Roanna Jane
Roanna Jane
  • Видео 44
  • Просмотров 153 224
Leo’s Genetic Results Update: PMM2-CDG
Quick update with Leo’s Genetic Results.
Leo recently received an official diagnosis called PMM2-CDG. It is a super rare autosomal recessive disorder which is the reason for his Cerebellar Hypoplasia and ataxic cerebral palsy.
We are doing well and Leo is amazing. Hoping to share more about this diagnosis in the future.
Instagram: RoannaJane
Leo’s Instagram: Leo.Unstoppable
TikTok: LeosMumRo
#PMM2CDG #cdg #geneticdisorder
#ataxiccerebralpalsy #cerebralpalsy #neurologicaldisorder #kidswithdisabilities #cerebellarhypoplasia
Просмотров: 214

Видео

Vlog: Morning Routine and Physio - Ataxic Cerebral Palsy and Cerebellar Hypoplasia
Просмотров 2425 месяцев назад
First Vlog back and still finding my rhythm. Come with us as we get ready for the day and take Leo to his Physio session. For those of you who may not know, Leo is 20 months old and has Ataxic Cerebral Palsy due to a brain malformation called Cerebellar Hypoplasia. Come along this journey as we advocate for Leo and his abilities! Instagram: RoannaJane Leo’s Instagram: Leo.Unstoppable TikTok: Le...
How we found out about Leo’s Disability | Cerebellar Hypoplasia & Ataxic Cerebral Palsy
Просмотров 1,2 тыс.6 месяцев назад
Hey there, welcome back to Roanna Jane! In this video I'll be sharing with you about my son Leo's journey with Cerebellar Hypoplasia, Ataxic Cerebral Palsy and Ocular Motor Apraxia. It's emotional, it’s quite long (sorry!) but it's our story. Grab some tissues and join me as I share how we found out about Leo’s disability. Let's dive in together! Instagrams: @RoannaJane @Leo.Unstoppable Roanna xx
Update - I had a baby!
Просмотров 3116 месяцев назад
~Update Video~ 💛 Ro xx
New Grad Nurse Q+A
Просмотров 1,7 тыс.3 года назад
A collation of (infrequently asked) questions that you guys sent me about my new grad nursing year. If you have any other questions that weren't covered in this video, please leave them in the comments or reach out to me on Instagram (@roannajane). INSTAGRAM: roannajane Music by Epidemic Sound (www.epidemicsound.com) 💛 Ro xx
12hr Night Shifts. Getting Ready for Night 1 of 3.
Просмотров 1 тыс.3 года назад
Wondering how best to prepare for 3 night shifts in a row? Me too. But if you're interested in seeing how I try and manage it, come with me while I get ready for night 1 of 3 (12hr night shifts). INSTAGRAM: roannajane Music by Epidemic Sound (www.epidemicsound.com) 💛 Ro xx
Life Update. I'm back on YouTube
Просмотров 6503 года назад
Feels good to be back 💛 INSTAGRAM: roannajane Music by Epidemic Sound (www.epidemicsound.com) Royalty-Free footage from Storyblocks (www.videoblocks.com/) 💛 Ro xx
Apartment Hunting and IBS Chats | Getting Ready for Nursing New Grad Orientation
Просмотров 1,2 тыс.3 года назад
Next week I start my Nursing New Grad, so this week I am getting things ready for orientation. Apartment hunting, talking about my IBS, and just getting life sorted. I have a Master of Nursing from the University of Sydney. If you are interested in the Master of Nursing program at USYD you can click on this link: sydney.edu.au/courses/courses... INSTAGRAM: roannajane Music by Epi...
Should you work as an AIN in nursing school?
Просмотров 14 тыс.3 года назад
Ever thought of working as an AIN (Assistant in Nursing) while studying at nursing school? If you're in Australia and are wondering what an AIN is, what an AIN does, and whether it's beneficial to be an AIN while studying to become a Registered Nurse, then you should definitely watch this video! 00:35 - What is an AIN? 00:59 - Working while studying 02:29 - What does an AIN do? 05:34 - My exper...
Exploring the New USYD Susan Wakil Health Building | Sydney Nursing School
Просмотров 7 тыс.3 года назад
