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Thank you so much for sharing and for your kind words!! This experience challenged us in ways we did not expect, but it's making us stronger. Thank you being here!

Sorry to hear that... How long have you got to go?

@@simplifycancer3150 I got 2 left, one today and one next week. Right at the end of my cycle. I've only had to deal with the 1xBEP, couldnt even imagine the times 3

I'm sorry you had to go through it - I was lucky in going through hospital and that was easier. Did you get scan results after chemo, or still waiting?

So sorry you have to go through this!! But there's every hope that 3xBEP can take care of the tumor. But even it doesn't, RPLND can go really well in case of testicular cancer. I never heard of losing erection after it, but it's true that sometimes (only sometimes) ejaculation works differently, even though you still have sex and orgasm, it's the sperm that doesn't come out. Still, it doesn't happen all of the time and you can have the life you want beyond that!! Please don't lose hope, at the moment sounds like all the options are open, and things are looking great for you!! No need to fear, even though it's scary. What's helpful is trying to get these worries out of yourself - whatever works for you. Writing in your journal, talking to friends about it, making music... But get it out of yourself!! And keep talking to people who are/have been through it whenever you can, it's proof that you're not alone. Listen to my podcast and people whose lives are also touched by cancer - check out simplifycancer.com

Hey brother! I’m from Houston. I’ve actually been diagnosed with Germ cell cancer of the testis. Stage 2 as well. And it may feel a bit confusing the way they explain it. In my case it’s a gray area. I didn’t need chemo before my RPLND surgery which took place January 25th dude I can honestly say, first 2 days is painful, I actually even got placed on an Epidural which is for women that go into labor🤣 but that helped a lot for the pain. Oh and good news! I still get an erection and have full sensitivity and I’m 22! Yes I’m worried I won’t have kids anymore but we have to have Faith in God🙏🏼 please reply so we can stay in touch

And they want me to go through BEP. For 3 cycles. They say it’s to clean up the cancer cells that can’t be seen😐

Good on you! I feel the more people I told, the less of a burden it became for me

@@simplifycancer3150 I just don’t want people to look at me differently, or talk about me. I’m still me, not mr nonuts. Haha.

@@WhitePOWERranger1 Of course, you only want to share it with people you feel comfortable in when you want to! I found it helpful to share it - for my sake, not for anyone else's, and with people I care about I found a new appreciation, and even be able to laugh about it

Thank you, Jill!! Most of all, thank you for being here, and looking out for yourself in this crazy time. So good that you're in remission!!!

If you're doing chemo, you're likely to lose all of your hair, but - it depends. My eyebrows and eye lashes didn't fall out... Main thing - it definitely grows back!!! I just liked my head shaved, it was starting to thin out, so I shave it to this day and love it.

I'm sorry that you're in this crazy place... Hopefully, there is some kind of way to speed up the appointment with your oncologist... Waiting is the worst!! Recently, I was waiting for surgery and my mind was drifting into worry and distraction, and what helped me was daily routine including things that helped me focus on my body, like yoga (just following a great teacher on RUclips), going into nature, writing... What might help you feel focused on things that matter to you?

Totally - it's usually carboplatine or one cycle of BEP to increase the chances of killing off any potential leftover cancer cells! If that is the option your specialist suggests, see what feels like the best decision for you - no one knows you the way that you know yourself!!

One cycle also side effects?

Of course I totally get it! What worries you the most?

@@simplifycancer3150 i think what worried is me getting phewnomia or me getting a infection your video was really helpful thank you very much

No worries!! Good on you for looking out for your health and things that worry you

If you can’t, please don’t despair - sperm is often completely fine after chemo or very likely can go through IVF ICSI process for pregnancy if ever needs be!! Fairly straightforward process so best wishes for your son’s treatment!!

That's pretty fuckin profound. Unironically.

Thank you for being here!!

No worries, thank you for saying thank you!! Hope your son is okay. Feel free to reach out with any questions at all on my email or talk on Zoom my address is joe at simplifycancer dot com

Thank you for sharing!

thank you i am starting BEP week after next as i have to have a lung function test and hearing test next week

Currently undergoing BEP and I feel like the cancer taking me quickly would feel better than how I’m feeling with BEP. But like you said, some things have to be done no matter how hard it is

I have to add some balance to this, I've had a lot of chemo. I've had 3xBEP ~17 years ago, and had 7 more cycles (5xEP then 2xTIP) a couple of years ago. It's fine. I dealt with it fine. Everybody's different. For anyone reading this - take it as it comes.

Thank you for your kind words and looking after yourself in a difficult time!!

Thank you for sharing, Saad, it's made my day!! Hope you're doing good

@@simplifycancer3150 Yes I'm doing better. Waiting for the follow up from my urologist. After that, we will see what the AFP and HCG levels are and then decide the chemo. Biopsy report will be here soon. Is there anyway I can email you or connect with you?

