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Guess I won the lottery here, with masking ASD + ADD + Fibromyalgia.

I don't understand why plasmapheresis isn't a treatment to reduce antibody load

Have you tried Ayurveda? Iam going through a similar branch of this disease called Rheumatoid Arthritis and Ayurveda explains what causes all these diseases. Both RA and fibromyalgia are vata diseases and while i may not be cured, iam not taking any allopathic medication. I totally manage it with few ayurvedic medicines and taking particular care of my diet. It has led me a pain free life from past two years.

The only thing that helps me is taking hydrocodone. I know they say that’s contraindicated but it works. Usually 1/day by lunchtime to get me through work day. 🤷‍♀️

what when cbt an dbt doesnt work also when your gluten free and pain doesnt change and i do not take meds for pain as they make me worst as i react badly being a autistic adult

I'm relieved to find out that the mediterranean diet is good for fibromyalgia because I also have high cholesterol. I can feed two birthing with one whole grain lol

I've eliminated everything in an attack to improve my fibromyalgia. The only thing that's helped me was giving up excessive alcohol. I had a drinking problem and my fibromyalgia was AWFUL. Now if I drink an occasional drink and I mean one actual serving, it doesn't make me flare up.

I used to skip breakfast. My digestion got really messed up. Now if I eat breakfast and quit at 2 I'm fine. That's with any old coffee

Inflammation is root cause of all disease.. research methylyn blue💞

Are leafy greens good source of magnesium?

I have tried many of those meloxicam to be the most helpful however I'm concerned about long-term use on gut biome

He’s a specialist but can’t speak about his specialty and has to read it all (badly)? Not helpful or credible.

I am in pain with this fibromyalgia especially when it gets cold

What you’re saying is so important but you talk very fast and English is not my native language. I would really like to share your message with people around me but I think they will find it even more difficult than I do to keep up with how fast you are talking. Is there somewhere I can find something else, perhaps something you wrote, that sums up what you know? I think I will try to find your book, but I find it to much to ask the ones I know to read a book. At least a teaser would or an overall idea could make it easier. I find it very very useful and eye opening what you are telling 🫶🏻

I've been told for years that my ligaments and muscles don't feel right. Lumps and grainy. Every time I get a remedial massage. 😞

I received my DNA sequencing back and am overwhelmed by the data. No EDS, but so much more.

You should also find a alternative to midfullness some of us like me cant do it because of aphantasia breath work is handy but doesnt always help

I’m a Retired registered nurse with fibromyalgia/chronic fatigue/ME Sending love from Newcastle and Wales ❤️💜❤️ The Best Is Yet to Come! ❤️💜❤️🕊️🙏🌎

Are you able to do a live on help with Healthcare and medications assistance?

I suffer from headaches every day, but I recently get extreme, extra headaches when barometric pressure changes. Changes in season exacerbate my fibro symptoms too. A bit tough to navigate daily life😮. It's nice to not feel alone. Hi from South Africa ❤

Does this cause intense total body muscle spasms for hours?

I was diagnosed with fibromyalgia 6 years ago at Mayo Rochester. I looking for a full symptoms list, specifically are full body muscle spasms a symptom of fibromyalgia? Thank you

Hope you feel better soon, it's tough to get COVID. Bless you 🙏🏻

I would like to see info regarding stress management in extreme situations like grief and addressing the fatigue that plagues my everyday. There is a lot addressing pain management but I don’t find much addressing fatigue. I know the sleep patterns are an issue but I have managed to get an average of 85% sleep quality but the fatigue continues.

Pain management

Im from the East Coast. Who can I contact from my area to help?

Replay. I suffer in constant pain. WHY haven't someone found something that works?

Soooo many symptoms 😮 Soooo few answers 😢 I am tired, worn down by all the 'trial & errors' over the past 20yrs. In the beginning I was told it was just in my mind? Well...seems to me it TRULY IS- BUT NOT FAKE. I have tried so many NEW meds/therapies- where side effects made me sick(er) or half crazy. TWO TREATMENTS I believe would benefit me: massages and accupunture. But wait... INSURANCE doesn't cover them because they are considered LUXURIES, not necessary 🥺😭🤬 Damn fibromyalgia!!!!

Melissa, I am creating a blog and would like to use your videos (embed) to help describe the science side of fibromyalgia to my readers. I know I can do it without your permission, but I'd like to have your permission.

This is why its linked to autism

The Fibromyalgia Syndrome is of disc origin. The discs in the lower cervical spine can be palpated anteriorly.

Yes! The weather is really bad on me. I can tell. I look to see what the barometer pressure is. I am in NC. I have it terrible for years. I get migraines again. I also have arthritis really bad. I am exhausted.

Massively. I always have Prednisone on hand in December.

I have terrible eating habits

I love crafting . It relaxes me

I have learned so much from my psychologist how to avoid stressful people

Hello 👋 Melissa and guest

I’m wondering about the comment that we have extra collagen in the muscles. Wondering if taking extra collagen for a 64 year old body is not a good idea if the person has Fibro.

Have missed your talks hope this is the start of you coming back

So much helpful information, thank you so much for sharing. I do have question, you mentioned inflammation associated with fibromyalgia. Is there a certain diet and or vitamins that can be taken to help ease the inflammation?😊

The link to SPD griwing up and fybromyalgia later via trigger is high niw diagnosed autism adhd heds

💜💜💜

I am struggling with food resources. It's hard to get the doctor's to fill out the forms for benefits/assistance.

This does not surprise me. That poor child and those poor parents.

Thank you! Can you provide the details needed to locate the studies in the show notes?

I have had constant tingling and burning in my feet and ankles for the last year, EMG shows a normal test. Can you still have small fiber neuropathy and have a normal EMG/nerve test?

Never heard of internalized ableism

hello Anna. you have described with so much clarity what is happening within the entire body with fibromyalgia. all you have described is so dead on. i love the pictures and levels. i will not go into how i have this but what i have been learning over so much of my life is the how, why what and how i can adapt daily with its fluctuations as you described. i have as you have experienced injuries milder to more severe. there is a connection between injuries of any type and nerve damage, and autoimmune disorders. i developed type 2 diabetes, thyroid disorder, high blood pressure, high cholesterol at the same time. i have learned to take charge of my own experience as doctors have had no knowledge or belief in what they were being told by people living it. you have so wonderfully described what is happening with nerve pain that is chronic and how the nervous system is responding to even the simplest touch. overstimulated, sensitive, increasing the pain and with it fatigue. i was asked by my family doctor to go to see a doctor in a teaching research school here in london ontario. what i have spoken of will be used to teach health professionals to understand what you are teaching here but not as advanced yet. it was a great experience to be able to use my life to reach others to help. i was also sent to a young medical student wanting to specialize in this exact subject along with chronic pain and the nervous system, vs short lived pain. i live in a city that has a research hospital and so many specialists here. just as you i continue to practice things that bring me joy in ways that allow me to do them in a modified way. i am conscious of how i am thinking and reacting so i can maintain a more positive outlook toward all this. i am learning more from you that i can put into practice. i will recommend your youtube to others to study as i meet other people (mostly women, although i have occasionally met men). you are greatly teaching and spreading knowledge without which chronic pain can cripple lives. i have a small base in which i can directly encourage and support others. it is perfect for what i choose to do so that i can manage daily changes, fatigue and pain. thanks so much for what you are doing. with love and encouragement.. nancy

Thank you so much! Wishing you the best! Fibro, Hydrocephalus, Lyme’s disease. Drs don’t think there’s a need to fest for adrenal fatigue. Oh and lots of inflammation. BTW HI from USA.