because of this, it causes mild to sever fatigue to all voluntary muscles. This creates a health crisis that can lead to hospitalization for immediate treatment.
MWWMG channel will highlight the different lives that are impacted by Myasthenia Gravis. It is very important that you not only read the stories we have printed but seeing the faces and hearing the words can help with understanding MG a little better. You will hear from MG warriors and their MG journeys but also family members and friends and how they feel. We are shaping the world one day at a time through our advocacy work!
Please Subscribe to our channel and share!
Donations are welcomed! paypal.me/MWWMG
Thank you!
Lakesha MWWMG Event
The best way to get the inside scoop within the Myasthenia Gravis Community is to hear it from the community itself!
We took a few minutes to chat with Lakesha for our MG Awareness Informational and Fundraiser Event.
Check her out!
We took a few minutes to chat with Lakesha for our MG Awareness Informational and Fundraiser Event.
Check her out!
Просмотров: 9
Видео
Meet Jackson
Просмотров 213 года назад
See that smile?? Jackson is ready to excel this school year!! When you make a donation to My Walk with MG, you help us help keep the Myasthenia Gravis Community in many ways!! We are so grateful to be a blessing to our kiddos with Myasthenia Gravis!! Jackson is one of our #MWWMG Kids to receive a Back 2 School package during our 1st Annual School Supply Drive! Dealing with MG is hard but being ...
HELP US RAISE $4000!!!
Просмотров 263 года назад
GOOD MORNING!! TASHA HERE! THE BEST WAY TO BETTER SERVE THE MYASTHENIA GRAVIS COMMUNITY IS TO GO STRAIGHT TO THE SOURCE…THE MG COMMUNITY! TIME TO SHARE WITH YOU ALL WHAT WE’VE BEEN WORKING ON! CHECK OUT OUR VIDEO!! I HAD THE PLEASURE TO SPEAK WITH SOME AMAZING WOMEN LAST NIGHT TO HELP INCREASE THE MISSION/VISION OF MY WALK WITH MG. WE HAVE DEVELOPED A PROGRAM CALLED “THE CARES PROGRAM” THAT WIL...
MEET ALICIA!
Просмотров 1123 года назад
ALICIA'S BUBBLY PERSONALITY WOULD MAKE ANYONE SMILE. I TRULY ENJOYED SPEAKING WITH HER. TO HEAR HER STORY WOULD MAKE YOUR MOUTH DROP!! THIS IS JUST A TESTIMENT TO WHAT THE MYASTHENIA GRAVIS GOES THROUGH FAR TOO OFTEN. DID I MENTION SHE IS AN ARTIST? ALICIA GAVE US A GLIMPSE OF HER WORK AND LINK TO HER MUSIC! MAKE SURE TO FOLLOW HER FOR MORE UPDATES! open.spotify.com/track/6KKYBnKio14OlO1MRjxiKT...
Meet Michelle!
Просмотров 433 года назад
I REALLY ENJOYED TALKING TO MICHELLE AND GETTING TO KNOW ABOUT HER MYASTHENIA GRAVIS JOURNEY. TO GO YEARS WITH SYMPTOMS AND THEN RUN INTO OBSTACLES TO GET A DIAGNOSIS CAN BE A HEADACHE. SHE KEPT PUSHING THROUGH AND LOOK AT HER NOW!! THANK YOU SO MUCH FOR TAKING THE TIME TO SIT WITH ME AND CHAT!!
Meet Mika!
Просмотров 1903 года назад
Meet Mika! Our very first male interview AND international interview! How awesome is that!! I had the privilege to speak to our talented MG Brother all the way from Denmark! It was so interesting to hear the way healthcare is done verses here in the states. Mika is also one gifted musician! Through his MG journey he continues to bring music to life! Check out our interview! Follow and SUBSCRIBE...
Meet Ticy!
Просмотров 823 года назад
This has got to be one of our longest interviews and I loved every minute of it! Ticy is one of our MG Sisters who has has Myasthenia Gravis since the age of 2. She filled us in on how she was diagnosed and of course we had some big laughs. I appreciate her being so candid and raw with our conversation! Check it out! Subscribe Share!
Meet LaKesha!
Просмотров 1253 года назад
LaKesha and I had a great time during her interview. She gave us a little background to her journey and then we had some great laughs. I am so grateful to come across some awesome Myasthenia Gravis Warriors! Be sure to share!
30 Faces of MG
Просмотров 163 года назад
This was one of our most memorable segments with My Walk with MG. We highlighted 30 wonderful faces within our MG Community so the world could get a glimpse of us! We have a new one in the works!! mywalkwithmg.org
Plasmaphersis Jan 24, 2020
Просмотров 53 года назад
My unexpected hospitalization back in January. I went to get some water, sat down, and out of nowhere I could not breathe in deeply. My breath count was less than 12 blowing out. This time around came 3 years after my last hospital stay. This is a glimpse of the port used for plasmapheresis. I will post a video of what that treatment looks like.
Rituxan Treatment July 22,22019
Просмотров 133 года назад
Showing a glimpse into my Rituxan Treatment Day
Teesh Interview
Просмотров 1793 года назад
Meet Teesh! Our fellow MG Warrior gave us a small dose of her life with Myasthenia Gravis! Check out her video and share!
This was wonderful seeing you! What a Great interview Teesh! Thank you for sharing your story ❤️❤️ MG is such a crappy rare disease to live with.
Thanks for these, myasthenia can make one feel so alone because of how rare it is, so thank you !
It's our pleasure!! Thank you for following us and leaving a comment. There are so many who feel alone and we wanted to make sure everyone in the MG Community knew they weren't. We have more interviews coming in March so be on the look out for those. If you ever need someone to talk to send us a message!
I start mine on January 7th super nervous but excited!
I was like that too my first time. Make sure to take snacks and a small blanket for you nap. Bring a tablet/ipad/laptop for movies. I hope it all goes well for you 🤗 Keep us posted!
I’m so proud of you Lakesha! Thank you so much for your transparency about MG. Continue to stay strong and being a blessing to others!
Isn't she awesome!! I can't wait to meet her!