@@saadsethi7159 Glad to hear it!! Yes of course - email me on joe at simplifycancer dot com

Thank you for sharing - and glad to hear you banked the sperm

James is that you 🙄

@@zinebakrouh6746 is what me?

Very likely - I lost mine around week 4. They do grow back with time - but I liked it so much that I am shaving my head still...

@Simplify Cancer What stage were you, and was it seminoma or non seminoma?

@@alvinromo Seminoma stage 2. What about you?

@Joe Bakhmoutski at first, I was seminoma stage 1. But after surveillance for over a year, they found some in the lymph nodes. So now I'm seminoma stage 2 like you. I'm staying positive because the odds are in my favor. I'm sure it's over 90 percent curable. Or even more than that. Thanks for this video. It encourages other men to know their odds and remain positive.

@@simplifycancer3150 were you cured with the first chemo procedure? Also, what chemo did you take, and how many weeks?

Sorry about that!! Should hopefully be fixed now...

Thanks, Peter, great seeing you here! Hope you're doing alright. I'd say it's important to take things easy for the duration of the treatment whether it's one cycle or three. To be honest, I tried to minimise being out and about for a couple of weeks after treatment as well - but I wasn't feeling that great after three rounds

Thank you for being here!! Hope you're doing alright. If you ever feel like a chat, give me a shout!

Great hearing from you!! Thank you for the comment and all the best for the chemo, man

Hope all is well

@@I_Love_beanie_boos thanks!! All going really well now :)

That's based what I know, but of course, do your own research!

No worries!! Thank you for being here

Good on you!! Take it easy though - I stretched myself too far trying to do too much

@@simplifycancer3150 thank you for the advice. The video helped put me at ease :) I'm not sure if you covered a picc line in the video but I would highly recommend it

@@elliotclarke5149 Good point - I would have, but I didn't get it and as a result got tons of cannulas... Nice move Elliot 👍

Thanks, Corey!! Hope you're ok - 2nd time is way harder I think. Give me a shout if you ever want to chat!!

Thank you for your comment, Corey!! All the best for your BEP - in my experience, it really helps to manage your energy and do more in the morning when you are doing chemo and not push yourself too hard as the day drags on when it comes to visitors, being active etc. Although doing walks helped me a lot too!! Take care

When do you start my friend? Or have you started already?

That's tough, Sue! I only know about testicular cancer side of things and I understand that those who could not create testosterone from having both testicles removed could have sex from using a testosterone gel or regular injection.

@@simplifycancer3150 He had testosterone injections but still could not.

@@suebaumgardner4154 Sorry Sue - I was only sharing what I know about testicular cancer

@@suebaumgardner4154 u r husband can do sex without testis??

​@@suebaumgardner4154then is this info wrong????please tel

it's 9 weeks, but breaks are built into the cycles!

No worries!! Thank you for your comment, I really appreciate it - so glad to be able to help in some small way. Take care!

Can confirm, plumbing works.

Sorry to hear you have to go through it!! The chances of getting it in the second testicle are very slim, but in your follow-ups they should be checking it anyway - which would be often enough for now, probably every three months? Hopefully it is confined to the testicle, but it's always good to keep following up with your urologist and ask them any questions that might be bothering you - it's what they are there for ;-))

@@simplifycancer3150 thanks for the quick response , I hope it is too but I will wait to see what the Oncologist tells me and follow through any treatment they suggest is best for me 😄🙏🏽

@@ul4975 No worries - they might offer you a prophylactic round of chemo! Take care, man

One question i forgot to ask lol , after the oriechtomy is it normal to feel the sac where the damaged testicle was removed from like hard or very stiff ? I feel my left side of the sac now is like a ball hard type . Urologist said it was normal but just wanted to know if this was experienced from your side as well?

​@@ul4975 Yes, definitely, I was freaking out until urologist told me it's blood that collects into hard mass to dissolve later... No worries it goes away!!

Awesome, good on you!! Thank you for your kind words

I’m 21 and also just got diagnosed but caught it early. I start my Chemo on Monday. I hope all is well

@@RandomPerson18579 how did it go?

No worries, and hope the treatment goes well!! Please rest up and don't push yourself too hard. If you have any questions at all, I'm here!!

Hey man I hope all is well. I also start BEP on Monday.

@@RandomPerson18579 Good luck, i survived. Im cancer free now, but the chemocqas and still is tough

​@@Fiat_176dude how are u doing i had my orchidectomy last week and it spread to my lymph nodes and nearby abdomen tissue they removed a big infected lymph and starting chemo next week please are u ok?

@@ruxzy.7190 Yeah I’m doing good 👍 Good luck, you have to fight for your life. The next month will suck. But after that you will slowly begin to be strong again!

No worries, man!! The chances of getting it again as you said are very slim, but I have spoken to guys who had it in both, and was relieved to learn that even in that unlikely case, you can take regular testosterone gel or injection so the sex is still pretty much the same!

@@simplifycancer3150 its all good to know.

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