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ALS Tool Kit
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Добавлен 20 янв 2021
University of Utah Health offers a multidisciplinary team approach to the treatment of individuals with ALS. Meeting with a multidisciplinary healthcare team is a unique opportunity-allowing a one-stop location that can address the multiple complications that can arise with ALS. Our team is comprised of specialists who will work with you and your family during the progression of this disease and can provide an individualized, holistic, and comprehensive management approach. Additionally, our team creates and curates these videos that seek to empower individuals and family members with ALS by providing the knowledge and the education that can allow you to live a fulfilling life with ALS.
Please refer to these videos as often as you need. You may want to share them with family members to help them understand what is happening, or you may want to refer to them as you hear something in clinic that you want to review again. This Tool Kit can be a companion to what we offer in the clinic.
Please refer to these videos as often as you need. You may want to share them with family members to help them understand what is happening, or you may want to refer to them as you hear something in clinic that you want to review again. This Tool Kit can be a companion to what we offer in the clinic.
The Progression of ALS: Resources across the Continuum | ALS Tool Kit
We, at the multidisciplinary clinic, understand the challenges of a diagnosis like ALS. We seek to provide you with an overview of common questions about the process of living with ALS and death and dying. We discuss resources to help you across the continuum including understanding palliative and hospice care.
Просмотров: 5 702
Видео
Stretching | ALS Tool Kit
Просмотров 4,3 тыс.3 года назад
Stretching is an important part of exercise that can help patients maintain their range of motion and reduce pain. Learn how to stretch throughout the progression of this disease.
Rolling Shower Chairs | ALS Tool Kit
Просмотров 4803 года назад
Understand how a rolling shower chair may assist someone with moderate to severe weakness.
Lifting Techniques | ALS Tool Kit
Просмотров 7343 года назад
Understanding the principles of proper lifting techniques can assist in protecting both caregivers and patients from injury. Learn a few different techniques that may assist you.
Augmentative and Alternative Communication: Eye Gaze Demo | ALS Tool Kit
Просмотров 3703 года назад
Learn about the different types of communication strategies that can be used to assist you with communication if speech becomes more challenging. Understanding these options can help improve your quality of life by making your needs understood.
Planning Goals and End of Life Part 1: Paperwork and Preparation | ALS Tool Kit
Просмотров 783 года назад
Identify what forms may be useful in planning for your end of life, such as the Advanced Directive form.
Patient Lift System | ALS Tool Kit
Просмотров 3643 года назад
A patient lift system is a tool that can aid patients and caregivers in safely maneuvering from one surface to another. Learn how to use a patient lift system.
Modified Heimlich Maneuver: Assisted Cough | ALS Tool Kit
Просмотров 2,1 тыс.3 года назад
Choking is often a scary problem for individuals who have difficulty swallowing. This technique will enable you to assist your loved one should choking occur.
Insurance, Disability & Medicare | ALS Tool Kit
Просмотров 753 года назад
Managing insurance and disability can be confusing. Learn the basics of managing your insurance and disability plans.
Getting Up from the Floor | ALS Tool Kit
Просмотров 5233 года назад
While we focus on having you not fall, we recognize that falls do occur. This video will provide different techniques to aid someone getting up from the floor.
Bathroom Adaptations: Severe Weakness | ALS Tool Kit
Просмотров 4283 года назад
Home modifications and setup are often needed to allow safe access throughout the home. These two videos ("Bathroom Adaptations: Moderate Weakness" & "Bathroom Adaptations: Severe Weakness") will identify basic equipment that can help you continue to move safely in your bathroom. Equipment that can be used during the transition of this disease from mild/moderate weakness to severe weakness is d...
Bathroom Adaptations: Moderate Weakness | ALS Tool Kit
Просмотров 4703 года назад
Home modifications and setup are often needed to allow safe access throughout the home. These two videos ("Bathroom Adaptations: Moderate Weakness" & "Bathroom Adaptations: Severe Weakness") will identify basic equipment that can help you continue to move safely in your bathroom. Equipment that can be used during the transition of this disease from mild/moderate weakness to severe weakness is d...
