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It’s awful I’m getting scared to eat aha drs aren’t helping me out at all

Have you ever had to go to the emergency room for seizures how long do they last

Girl! The last pics, where you have regained weight & have such a beautiful smile SENT ME!!! I have pics where i was in the same need & finally got my port at 85 lbs!. They ignored me for 6 months as well! So beautiful to see you really living again!!!

You were zooming

I am so happy your husband did that for you, that is so sweet 🥹🥹🖤🖤

So sorry found out I got it in June 2023❤

#chronicillness #rarediseaselife

Don’t forget to subscribe and follow me on my journey battling A Rare Disease I’m just an ordinary girl, living an extraordinary life. ❤

#dayatthezoo #tigersupclose

Don’t forget to subscribe and follow me on my journey battling A Rare Disease I’m just an ordinary girl, living an extraordinary life. ❤

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#weddingguests #weddings #electricwheelchair

Don’t forget to subscribe and follow me on my journey battling A Rare Disease I’m just an ordinary girl, living an extraordinary life. ❤

I know that meant so much. I'm balling my eyes out right now. I'm not married, but if I ever get the opportunity, my dad won't be there to walk me down the aisle. Love and miss you, Dad ❤

#bridalflowers #missyou

Don’t forget to subscribe and follow me on my journey battling A Rare Disease I’m just an ordinary girl, living an extraordinary life. ❤

❤❤❤

#feedingtubeawarenessweek

Don’t forget to subscribe and follow me on my journey battling A Rare Disease I’m just an ordinary girl, living an extraordinary life. ❤

I had a nurse tell me it was such a shame I was in a wheelchair at 21 last year when I was at a rheumatology appointment. A couple weeks ago me and my bf went out to celebrate my insurance approving a custom chair. It’s just a good idea not to comment on mobility aids if you don’t know how the person using them feels about it 😅 my wheelchair lets me go places I’ve never been able to properly enjoy like the zoo.

#therapydog #sandypaws

Don’t forget to subscribe and follow me on my journey battling A Rare Disease I’m just an ordinary girl, living an extraordinary life. ❤

#fromtheheart #maidofhonour

Don’t forget to subscribe and follow me on my journey battling A Rare Disease I’m just an ordinary girl, living an extraordinary life. ❤

#therapydog #seizuredog #carersareheroes

Don’t forget to subscribe and follow me on my journey battling A Rare Disease I’m just an ordinary girl, living an extraordinary life. ❤

As someone also with a physical disability, I think where the problem lies is blue badges are given to people who say they are depressed or say they can't walk for it. The disabled bay was made to help wheelchair users have more space get out safely and tbh I think unless you use an aid then you shouldn't be getting a blue badge

You have a good one there . Congratulations to you both ❤

beautiful 🥹

#interabledcouple #disabilityawareness

Don’t forget to subscribe and follow me on my journey battling A Rare Disease I’m just an ordinary girl, living an extraordinary life. ❤

#christmascrafts #starlightstring

Don’t forget to subscribe and follow me on my journey battling A Rare Disease I’m just an ordinary girl, living an extraordinary life. ❤

❤❤❤

Happy christmas!!❤❤❤❤🎉

❤❤❤😂

#foxredlabrador #christmasjumper

Don’t forget to subscribe and follow me on my journey battling A Rare Disease I’m just an ordinary girl, living an extraordinary life. ❤

#accessforall #accessiskey

Don’t forget to subscribe and follow me on my journey battling A Rare Disease I’m just an ordinary girl, living an extraordinary life. ❤

#disabilityadvocate #christmas

Don’t forget to subscribe and follow me on my journey battling A Rare Disease I’m just an ordinary girl, living an extraordinary life. ❤

Don’t forget to subscribe and follow me on my journey battling A Rare Disease I’m just an ordinary girl, living an extraordinary life. ❤

#rarediseaseadvocate #disabilityadvocate

Don’t forget to subscribe and follow me on my journey battling A Rare Disease I’m just an ordinary girl, living an extraordinary life. ❤

#wheelchairaccessible #disabilityinclusion

Don’t forget to subscribe and follow me on my journey battling A Rare Disease I’m just an ordinary girl, living an extraordinary life. ❤

#communitychoir #bostonteaparty

Don’t forget to subscribe and follow me on my journey battling A Rare Disease I’m just an ordinary girl, living an extraordinary life. ❤

If you cut the bottom rather than the top they last longer also vaseline along the cuts keep it longer