Glioblastoma Research Organization
Glioblastoma Research Organization
  • Видео 34
  • Просмотров 28 506
"Dr. Betsy Grunch aka LadySpineDoc" - Glioblastoma AKA GBM - S.3 Ep.11
In this enlightening episode of The Glioblastoma AKA GBM Podcast, we are joined by Dr. Betsy Grunch, renowned neurosurgeon and social media educator, known online as @LadySpineDoc. Born and raised in Gainesville, Georgia, Dr. Grunch has built a distinguished career in neurosurgery, specializing in minimally invasive spine techniques and neurotrauma. Recently named among America's Best Spine Surgeons by Newsweek in 2024, she has taken her expertise to social media to demystify complex medical concepts and educate a broader audience. During our discussion, Dr. Grunch shares insights into the dynamic field of neurosurgery, her approach to patient care, and how she utilizes platforms like Ins...
Просмотров: 78

Видео

"IMVAX Advances: Pioneering Glioblastoma Trials" - Glioblastoma AKA GBM - S.3 Ep.10
Просмотров 5414 дней назад
In this timely episode of The Glioblastoma AKA GBM Podcast, released just after Glioblastoma Awareness Day, we welcome John Furey, the CEO of Imvax, Inc. John discusses the groundbreaking work of Imvax, particularly their lead product candidate, IGV-001, currently in a phase 2b randomized trial for newly diagnosed glioblastoma multiforme (GBM). He shares insights into the unique challenges and ...
"Adventures of the Mind with Rod Nordland" - Glioblastoma AKA GBM - S.3 Ep.9
Просмотров 11921 день назад
In this compelling episode of The Glioblastoma AKA GBM Podcast, we sit down with Rod Nordland, a distinguished foreign correspondent whose work has taken him across more than 150 countries. Rod shares his personal journey with glioblastoma, discussing not only the challenges he's faced but also his advocacy for disability awareness. He introduces his new book, "Waiting for the Monsoon," reflect...
"Grief 101" - Glioblastoma AKA GBM - S.3 Ep.8
Просмотров 279Месяц назад
In this heartfelt episode of The Glioblastoma AKA GBM Podcast, we are joined by Holly Gainsboro, a grief specialist and founder of Golden Heart Grief Support and Education. Holly shares her profound journey of loss and transformation following her late husband's diagnosis with glioblastoma. Through her personal experiences and extensive training, Holly has developed unique insights into navigat...
"The Ladies of Lenox Hill Neurosurgery" - Glioblastoma AKA GBM - S.3 Ep.7
Просмотров 170Месяц назад
Dive into the latest developments in glioblastoma treatment with Tamika Wong, MPH, Director of Clinical Research in Neurosurgery, and Dr. Morana Vojnic, Medical Oncologist and Director of Oncologic Services at the Brain and Spine Metastases Program, both from Lenox Hill Hospital. This episode offers a deep dive into groundbreaking clinical trials and treatments, clarifying complex brain tumor a...
"The Longest Glioblastoma Survivor in the USA" - Glioblastoma AKA GBM - S.3 Ep.6
Просмотров 6 тыс.Месяц назад
In this deeply moving episode of The Glioblastoma AKA GBM Podcast, we revisit the extraordinary life of David Fitting, known as the longest surviving glioblastoma patient in the USA. David first joined us to share his initial battle with brain cancer as a child and his miraculous journey to remission. Now, he returns to discuss his life post-recovery, the challenges of facing cancer multiple ti...