I was one of the first students invited to explore the new Susan Wakil Health Building at The University of Sydney! Link to see more about the new building and facilities: www.sydney.edu.au/medicine-health/about/locations-and-facilities/susan-wakil-health-building.html Link to explore available health courses at USYD: www.sydney.edu.au/medicine-health/study-medicine-and-health.html I'm studying...
Preparing for my New Graduate Nursing Interview!
Просмотров 2,4 тыс.4 года назад
I can't believe how close I am to becoming a Registered Nurse! *note that I didn’t film any part of my actual interview* I'm studying the Master of Nursing at the University of Sydney. If you are interested in the Master of Nursing program at USYD you can click on this link: sydney.edu.au/courses/courses... INSTAGRAM: roannajane Music by Epidemic Sound (www.epidemicsound.com) Roy...
I Was Bitten by a Spider!? + Nursing Student Day in the Life.
Просмотров 6134 года назад
Finding out I was bitten by a white tail spider! Also, a day in the life of my final semester of Nursing School, including preparing for my new grad interviews! I'm studying the Master of Nursing at the University of Sydney. If you are interested in the Master of Nursing program at USYD you can click on this link: sydney.edu.au/courses/courses... INSTAGRAM: roannajane Music by Ep...
How to Use a Retrospective Study Guide + FREE TEMPLATE!
Просмотров 6 тыс.4 года назад
I am very excited to share with you the template for my Retrospective Study Guide! Click the link below to access the template for free on Google Sheets. ☆ FREE TEMPLATE! ☆ bit.ly/RetrospectiveStudyGuideLink 03:34 - Template Overview 04:10 - How to Get Started 04:43 - Colour Coding 05:36 - How to Use The Coloured Tick System ✓✓✓ 07:16 - Tips For Using The Guide 10:37 - How to Add More Weeks 11:...
Nursing Student Goes Skiing in Thredbo, Aus
Просмотров 5934 года назад
The stars aligned and I had 4 days off from work in a row. I've been really busy working during my uni break so it was great to get away for a few days to relax and have fun. Disclaimer: Thredbo resort has a COVID19 management plan in place, with limited numbers of lift passes being sold and changes such as limiting numbers of guests on lifts and in restaurants. While I was there to have a good...
Medical Student vs Nursing Student | Assumptions about each other
Просмотров 3,2 тыс.4 года назад
Medical Student vs Nursing Student | Assumptions about each other
Nursing Student Day in the Life | Online Learning is Hard
Просмотров 8714 года назад
Nursing Student Day in the Life | Online Learning is Hard
Nursing Student | My experience in the Neuro ICU
Просмотров 3,7 тыс.4 года назад
Nursing Student | My experience in the Neuro ICU
Nursing Clinical Placement During COVID-19
Просмотров 1,4 тыс.4 года назад
Nursing Clinical Placement During COVID-19
COVID-19 Pandemic: Life as a Nursing Student
Просмотров 2,4 тыс.4 года назад
COVID-19 Pandemic: Life as a Nursing Student
First day of my last year of nursing school
Просмотров 9964 года назад
First day of my last year of nursing school
Nursing Student Clinical | What do I get up to?
Просмотров 9634 года назад
Nursing Student Clinical | What do I get up to?
Tips for Nursing Clinical Placements
Просмотров 2,8 тыс.4 года назад
Tips for Nursing Clinical Placements
What to do now you've been accepted to nursing school
Просмотров 2,4 тыс.4 года назад
What to do now you've been accepted to nursing school
Birthday Vlog 2019
Просмотров 4524 года назад
Birthday Vlog 2019
Nursing in the Outback | Ep. 2 Day in the life
Просмотров 1,5 тыс.4 года назад
Nursing in the Outback | Ep. 2 Day in the life
Nursing in the Outback | Ep. 1 Driving to Broken Hill
Просмотров 3,4 тыс.4 года назад
Nursing in the Outback | Ep. 1 Driving to Broken Hill
Week in the Life of a Nursing Student
Просмотров 1,4 тыс.5 лет назад
Week in the Life of a Nursing Student
How I Take Notes in Nursing School
Просмотров 32 тыс.5 лет назад
How I Take Notes in Nursing School
Skiing in Thredbo Australia
Просмотров 2,2 тыс.5 лет назад
Skiing in Thredbo Australia
Nursing Student: Day in the life
Просмотров 1,8 тыс.5 лет назад
Nursing Student: Day in the life

