![Seizing the Day](/img/default-banner.jpg)
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Seizing the Day
Новая Зеландия
Добавлен 15 дек 2016
My name is Chloe and I'm a primary school teacher in Aotearoa, New Zealand. My husband and I met while both in Teacher's College in Christchurch and we're expecting a little boy in 2020. I have been dealing with epilepsy for almost 10 years and it has had a huge impact on my life.
Having been diagnosed as a young adult, I went through a range of emotions and it took a while to process my new normal. Over the years, I have learnt strategies to deal with my condition that make it easier to function and I want to share these with people who may be facing the same situation.
Now, being an expectant mama, I have had to learn how a whole new set of strategies to keep not only myself but my baby safe.
Now let's connect! I have always made myself open to helping others understand and navigate the journey of epilepsy. Please get in contact if you have a topic you'd like me to cover, to share your own story, or to simply connect. I'd love to hear from you!
Having been diagnosed as a young adult, I went through a range of emotions and it took a while to process my new normal. Over the years, I have learnt strategies to deal with my condition that make it easier to function and I want to share these with people who may be facing the same situation.
Now, being an expectant mama, I have had to learn how a whole new set of strategies to keep not only myself but my baby safe.
Now let's connect! I have always made myself open to helping others understand and navigate the journey of epilepsy. Please get in contact if you have a topic you'd like me to cover, to share your own story, or to simply connect. I'd love to hear from you!
WHERE I'VE BEEN | Introducing Baby Charlie!
Hey guys, I've been away for a little while for a cute, cuddly (and noisy!) reason! Meet Baby Charlie and find out some of the things I have planned for this channel.
If you haven't been following along our journey, my name is Chloé and I have epilepsy. I live in New Zealand where I work as a primary school teacher with my husband, Mark who is also a teacher. Our son, Charlie, was born at the beginning of March. This is my journey navigating epilepsy with the pressures of teaching, pregnancy and motherhood.
Find me on social media:
Facebook: Seizing-the-...
Instagram: www.instagram.com
Pinterest: www.pinterest.nz/chloedenisem...
Find out more about my story through my blog: www...
If you haven't been following along our journey, my name is Chloé and I have epilepsy. I live in New Zealand where I work as a primary school teacher with my husband, Mark who is also a teacher. Our son, Charlie, was born at the beginning of March. This is my journey navigating epilepsy with the pressures of teaching, pregnancy and motherhood.
Find me on social media:
Facebook: Seizing-the-...
Instagram: www.instagram.com
Pinterest: www.pinterest.nz/chloedenisem...
Find out more about my story through my blog: www...
Просмотров: 1 686
Видео
TEACHING WITH EPILEPSY| Telling Your Students About Epilepsy #epilepsyday2020
Просмотров 1404 года назад
Welcome back to my channel! In this video, I go through the ways that I teach my students about epilepsy, and explain my condition to them. I use the following books with all age groups to teach them more about epilepsy and to engage them in a non-threatening way: Ben's Buddies: ewct.org.nz/product/bens-buddies-epilepsy-childrens-story-book/ Ariana and Jack: ewct.org.nz/product/ariana-jack-pict...
35 WEEK PREGNANCY UPDATE | *Emotional* Epilepsy, Birth Plan, Anxiety
Просмотров 5214 года назад
We've made it to 35 weeks, which is huge! We've made a few plans with our birth team in regards to my epilepsy. What did yours recommend if you have epilepsy? . . . If you haven't been following along our journey, my name is Chloé and I have epilepsy. I live in New Zealand where I work as a primary school teacher with my husband, Mark who is also a teacher. We are expecting a baby in early Marc...
WHAT DO MY SEIZURES FEEL LIKE?| Trying to explain what it feels like to have a seizure
Просмотров 7 тыс.4 года назад
It's hard to explain exactly what it feels like to have a seizure, and it feels different to each person. I've tried my best to explain what it feels like when I have the two types of seizures I have, leave a comment below about what it feels like for you! If you are new to my channel, my name is Chloé and I have epilepsy. I live in New Zealand where I work as a primary school teacher with my h...