"Power and Precision with Plus Therapeutics" - Glioblastoma AKA GBM - S.3 Ep.5
Просмотров 1022 месяца назад
In this insightful episode of The Glioblastoma AKA GBM Podcast, we're joined by Dr. Marc Hedrick, President and CEO of Plus Therapeutics. Dr. Hedrick brings his extensive background in surgery and regenerative medicine to discuss the forefront of cancer treatment-targeted radiotherapeutics. He delves into the exciting developments of the ReSPECT GBM clinical trial, addressing the challenges and...
"Trailblazing the Neuro Frontier" - Glioblastoma AKA GBM - S.3 Ep.4
Просмотров 1702 месяца назад
In this inspiring episode of The Glioblastoma AKA GBM Podcast, we're joined by Dr. Sheri Dewan, a trailblazer among the elite group of female neurosurgeons. With a career that spans across continents and cultures, Dr. Dewan brings her unique perspective to some of the most complex neurosurgical challenges. She discusses her groundbreaking new book, "Cutting a Path," her dedication to global hea...
"The World's Only Neuroplastic Neurosurgeon" - Glioblastoma AKA GBM - S.3 Ep.3
Просмотров 5012 месяца назад
Join us for an enlightening episode of The Glioblastoma AKA GBM Podcast with Dr. Netanel (Nati) Ben-Shalom, a trailblazer in neuroplastic and reconstructive surgery. Dr. Ben-Shalom, the world’s first neurosurgeon to complete the prestigious Johns Hopkins Neuroplastic and Reconstructive Surgery fellowship, discusses his innovative approaches in neurosurgery that not only enhance surgical outcome...
"Strength in Vulnerability" - Glioblastoma AKA GBM - S.3 Ep.2
Просмотров 2822 месяца назад
In this compelling episode of The Glioblastoma AKA GBM Podcast, we welcome Jordy Glassner, a dedicated therapist who brings a unique dual perspective as both a caregiver and a current patient battling glioblastoma. Jordy opens up about her diagnosis, and how her professional background in therapy has shaped her approach to treatment and self-care. Join us as we explore the emotional and psychol...
"The Power of Purpose" with Mike Posner - Glioblastoma AKA GBM - S.3 Ep.1
Просмотров 3833 месяца назад
Join us for the Season 3 premiere of The Glioblastoma AKA GBM Podcast, where we delve into the heart and mind of multi-platinum singer-songwriter Mike Posner. In this deeply personal episode, Mike shares his journey through the harrowing landscape of glioblastoma as he witnessed his father’s battle with this aggressive form of brain cancer. As we explore the layers of grief and healing, Mike op...
Mini Series: Life Hacks & Unboxing Memories
Просмотров 826 месяцев назад
In this episode of the Glioblastoma AKA GBM Mini Series, Amber gives a recap on the inaugural Padel for Brain Cancer event, goes through life hacks as a caregiver, touches on hospice & palliative care, and unboxes her dads things from storage. Topics covered in this episode include: - Hospice care & palliative care - Staying organized as a caregiver - End of life & food - Sleep & sleep therapy ...
Vlog: Inside the Lab at University of Miami
Просмотров 1226 месяцев назад