Комментарии

  • @flyingscotsman8517
    @flyingscotsman8517 20 дней назад

    Pure little one, I was born with mild spastic cerebral palsy, I had difficulty swallowing food, and lived on fried or boiled eggs. It was difficult for us as a family to go out to dinner. I was brought up to mask.

  • @Liinaria
    @Liinaria Месяц назад

    Hi I’m an coming nursing student at usyd, just wondering if they have uniform samples that I can try before ordering? I am usually petit and I’m scared that I might buy a bigger size as nursing uniforms are usually bigger to allow movement. Also, what’s your size if you don’t mind 😭. Should I size down?

  • @emmamccann4386
    @emmamccann4386 Месяц назад

    Did they say a stroke could cause cerebellum hypoplysia? Xx

  • @nguyenanhtran4641
    @nguyenanhtran4641 Месяц назад

    Great video thank you Jane. I am a first year nursing student going into my first placement soon I have heard that working as an undergrad AIN means that you have no fixed schedule. Other students told me that you are basically "on call", meaning that you will be called whenever needed. is this true?

  • @prosocialdistancer
    @prosocialdistancer 2 месяца назад

    Thank you for sharing this video. My son 20 months now has Pontocerebellar hypoplasia type 9 (PCH9) and I see all those things in him that you shared in your video. And like you said, everything in MRI and scans came up normal but the signs getting worse. He just started sitting by himself and crawling a little bit, also he can stand by holding onto something (wall or door or something). You didn't mention anything about touch sense, because my son doesn't let anyone touch him, like we would be trying to help him and yet he would refuse to take that help. He doesn't speak much, and he has a problem with loud noises, like horns or other kids speaking loudly. I am also going to share a video of my son and the problems he faces, may be someone could help. Doctors say that there is no known cure for it, because it's so rare. But I cannot sit and watch him being miserable among other kids. Love from Pakistan!

    • @aaqibzafar570
      @aaqibzafar570 4 дня назад

      Sad to read it brother. Hope he will be better in coming days.

  • @swePinay96
    @swePinay96 2 месяца назад

    ❤️

  • @samanthako4269
    @samanthako4269 3 месяца назад

    Could you share your experience with the AIN interview stage and have any tips on how to prepare for it?

  • @AntoniaGorneo
    @AntoniaGorneo 3 месяца назад

    🌟 Thanks for sharing your story

  • @ALACGltd
    @ALACGltd 4 месяца назад

    Hello, I don’t usually leave comments. I’m 29 and have ataxic and spastic cerebral palsy. I use a manual wheel chair and go to physical therapy. I wasn’t diagnosed for some time. I just wanted to give you hope and let you know Leo will be ok and have a happy life. Everyone’s case is different. I was so spastic I was born cross eyed. After a failed strabismus surgery I now have a lazy eye. I use my right eye predominantly. I have issues with depth perception but it is wonderful you have early intervention. A lot of people with cerebral palsy do well but it can be traumatic to find out. I want to let you know you’re doing everything he would need to succeed. I don’t know if he has spasticity but baclofen Has been incredible for me. I wish you all the best. Reach out with any questions

  • @Nancy-ux3iy
    @Nancy-ux3iy 4 месяца назад

    Thanks for the sharing ❤

  • @pascallacarruba7755
    @pascallacarruba7755 4 месяца назад

    So good to hear that you had some intelligent drs pick it up early to help you get the right therapies for Leo. You’re all doing amazing. We’ve found DMI therapy very helpful for motor development.

