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The RARE Talks series are videos where individuals can talk about issues and situations within the rare disease space to help raise awareness for a specific disease. In this video, Chelsea continues speaking to Anna and Linseigh who both live with #NecrotisingEnterocolitis (NEC).

My life, my genetics is a project by the RARE Youth Revolution team to provide information about genetics more accessible to the youth audience. Those living with genetic conditions often undergo genetic testing - but do they really know what it involves? Follow Katie around Illumina Laboratory in this video, where we explain and show the process of a genetic test.

The RARE Talks series are videos where individuals can talk about issues and situations within the rare disease space to help raise awareness for a specific disease. In this video, Chelsea speaks to Maxwell and Ross who both live with spinal muscular atrophy.

The RARE Talks series are videos where individuals can talk about issues and situations within the rare disease space to help raise awareness for a specific disease. In this video, Katie and Esther speaks to Eddison and Richard who both live with XP!

The RARE Talks series are videos where individuals can talk about issues and situations within the rare disease space to help raise awareness for a specific disease. In this video, Chelsea speaks to Everett and Emmy who both live with Bardet-Biedl Syndrome .

RARETalks - Cavernoma

My life, my Genetics: newborn screening

My life, my genetics: prenatal screening

My life, my genetics: family planning

My life, my genetics: genetic counselling

My life, my Genetics: genetic inheritance

Five in Ten: An interview with Carly about Huntington's Disease

RARETalks - Huntington's disease

RARETalks - Cystinosis

BPSU Symposium - Engaging young people in healthcare

RARETalks - X-linked Ichthyosis

Personal Stories Series - Eddison

Personal Stories Series - Katrina

Personal Stories Series - Amelia

Personal Stories Series - Barney

Personal Stories Series - Zainab

RARETalks - Lupus

Illuminating RARE Youth Talent Internship Programme

Personal stories Series - Aoife

Personal Story Series - Joe

Personal Stories Series - Katie

RARETalks - Ehlers Danlos Syndrome (EDS)

Personal Stories Series - Chelsea

#RAREfest22 Rare Quiz and Mythbusters