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Thanks for taking the time to let me know it was helpful!

Thanks for taking the time to let me know it was helpful!

You're welcome, I’m so glad it was helpful!

I'm so glad to hear you like yours also! Thank you for letting me know!

I'm so so glad you like it, please keep me posted if you have topic requests for future episodes!

Dooo it, I ended up keeping mine up all year round, NO regrets!

@ lol I made one! It’s so cute thank you for the inspiration!!!❤️❤️❤️

Thank you!

I definitely love eating the frosting!

I'm so sorry the bottom ones didn't work and I hope the upper ones do the trick!

Thank you for sharing - access to work environments and covid precautions are definitely examples of structural ableism!

Yes, that's what my doctor recommends and I am aware some other docs recommend skipping your injection day. I just take my personal doctor's advice!

@ thanks! That’s what my rheum has now recommended too ❤️

I'm so sorry to hear you're dealing with unintentional weight loss! For me, once I got my disease under control with the right combination of medications, my unintentional weight loss / muscle loss reversed and I was able to regain the weight. To answer your other question, I dont have any side effects from the meds. Let me know if you have any other questions!

Oh my gosh, I'm SO sorry you're dealing with such discrimination. I personally think it's a very limiting and insulting view to blame people for their disabilities. I hope you are able to get some better social support soon, often the disability community online is very supportive and accepting <3

That is SUCh an important nuance, thank you for taking the time to point that out! That makes sense to me!

The way I see it, even if you don't reach your full potential, it can still be possible to see yourself as worthy and attractive, if that is meaningful to you - sending lots of support your way, thank you for sharing your thoughts <3

Thanks for the love, sending some back your way!

Thank you for sharing your experience. I think we all are free to see this issue in whatever way resonates with us - to me, I 100% believe my life would be **easier** if I didn't have rheumatoid arthritis. If I had the choice, I would choose NOT to have RA. However, given that I have it, I find it meaningful to say that my life can be just as full and vibrant WITH pain and fatigue from RA as it would be without it. To me, that is personally meaningful viewpoint, but I respect if others feel differently!

@ I think that you and I are saying the same thing ultimately. I am just not sure we need to advocate use of a new term called “able-ist” that is going to end up pointing a finger at those who do not have health conditions. It ends up being another way to create a grouping of victims. I just think that we could go straight to grouping ourselves altogether as one in common knowledge that we all have challenges and that the challenges aren’t evenly distributed.

​The term ableist isn't new. It's the discrimination, prejudice and/or bias towards disabled people. Any act that belittles, devalues and/or dehumanizes disabled people is a manifestation of ableism. Ableism typically comes from non-disabled people. ​While disabled people can certainly internalize and act on it (that's lateral ableism) it typically comes from non-disabled people. It's important to put a name to these issues so we can combat them. @@maiaheiss2991

Hi @GenXGamerGirl_ - first of all, I apologize if my definition of ableism is hurtful to you. I want to first acknowledge that this 60 second video is "Franken-edited," which is a term people use to describe videos that are edited down from an originally longer video, which sometimes takes away context. I apologize if my truncating of my original points led to a confusing or misleading conclusion. I'll try to clarify here in the comments! According to StopAbleism.Org, ableism is " The practices and dominant attitudes in society that devalue and limit the potential of persons with disabilities. A set of practices and beliefs that assign inferior value (worth) to people who have developmental, emotional, physical or psychiatric disabilities." I also often define it as "prejudice or discrimination against people with disabilities / disabled people," which I was trying to do in this video. I think the context I might not have explained fully in this video, as it relates to rheumatoid arthritis, is as follows: when doctors say "don't worry, you can have a 'normal life' with rheumatoid arthritis on the current medications,' the subtext is that "when you take the curent medications for rheumatoid arthritis, your disease will go into remission and you will become 'healthy and able bodied' again and thus 'normal,' which is WAY better than actually having to live with the disability of rheumatoid arthritis." Does that make sense? Well intentioned doctors, in my opinion, often define "normal" as "able bodied" and not disabled, and in doing so they subtly reinforce the idea that they ONLY way to live a "full life" or "normal life" is to heal or cure or put your disease into remission. They are implying that you CAN'T live a full "normal" life with a disability. That is what I take issue with. My goal in this video is to open people's minds to the idea that you CAN redefine normal to include disability, and that you can and should aspire to live a full vibrant life no matter what your ability is. I'm sorry if my message was interpreted as the opposite!

I'm so glad it resonated, thank you for letting me know!

Thank you for sharing your thoughts!

I'm so glad to hear lefludomide is working for you!

Agreed!

Thanks so much for the tip!

Sending good thoughts your way and hopes that your treatments work swiftly!

Seriously! I have to learn this lesson over and over!

Thanks for asking! THe way it works is that it prevents the moisture / tears from going *into* the tear ducts, which are where the tears drain into and out of your eyes. Let me know if that makes sense!

In this episode, we explored the specific challenges that black women with psoriatis and psoriatic arthritis face, due to the disease presenting differently on their skin and hair, which I feel is an important specific population to highlight. Yes, I support all women but I also recognize that black women face unique challenges I don't have as a white woman, and I want to highlight those so that they can get better care.

No, occasionally I have fatigue the day after but nothing too horrible!

Thanks for the love!

Oh dear, thank you for letting me know, I will check it out and see if I can track down the correct audio, it might have been corrupted when this was originally recorded back in 2023 unfortunately!

Wanted to see if the audio issues have been sorted or if you can link me to the original source recording? I’d like to share this with my girlfriend.

Thank you for letting me know what works for you - I am committed to sharing evidence based resources and right now there is no evidence I'm aware of that Ayurvedic practices can help people with autoimmune conditions achieve "perfect health" across the board, but I understand that in certain individuals they can be very powerful and at the end of the day, it's wonderful to hear when anyone experiences relief from their condition!

@@ArthritisLife It's only been around for 5000 years.

I'm so glad this was helpful and I will pass along your feedback to Mariah!

Thanks for watching!

Thanks for watching!

Thanks for watching!

Hi, let me know if you have any questions!

Thank you so much for sharing your reflections on this episode. Psoriatic arthritis is quite similar to RA when it comes to the rollercoaster of emotions and acceptance over time! I'm so glad you found this discussion reassuring, thank you for taking the time to let us know!

Thank you so much, sending encouragement back your way!

I'm so glad you like it!

Oh my gosh, this means the world to me. You are not alone and there is room for hope, even when you're having a tough day <3 SO glad to hear you're doing so much better!

Crossing fingers gently for you!

I'm so sorry you're not experiencing a lot of relief on your current treatment plans, sending support your way!

Thank you so much for sharing all your reflections, it's so nice to hear which parts of the episode resonated most with you. I often think about the "passengers on the bus" metaphor and find it so helpful. And YES, you are part of a community! Thank you again for taking the time to listen and for your kind words!