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Hey another moving and inspiring interview. I had NO IDEA so many young folks have this (even more than juvenile diabetes?!?! wow) I'm already old, so didn't feel like I was "gate crashing" as he put it hahahaha! I like that image of the body having a joke on me, the RA being a plus one or another passenger on the bus, that is quite an image to think about. I am more the solitary or lone wolf type, so tada, suddenly I have a pack that I belong to, hey? Very interesting. Thanks for this interview and all the good ideas I get from you. 💕

I don’t have rheumatoid arthritis, but I’ve just been diagnosed with another autoimmune disease. This video is the most useful one I’ve found for learning how to cope with living with a chronic condition. Thank you!

I have recently begun to have Sjogrens symptoms. Severe dry eye, dry mouth, thirst, brain fog, depression, memory issues, fatigue. I have anti vinculin autoimmunity caused by post infectious IBS and likely an ongoing EPEC intestinal infection. I started taking 3000-4000 mg of seal oil and it's takes away the symptoms by up to 80-90%. I think the bioavailability (it being from a mammal) and antimicrobial and anti-inflammatory activity of it are what make it so successful. I am just sharing this with all of you in case it might help your condition. I am so sorry for anyone experiencing this. I wish you all the best. Kind regards.

Thank you for this video🙏

❤❤100 ليش

I write like that

Great discussion! I'm silly when it comes to my AS life. On top of that even more silly when it comes to my other chronic illnesses, it's just so ridiculous to me the things my body does 😅 Really enjoyed this episode and especially when the host brought up the struggle we face in our particular autoinflammatory disease in the larger autoinflammatory community.

Could you tell me do you or the other lady taking folic acid with methotrexate I did not start it yet how long did you notice a change in your RA when taking it

Interesting, feeling how the bloating and pain receded within approximately two months made all the difference, I simply go’ogled the latest by Tilly Strankten and her Ovarian Cyst Guide and although it really took about 10 weeks for it to totally shrink and vanish I’ve never felt so light and relaxed.

I've had them a few times for Fuch's disease. It does help.

I love hearing the stories ❤ I just got diagnosed with RA at 24 years old and I’m currently on hydroxychoriquin and considering methotrexate

Why every 6 months? I just got these and dr didn't mention having to get them again in 6 months...?

I have a question from all the drugs Elena was on do you think all these other problems she started having in her body was caused by those medications?

Wow she went through the wringer. What a tough gal. Thanks to you both.

Is that covered by insurance? That's so interesting. 😊

How can i know if i have sjogren's? Had jra when i was 7, Stills disease when i was about 23, dry eye issues at about 32, intermittently itching for about a week at a time a few year's ago for about a year. Im 39 now. Would the itching be related possibly? It was pretty bad and couldn't find an environmental factor. Any other stuff i should look out for?

How often you get flare up??? I am in my first year of diagnosis of R/A

It’s not our fault that we have RA, but its your responsibility to protect you emotions and the way you react to stressful situations when having any type of illness. I noticed when I get really upset or sad I start to get flares and joint pain gets worst and to be honest with you guys years ago I had a terrible argument with a family member who told me a lot of hurtful things and a few months later that’s when I started to feel sick and find out I had RA. I believe stress might not be a definite cause for many diseases but it does play an important role and if we learn how to manage it we can help ourselves to feel better and avoid our disease to get worst. I wish more doctors can focus on the emotional and spiritual aspects of diseases instead of just focusing on medications and lab work .

One of the things I find interesting about rheumatoid arthritis is the financial burden a chronic disease can cause in someone’s life. I was diagnosed with RA and mixed connective tissue disease at the age of 39, exactly when I was finishing my masters degree in healthcare administration. Unfortunately, when I started to get sick with terrible headaches and dry eyes and mouth I didn’t know where to go so I made an appointment with my PCP. I end up seeing an ENT who told me to go and see a rheumatologist who misdiagnosed me with Lupus. Three years passed and I never had any lupus symptoms so I decided to get a second opinion, thank God I found a good physician who did genetic testing and ruled out the Lupus. Getting the RA plus mixed connective tissue disease diagnosis is not easy, especially when you are an active person. After seven years living with the disease I noticed some of the meds are not really helping anymore including the plaquenil , xeljanz or even the rinvoq. I’m going to see a new rheumatologist to see what we can do to manage the flares and the pain that now I feel more often. I made a lot of changes in my lifestyle including the food that I like to eat that can help me reduce inflammation, but sometimes I feel that no matter what I do I still get the flares. Right now I’m looking for financial resources who can help me with my disease expenses since I’m not currently working, but I notice not many people find the help they need neither with the government programs or social security disability. I feel patients who have chronic illnesses are alone in this battle and we need more government representation to help with programs and financial support aside from social security disability ( which by the way is impossible to get approved unless you are crippled). Thank you for having this channel and help the RA community.❤🙏

I’m really grateful to be able to listen to your stories ❤ helps more than you know 🙏🏿👍💕🌸

Loveless health solutiun search on RUclips and do what the guy tells you... You may throw away these poisons... I just look at methotrexate and I'm sick

Your routine for injecting methotrexate is exactly like mine to a T. It’s crazy how I went from being so afraid of injecting myself to being comfortable. Exposure really can work wonders, but often times we might not have much of a choice. Inflammatory arthritis is no joke. It’s so important for the community to understand that these medications are safe and can drastically alter the course of our diseases in many cases or at least buy us time. Fear of medications and their effects is definitely an issue that the research shows, so I’m grateful that you use your platform to help normalize the medications and maybe make the process a little easier for others. ❤️ You rock! In case anyone is interested in a little reading: Berenbaum F, Chauvin P, Hudry C, Mathoret-Philibert F, Poussiere M, et al. (2014) Fears and Beliefs in Rheumatoid Arthritis and Spondyloarthritis: A Qualitative Study. PLOS ONE 9(12): e114350. doi.org/10.1371/journal.pone.0114350

Another great interview and new information for me. Thank you both very much.

