MND Scotland
MND Scotland
  • Видео 88
  • Просмотров 43 795
SpeakUnique | MND Scotland
If you have MND, live in Scotland and want to preserve your voice for the future, MND Scotland will cover the cost of you using the SpeakUnique service.
Based at Edinburgh University, SpeakUnique uses voice banking technology that allows people to communicate in their own voice via a speech aid when natural speech is no longer possible.
In this video you will meet David, a user of SpeakUnique, who explains how the voice banking technology has helped him.
For more information and support please visit our website - www.mndscotland.org.uk
Просмотров: 311

Видео

Fun Run 2024 | MND Scotland
Просмотров 72Месяц назад
Some photos from the MND Scotland Fun Run event which took place on 07 September 2024 in Lochmore Meadows Country Park, Fife.
LEARN Meet the researchers | MND Scotland
Просмотров 2113 месяца назад
🔬 The Lived Experience And Researcher Network event is your chance to meet local MND researchers, dive into their work, and engage in meaningful discussions. In this video you will meet 4 of the researchers who will be attending these events around Scotland. For more information about these events visit our website - www.mndscotland.org.uk #mnd #research #community #LEARNevent #support #engage ...
Galapagos Postman Ice Bucket Challenge | MND Scotland
Просмотров 423 месяца назад
🌍 Join #mndscotland and the Galapagos Postman in the #10yearanniversary #icebucketchallenge ! 🌍 In honor of the 10th Anniversary of the #viralvideo Ice Bucket Challenge, we're spotlighting Jon Beardmore, the Galapagos Postman. 🌊 He’s on a mission to hand-deliver 50 postcards from a centuries-old postbox on Isla Floreana, Galapagos, raising awareness for #motorneuronedisease (#mnd ) and #als . J...
Global MND Awareness Day | MND Scotland
Просмотров 2154 месяца назад
MND Scotland is marking Global MND Awareness Day on Friday, 21 June by highlighting that, 10 years on from the viral phenomenon that was the ice bucket challenge, the motor neuron disease (MND) community still needs help to fund ground-breaking research into effective treatments and a cure. Today we hear from, Jim Maxwell, who had previously taken part in the Ice Bucket Challenge and was later ...
Hearts FC 3 Year Partnership | MND Scotland
Просмотров 1175 месяцев назад
🎉 Celebrating 3 Years of Partnership: MND Scotland & Hearts Football Club! ⚽ Join us as we celebrate the incredible 3-year journey of our partnership with Hearts Football Club as front of shirt sponsors! This special video highlights the amazing collaboration between MND Scotland and Hearts FC, showcasing the powerful impact we've made together in the fight against Motor Neuron Disease (MND). 🔵...
A Dip A Day In May - Eleanor | MND Scotland
Просмотров 235 месяцев назад
Day 24, and we're feeling the chill but staying strong! A massive thank you to everyone who has been part of our ten year anniversary #icebucketchallenge so far. Today is Eleanor's turn, who is taking the icy plunge for A Dip A Day In May to raise vital funds for MND Scotland. Let's continue to support those with motor neuron disease!
Volunteer with us | MND Scotland
Просмотров 2436 месяцев назад
Volunteer with us | MND Scotland
A Dip A Day In May - Jonathan visits the Polar Bear Club | MND Scotland
Просмотров 586 месяцев назад
A Dip A Day In May - Jonathan visits the Polar Bear Club | MND Scotland
A Dip A Day In May - Gillian | MND Scotland
Просмотров 86 месяцев назад
A Dip A Day In May - Gillian | MND Scotland
A Dip A Day In May - Rachel | MND Scotland
Просмотров 626 месяцев назад
A Dip A Day In May - Rachel | MND Scotland
Ice Bucket Challenge - STV 020914
Просмотров 8696 месяцев назад
Ice Bucket Challenge - STV 020914
Meet Jonathan Mitchell | MND Scotland
Просмотров 1926 месяцев назад
Meet Jonathan Mitchell | MND Scotland
Shindig 2024 | MND Scotland
Просмотров 2058 месяцев назад
Shindig 2024 | MND Scotland
1 Man, 1 Bucket, 366 Days
Просмотров 1668 месяцев назад
1 Man, 1 Bucket, 366 Days
Mark Ferguson | MND Scotland Shindig 2024
Просмотров 6 тыс.8 месяцев назад
Mark Ferguson | MND Scotland Shindig 2024
Angela Harris | MND Scotland
Просмотров 2009 месяцев назад
Angela Harris | MND Scotland
G&T for MND | Masterclass exclusive with Sumaiyah Edwards
Просмотров 549 месяцев назад
G&T for MND | Masterclass exclusive with Sumaiyah Edwards
G&T for MND | Linlithgow Distillery Southside Cocktail
Просмотров 99 месяцев назад
G&T for MND | Linlithgow Distillery Southside Cocktail
G&T for MND | Linlithgow Distillery Italian 75 cocktail
Просмотров 99 месяцев назад
G&T for MND | Linlithgow Distillery Italian 75 cocktail
MND Myth | I don't need help, I'm not the one with MND
Просмотров 869 месяцев назад
MND Myth | I don't need help, I'm not the one with MND
MND Myth | Motor neuron disease is rare
Просмотров 519 месяцев назад
MND Myth | Motor neuron disease is rare
MND Myth | MND doesn't affect people like me
Просмотров 299 месяцев назад
MND Myth | MND doesn't affect people like me
Don't let MND trip you up | Preventing falls
Просмотров 429 месяцев назад
Don't let MND trip you up | Preventing falls
Focus on breathing | Coping with choking
Просмотров 1,8 тыс.9 месяцев назад
Focus on breathing | Coping with choking
My Decision | When to get a feeding tube fitted
Просмотров 8059 месяцев назад
My Decision | When to get a feeding tube fitted
What is MND?
Просмотров 4579 месяцев назад
What is MND?
Without Saying | Speech and Communication with MND
Просмотров 4179 месяцев назад
Without Saying | Speech and Communication with MND
When someone you love has MND
Просмотров 1399 месяцев назад
When someone you love has MND
MND Scotland's TV Campaign
Просмотров 44810 месяцев назад
MND Scotland's TV Campaign

