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Thank you for all you do for our community

Zdravím Briana. Můžu vědět,kdo zprostředkovava překlad na tomto dokumentu. Jsem z České republiky,je vedle Německa a jen se ptám proč ,zde není třeba překlad pro českou republiku. Díky za odpověď

I was like her today 17:05.... just break down.. hope your all good now

Thank u for the video... im going thru tsw now.. red skin flaking stage... itchy 24 hrs stage absolutely haaaaate myself lol... just waiting for it 2 piss off.. started last October, blew up in November with the full body itch and flaking.. blimmin doctors at the hospital gave me more hydrocortisone i said helll naw and said its TSW... Doctors just dont wanna know you if you know TSW

I have just been prescribed topical steroids for excess on scalp, face, ears. Told to use 2 weeks. Never heard of TSW till now. I’m scared now. Would someone reply to me.

You're a strong woman. TSW is real and once we experience it we know. Words can't describe the loss of life we experience and neither can pictures tell the story properly. Wishing you the best and with all the other sufferers of topical steroid withdrawl out there.

Beautifully done. Thank you for this. Sitting here crying because TSW has also made me into a better person. Warriors ! 🩷

Your story is very inspiring

I just put my son on steroid cream and about 3 days now. Yeah I think I’ll stop

i’m pretty sure my bf has this and can anybody please tell me what the flares can be and how long it can last

Where's dr. Rapaport? That's a bit of an insult to someone who was the original person to discover this and who coined the term TSW, TSA and RSS, and who did all he could to make this condition known, especially in the medical community. We know so much about TSW because of him and yet he's not in this video. A bit of a slap to the face.

Jesus Christ, betamethasone was on my REPEAT PRESCRIPTION for years. Shocking.

My daughter endured the torture of RSS/TSW for 4 years. My whole purpose for living was her care. She spent most of her time submerged in a warm bath asleep or wrapped loosely in a blood-stained down comforter. We had to build a custom platform bed with internal fans for her because mattresses were too hot and she would stick to the sheets from oozing lymph fluid. She became allergic to most foods, and we spent our weekends preparing her tailored meals for the week. Every 3rd day I washed, and blow dried her long hair. She was so exhausted we would scratch for her. She very gradually emerged and is doing quite well today but the trauma remains. We no longer put blind trust into physicians.

I'm just at 2.5 years TSW. I've been great for the past 6 months but boy the triggers really set you back if you're not careful. Thank you Briana ❤

I only took topical steroids for two weeks. And after withdrawing, something felt off. My skin is only 0.5 / 100 as what you all have / are going through. I thankfully found all these documentaries and videos on the awareness of TWS. Thank you for sharing. I might have kept taking them and the outcome might have been so much more worse than right now. From the bottom of my heart, THANK YOU FOR THIS. You prevented me from potentially going through this in the future.

Briana, I'm so thankful for your advocacy work. This documentary is incredible. I'm just a little ahead of you in my TSW journey (Sept. 2014) and to see so little change in the attitude and beliefs within the medical community is outrageous and absolutely infuriating. One small glimmer of hope - I live in Toronto, Canada and my daughter is in 1st year nursing school in a small city north of here. In one of her nursing classes her teacher talked about the dangers of topical steroids. It wasn't related to her experience but rather her knowledge of their dangers. Let's hope that change is coming. But for now, it's this community that's spreading the word and I'm sure you all have helped prevent people from ever touching topical steroids. ❤

Went to the doctor yesterday and she claimed she had no idea what TSW was and kept telling me it wouldn’t happen to me. I am terrified to fill the prescription for hydrocortisone.

Bri Firstly your film still preventable is fantastic, you have worked so hard to bring awareness, I hear the change. A nurse I met last week had heard of TSW and when I talked about not wanting steroids to a dermatologist he just said ok and did not try to persuade me. Thats change! I am approx 9 years steroid free after 45 years of use. Yes I still suffer however it is one of the best things I ever did stopping steroids. Its the thinned skin that causes me most issues now. Thank you for being our guardian light our trail blazer ❤ Unfortunately and non surprisingly I have chronic fatigue and PTSD symptoms that I am now learning about 6.5 years in! 💛 I will heal , I’m learning to release the fear and reprogramme my brain body connection to safety. 💛

Love this! Thanks for putting this together Bri, it’s so helpful 🤗

Maravilloso. Muchas gracias por tu esfuerzo

Well done Briana, and everyone who contributed. I found it very moving and powerful.

Do you guys take medications to help ease the symptoms or go all natural? I find it really tough to go all natural and but I'm worried taking medications might backfire the healing process

This is amazing and so informative. Thank you for taking the time to do this. It means so much

Gosh. 💔 Breaks my heart. I am going through TSW myself. I cannot watch the part about children. It makes me FURIOUS. It is COMPLETELY UNFAIR and it makes me so angry at irresponsible doctors and at the FDA.

Thank you Briana for another masterpiece. You did amazing job to gather, research and study this nasty condition. I'm one year behind you and always checking if you finally healed. We all deserve to have our normal life back! Wish you all the best!!!

So proud of you. I hope every dermatologist watches this. It’s so important and thank you for getting the message out there and flying the flag. Really hope one day we get to work together 💗

Hello community, I went through this last year completely down mentally and physically and I am on my last stage of recovery now. My family supported me so well to stop the use of topical steroid and with the help of an amazing naturopathy therapist who guided me continuously throughout my struggle in the journey. I am so grateful to myself for taking the decision to stop the use of topical steroid entirely and I feel free and rejuvenated. I wish well for all those people who are going through this and I encourage you to hang in there as the final results are amazing. I can assure you that eczema outbreak can be controlled well trough a healthy life style, without any topical steroid. Happy to share my journey.

i went through a horrible painful tsw in 2016. im still struggling with my eczema now but definitely better than before. my heart goes out to eczema and tsw fighter

Ugh, I've spent my whole life hating to cry (probably because I've always had eczema around the eyes), but this made me tear up. Everything just hit so close to home. 7 years in and still scratching my face while watching this. I'm sorry i missed the premiere but this was wonderful and I'm so glad to have finally watched it after all the years of hard work you put into it.