TEACHING WITH EPILEPSY- 5 Tips on Telling Your Colleagues
Просмотров 1564 года назад
My name is Chloé and I have epilepsy. I live in New Zealand where I work as a primary school teacher with my husband, Mark who is also a teacher. We are expecting a baby in early March 2020. This is my journey navigating epilepsy with the pressures of teaching, pregnancy and motherhood. I've had to deal with talking about my condition since Teacher's College. In this video, I discuss a little a...
10 THINGS PEOPLE WITH EPILEPSY WANT YOU TO KNOW
Просмотров 2844 года назад
There's a lot of information out there about epilepsy, but what do people who actually have this condition want you to know? Find out here.Thanks to my epilepsy tribe for contributing to this video! Check out my blog to read their responses: www.seizingtheday.net If you want to research more about epilepsy, check out these websites: epilepsy.org.nz/ ewct.org.nz/ epilepsyfoundation.org.nz/ My na...
PREGNANCY AND EPILEPSY-Our experience so far
Просмотров 1,5 тыс.4 года назад
Welcome to my channel! My name is Chloé and I have epilepsy. I live in New Zealand where I work as a primary school teacher with my husband, Mark who is also a teacher. We are expecting a baby in early March 2020. This is my journey navigating epilepsy with the pressures of teaching, pregnancy and motherhood. In this video, I discuss our experience so far dealing with pregnancy and epilepsy. Fi...
SEIZING THE DAY-Life with Epilepsy,Pregnancy,Teaching
Просмотров 1294 года назад
Welcome to my channel! My name is Chloé and I have epilepsy. I live in New Zealand where I work as a primary school teacher with my husband, Mark who is also a teacher. We are expecting a baby in early March 2020. This is my journey navigating epilepsy with the pressures of teaching, pregnancy and motherhood. Find me on social media: Facebook: Seizing-the-Day-100446058152936/ Insta...
See your lovely baby
U make my day, honestly
It really help me a lot, pregnant at 49
Good video
Hi, may i ask you something maybe is sound rude but is not my intention all i want to know is just out of curiosity. Does your kid have epilepsy too ? And how it works ? Thank you so much 😊
THANK YOU for this video. I needed this.
When possible, I’d love to see any suggestions you have for epileptic mothers/parents. I’m currently pregnant within the second trimester mark. Your past few videos really did help me. Thank! Hope you & your family are doing well 😊
What drugs did you use during pregnancy
This is very encouraging. I'm pregnant with epilepsy currently and its been a battle this last trimester. Your pregnancy videos bring me peace and comfort!
Good Job!!😁There is no person that is a burden. I started my epilepsy when I was 13, Now at 57 still have it, but have learned my triggers, and you mentioned many good points. I really appreciate that. Thank you for your efforts.
I have had epilepsy and sezisures since 2017. Now I am almost 69 years old. I get those auras and know when it happens and I say" I feel weird, really weird. My adult daughters definitely know what I mean...
I've been doing some research and it seems after your brain has that electrical storm it takes time to reset. Just like you unplug your cable box and plug it back in. It takes several minutes for the time to come back on and everything to reset so that your can use it again. Please..be patient with yourself. Your brain just had an electrical storm! Does it help if someone keep s reassuring you that you're alright, don't try to talk yet, just relax, give your brain a few minutes to reset?
Mine are like whenever I get complex partial ones it's like I am drawn into things like things seem to appear so much bigger around me, like words in a book etc. Magnifying effect sort of and horrible deja vu feeling from I don't know which past event like literally all the ambience around me changes and I get locked in that feeling and go blank and can't remember anything for quite some time later..
My experience is worse ❤
Thank you for sharing, I been dealing with seizures for years and they are very stressful for me. I hope you are doing well
I had a car wreck 3 years ago and had a seizure after. Just last Friday at work I was having Deja vu (aura) feeling and before I left I fell to the ground apparently and had a seizure. I apparently asked for medicine but I don’t even remember that and I didn’t have a headache so idk why I asked for medicine. They said I was flaming at the mouth and not jerking violently just twitching. Not even sure about all this and what kind of seizure it was or if it’s epilepsy. I had another on the way to the hospital that day as well. But so happy this popped up on my recommended even tho it’s 3 years later. Thanks so much for explaining how you feel during them
Good bless you, can you please share what amount of dosage of folic acid you are taking
Congratulations 🎉 Soooo happy for you 💕
the kind of feeling i get before I have a seizure is like a tingling sensation in my entire body it's like by body sunddenly change and my heart rate increases and starts beating fast its a warning sign telling me a seizure is about to happen and i can't move
Really inspiring sis. How many times do you have seizures during pregnancy?