Join us for a morning with our research partners at University of Miami Sylvester Comprehensive Cancer Center: Brain Tumor Initiative. We're joined by Dr. Ashish Shah, Director of Clinical Trials and Translational Research within the University of Miami Brain Tumor Initiative, and take a look into his lab working on glioblastoma cells. We also take a look inside the Brain Tumor Invasion Lab led...
Glioblastoma AKA GBM: Mini Series - New Year Debrief
Просмотров 1806 месяцев назад
In this episode of the Glioblastoma AKA GBM Mini Series, we delve into our 2024 plans, dating, and a holiday debrief. Thank you to our partners at xCures for supporting the Mini-Series season. To learn more, visit their website at xcures.com/. Merch of the week: www.gbmresearch.org/shop/p/for-a-cure-20 "Glioblastoma AKA GBM" is more than a podcast; it's a lifeline for those touched by glioblast...
Glioblastoma AKA GBM: Mini Series - Caregiver Resources
Просмотров 1647 месяцев назад
In this fourth episode of the Glioblastoma AKA GBM Mini Series, we chat about major questions and topics in relation to resources for current caregivers. Topics covered in this episode include: - Glioblastoma nonprofits - Finding support groups - Caregiver benefits & financial aid - Books/apps to assist your journey - The most important advice as a caregiver - according to Amber - Social worker...
Glioblastoma AKA GBM: Mini Series - Being the Best Advocate
Просмотров 3447 месяцев назад
Glioblastoma AKA GBM: Mini Series - Being the Best Advocate
Glioblastoma AKA GBM - Mini Series: How Are You Doing?
Просмотров 997 месяцев назад
Glioblastoma AKA GBM - Mini Series: How Are You Doing?
Glioblastoma AKA GBM - Mini Series: Managing the Holidays
Просмотров 1008 месяцев назад
Glioblastoma AKA GBM - Mini Series: Managing the Holidays
Glioblastoma AKA GBM: Mini Series - Intro
Просмотров 998 месяцев назад
Glioblastoma AKA GBM: Mini Series - Intro
"Queen Mother" - Glioblastoma AKA GBM - S.2 Ep.15
Просмотров 84011 месяцев назад
"Queen Mother" - Glioblastoma AKA GBM - S.2 Ep.15
"From Down Under to Duke" - Glioblastoma AKA GBM - S.2 Ep.14
Просмотров 80511 месяцев назад
"From Down Under to Duke" - Glioblastoma AKA GBM - S.2 Ep.14
"The Science Behind Brain Tumors" - Glioblastoma AKA GBM - S.2 Ep.13
Просмотров 15711 месяцев назад
"The Science Behind Brain Tumors" - Glioblastoma AKA GBM - S.2 Ep.13
"I ♥ You 2 the ☾ and Back" - Glioblastoma AKA GBM - S.2 Ep.12
Просмотров 38211 месяцев назад
"I ♥ You 2 the ☾ and Back" - Glioblastoma AKA GBM - S.2 Ep.12
"Caregivers Need Support Too" - Glioblastoma AKA GBM - S.2 Ep.11
Просмотров 809Год назад
"Caregivers Need Support Too" - Glioblastoma AKA GBM - S.2 Ep.11
"A Parents' Love" - Glioblastoma AKA GBM - S.2 Ep.10
Просмотров 1,3 тыс.Год назад
"A Parents' Love" - Glioblastoma AKA GBM - S.2 Ep.10
"Piecing the Puzzle" - Glioblastoma AKA GBM - S.2 Ep.9
Просмотров 1,5 тыс.Год назад
"Piecing the Puzzle" - Glioblastoma AKA GBM - S.2 Ep.9
"Living On Your Own Terms" - Glioblastoma AKA GBM - S.2 Ep.8
Просмотров 655Год назад
"Living On Your Own Terms" - Glioblastoma AKA GBM - S.2 Ep.8
"Starting with Zer0" - Glioblastoma AKA GBM - S.2 Ep.7
Просмотров 473Год назад
"Starting with Zer0" - Glioblastoma AKA GBM - S.2 Ep.7
"Hope is a Powerful Drug" - Glioblastoma AKA GBM - S.2 Ep.6
Просмотров 3,5 тыс.Год назад
"Hope is a Powerful Drug" - Glioblastoma AKA GBM - S.2 Ep.6
"Saved by Broadway" - Glioblastoma AKA GBM - S.2 Ep.5
Просмотров 910Год назад
"Saved by Broadway" - Glioblastoma AKA GBM - S.2 Ep.5