Wheelchair Cushions | ALS Tool Kit
Просмотров 1153 года назад
Wheelchair cushions are critical pieces of equipment for comfort and support. Explore the different types of wheelchair cushions, and find out how to get the most out of your cushions and to manage your cushions.
Tools for Daily Activities | ALS Tool Kit
Просмотров 4763 года назад
Learn some tips and tricks for living with ALS that can help you to complete your daily activities more independently and with less fatigue.
Pseudobulbar Affect | ALS Tool Kit
Просмотров 9663 года назад
Pseudobulbar affect, or PBA, is a common disorder with ALS that is associated with increased laughing or crying. This video will describe what PBA is and the available treatment options.
Proper Mask Fit for a Bi Pap or Ventilator | ALS Tool Kit
Просмотров 903 года назад
Proper Mask Fit for a Bi Pap or Ventilator | ALS Tool Kit
Planning Goals and End of Life Part 2: Planning and Coping | ALS Tool Kit
Просмотров 543 года назад
Planning Goals and End of Life Part 2: Planning and Coping | ALS Tool Kit
Breathing Support in ALS (Part 1): Lung Function | ALS Tool Kit
Просмотров 1 тыс.3 года назад
Breathing Support in ALS (Part 1): Lung Function | ALS Tool Kit
Genetic Factors of ALS | ALS Tool Kit
Просмотров 8143 года назад
Genetic Factors of ALS | ALS Tool Kit
Eating Recommendations | ALS Tool Kit
Просмотров 8673 года назад
Eating Recommendations | ALS Tool Kit
Breathing Support in ALS (Part 2): Devices and Tracheostomy | ALS Tool Kit
Просмотров 7973 года назад
Breathing Support in ALS (Part 2): Devices and Tracheostomy | ALS Tool Kit
Cough Assist Machine: Mechanical Insufflation-Exsufflation | ALS Tool Kit
Просмотров 3,2 тыс.3 года назад
Cough Assist Machine: Mechanical Insufflation-Exsufflation | ALS Tool Kit
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Thank you for sharing, what a great video!! Very helpful.
This method does not work if the als person has breathing issues
There is actually over 160 cannabiniods in the plant. Tch and cbd just the top 2 studied
I'm on year 11, still walking, still talking and taking long trips on my motorcycle. I have been smoking from the first symptom to today. My VA care team is amazed at my lack of progression. And I seriously believe that marijuana is the reason! I keep think that I should volunteer for research testing, maybe they could find something in me that could help others.
i have used a cheap Thc gummie and hemp gummies every 6 hours around clock for ALs. once diagnosed. and i am still talking , eating and mobil 7 years later. My drs are amazed and says is not medical possible. Just had blood work and said unbelievable and was good except for sugars a bit high from my gummies laughs. is legal in my state.
Thank you so much for sharing this
Several times it's almost killed me. I'm so done with doctors as well. They won't fix this
Yes...definitely use cannabis 😎
Dr Ehimare herbs 🌿 medicine treatment on RUclips channel cured and reverse my uncle from Motor neuron disease Al's permanently ❤️
WARNING: SHE ACCIDENTALLY SAID TO SUBMERGE THE ENTIRE UNIT IN WATER!!!!" SHE DID NOT MEAN THAT! NEVER SUBMERGE A PIECE OF MACHINERY IN WATER! YOU WILL DAMAGE IT! SHE MEANT TO SAY, SUBMERGE THE TUBING, AND MASK IN WATER! AGAIN! DO NOT SUBMERGE THE COUGH ASSIST IN WATER, BECAUSE IT WILL DAMAGE IT! This video was a wonderful video, and was a wonderful demonstration!
Most helpful, Much appreciated .