Комментарии

  • @elainemarshall243
    @elainemarshall243 Месяц назад

    David, we so enjoyed your account of using SpeakUnique. It is a truly worthwhile and totally helpful way to help with communication. We loved your presentation and are so proud of your contribution in encouraging other people who may be in the early stages of MND to really feel motivated to bank their voice. It's so good to know that banked voices not only help the initial banker but can also be used by other people too. We look forward to seeing your ventriloquist trick!

    • @MndscotlandOrgUk
      @MndscotlandOrgUk Месяц назад

      Thank you for your comment, Elaine. It really means a lot to us. We will certainly pass your message on to David 💙

  • @Tayyab-hr1gp
    @Tayyab-hr1gp Месяц назад

    What you feel on your tongue before slurred your speech.

  • @elainerobertson1988
    @elainerobertson1988 Месяц назад

    David you are lovely and so is your voice. I really enjoyed hearing what you had to say and your cheeky smile. I’m under investigation by neurology and wait to find out what tests are next to exclude things. I have symptoms of MND or symptoms mimicking MND. I would definitely get my voice banked if it comes to that. Thank you and God Bless, I’m Scottish too!

    • @MndscotlandOrgUk
      @MndscotlandOrgUk Месяц назад

      Thanks for your comment, Elaine. We are happy to hear that you enjoyed the video and we will share you comments with, David. If you ever need us please don't hesitate to get in touch.

  • @elainerobertson1988
    @elainerobertson1988 2 месяца назад

    Hope you are doing well Jim. 💕

  • @elainerobertson1988
    @elainerobertson1988 2 месяца назад

    Such a tragic condition. I pray that research will find a cause - helping, if possible to prevent development. So sad. Lovely man. 💕💕

  • @Paratus7
    @Paratus7 2 месяца назад

    The look in the eye Is always the same. No matter the situation. God bless.

