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Thanks to everyone that participated! COPYRIGHT MUSIC via Canva pro license.

Special thanks to the American Association of Endocrine Surgeons and the panelists for participating!

Two patients with metastatic paraganglioma caused by an inherited genetic mutation discuss their diagnosis and journeys as patients with a rare disease. Featuring Jenn Testamarck, 2024 Pheo Para Phenom Ambassador of the Year and Lacey Koelling, and moderated by Aimee Powell, Community Engagement Specialist for the Pheo Para Alliance. Originally streamed live on Tuesday, August 27th

Pheo Para Awareness Week Committee Chair Chad Riding kicks off a series of special events to mark the 5th annual observance of Pheo Para Awareness Week! Joined by Dhaval Patel, M.D., FACS, he explores the curious case of Mina Roll, an unsolved medical mystery from 1886. Did they solve it? Tune in to find out!

Symptoms reported by people throughout the metaverse are stumping their doctors, and turn to our Meta Detective for help. Will the clues he finds help him solve the mystery?

Get ready, gumshoes! Pheo Para Awareness Week is just around the corner, and Ace Detective Chad has the wire on what's goin' down!

Clinical trials are essential to the development of new diagnostic tools and therapies - and the expanded use of those already on the market - for those with pheochromocytoma and paraganglioma. Jaydira Del Rivero, MD, joins Pheo Para Alliance Board Chair Linda Rose-Krasnor to discuss what clinical trials are open and recruiting those with pheo para and how to find a one that's right for you. Th...

Part of the Pheo Para Alliance Patient Education Webinar Series. This webinar was streamed live on June 21st, 2024 and features presentations from -Erqi Pollom, MD, MS, Stanford University School of Medicine -Steven D. Chang, MD, MBA, FAANS, Stanford University School of Medicine Questions and timing are as follows: Q 1 at 42:37 "What are the risks of secondary cancers after radiosurgery? What ...

Dr. Karel Pacak, MD, PhD, DSc, National Institutes of Health and Dr. David Taieb, MD, PhD, Aix-Marseille University present on “Recent International Guidelines on Management of Carriers and Pheo Para Patients with SDH Pathogenic Variants.” Includes a lengthy Q&A with our experts! Questions and timing are as follows: Q 1 at 40:56 "Which type of panel is the best for testing for all variants of S...

Thank you to everyone who supported our mission to help those affected by pheochromocytoma and paraganglioma. (Music Copyright - Canva)

Dr. Ali Alzahrani, King Faisal Hospital and Research Centre, Riyadh, Saudi Arabia, joins us to talk about SDHB mutations and their different expressions among those with pheochromocytoma and paraganglioma. Part of the Pheo Para Alliance Education Webinar Series. Questions and timing are as follows: Q 1 at 48:16 Are there subtypes of SDHB? Q 2 at 49:16 Is it common to be the only SDHB-positive p...

Special thanks to Jazmyn and her mom for sharing their journey, and to INCA for creating this video as part of their broader effort to raise awareness about neuroendocrine cancer. Learn more at incalliance.org

Dr. Karel Pacak, MD, PhD, DSc, National Institutes of Health, joins us for the fourth year in a row for an episode entirely devoted to answering questions submitted by patients. Part of the Pheo Para Alliance Education Webinar Series. Questions and timing are below: Q 1 at 07:25 "Can you give us any updates on any new research, treatments, guidelines, etc. that patients might need to know about...

Pheo Para Abstract Awards

Special Informational Webinar - After AZEDRA: Moving Forward Together

We Can't Find the Pheo: No Tumor, Yet Symptoms

2023 Awareness Week Wrap-Up

2023 Pheo Para Awareness Week IDEA PSA: Saundra's Story

2023 Pheo Para Awareness Week IDEA PSA: Layla's Story

2023 Pheo Para Awareness Week IDEA PSA: Teena's Story

The Edge of Tomorrow: Visions of Our Phuture

New Visions & Perspectives on Pheochromocytoma & Paraganglioma

Communicating Your Complex Medical History to Your Healthcare Provider

Back to the Phuture

4th Annual Pheo Para Awareness Week - A Hundred Years From Now: Imagining Our Phuture

4th Annual Pheo Para Awareness Week: The Phuture For Pheo Para

Educational Webinar Series Five Years Since Azedra FDA Approval: What Have We Learned?

Newly Diagnosed Care Kit Video

Education Webinar Series Diagnosing Pheo Para: Properly Reading Labs and Avoiding Pitfalls