Wow congrats....
Wow congrats....
So happy for you ❤❤❤
Congrats ! Yah bless you all ❤❤❤❤❤❤
Thank you so much for sharing this amazing journey with us! Helped us out a lot. I truly appreciate it and wish you and your loved ones the best. Yah bless you all ❤❤❤❤ please repent Jesus is returning soon ❤❤❤❤
Awesome video really helps me feel better 🙂
A belated congrats to you :)
I have to take meds for tonic clonic seizures. My heart goes out to you
I can understand ur condition and I pray u get at best soon ...my sister also had epilepsy.. so I wantd to know. Hw it feels 😭she is no more now
I've had seizures since I was seven years old. I am sixty now. I haven't had a seizure in over thirty years but I do have auras maybe once a month. But that didn't stop my job from trying to fire me after eighteen years when upper management found out I had epilepsy. They tried to tell me that I was unfit for duty. This is the only time in fifty three years that I have felt the sting of prejudice because of my condition.
I have just developed the same seizures at the age of 40 years old and they cannot find the problem. Same thing I get a warning sign I almost feel like I'm going through deja vu. Then it takes me about a half hour to come around
For me because I am a person who gets seizures I feel tension in the back of my head so that’s how I know I’m gonna get a seizure but I’m watching this video to see if other people with Seizures have the same experience or feeling that I do when I get seizures also this is a question for the people that have seizures do you guys hallucinate when having seizures because I do hallucinate
Thanks for being so descriptive in your explanation of how you feel when you have seizures. I work in a special needs school with children who have seizures who are non-verbal so it's really good to have maybe a little inkling of how they're feeling during after and before their seizures. Thank you
I was unconscious went blue pail and my lips foam in my mouth my mum had to call me my but I can’t respond
I have several different kinds of seizures. It feels like the list keep growing Nocturnal visual : I wake to a "vision" of colors or a pattern or spider imprinted on the ceiling It doesn't matter how dark it is. Right before I wake up it feels like there is something telling me to get away from this thing. I always scream, but the voice doesn't feel like mine. It feels far away. But, my husband can hear me everytime. As I come out of it, the imprint slowly fades. I also have distortion of body parts, such as a abnormally small arm. These always terrify me, but sometimes I can laugh about it later. Nocturnal complex partial? : I awake to my arm doing a writing motion and I can't make it stop. it lasts only a few seconds I feel my body tremble and I feel like I am being pulled down and then I go to sleep. No one has ever told me that they saw me have a tonic clonic with these. Focal Aware: Awful feelings of dread and a rollercoaster feeling in my stomach. One side of my body feels like it is trembling and it sometimes stays weaker on that side for hours. I also get confusion and dizziness and a "whoosh" feeling in my head. Sometimes these are preceded by a ringing in my ear or a feeling that something is "off" or I am forgetting something. Many times after these, my speech is slow and sometimes it is hard to remember words and I sometimes slur. Myoclonic: Starts with a sad feeling and then my body seems to trembling on one side like the engine of a car. The trembling gets stronger until my left arm doubles back from the shoulder blade and jerks forward as if I were going to throw a baseball. If I don't sit on my hands, my arms will flail. it can be very painful and most of the time happens in clusters. I am going into so much detail because maybe someone can relate. I have yet to find anyone who can relate to the nocturnal seizures I have. They sound crazy. Our brains can do weird things depending on which part the seizure occurs.
Thank you!
I'm trying to find someone explaining what Absence seizures feel like because I think I might be having them but I'm not sure because there's not much info on them other than spacing out and small movement. I have ADHD too but these feel different from my normal zone outs. These last like 20 seconds(i think idk I don't time it cause it happens random) my eyes go wide and everything gets bright and I feel like I can't move. I can still kinda think and I am conscious and aware and I can move slowly if I put in effort. Idk man.