One word to describe TSW, what I would've said is "Horrific"!!!

Amazing documentary! ❤️ I watched the first one when I was a teenager battling severe eczema and made me understand the real dangers of steroids. I was able to prevent it. Thankful for your continued awareness!

As a toddler mom experiencing this first hand it is so heartbreaking. Beyond thankful for you, for this team, and this video to promote awareness or something we never knew existed! ❤❤❤

The tears are burning.... but so worth it! Thank you Briana Banos for all your hard work, time, and energy to help all of us ❤ I'm 2 yrs into TSW, and I know many more to come, but there is a light!

A superbly produced, highly professional, emotionally charged, informative documentary. Well done Briana - let’s hope this documentary is a catalyst for real change in prescribing protocols, and the healthcare ‘profession’ now fully awakes to the damage they have, and are still causing by the irresponsible, misprescribing and over prescribing of topical corticosteroids. It’s rather disappointing that the documentary hasn’t at the very least given a nod to Dr Marvin Rapaport, an ITSAN founder, and a dermatologist who has done more than any other medical professional in the world to highlight this totally preventable condition and probably successfully treat more patients than any other MD. His 2024 ‘White Paper’ on TSA / TSW is the gold standard reference to this iatrogenic condition. Not mentioning Dr Rapaport in a documentary about TSW is like making a film about WWII without mentioning Winston Churchill…….! It would have been nice to have given a little more time to Mr Sean Dillnut who has done amazing work producing a video for the last three years of the ‘March in March’ TSW Awareness Day in London, an event in March every year that brings dozens of people in the TSW community together, alleviating so much isolation and creating a strong sense of camaraderie. This years event culminated in a TSW petition handed in to the front door of No.10 Downing Street. ‘Still Preventable’ - an amazing documentary for sure, ironically, left me with no real conclusion as to how to ‘prevent’ further suffering. I don’t believe big pharma really give two hoots about the continued suffering due to the misuse of their products, in fact, their business model is a patient healed is a customer lost. Big pharma is a pathalogically profit driven business. Sadly, I believe the only way to stop all this preventable suffering is for a brave law firm to step forward to represent the millions of victims of this medical negligence scandal. Legal action must be taken against healthcare professionals who have caused so much unnecessary suffering to set a legal precedent for future law suits against so many irresponsible healthcare ‘professionals’. There is evidence of TSW / side effects from topical corticosteroids since the late 1950s - this is not a new phenomenon! The USA is supposed to be a global leader in healthcare - maybe if Robert F. Kennedy Jr. has a pivotal role in the new US administration, we may see an end to the corrupt medical industrial complex that is making millions of people across the world sick for the pursuit of ever greater profit.

My 5yo is 26 months TSW. Keep spreading awareness 🙌🏽

TSW is been a nightmare that I don’t seem to wake up from. This documentary gives me hope. May god shine understanding on doctors and specialists.

Thank you so much Briana and everybody creating this document! It means so much for us who suffer. I feel so empowered, respected and heard ❤❤❤

Thank you so much for doing this. ❤❤❤ it’s excellently made.

Thank you Briana, I hope one day you post about your full healing, that would give hope to the rest of us. Amazing work, God bless you.

Thank you and big up from France, you made me cried and smiled 🙏🏾

Im writhing in bed just now around 9 years withdrawl. This is great film it is as it is.

Wow Briana. So many raw and painful stories and experiences. You and your team have done an amazing job at putting together yet another incredible and insightful documentary. Thank you for making so many people feel seen and for everything you are doing to help get Topical Steroid Withdrawal recognised.

I'm in the UK and struggling with TSW, flaring right now. The Preventable documentary blew my mind and Still Preventable made me cry a lot, but I'm very grateful for your hard work to research this and spread awareness for the TSW community and the medical community.

Thank you so much for putting this together Brianna. It’s such a hellish journey, and I appreciate you for bringing more awareness.❤

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Thank you so much for this documentary! So very important to raisse awareness about this horrible condition! I*ve been going through it twice... First time in the 90's without knowing anything about it. No internet, no group support. But i got healed through homeopathic treatment. Just small ordinary rashes somtimes when i got stressed Unfortunately I did have a bad flare many years later in a very stressful time in my life. I let a person I trusted persuade me to use steroids.... and I was stuck. It is a drug! And I got addicted one more time until I stopped in 2020. Now i am soon 5 years in and this time is worse because it has been pretty much a constant flare. So exhausting. It really affects every area of ones life. But I will never ever take steroids or any other medical treatment again. I go for natural healing and trust my body. Once again thank you Briana Banos and all the participants! ❤❤❤🙏🙏🙏

Beautiful documentary ❤ so relatable

Thank you for making this documentary. Just watched this with the focused attention only someone who went to TSW can... We will be spreading this also in the Netherlands, working on recognition...❤, a difficult path..

Thank you for creating this :) I remember years ago when I first watched preventable, I felt so understood and heard! I’m currently 6 years TSW, and this video hits the same 😭I recognize almost everyone in this documentary and so happy about everyone’s journey!

Way to go Brianna! Thank you for doing this to spread awareness and help all of us who are truly going through this!