  • @shug3481
    @shug3481 6 месяцев назад

    God bless you Mark my brother in law has just been diagnosed with zMND.❤

  • @amandayohannes-mp7pm
    @amandayohannes-mp7pm 6 месяцев назад

    I am sure u will get a lot of likes

  • @saskiawells9472
    @saskiawells9472 6 месяцев назад

    What a lovely guy and family x

  • @StevenMercer-ok8wc
    @StevenMercer-ok8wc 8 месяцев назад

    Incredible video Mark, thanks for discussing and highlighting this horrible disease which affected a good friend of ours. You are a brave man and I wish you and all the family all the best in this moment and hopefully a long time in the future. Take care 👍

  • @andrewlaidlaw1070
    @andrewlaidlaw1070 8 месяцев назад

    I can't imagine how tough this must be for Mark and his family, MND is a devastating disease, one which I'm currently showing symptoms of myself. Hoping for a cure ASAP. Wish you and your family all the best mark.

    • @JamerBubutan
      @JamerBubutan 8 месяцев назад

      what kind of symtomps?

    • @andrewlaidlaw1070
      @andrewlaidlaw1070 8 месяцев назад

      @@JamerBubutan Hi, I've been experiencing body-wide twitching for almost 6 months, myoclonic jerks, neck pain, internal vibrations, hand and thumb tremors, potential atrophy in both FDI muscles and recently my muscles feel tender as if they are taking ages to recover from workouts. Currently haven't lost any strength, still working out 4 times per week.

    • @JamerBubutan
      @JamerBubutan 8 месяцев назад

      @@andrewlaidlaw1070 That's great news,how old are you btw and were you able to get a possible diagnosis or it's still in progress because i myself is very young and very anxious but i've been having muscle twitching and crepitus in the body whole 3 months and my bones crack everytime i move which is new it happend like 3-4 weeks ago

    • @JamerBubutan
      @JamerBubutan 8 месяцев назад

      @@andrewlaidlaw1070 I did labaratory test like 2 months and 3 weeks ago they found out i had UTI and now that UTI and infection is gone maybe this could be the side effects of the pills i took when i was sick idk i'm just so lost and wants answer and make sure i feel 100% fine.

    • @andrewlaidlaw1070
      @andrewlaidlaw1070 8 месяцев назад

      @@JamerBubutan my doctor doesn't seem to be concerned but I am going to see a private neurologist in April. Hopefully, nothing too concerning is going on. Body-wide twitching without weakness or serious atrophy isn't a concern to medical professionals

  • @jonnycc354
    @jonnycc354 8 месяцев назад

    Praying for this man. Brings back memories of my friend David Balmer. Stay strong big man

  • @bazilbrush7559
    @bazilbrush7559 8 месяцев назад

    Nice one fergie. Where this man pulls his courage from is beyond me. Sending love love mate and to your extended MND family. Legend 💪

  • @sandy6047
    @sandy6047 8 месяцев назад

    What dates do you have

  • @isyt1
    @isyt1 8 месяцев назад

    Heartbreaking 😢 Great he’s getting help and has family and friends around him though.

  • @carolethomson7105
    @carolethomson7105 10 месяцев назад

    I’m currently doing the 15000 steps a day in January for MND Scotland. Donations are building. Keep up the great work. 🥹🏴󠁧󠁢󠁳󠁣󠁴󠁿

    • @MndscotlandOrgUk
      @MndscotlandOrgUk 10 месяцев назад

      Best of luck with your challenge! Please let us know how you get on :D

  • @kirtiyadav7291
    @kirtiyadav7291 Год назад

    Hey @Gemma. My mom has same symptoms. How is your mom now.

