Sarcoma Patient Advocacy Global Network SPAGN
Sarcoma Patient Advocacy Global Network SPAGN
  • Видео 146
  • Просмотров 16 150
Tools Anyone Can Use: Become a Social Media Superhero
Creating impactful social media content is essential for patient advocacy groups, but it can often feel like a time-consuming challenge. SPAGN, in collaboration with New Horizons GIST, hosted a special webinar to empower advocates with tools that simplify and enhance the content creation process.
📅 When: December 6th, 2024
🕕 Time: 6 PM CET / 12 PM ET
🎤 Speaker: Cory M. Archibald
This webinar, "Tools Anyone Can Use: Become a Social Media Superhero", introduces practical and affordable tools to help you create polished graphics, engaging videos, and powerful written content. Whether you’re new to content creation or already experienced, you’ll find valuable insights to make your work easier and...
Просмотров: 18

Видео

Sarcomunicándonos América Latina: Yellow July
Просмотров 434 месяца назад
Visit www.sarcoma-patients.org/ to learn more about SPAGN's work to unite the sarcoma community around the globe. Acompáñenos en un seminario web interesante y perspicaz sobre el tema de la travesía del sarcoma, titulado «Julio amarillo». En este evento especial, una valiente paciente y psicóloga y dos prestigiosos médicos se reunirán para compartir sus experiencias y conocimientos sobre los re...
2024 SPAGN Annual Conference
Просмотров 976 месяцев назад
Recapping our annual conference held in Rome, Italy!
Celebrating 15 Years of SPAGN
Просмотров 336 месяцев назад
Looking back on our first 15 years and the possibilities ahead! Photo Credits: SPAGN, Uli Deck
Sarcomunicándonos AMÉRICA LATINA Webinar - Finding the right sarcoma specialist
Просмотров 646 месяцев назад
Spanish Visite www.sarcoma-patients.org/ para obtener más información sobre el trabajo de SPAGN para unir a la comunidad del sarcoma en todo el mundo. Nuestro segundo seminario web para pacientes con sarcoma, cuidadores y defensores de pacientes de Centroamérica y Sudamérica, impartido en español y portugués por expertos en sarcoma de Costa Rica y Brasil. Hablamos sobre "Encontrar el especialis...
SPAGN Conference 2024: Artificial Intelligence in Sarcomas
Просмотров 507 месяцев назад
How Artificial Intelligence is changing sarcoma research and supporting patient advocacy work.
SPAGN Conference 2024: Advocacy in Action Awards
Просмотров 607 месяцев назад
Sharing best practices. Presentations of selected projects and winners of the 2023-2024 Advocacy in Action Awards.
SPAGN Conference 2024: Sarcoma Intelligent Specialist Networks
Просмотров 367 месяцев назад
Focus on Sarcoma Management and Care outside the US and Europe.
SPAGN Conference 2024: TGCT - Panel Discussion
Просмотров 1247 месяцев назад
TGCT Track Part 5
SPAGN Conference 2024: TGCT - Systemic Therapy
Просмотров 1117 месяцев назад
TGCT Track Part 3
SPAGN Conference 2024: TGCT - Clinical Trials
Просмотров 777 месяцев назад
TGCT Track Part 4
SPAGN Conference 2024: TGCT - Surgical Management of TGCT
Просмотров 977 месяцев назад
TGCT Track Part 2
SPAGN Conference 2024: TGCT - Diagnosis Disclosure
Просмотров 1157 месяцев назад
TGCT Track Part 1
SPAGN Conference 2024: Desmoids - FAP
Просмотров 617 месяцев назад
Desmoids Track Part 2
SPAGN Conference 2024: Desmoids - Innovative Projects from Around the World
Просмотров 197 месяцев назад
Desmoids Track Part 1
SPAGN Conference 2024: Bone Sarcomas - Survivorship & Quality of Life
Просмотров 237 месяцев назад
SPAGN Conference 2024: Bone Sarcomas - Survivorship & Quality of Life
SPAGN Conference 2024: Bone Sarcomas - Biomarkers in Bone Sarcomas
Просмотров 387 месяцев назад
SPAGN Conference 2024: Bone Sarcomas - Biomarkers in Bone Sarcomas
SPAGN Conference 2024: Bone Sarcomas - Immunotherapies & Target Therapies
Просмотров 147 месяцев назад
SPAGN Conference 2024: Bone Sarcomas - Immunotherapies & Target Therapies
SPAGN Conference 2024: Bone Sarcomas - Proton Therapy & Carbon Ion Radiotherapy
Просмотров 407 месяцев назад
SPAGN Conference 2024: Bone Sarcomas - Proton Therapy & Carbon Ion Radiotherapy
SPAGN Conference 2024: Bone Sarcomas - Precision Surgery in Bone Sarcomas
Просмотров 217 месяцев назад
SPAGN Conference 2024: Bone Sarcomas - Precision Surgery in Bone Sarcomas
SPAGN Conference 2024: New Horizons GIST - Panel Discussion
Просмотров 337 месяцев назад
SPAGN Conference 2024: New Horizons GIST - Panel Discussion
SPAGN Conference 2024: New Horizons GIST - Navigating GIST in 2024
Просмотров 367 месяцев назад
SPAGN Conference 2024: New Horizons GIST - Navigating GIST in 2024
SPAGN Conference 2024: New Horizons GIST - Current Developments in GIST Research
Просмотров 517 месяцев назад
SPAGN Conference 2024: New Horizons GIST - Current Developments in GIST Research
SPAGN Conference 2024: New Horizons GIST - Molecular & Genomic Drivers of GIST
Просмотров 397 месяцев назад
SPAGN Conference 2024: New Horizons GIST - Molecular & Genomic Drivers of GIST
SPAGN Conference 2024: Soft Tissue Sarcomas - Organ-Specific Sarcomas
Просмотров 707 месяцев назад
SPAGN Conference 2024: Soft Tissue Sarcomas - Organ-Specific Sarcomas
SPAGN Conference 2024: Soft Tissue Sarcomas - Research & Medical Update
Просмотров 1907 месяцев назад
SPAGN Conference 2024: Soft Tissue Sarcomas - Research & Medical Update
SPAGN Conference 2024: Molecular Diagnostics - An Introduction
Просмотров 607 месяцев назад
SPAGN Conference 2024: Molecular Diagnostics - An Introduction
SPAGN Conference 2024: Patient Involvement in Sarcoma Clinical Trials
Просмотров 327 месяцев назад
SPAGN Conference 2024: Patient Involvement in Sarcoma Clinical Trials
SPAGN Conference 2024: Surgery in Sarcomas
Просмотров 1227 месяцев назад
SPAGN Conference 2024: Surgery in Sarcomas
SPAGN Conference 2024: Real-World Data & Evidence
Просмотров 207 месяцев назад
SPAGN Conference 2024: Real-World Data & Evidence