Комментарии

  • @ONE_ONENESS
    @ONE_ONENESS 4 дня назад

    _{{{}}} BE BLESSED WITH A BENEVOLENT BRAIN SPIRIT {{{}}}_

  • @nikbarclay7282
    @nikbarclay7282 27 дней назад

    All talk. No evidence of new significant drugs to beat the current standard of care TMZ. GBM agile? Never heard of it.

    • @glioblastomaresearch
      @glioblastomaresearch 23 дня назад

      GBM Agile is a trial currently being led by GCAR: Global Coalition of Adaptive Research. You can learn more by visiting www.gcaresearch.org/research/gbm-agile/

  • @kathyr1516
    @kathyr1516 28 дней назад

    Thank you and may the Lord bless you. 🙏🏼 I have recently been diagnosed with Grade IV unmethylated GBM at 67 years of age. Started Temozolomide and Radiotherapy this week. Trying to learn more about treatments. ❤️ 😰

  • @amiller2352
    @amiller2352 29 дней назад

    What's with the headphones while sitting next to each other

    • @glioblastomaresearch
      @glioblastomaresearch 23 дня назад

      They connect to the audio box which is also connected to the microphones! Helps us hear how loud we speak into the microphones and make sure there's no annoying background noise 😄

  • @catherinealexandrian9927
    @catherinealexandrian9927 Месяц назад

    such an intelligent and caring man

  • @ramonatuma6928
    @ramonatuma6928 Месяц назад

    Did you have covid

  • @lmk0799
    @lmk0799 Месяц назад

    You better be your own advocate. Read your reports!!! I could write a book about crap ive been through with doctors who dont do their due diligence

  • @donnawvidrine3811
    @donnawvidrine3811 Месяц назад

    SO AMAZING ❗️❗️❗️

  • @afitt3430
    @afitt3430 Месяц назад

    Great interview David! Thank you David and the GBM Research Org. for doing such incredible work in the GBM community and research. Your story is very inspiring and it’s so awesome that it has reached so many people in need of hope, help and understanding. Really proud of you. ❤

  • @WendyHardy-wo6gl
    @WendyHardy-wo6gl Месяц назад

    Lost my sister in 4 months 😢 she had double glio tumors

    • @goldieshawel8683
      @goldieshawel8683 Месяц назад

      Lost my sister about 6 months ago. She lived 2 1/2 yrs with it. So sorry for your loss. I definitely believe in alternative protocols which my sister didn't do. Terrible disease.

    • @WendyHardy-wo6gl
      @WendyHardy-wo6gl Месяц назад

      @@goldieshawel8683 I'm sorry for your loss too Did alternative Did surgery She lost the ability to speak properly and write.

    • @goldieshawel8683
      @goldieshawel8683 Месяц назад

      @@WendyHardy-wo6gl just sucks

    • @candykane4271
      @candykane4271 6 дней назад

      Loosing my daughter in law slowly 2.5 years since her surgery, hoping for more time even though she isn’t the girl she once was, blind and confused she has 2 little girls who love her dearly.

  • @kathya1956
    @kathya1956 Месяц назад

    He is very rare.

  • @peggyschram917
    @peggyschram917 Месяц назад

    Lynch syndrome is very frightening.

  • @ElanaMccullum
    @ElanaMccullum Месяц назад

    LYNCH SYNDROME TOTALLY EXPLAINS IT...

    • @theresed2348
      @theresed2348 Месяц назад

      Yes, it seems if his tumors are encapsulated then his situation is very different from most people with glioblastoma.

  • @toryisawesomeable
    @toryisawesomeable Месяц назад

    How does he get credited as the "longest GBM survivor in the US" at 20 years from diagnosis? There's someone who works at the neurosurgery clinic here in Cincinnati that's over 30 years from dx, and there are a few 30+ year survivors I've talked to online - not sure if they're all in the US but at least one of them is. There are hundreds of 20+ year GBM survivors in the US. It's obviously not the norm, but it's a solid chunk of people.

    • @kathycummings691
      @kathycummings691 Месяц назад

      Longest living pediatric survivor of GBM. He had it twice. Not sure I’ve ever heard of hundreds of pediatric long term survivors.

    • @Dave-qn1gc
      @Dave-qn1gc Месяц назад

      That’s great to hear! Perhaps you can get some of these 30+ year survivors you know to connect with the Glioblastoma Research Organization and share their stories.