    • @roannajane2759
      @roannajane2759 4 месяца назад

      Thank you ☺️ Leo has been lucky to have such a supportive team. We have tried DMI therapy during a couple of intensives which Leo didn’t like but helped a lot. Thinking about doing weekly sessions with him as well

    • @pascallacarruba7755
      @pascallacarruba7755 4 месяца назад

      @@roannajane2759 my daughter has a small cerebellum but we are still doing genetic testing to find out why. She’s three and just started walking after a few weeks of consistent DMI. Lots of cartoons in the sessions definitely helped her get through it :)

  • @amylclarke7019
    @amylclarke7019 5 месяцев назад

    Thanks for sharing this update, it's helped me understand Leo's diagnosis. Good luck with all the specialists, we'll be thinking of you.

  • @theashwoodfaerie2
    @theashwoodfaerie2 5 месяцев назад

    As a mother myself. I can imagine how traumatic this discovery can be finding out your child could have a profound disability. And as a person who has worked with children who have disabilities, I would like to say that yes, it's going to be a difficult journey, there are lots of parents with children who have disabilities. You'll have an amazing and supportive community behind you. Early Intervention is a hugely positive thing to look into. The SPED departments in day care and preschools are really good advocates and of course the rest of Leo's care team can help him lead a life that he is capable of. 15% of the world has some form of disability. And we will happily accept Leo into our community. Love from an Autistic Mum

  • @jasminepeters755
    @jasminepeters755 6 месяцев назад

    💫

  • @rosasalazar7728
    @rosasalazar7728 6 месяцев назад

    ⭐️Thanks for sharing Roanna. Ben and you should be really proud of yourselves. You have done an amazing job and definitely Leo couldn’t be in better hands.

  • @sarahwkml
    @sarahwkml 6 месяцев назад

    🌟 Thank you for sharing! I followed you back in the day for nursing but learning about this has been equally interesting! so thank you! Clearly Leo has the best parents ever doing the best job! x

  • @amylclarke7019
    @amylclarke7019 6 месяцев назад

    🌟 This video deserves more than one star! What a journey you've been on!! And you've shared it so well on this video (I love all the clips!). Leo will be so proud of his parents and their hard work to ensure he has the best start possible. I can't imagine the grief of hearing the news of such a diagnosis, but I am in awe of how well you've turned the grief into fuel to get the best supports for Leo. He's in great hands with you and Ben 💙

  • @benisbuff
    @benisbuff 6 месяцев назад

    💫

  • @ktugaming9105
    @ktugaming9105 10 месяцев назад

    Hi Roanna, do you think you'd be able to help me with the revision timetable ? I have been using the one you linked in the description for a couple of months; I have suddenly lost permission and it says 'Access denied'. Additionally, I cannot find my google sheet anywhere and most of it was in spanish for some reason ? Any help would be much appreciated.

  • @terryjones5779
    @terryjones5779 11 месяцев назад

    Are AIN's aloud to perform ECG's or bladder scans? What about altering oxygen levels with the witness of a nurse. Also, can AIN's take out a cannula or draw up normal saline? I've seen some do these on the floor so I'm curious about their scope or maybe they are trained to do it?

    • @rheannonnoonan276
      @rheannonnoonan276 3 месяца назад

      Yes Ains can perform ecgs not sure about bladder as an Ain I have done a couple ecgs

  • @-zara-zara
    @-zara-zara Год назад

    This is the video I was searching forr

  • @annak7598
    @annak7598 Год назад

    I’m a nursing student in Australia. How competitive was getting into a grad program for paediatric nursing? What gave you the edge to get into that? Any tips?

  • @umachandrika6710
    @umachandrika6710 Год назад

    Thank U for this vid❤. Its really helpful for me. I am about to start my nursing school as an int' student. Ur vids guide me through my journey. Thanks a lottt..