The only way to know for sure is to see a neurologist and do an EEG
Thank you so much for your videos. I’ve just had my first positive test after 8 years trying, IUI and IVF and I’m epileptic. I’m really worried because my seizures haven’t been properly controlled since I came off valproate before we started treatment. It’s comforting to see another woman who’s gone through this, and to know I’m not alone. You are so brave to have battled through all this. Congratulations on your beautiful son! A question for you: I think I could probably convince my employer to sign me off work quite early, and could take some unpaid leave before that, maybe from 10 weeks. I feel guilty doing it since in theory there’s nothing wrong with me, but I’m just frightened of having a seizure - I had a lot while going through IVF. And at the same time I feel like it’s tempting fate - if I take leave, will the universe say “screw you, idiot” and take the baby away? (I know that’s not logical but maybe you understand). Did you consider stopping work during pregnancy? Was it an option for you?
Hi, congratulations! I completely understand, I had a lot of anxiety throughout my pregnancy. For me, it was so worth taking leave early as it help ease the stress of having a seizure at work, and allowed me to rest before having bubs.
Thank you so much for this video!
I’m struggling with epilepsy. Been doing well on Keppra. How did your birth go? Did you have C-section or vaginal birth?
I totally no how u feel I have epilepsy as well. An have gone 2 years seizure free. / to now I have had 2 in a spare off a week & both happened while I was at work An there have being full seizures.
Awesome having you here to help men like me in situations like this who have pregnant partners with epilepsy Her Signs are her eyes start twitching headaches then the seizure takes off
God bless you and your family Thank you very much My partner is 33 weeks pregnant had a seizure today while I was out in the yard working walked in the room to find her on the ground with out a clue or inkling of what happened it destroyed me today to see that. I'm always bye her side and for me not to be their cut me up badly today.any man will tell you just looking for answers and help please. Seen doctors specialist and all they have said is it's going to be ok baby's fine
It’s comforting to hear that you had seizures while you were pregnant and the baby was okay. I’m so sorry that you had to go through something so traumatic. What a blessing your boy is!!
I love the stories of waking up drawn on. Gotta find ways to cope. :)
I've had epilepsy for 3 years. I'm 15 now, so I've had it since I was 12. I have tonic clonics and absences. Tonic Clonic: I don't normally get an aura, but this is what I feel like when I do have one. My vision will go in and out of focus. I'll have trouble paying attention. Sometimes I'll see colours floating across the sky, sometimes everything will turn into zigzags. Sometimes I'll feel really euphoric. Sometimes it's like a sinking feeling in my stomach, while my head is being pulled upwards. My speech will slur. I'll get a weird taste in my mouth, or I'll have a really weird scent in my nose. It feels as though my whole body is being dragged down. The next thing I know, I'm on the floor. I'm so disorientated. I don't even remember who I am, how old I am, my birthday, just easy things that I should definitely know. I can't speak. Just...EVERYTHING HURTS. I can't move. I'm so uncooperative. Sometimes I'll feel really sick, sometimes I'll be really hungry. I can't really eat, but it depends how badly I've bitten my tongue. I have a migraine. I'm exhausted and all I want to do is sleep. I'll be really dizzy and can't stand up or walk straight. Absence: Easily mistaken for daydreaming. It's like a blank stare. It feels as though someone has pressed the pause button and skipped a scene. It's unnerving. It makes classes a nightmare because I miss crucial pieces of information. Sometimes, I'm partially aware. Everything sounds like an echo/when you're at a pool and you go underwater. It feels kind of peaceful, like a dream. My vision goes blurry. I've got told off for not paying attention in class because of these, but whatever.
That's really interesting! Crazy how it effects everyone a little differently. Thanks for sharing 💜
Thank you for sharing. Please drop the the music. It's very distracting when we are trying focus on what you are saying. Take care.
May God continue to bless and protect, you, your husband, and your baby. Amen and God Bless.🙏🏽❤️🙏🏽❤️
We always say seize the day! My son and I have Epilepsy. Love the movie.
great video!