Комментарии

  • @mashnach
    @mashnach Месяц назад

    Is there Ion Proton radiation in USA ?

  • @SON-of-SMK
    @SON-of-SMK 3 месяца назад

    A really informative video. Thank you for that. But what I don't quite understand. At minute 13:57, Professor Dr. Reichert says that with a recurrence risk of 3.6%, there may even not be an indication for a regular follow-up. But when I read the guidelines issued by the German Sarcoma Foundation, it says that follow-up should actually be carried out for every GIST, even with a low risk.

  • @jack_peters
    @jack_peters 6 месяцев назад

    I have a rare case of TGCT, and just wanted to say that all of these videos about TGCT are so helpful to have available. Thank you.

  • @tgctsupport3596
    @tgctsupport3596 7 месяцев назад

    Thank you for having us and congrats to all the winners!

  • @luvleeleeanne
    @luvleeleeanne 7 месяцев назад

    Thank you so much for this information. I just wish that we have access to different treatment options here in Australia.

    • @tgctsupport3596
      @tgctsupport3596 7 месяцев назад

      We hear you! This is one of our major advocacy efforts this year, to try to make Australian providers aware of new options likely coming to them very soon (hopefully starting with vimseltinib). We have an Australian oncologist on our advisory board, Dr Bhadri, and he has been helpful to develop strategies. We won’t stop until you have more options!