  • @sifonekong1973
    @sifonekong1973 Год назад

    Thanks for this! What’s travel nursing like in Australia

  • @alimranmahmud9114
    @alimranmahmud9114 Год назад

    An amazing vlog for me to watch before going for a new grad at Broken hill. Thanks!

    • @shwanaNZ94
      @shwanaNZ94 9 месяцев назад

      Hey. May I ask how you found it. I'm also on the same path and wanted to know your experience

  • @abbysarah6011
    @abbysarah6011 2 года назад

    So helpful. I also have a BS in psychology concentration in neuroscience and now I’m in nursing school. Heavily leaning toward neuro icu in my future 😊

  • @yvonnebubble
    @yvonnebubble 2 года назад

    Thank you for telling your experience in ICU! Truly helps!

  • @kjv3192
    @kjv3192 2 года назад

    Nice video. I am a neuro icu nurse and the highest amount of pumps i have had on one patient was 13 😳. Plus an EVD, swan catheter, icp bolt, and no turn orders. it was a busy shift

  • @katherineauld1117
    @katherineauld1117 2 года назад

    Thank you for this video, this info is really helpful!

  • @keziaheluwa1350
    @keziaheluwa1350 2 года назад

    Hi, I live in Nigeria but will be relocating to Canada soon. I have a certificate as an AIN, can I find AIN jobs immediately I relocate.

  • @samanthako4269
    @samanthako4269 2 года назад

    do you have to be good at math to excel? did you take any mathematics units in your undergrad and/or masters?

  • @christine-tb8pk
    @christine-tb8pk 2 года назад

    Is it possible after nursing school to give gasmat exam and go in med school??

  • @annielune5993
    @annielune5993 2 года назад

    Thanks for sharing! I like your voice, which sounds very comfortable~

  • @neovemnathanaelguatlo9787
    @neovemnathanaelguatlo9787 2 года назад

    Hii!! Can i message you at some time? I just have a lot of questions ❤️ an aspiring student in usyd

  • @aiewaibha3291
    @aiewaibha3291 2 года назад

    What is total cost of studing EN ? Or AIN . Really interested 😊.

  • @mathsfun10
    @mathsfun10 2 года назад

    Hi, I may attend to the business degree (undergraduate) as an international student at the university of sydney next year. (i study ib diploma in the uk btw) I saw many negative reviews about this university for some reason even though it's well known in Australia. Some say the teaching quality is poor compared to ivy league unis or russell group unis, and others say it's too easy to get into there compared to those mentioned group unis and therefore it't not prestigious. Although the university ranking for business management at USYD is around 46 in the world. Here is the question; What's the position of the business management student at USYD in terms of the academic level? Also, what's your general view about this university? Is this university about as good as UCL or LSE or KCL... if you know? (those are the top unis in london.) Sorry for a lot of questions! Hope you see this comment!

  • @whatislifeism
    @whatislifeism 2 года назад

    Thanks for your video! I'm considering doing an elective placement there next year and it was nice to hear about your experience.

  • @gurjeetkaur6895
    @gurjeetkaur6895 2 года назад

    Hii please tell me AIN ( can I do work in hospital)

  • @roberthales2579
    @roberthales2579 3 года назад

    AI nurse practitioner RN RICKY

  • @rosellefuentes7481
    @rosellefuentes7481 3 года назад

    Hi! Pls do the video of pros and cons of becoming a doctor vs nursing! Thanks 😊

  • @samanthako4269
    @samanthako4269 3 года назад

    hi! i’m applying to sydney uni for nursing. was just wondering: did you do a bachelor of nursing? or a bachelor of science master in nursing?

    • @roannajane2759
      @roannajane2759 3 года назад

      I actually did a seperate bachelor of Psychological Science at UNSW and then did my Master if nursing at USYD ☺️

    • @johu6930
      @johu6930 2 года назад

      @@roannajane2759 hiiii, im applying for 2023 intake and already got a conditional offer. im really nervous as i want to get into this program and was wondering how was the numerical and literacy exam + interview?