My husband has ALS, and he is 250 pounds. I am 180, One time I tried to us the belt and he complained off pain that the belt was causing. What I can do I. This situation? Thank you.
I was once an HSV 2 patient, but now I have finally got rid of it with the help of DR ALAHO ADEBAYO OLU on RUclips herbal medicine you can also get yourself cured with the help of this same man, his herbal medicine works perfectly, well thanks so much.🥬🥬
i have Als i am in 5th year still talk and still mobil. i take Thc Stevia gummies 5 mg every 6 hours and also hemp gummy i take with this every 6 hours , i sleep with by pap at night. it works i have done my own trail for me. . an i have never been high.
i am now starting my 8th year. still eating and taking care of my self and walking and talking. and it stopped my cancer from spreading. i use stative with als
Great
I'm so much grateful to Dr Ehimare on RUclips channel who cured and reverse my husband permanently from bulbar Al's naturally with herbal medicine treatment formula from Dr Ehimare
Behold the results was negative. I'm HSV negative it's been 4 years since I got my complete healing naturally with the help of Drchala from west Africa who I find here on RUclips channel
Does bipap machines incorporate moisture? Mine does not. I wake up with a dry-bone respiratory system which exasperates my uncomfortableness. Moisture is key for comfort.
Yes mine has a humidifier hooked to it.
We shouldn’t be having these conversations. There needs to be government funding towards ALS and alternative treatments. You have drugs that suppress HIV, cancer treatments and can send men to space, but can’t manage ALS? How about surveying ALS patients with their activities over the past years leading up to diagnosis? There has to be a common denominator and I don’t feel that has been researched or established.
I just started sinemet with good response, but have weakness, apathy and uncontrollable crying also. My Neuro has done an EEG and I'm doing my MRI tomorrow. I started blinking again with the sinimet but to think someone gets to where they can't even move their eyes, no ability to communicate. That's heavy, y'all.
My MRI showed I was having an acute or recent subacute stroke. I also had an old infarct that the crying was coming from. I have Parkinsonism with dystonia from Lyme disease that took 12 years to diagnose.
I was diagnose last week, but the diagnose came after almost 2 years since I started having the symptoms, it started with a foot drop and then lost the right leg and it progressed to the left leg I just started using a wheelchair. the breathing issues, my diaphragm is so weak that when I laugh it hurts and cant stop laughing, shortness of breath etc. these new symptoms started about 3 months ago. from this point, I am not sure how fast it will progress
Sorry to hear that. Do you tried groups for ALS? I think you need talk with someone. 💕
Sorry to hear that. Do you tried groups for ALS? I think you need talk with someone. 💕
Hi. How are you now?
I really hope I don't have this but I'm scared this is what's wrong with me. I started having globus sensation 7 months ago and now I also have sudden choking attacks. Doctors haven't been able to tell me what's wrong. I don't have an limb weakness but my throat doesn't feel normal and I feel worse as time passes
Al's (motor neuron disease) is a deadly disease after been diagnosed for years, but all thanks to Dr Ehimare on RUclips that reverse my ALS disease with the herbal medication treatment. God bless you xx doctor Ehimare on RUclips channel
I can't believe this doc is saying that passing from ALS is not uncomfortable! How about people choke constantly on food and saliva. If you get a cold, you choke on your own mucous. I don't think that is comfortable!!!
Hello RUclips! How can share my testimony to everyone out here on how my father was cure from Al's only with herbal medicine treatment method, after our medical doctor told us my father only have 2 more years to live. If you are been diagnosed with Al's don't believe on our America Dr they have no solutions!!! Reach out to #DREHIMARE ON RUclips for cure.
Thank you.
Thanks for making this clip.
Thank you so much for this! I have ALS and have recently developed laryngospasms, and my doctor shared this video with me. It's great to hear someone who is experiencing them describe from their point of view, thanks!!
Thank you. I wish we had watched this about a year ago.
Thank you!!
Thanks Dr. Bromberg. Great presentation.