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My son is a 24 year old man with NVLD along with ADHD. He struggles with anxiety and gets overwhelmed quite more often now that he is in a relationship and has transitioned to a new job and moved into his first apartment. Thank you for sharing

I suprised you didnt mention that both of them have excellent verbal skill which are not found in other ASDs except for Asperger's

😮😮. 😅😮

Thank you for taking the time to share your experience. Our 8 year old grandson has been diagnosed with NVLD. He is such a great kid and very intelligent, but as you say he works twice as hard. His verbal skills are sky high so people expect him to be good at everything, not aware of his hidden disabilities. Like you, he is a gifted AUDITORY learner. He teaches himself by listening closely and repeating back to himself like you. Question... How did you develop a positive self esteem as a child/teen? Did your parents or teachers do anything particularly helpful?

This is the direct kinda advice I need

Thank you it helps a lot to hear someone with NVLD talk you are seriously someone doing really well it’s motivating. Thank you thank you!!!!

Thank you for talking about this . And I too seem to remember languages more than anything day to day

Do you have an instagram account? I would love to follow your videos there!

A tonne of people diagnosed with autism are also very sociable, Special Books for Kids has an interview with one called "Autistic, sociable and friendly". It is impossible to have NVLD without meeting the criteria for ASD, so it should be seen as a type of ASD and qualified as the NVLD subtype. Because NVLD as currently described by its experts can have every single symptom of ASD, every single one of them - just with dozens of additional symptoms. The brain causes in the Salience Network have been found to be different, so for research purposes they should be studied differently, but for support and legal purposes NVLD should be treated as "Autism Plus". Autism but worse. We act exactly like autistic people given the same IQ, except we are much more impaired than an autistic people whose autism is not the NVLD type of autism because of our additional complex motor, cognitive and executive deficits. We must be recognised as autistic to access the support, cos even though the brain is different we are functionally autistic too, we just find it even harder to cope with life. Autistic people who do not have the NVLD type of autism cope so much better than I do they actually get judgemental

Very important to listen to your mother! 😊

I used to ride the bus to work and i always felt awkward bc I never got the hang of how to act in public so I would often mimic others body language ways of speaking etc of others To try to come off as "normal". Anyway there was this guy across from me who looked really relaxed and chill with his hand draped over the side of a railing (the bus had 2 levels) Anyway so I lean back as he had done and draped my arm over the railing. As I did so I noticed something odd, I felt was a smoth round thing and started moving my hand around to try to determine what it was. When I finally looked down I realized what i had been feeling was the top of a bald dudes head! He looked at me and in a panic I exclaimed "oh sorry I do this all the time." What I meant was these sort of super awkward situations come up a lot for me. However I think he might have taken it as I'm often touching stangers heads. Luckily I never saw him again lol.

Twice as long to learn and once you've got it, it's mastered - that's very much me as a French teacher. I haven't been diagnosed with this but holy does it explain so much. At this point, I'm not sure if I've ever even really had adhd. I feel like I have excellent visuospatial awareness awareness though, or at least in the way I can visualize 3D objects and interior design, and I quickly memorize maps of where I'm at. Good dexterity as well, in terms of playing guitar and doing acrobatics. I have horrible organization, and can't accurately predict the time tasks will take. I can't understand non-verbal accurately either. I jump to conclusions that are delusional, so I need to physically hear things from people and be spoon fed opinions and reactions. This is compounded with the fact that I'm a bit hard of hearing. I did terrible in jr high and high school. I can do great mental arithmetic but beyond that, it gets fuzzy for algebra and stats. Seems like your IQ is probably too high for the police/military lol. No offence to them, but I know I'd rock the boat for sure, and they don't like that. Now I'm doing two masters, almost done the first and I'm going to be my schools vice principal. I tend to take too much on at once - that's something I'd caution, feeling like you can take on the world. Thanks for sharing your perspective.

Still looking for common denominator: premature birth, xxy syndrome, asthma eventually leading to NLD with co-midity with ADD!

Interesante

Just want to say thanks for making some videos, I am 26 and was diagnosed with NVLD ADHD and Dyspraxia as a kid I resonate with your thought pattern/ movement patterns quite a bit! Cool videos thanks for making them nice that there is a community. Feels much more relatable than just ADHD specific material and is validating to me for sure the reality of this. It's nice to know there are others out there like this... just learned I had this that my mother told me recently I always knew I had ADHD but not this... 20 jobs in 8 years later lol 😂😂 good shiiiit !!!

Math sucks im terrible with directions. Body language i will be honest i used have issues but around my teens i began learning them observing basically and literally thought myself and imitated it whats good whats bad etc. Reading out loud helps audio books too. Diagnosed at 14 im 32 now. Incredible at history politics and i have a small circle of friends.

Hi Matthew thank you so much for making this channel and taking your time to educate others on NVLD. I have a 13 year Old daughter that is having major difficulties and it’s breaking my heart. I know I am not a professional but I know my daughter and I have researched so much on NVLD that I am almost certain my daughter has this or something similar. There are no experts in our area that is even opened to talk about NVLD. is there anyway I can contact you if your willing to tell you a lil about my daughter in hopes you know of any ideas for me to get her help that actually knows about NVLD. That’s if you end up agreeing with me on her issues. Thanks in advance.