  • @dreidolcampaign2912
    @dreidolcampaign2912 3 года назад

    Hello there, I’m in my 3rd year of Bach of nursing; just picked up a job as an AIN in hospitals. So is it just literally aged care stuff? And the scope isn’t great as far as I’ve being told? And the money is good I already have a job but is the experience really all that great that you go into different fields? I also messaged you on Insta. Great video too it was helpful

    • @sakshideendyal7901
      @sakshideendyal7901 2 года назад

      Hlo.... I am quite curious to know more about AIN from ur mouth...can we talk on insta or through any other source, Actually, i am also pursing bachelor’s of nursing from flinders. Its my 1st year and want to work as AIN.

  • @cebukangaroobun2575
    @cebukangaroobun2575 3 года назад

    I’m currently study Certificate 3 in Health Service Assistant, is it I need to study a different course to Become AIN or after studying this course I’m qualified to work as an AIN ? Thank you

    • @crystalr6485
      @crystalr6485 3 года назад

      Im doing a Cert III in Health Service Assistant, and that is the cert needed to become an AIN. I am going into a diploma after i complete this course. but it is doable if you become a AIN. the minimum requirements to become an AIN is a cert III in Health Service Assistant. I hope this helps <3

  • @dmr208
    @dmr208 3 года назад

    Hi dr I have a numeric and literary test before entering to Master nursing program in University of Sydney. Do you have any idea about that one? Reply highly appreciated

  • @heleneschelle1160
    @heleneschelle1160 3 года назад

    How do you find the time to do the placements while you’re working as an AIN? Do you have to take unpaid leave?

    • @raine6634
      @raine6634 2 года назад

      Well durr, u can’t work as place,ent is full time gig ud have to take study leave

  • @maddiem515
    @maddiem515 3 года назад

    Just discovered your channel and so glad I did! I’m a final-year nursing student in Vic preparing for grad interviews😅😊

    • @angelgold9073
      @angelgold9073 3 года назад

      Have you been struggling with NCLEX be it LPN or RN, have you taken the exam for more than once? Are you taking it for the first time? Do you have a too busy schedule to study? Get to Dr NeedHam for your NCLEX assistance. I’m so happy I finally passed my exams after taking the test twice thanks to him. He’s got a magical qbank which will help you. Get to him and your NCLEX problems will be solved.

  • @MaddisonCann
    @MaddisonCann 3 года назад

    Thanks for this! I interviewed with NSW Health on the 9th, not sure how I feel haha. Fingers crossed

    • @angelgold9073
      @angelgold9073 3 года назад

      Have you been struggling with NCLEX be it LPN or RN, have you taken the exam for more than once? Are you taking it for the first time? Do you have a too busy schedule to study? Get to Dr NeedHam for your NCLEX assistance. I’m so happy I finally passed my exams after taking the test twice thanks to him. He’s got a magical qbank which will help you. Get to him and your NCLEX problems will be solved.

  • @angelgold9073
    @angelgold9073 3 года назад

    Have you been struggling with NCLEX be it LPN or RN, have you taken the exam for more than once? Are you taking it for the first time? Do you have a too busy schedule to study? Get to Dr NeedHam for your NCLEX assistance. I’m so happy I finally passed my exams after taking the test twice thanks to him. He’s got a magical qbank which will help you. Get to him and your NCLEX problems will be solved

  • @WeightlossfactswithEJ
    @WeightlossfactswithEJ 3 года назад

    Gosh I’m so nervous if I even GET the nurse new grad job :O

    • @angelgold9073
      @angelgold9073 3 года назад

      Have you been struggling with NCLEX be it LPN or RN, have you taken the exam for more than once? Are you taking it for the first time? Do you have a too busy schedule to study? Get to Dr NeedHam for your NCLEX assistance. I’m so happy I finally passed my exams after taking the test twice thanks to him. He’s got a magical qbank which will help you. Get to him and your NCLEX problems will be solved

  • @nischalgautam5848
    @nischalgautam5848 3 года назад

    You didn’t even show your answer