Your so brave with the injection. Remember last time I spoke to you saying hydroxychloroquine is working for me and I’m not getting severe symptoms but mild but sadly my symptoms are getting worse and I’m only taking one tablet a day but will see my rheumatologist in November to discuss how I’m getting on with my medication. There are days that I can’t move my arm or my hands and even sometimes the knees. Ankles swell up. People don’t understand what it’s like living with this and think you’re too young to have it. Appointment seems a long away for me and I’m getting by with ibuprofen and paracetamol for extra pain relief. I hope you’re okay. Everyone take care of yourself and remember that any pain you get is your pain and some people don’t understand what you are going through.

Id give up the kombucha. I was drinking too much of it and it set off a lot of symptoms.

The lack of information is horrible whe. Its a lifelong disease and the doctors get mad when you ask questions

Fatigue can truly be one of the most disruptive and lingering symptoms of these rheumatic diseases. I feel that often times the issue is exacerbated by other comorbid conditions and also the medications that we tend to take like DMARDs, muscle relaxers, anticonvulsants, opioids, antidepressants, etcetera. On top of exercise, we really have to practice self compassion and patience.

Correction: Tear in Space by Glass Animals - song that was on repeat in our cars that month!

Super helpful ❤ Thank you so much!

I just took my first shot of this about 15 minutes ago. I was nervous. I take Humira, so I'm used to the auto injection. I think I'll be less nervous next week.

Me watching this 😊 oops time for my meds

hey, thanks for the advice! What is the purple pen in the video?

But how? And why does it work?? It does for me with the exception that I can’t wear them for long due to my Fibro. I can’t have something touching my skin for long periods of time in the same spot 😪 Despite the fact that it really does help the pain!

On day 3 of Otezla 🤞🙏

Thank you!

Thank you so much, I have ra since 2015 I know i am not alone

We do not CREATE humans…We GIVE BIRTH TO THEM…GOD CREATES!!!!!

A message from Australia! Thank you so much for your videos you really are providing such a needed service that helps everyone immensely very much appreciated!

Your videos are very educational and we learn a lot from you. Thank you. I recently started 200mg hydroxychloroquine after first refusing to take it due to being scared of side effects but now I’m glad I was able to see my rheumatologist and was prescribed it as it’s definitely given my life back from severe inflammation to mild symptoms. I don’t have any side effects from it either. I think people who are scared out there just need to give it a try and if one medication doesn’t work then like you said there are other alternative options to try. Thank you for all you do ❤

Hi 57 yr old male just diagnosed. A bit rare for men apparently. Waiting for 1st appt with Rheumatologist so researching what to expect. Last yr my knee got real bad & an mri confirmed option to do a full knee replacement. Dr. gave me the green light for that surgery but financially I couldnt afford to be down from wk that long (home building) so I put it off. Now the pain is too great so I asked again for the surgery. My ortho Dr. said my pain levels were seemingly high for my knee damage imaging. Hence the blood test for RA so here we are. Still want the knee surgery as I cant work anymore doing construction. In fact I quit it due to the pain. Awaiting my 1st appt. with rheumatologist in a week. Hope it yields relief from pain & kinda worried about taking strong meds with side effects. Hope side effects arent too bad as I JUST quit statins for cholesterol (now at healthy levels). Their side effects were fatigue, brain fog big time sometimes, and muscle pain.

I was diagnosed 20 yrs ago with sjogrens fibromyalgia nerothopy being a immunologist I've had test n my histamine attacking me to swelling up on my eyes lips swelling up so bad on 720mg aday of fenafexldin got RA mixed connective tissue disease pituitary tumor eds macrosisi my red blood cells are huge I find it hard to breath on standing to long my blood pressure drops I go pale head woozy n all I see is white through dry mouth here lost all my teeth dry eyes I can't see to drive at night n my eyes leaking and stings along with RA I got osteoporosis aswell I've had steroids injection in my knees did nothing got 13 bulging discs 3 are in neck L5 disc and S1 disk is sitting on each other got no entrance or exit in nerve thst when standing 10 mins im crippled just diagnosed with inflammation of bowel I have urine n sometimes bowel incontinence yous probably won't see this comment as this pod is a year old

this was another great interview. thank you.

I got diagnosed when i was 14 now iam 15

😂 This is my kind of energy

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Im extremely sorry, but where did you get that keyboard from?

Such a huge help. Thank you! 💙

I am 14 and have to deal with this, I get so nauseous afterwards and it feels so painful. I finally found someone who does injections as well ❤

Mam please give a video for swan neck deformity exercise

Very cool that you are an occupational therapist. May i ask if you work with arthritis patients too? I think i had o.t. before