  • @jeanalexander4101
    @jeanalexander4101 2 года назад

    So sorry for your diagnosis. This is a devastating disease. I lost my sister 10 months ago from ALS. Prayers for you

  • @andrewneville2662
    @andrewneville2662 2 года назад

    I am really sorry to hear this, i just been notified. Steve was and still is a very respected man who I had alot of time for while working with him in the department. Big Hearts and Scotland fan. From the only Berwick Rangers fan you knew, my heart go's out to you my friend....very brave man.

  • @samaustin3579
    @samaustin3579 2 года назад

    😴 Promo'SM!

  • @chaiyoatid7996
    @chaiyoatid7996 3 года назад

    So many goods was said about Doctor Madida on RUclips and i was desperate to get cured of herpes virus. My greatest joy was that Dr Madida was a genuine and safe person who did sent me the herbal medicine I requested for, I used it as he instructed me and after then all the symptoms I use to have all stopped. I went for another diagnosis and my doctor confirmed me Herpes virus Negative after so many and strictly test I undergo. I don't know about all other doctors but Dr Madida is this greatest herbalist I have ever known.

  • @JenniferGarcia-yy3sn
    @JenniferGarcia-yy3sn 3 года назад

    To live is more important than to die. Even with less hope or fortune. For a living dog is better than a dead lion. My name is Jennifer Garcia, I am 69 years old. It all started toward the end of the year 2018 when I was diagnosed with amyotrophic lateral sclerosis [ALS]. I became a little child who does nothing but to depend on others for everything. I barely move my feet and hands myself. My son of blessed memory Anthony who passed on last year tried all he could to see me back on my feet but all his effort seemed impossible. The doctor said I will have to live like that for the few months I will spend on earth. The pastor gave me hope and prayers but it got to a time that I lost my faith as my health deteriorated. I began to await death by installment but on a fateful day when I went out for my normal therapy at the clinic, my very first boyfriend Stanley saw me in a wheelchair as my daughter pushed me in and he came with so much expression of disappointment on his face. He promised to go on a research on the internet to find if there is an alternative cure. He stopped at nothing until he discovered a post in google page by Darren Kent testifying how he got cured from ALS by Dr. Sani natural herbal remedies. We contacted him through his Email and WhatsApp. He told me that he has herbal healing remedies to cure not only ALS but also other incurable but management diseases. I believed or trusted him because I was left with no choice. I sent him money and He prepared his herbal mixture tonic, herbal cream and healing oil and sent them across to me. He gave me instructions which my daughter took seriously. After two weeks of treatment, I began to notice some great changes like I was able to talk clearly, eat, drink and move my hands and legs gradually. The third and fourth week I got cured. THE KEY POINT IS THAT I CAN DO THINGS NOW WITHOUT NEEDING SUPPORT OR BUGGING ANYBODY. Dr. Sani never asked me to advertise him but I think it’s what I should do to make our world a favorable and disease free one. Sharing is Caring. You can contact him today by E-mail: perfectherbalcure@gmail.com or call his tel; +2348118184266. I so much love this Dr. Sani Hassan for I owe my life to him. He is so kind and polite. Thanks for viewing.

  • @robertnatiello2025
    @robertnatiello2025 4 года назад

    Hello everyone my dad was diagnosed with motor nurion disease Als and the told us there's no cure for it. But i want appreciate dr ehimare who reverse my dad Als with his herbs medicine treatment and i will continue to testify about your treatment and God will bless you more. And you can also reach Dr via WhatsApp +23490 2734 9748 or email (drehimareherbalremedyhome22@gmail.com)

  • @suzanshakya1658
    @suzanshakya1658 4 года назад

    Hello all, I am from Nepal and my father has mnd and it's been more than 2 yrs that we had known about the case. Now, he is having lots of problem in breathing and movement has become almost zero. However, my mom and me everyday we do some physical exercises in home and also help him to do some movement. We have been continuously giving a specific medicine Branton 500 and other few medicine but the situation has been worse than showing some good sign. If anyone has some idea I'd be happy and hopeful.