Could you talk through any social troubles you might’ve had, and how you might’ve gained a new perspective on those struggles now that you can sit and look back on them. I got diagnosed with nvld just now (at 20). I was very conscious that there was some kind of large social disconnect, but I was largely unaware of the specific causes- still am. I feel like Larry David in “Curb Your Enthusiasm”. Lots of little really annoying things that people do or just the way the worlds set up, that drive me fucking nuts and I just need to point out how fucking stupid it is. But people don’t get it. Literally curb your enthusiasm. Is that nvld or am I an asshole cursed to live a parallel life to a tv show.

Handsome

Congrats señor Mateo! It’s great to see you’re doing well, your students are lucky to have you! SPED is wonderful!

If im going somewhere new, I usually drive there the day before, too.

I bet your mom DID give you that bit of advice. I’ve heard she’s quite wise.

Congrats on earning your masters nearly. as someone with NVLD myself as a 33-year-old that's been stuck generally doing jobs I don't like, and having trouble knowing what I want out of life, I'm wondering if you or anyone that may comment here can relate, and how you may have overcome that obstacle/setback in life and moved towards the role of special education teacher?

Congratulations!

Hi matthew i myself also have Nvld i’m not sure on your story just came across your page but i wasn’t diagnosed until 21 years old.

I can relate to what you are saying, as I had been diagnosed, I really enjoyed the information presented in your video clip. It was very relatable!

I’m detail oriented which has really helped me with my job doing lots of auditing.

I have an almost identical background with nvld. I am so glad I found your channel. Also live a abroad your channel resonates on a very deep level 🙏

Nvld gigachad 💪

I have a daughter in her early 20's struggling to find a career path that can eventually pay a living wage, with a high school degree. Her main struggles are passing certification tests. As you say in the video, the NVLD info out there all seems to be for children, so I will be viewing all of your videos!

Hey Matthew. I was recently diagnosed with nvld it’s been a struggle. I am also in the dc area.

I was just officially diagnosed as NVLD last year when I was 55 years old. Although my High School was mostly white I got my Bachelors and Masters degrees at black university. I got my degrees in special education and urban education. I hated math especially Algebra but my weakness is reading people's facial expressions and body language. I taught in Jersey City, New Brunswick and Paterson and I burned out hard. The guidance councilor at the school I work at said I might have Aspergers. I did 2 years of Roller Derby but I suck hard at sports. I started acting 7 years ago. I was told over and over that I really should be a comedian cuz I have natural talent for it. So ever since I've been following Chris Rock and his career.

Interesting. Not everyone with nvld has low working memory though

To hell with math

I was diagnosed with both as well later in life but think I'm primarily NVLD also. I'm not a Creative. I don't have a high IQ and there are some things I cannot do no longer how much I'm interested or engaged. But what I do know?

Sup Mathew?!…just wanted to say Thanks and let u know how much I appreciate your videos. The NVLD community is listening!!

Does anyone else with NVLD have trouble with driving? I want to get my license but my mother is worried that my NVLD will make me a bad driver.

Yup get lost all the time! Dyslexic too but I believe NVLD has a lot to do with being lost lol like pointing left when someone tells me to turn right.I cannot read a map to save my life,thank goodness for gps!

Hi I do as well thank you for this

Nice channel 👍🇧🇪🇺🇸

Hello Matthew, I suspect I have nvld. I was 9 when I got an iep but discovered it at age 19. My specific learning disability wasn't stated on paper. So I have adhd like symptoms, so yeah, it's a mystery. I'll be seeing a therapist in January to get a diagnosis. Thank you for making these videos. Socializing is a pain for me but I'll work on it

Thanks for your videos Matthew. As a kid did you ave any issues with things like putting your clothes on and off or handwriting? Also, did you have therapy (OT, PT) as a kid and if you did what's your opinion on how to go about that extra support without stigmatizing a kid or making them feel like there's something wrong?

Congratulations on the birth of your daughter! You have loads on your plate, Mathew. I am curious what your daily routine looks like.

Great insights! I have a tale of two managers. One is great, the other one trash talks her employees and upper management behind their backs. The current one listens and tries to understand this condition, and work together to find ways to work around any issues. This guy allows me to be not only the best version of myself, but offers gentle correction when he catches something that may have been misconstrued from my intended message.

Thanks, Mathew for this video. I've not been diagnosed with NVLD, but I'm pretty sure i suffer from it. I am in my 60s and have developed "fancy" and elaborate coping skills over the years to help me. I'm not good at how long a particular task will take me, which is usually 2x as long as it should. I have trouble with my right and left. I can learn a dance step but the instructor must be facing away from me. If i get lost while driving, I have to talk to myself, reasoning out which way to go. I have little to no depth perception, but navigate through space using other visual clues. I did horribly on my SAT and ACTs because my eyes would skip a row, so all of my answers were probably right, but for the wrong questions! am clumsy. I can do "Where's Waldo" on a screen or on a page of a book, but dump a bunch of objects onto a desk and ask me to find it - ha! My math skills are marginal, but I love to read, write and learn about different cultures/histories. But it does make you feel kind of stupid, even though people like us are usually very intelligent. Good video!

Keep up the great work, Matt! Together we can fight for our Civil Rights!

Shared this!

What a beautiful exercise this teacher ran! It's not an exact answer or example, but it's great!!!!

You know, Matt, I just had an idea! Maybe, instead of writing a book, maybe you and I can start an NVLD podcast together. This way we could invite guest speakers (big dream is Chris Rock, celebrity NVLD'r) and discuss the topics I've jotted down. I think that that would be more easily consumed by our fellow NVLD community, as well as NTs!

Our unique worldview helps us to see, early, how much we are going to miss the little things when we get older and THEY get older.