  • @jolieesposito8620
    @jolieesposito8620 Месяц назад

    Wow ... unbelievable interview 👏👏thank you for sharing...Positive attitude.. positive thoughts.. positive outcome...Good luck to you David & your fiance...lots of love and happiness and cute babies...🙏❤️🍀🤞🍀😊

  • @sharpie510
    @sharpie510 Месяц назад

    Wow, this is a great story. It is not all that surprising you had bad side effects from the chemo and radiation, but to then get radiation induced cancer? That is horrible. Have you looked into DCVax-L? Like you, Brad Silver is alive and well with NO RECURRENCE since 2003. Also, he had no adverse side effects from the DCVax-L cancer vaccine. No horrible rounds of poisons, radiation, or an optune cap you have to wear 24/7. I also think Jennifer Sugioka may be living (again, with no recurrence the last I heard) because of DCVax-L. Jennifer was diagnosed with gbm in 1999 or 2000. Apparently there are DOZENS more long term survivors of glioblastoma if you google for them. So David, you are part of that club.

  • @roxyvelez3483
    @roxyvelez3483 Месяц назад

    What a lovely interview ❤ thank you for this! David is so kind 🙏 I reached out to him back in the day one ofbmy best friends was diagnosed with GBM. I lived a little bit longer than what the doctors predicted but sadly Brazil health system had so much negligence, he was also fighting the system besides GBM. Staying around people who fought together with him, made his last months be filled with love and courage. He never allowed negativity in, even on his last hours.

  • @kathycummings691
    @kathycummings691 Месяц назад

    Awesome interview and fabulous organization 👏🏼👏🏼👏🏼

  • @laurievillotta7935
    @laurievillotta7935 Месяц назад

    I am 52 and childhoood cancer survivor. I was diagnosed with Wilm’s tumor in 1977 at age of 6. I had a left nephrectomy with 2 years of chemotherapy and cobalt radiation. Lucky for me I had an 85% cure rate. I did great until 1997 I was discharged with Papillary thyroid cancer and had a total Thyroidectomy. It was a rough few years, but life became more normal. At this time I had been Oncology nurse for 3 years. In 2012 I relapsed with Thyroid cancer. I had a butterfly mass on my layreangeal nerve. I had 2 amazing surgeons. Life moves on and I was diagnosed with a Leomyosarcoma of the abdomen. My mass was near renal artery and was about 4x4 mass with clear margins. That was the most difficult Surgery I have had to go through. All my surgeons agree that Cobalt radiation had a lot to do with all my cancers. I am a slow healer to the abdomen. I have also been a nurse for 30 years. Being on both sides has humbled me. I thank God everyday for life I have been given. I am thinking about starting a podcast for long term pediatric patients that have survived and are looking for support as there have been many more challenges that we all have faced. I absolutely loved listening to this interview. I am writing a similar story. I would have no idea on how to start a podcast, but if you could reach out I would love that.

    • @darlenepietzak9847
      @darlenepietzak9847 Месяц назад

      Has anyone ever told you that Cobalt Radiation can cause other cancer years later? I had Cobalt Radiation when I was a toddler for tumors in my trachea. Twenty five years later I had a thyroidectomy due to 4 precancerous tumors on my thyroid. I was told it was probably caused by the Cobalt Radiation. Three years ago I was treated for breast cancer and I was very nervous to have radiation again. It can be frightening.

    • @laurievillotta7935
      @laurievillotta7935 Месяц назад

      My Thyroid and Leimyosarcoma are result from Cobalt radiation.

    • @moochachaa
      @moochachaa Месяц назад

      @@darlenepietzak9847my spouse had childhood cancer and has developed cancer again 14 years later the oncologists are 99% sure it was from radiation she received as a child it’s devastating.,

  • @pointpleasantranch
    @pointpleasantranch 2 месяца назад

    There is no sound after the introduction, any suggestions?

  • @luisvaldes7663
    @luisvaldes7663 2 месяца назад

    Great episode 👏🏻

  • @Zinnaerris
    @Zinnaerris 2 месяца назад

    My dad was just diagnosed with Butterfly Glioblastoma. They removed a lot of it however it's all throughout his frontal lobe as well as some in the back of his brain. He thinks he's 95% himself but he's not. It's been a month since his craniotomy. He thinks with chemo and radiation he will be able to live a year even though the oncologist said 16 weeks with treatment. I don't know how to help him understand.