  • @AshayPhate
    @AshayPhate Год назад

    👍👍ओवधोओ.👍.ओं👍धोधो👍ओव👍ओव👍ओओवोवोवोव.ओव👍👍ओव👍ओवोव👍ओव👍👍.👍👍 ओव👍ओं👍ओवोव👍ओवोव👍o:-):-$O_o

  • @AshayPhate
    @AshayPhate Год назад

    👍👍ओवधोओ.👍.ओं👍धोधो👍ओव👍ओव👍ओओवोवोवोव.ओव👍👍ओव👍ओवोव👍ओव👍👍.👍👍 ओव👍ओं👍ओवोव👍ओवोव👍o:-):-$

  • @florenciapistritto5747
    @florenciapistritto5747 Год назад

    The orthopaedic care in Scotland is very inferior to the care that patients receive in England. They have left me to live with a complication from limb sparing surgery and they refuse to treat me. In England patients go to excellent orthopaedic hospitals.

    • @sarcomapatientadvocacyglob9829
      @sarcomapatientadvocacyglob9829 Год назад

      We are sorry to hear about your troubles. But we very much appreciate your feedback on this!

    • @florenciapistritto5747
      @florenciapistritto5747 Год назад

      ​@@sarcomapatientadvocacyglob9829 Thank you. I think the issues poses a question about if regular hospitals with orthopedic units should be offering these procedures when they are unable to provide an acceptable level of follow up care. Limb sparing surgeries and endoprosthesis come with a great responsibility and there is a duty of care with the patients.

  • @thiagosierra7349
    @thiagosierra7349 Год назад

    PLEASE, CAN ANYONE KNOW IF THERE IS ANY STUDY ON GIST THAT HAS A REAL CHANCE OF BECOMING A PROTOCOL IN THE SHORT TERM?

    • @sarcomapatientadvocacyglob9829
      @sarcomapatientadvocacyglob9829 Год назад

      Hi, thanks for your comment. You can find all open, international clinical trials on our website: www.sarcoma-patients.org/study-registry/. However, no one can give you a guarantee that the drug works and that it will change the protocol. But it's always an opportunity. All the best!

    • @thiagosierra7349
      @thiagosierra7349 Год назад

      @@sarcomapatientadvocacyglob9829 Thankyou

  • @thiagosierra7349
    @thiagosierra7349 2 года назад

    Please, Is there any research in progress that could become a new protocol against GIST?

  • @thiagosierra7349
    @thiagosierra7349 2 года назад

    Please, is there any research in progress that could become a new protocol against GIST?

  • @thiagosierra7349
    @thiagosierra7349 2 года назад

    Please, Is there any research in progress that could become a new protocol against GIST?

    • @sarcomapatientadvocacyglob9829
      @sarcomapatientadvocacyglob9829 2 года назад

      Dear Thiago, thanks for your comment. Please have a look at our session on research in GIST held also during our SPAEN Annual Conference end of June, by Prof. Jean-Yves Blay: ruclips.net/video/NYUl2X8VCHE/видео.html Kind regards!

  • @noveliahaspel8472
    @noveliahaspel8472 2 года назад

    ✔️ ???????

  • @georgiagarofalo8421
    @georgiagarofalo8421 2 года назад

    thank you all for the opportunity, Since Brasil. Association DESMOID TUMOR we are rare and together we are stronger

    • @sarcomapatientadvocacyglob9829
      @sarcomapatientadvocacyglob9829 2 года назад

      Hi Georgia, thanks for your comment! We have a strong demoid tumor community and will be holding a Knowledge Spot Session on desmoids this week, Wednesday Feb 16, 22 at 5:30 CET. Have a look here: bit.ly/3yP2mGx. Please feel invited and join us! Kind regards from SPAEN!

  • @annedirkson3252
    @annedirkson3252 3 года назад

    Anne Dirkson is a PhD student at the Leiden Institute for Advanced Computer Science whose work is funded by the SIDN fonds

  • @danielstroh4251
    @danielstroh4251 4 года назад

    Thank you so much for this presentation! Thank you Dr for your time and expertise!!!!