  • @amiratosic9701
    @amiratosic9701 2 месяца назад

    🙏🙏🙏🙏❤❤❤

  • @amiratosic9701
    @amiratosic9701 2 месяца назад

    Amber, I still watch you you and support doing great job. Love you so much just because you doing what you’re doing. My husband is still fighting it not easy. Your mom knows what I am going through. Keep doing, love you❤❤❤😂

  • @amiratosic9701
    @amiratosic9701 2 месяца назад

    Thank you for sharing your story ❤❤❤😢😢😢

  • @amiratosic9701
    @amiratosic9701 2 месяца назад

    My heart is with you beautiful, my husband has glioblastoma, 10 months, still doing ok. He is now on lomustine. Recurrent glioblastoma last 2 MRI . Wish you the best.

  • @julielockman631
    @julielockman631 2 месяца назад

    I loved this, Jordy is such an inspiration and I’m so happy you have these podcasts, thank you!you two are both amazing, strong women and doing so much for so many❤️❤️❤👏🏻👏🏻👏🏻

  • @khuram72
    @khuram72 3 месяца назад

    I'm so excited to hear that you are doing another series, Amber. Keep up the amazing work you are doing to highlight awareness around brain cancer.

  • @frederickcarr6416
    @frederickcarr6416 3 месяца назад

    I know what Kelly Kelly is going through. I lost my Dad 31 yrs. Ago and I lost my Mom 11 yrs. Ago both from Cancer. Its still hard for me especially around Birthdays and Holidays. I will never forget about them and I'm always always always thinking about them. Love You Alot Always Princess ( Kelly Kelly) B.T.W LOVE LOVE LOVE YOUR LONG LONG AMAZING PHENOMENAL HEALTHY THICK SEXY SEXY SHINY HAIR HAIRSTYLE AND THE COLOR ❤ ❤ ❤ ❤ ❤ YOUR HAIR IS DEFINITELY ABSOLUTELY ❤ 💯% HEALTHY FULL OF BODY AND BOUNCE AND DEFINITELY SHINES LIKE SILK ❤ ❤ ❤ ❤ ❤ ABSOLUTELY 💯% AMAZING PHENOMENAL GORGEOUS STUNNING HEALTHY THICK SUPER SOFT SUPER SILKY SUPER SUPER SEXY AND DEFINITELY ABSOLUTELY 💯% 💯% SUPER SUPER SHINY HAIR THAT ALWAYS ALWAYS ALWAYS LOOKS NICE IN YOUR VIDEOS AND PHOTOS 📸 📷 🖼 🤳 ❤ 💖 YOU'RE SO SO PRETTY BEAUTIFUL GORGEOUS STUNNING ELEGANT CLASSY ADORABLE AND YOU'RE A SWEETHEART ❤ ❤ ❤ ❤ ❤ YOU'RE DEFINITELY ABSOLUTELY ❤ 💯% A PRINCESS AND A GODDESS AND DEFINITELY ABSOLUTELY 💯% A PERFECT 10 ❤ ❤ ❤ ❤ ❤ 😂 ❤ 😂 ❤ 😂 PLEASE!! PLEASE!! STAY SAFE AND STAY HEALTHY 🙏 ❤ 💙 💓 💕 TAKE CARE AND GOD BLESS 🙏 ❤ 💙 💓 💕 LOVE LOVE LOVE YOU SO SO MUCH PRINCESS ALWAYS 🙏 ❤ 💙 💓 💕 👸 LOTS OF HUGS AND KISSES ALWAYS 🙏 ❤ 💙 💓 💕 💋

  • @amiratosic9701
    @amiratosic9701 3 месяца назад

    Love you beatiful, doinggood job. My family move from Croatia to Canada 1998. My husbend 2023 in August was diagnosted with Glioblastoma. It is April 2024. HE IS STILL DOING GOOD ❤❤❤❤

  • @amiratosic9701
    @amiratosic9701 3 месяца назад

    So sad, 😢😢😢, my husbend has glioblastoma, life is not gonna be easy,stay strong. Love from Canada ❤❤❤

  • @FLEXONYOU2
    @FLEXONYOU2 5 месяцев назад

    So all my girls in the club say oooooooo

  • @annieparev9929
    @annieparev9929 5 месяцев назад

    Please checkout Ketogenic Diet + Intermittent Fasting! God Bless

  • @Karla-yi5ld
    @Karla-yi5ld 5 месяцев назад

    My husband had glioblastoma multiform. His first symptoms were headaches.

  • @Manjul54
    @Manjul54 6 месяцев назад

    My husband was diagnosed with Glioblastoma grade IV. He’s had surgery for removal of the tumour but before we could start radiation the tumour has already grown. We start radiation soon but what’s the path after that ..can anyone help.

  • @sissysmith9156
    @sissysmith9156 6 месяцев назад

    Also everyone who is searching for the path to health, I’m hoping that your hear truth and do the best you can to cope. I am so thankful to be learning! I’m going to look for a trial to help me get to back to my dream! My dream is playing lots of golf with the Amazing BMWGA golfing ladies and the leoladies came to take me to lunch. I feel very Thankful!

  • @sissysmith9156
    @sissysmith9156 6 месяцев назад

    Thank y’all for sharing your path and what you learned! I had surgery for glio 12/07/2023. I am in process of choosing my path. I feel very lucky to be in this process. God Bless!!!

  • @nickkarasch
    @nickkarasch 6 месяцев назад

    I have GBM as well, age of 36. Mine was originally diagnosed as AA3 in 2016 but it's not doing so hot lately.

    • @marieargentieri7989
      @marieargentieri7989 6 месяцев назад

      Sorry to hear you are not doing so well currently. Are you working with a neuro oncogist?

  • @humairaijazkhan1077
    @humairaijazkhan1077 7 месяцев назад

    Amani's mom is a real gem...such a patient & humble soul...I wish I could be befriend her!

  • @felix_hartmann
    @felix_hartmann 7 месяцев назад

    So insightful as usual 🙏

  • @tylerorr2467
    @tylerorr2467 7 месяцев назад

    we love u Barbie ❤

  • @johns7083
    @johns7083 7 месяцев назад

    Thanks so much. I have been treatment for 2 weeks. Thank you so much for the inspiration. Thanks for the podcast. John (Australia)

  • @robtighe2712
    @robtighe2712 8 месяцев назад

    I love what your doing! I feel so bad sometimes, to look at my wife with her brave face, doing everything, while all I want to do is sleep. I think its harder on the carer than the patient.

  • @TumorWarrior67
    @TumorWarrior67 8 месяцев назад

    Do you just have to be a GBM survivor or can you also be a survivor of a different glioma to chat?

  • @robtighe2712
    @robtighe2712 8 месяцев назад

    Hi, can you please post a link ? I'm a 4 year gbm4 patient, and curious to chat to various people, thanks

  • @user-gx6tv4ym9j
    @user-gx6tv4ym9j 8 месяцев назад

    Hi5 somo kind of wonderful

  • @user-gx6tv4ym9j
    @user-gx6tv4ym9j 8 месяцев назад

    The Wiggles too too cugga cugga big red car Javier

  • @janetmyers3729
    @janetmyers3729 8 месяцев назад

    My sister was diagnosed in June 2023 and is going through treatment after surgery. I’m trying to learn everything I can about the journey.

  • @bignorthernbear
    @bignorthernbear 9 месяцев назад

    Good messages for me right now thanks

  • @damianferguson2388
    @damianferguson2388 9 месяцев назад

    Great stuff. Love getting an update from the duke docs. With love from a Aussie with an oligodenglioma. Keep up the great work