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Its horrible!! I get bedridden sometimes. Im also steroid dependant for adrenal failure. Its awful awful. Indescribable pain.

Planet Ayurveda's herbal remedies like Ashwagandha Capsules, Hakam Choorna and Yograj Guggul help provide relief in trigeminal neuralgia.

Thanks for this information ....Ashwagandha capsules from Planet Ayurveda are good results on Trigeminal neuralgia

Thank God for gamma knife.

How do I count tact you guys, I have this

AT LAST AFTER 15 years of this horrible pain. Relief fo 8 hours from toothpasste. ORAL B GUM AND ENAMEL PRO REPAIR. INAM A PRIVATE PERSON WITH NO CONNNECTION TO THAT COMPANY JUST ECSTATIC TO HAVE FOUND SOMETHING THAY WORKS FOR ME.

I wish we had doctors like you in SA. Please see the pain message we sent the pain clinic, it was shocking service, Dear Pain Clinic Unfortunately all the doctors cannot help, over 2 months and not 1 Dr had helped, quite sad for patients in need. Yes i can send explanation for cancellation Bottom line Im not blaming or judge the good doctor but at time and still now it is very difficult when pain overwhelms you On that Fridy i needed something special i was in trouble The receptionist could see i needed help and kept reassuring me not much longer I was hoping for relief but instead the Dr went his route which is probably correct but just not at that time I look forward to a detox but wow i also needed something special just to sit and feel calm for a few hours if that's all I hope Dr Amidas can help find a source of pain in my mouth and treat this then maybe in the future i will be ready for a detox Thankyou Dr for seeing me Sorry i failed my tasking My pain won the day Thank

Dear Dr Sing, John has sent this to Dr Bhagwan (FYI) John asked regarding pain when speaking Is there no medication to relax and not have so much pain / stress when he speaks Ultimately i cannot work if battling to talk with pain. ( a 6 x month repeat script for muscle relaxant) My colleague's at work are seeing the pain etched on my face when speak. On another note: from here? For work purposes can you give John a letter stating my condition and that he is unable to further treat me,. Maybe refer me elsewhere Basically history of illness. Trigermial Neuralgia, this is for his HR department. On another note this operation ENT had literally ended his career, he can longer work under these circumstances. Please note below: where do we go from here, if no Specialists or Dr's can assist: If there is no further treatment for me Bhagwan can't do more Amidas can't do more Rajah over Pain clinic snubbed me - disgusting That's 4 doctors 50 days later What else I'm leaving as leave and suffer the year, how can a Dr let there patients suffer and how can a doctor allow this. Notes from John, should he be looking for new Dr's. Maybe the pain clinic in Umhlanga can assist, but again we'd need a referral letter from yourself. It's sad, I'm with John and since this ENT operation, his life has changed for the worse, probably never too be the same again. He is still in excruciating pain. As said he stopped Tegratol maybe please can you change this back to DEGRANOL . the side effects were extremely worse Tegratol. Thanking you, maybe if there is any other further information you can assist with please do, as we are at the end. New script for Degranol 6 months Scheduled muscle relaxant 6 months Sleeping tablet as I'm battling to sleep, not Trepaline, it doesn't work. Pain meds as you know don't help Trigermial Neuralgia Thank you Dr Bhagwan hope you can assist with letter for my HR department, and scripts. Something for pain and inflammation Thanking you John The pain clinic Dr did absolutely nothing, here is the email to him. Yes i can send explanation for cancellation Bottom line Im not blaming or judge the good doctor but at time and still now it is very difficult when pain overwhelms you On that Fridy i needed something special i was in trouble The receptionist could see i needed help and kept reassuring me not much longer I was hoping for relief but instead the Dr went his route which is probably correct but just not at that time I look forward to a detox but wow i also needed something special just to sit and feel calm for a few hours if that's all I hope Dr Amidas can help find a source of pain in my mouth and treat this then maybe in the future i will be ready for a detox Thankyou Dr for seeing me Sorry i failed my tasking My pain won the day Thank Mr John Winkelman Maybe Umhlanga pain clinic maybe better. But currently we are in a no win situation. Sam i would not know But all doctors seen not one has found right combonation Drugs are chemicals that compliment each other Every pain tab ive had is not doing job just waste Thank you

If you’re just starting your journey know there is two types of tegretol (fast release and slow release). Only fast release works for me. Once a doc gave me the slow release ones and they didn’t work. Hope this helps someone who may have been given slow release and believes it doesn’t work for them. Most docs don’t know much about TN so you have to specifically ask for fast release type.

I diagnosed myself with google then I seen the neurologist and she re affirmed that it was trigeminal neuralgia in the beginning I had a electrical shock in my lip nothing for a yr now I have electrical shocks plus my jaw hurts so bad when I eat or talk and last week mild migraines have set in I’m on Percocet and Advil but it wears off fast waiting for a CT scan and go from there

My husband suffering for atypical Trigeminal Nerve, taking a lot medication, cirjury radiation. Nothing help. Can we can more information about this treatment. Thanks Valerio

So you basically flay them

I am 30 years old and started getting severe pain on the left side of my face that lasts for days. I've had to leave work, I've had to go to the ER, I've been bedbound for days because the pain is so bad. The worst part is that because of the medication I take for Epilepsy, I can't take other medicine for TN because of reactions and overdoses. Believe me, I tried. I hate this pain so much, nobody deserves this.

I am dealing with TN for 8 years, I am using carbamazepine, Tramadol Hydrochloride and Pregablin for pain management. But are facing severe side effects of the tablets, like drowsiness. People living in developed countries are lucky enough that they have very experienced doctors and facilities. I am living in a developing country, and some doctors suggested that I should manage the pain with tablets and not undergo any surgical procedure. But it's hard to bear the pain and the side effects of the medicines. Can you please help me?

Im in pain now but on the meds at this time .I have nearly had all my teeth out thinking what can this pain be .I knew the pain was worse then i have ever had .Still is .Had this on going .Most of the time my pain lastis for over a year .I just can not stand it .Taken over my life .Can not do any thing at all.

I love ❤Dr Friedman. He has done the decomposition 15 years ago. But unfortunately it came back years later. I’m hoping to have it done again. I would like him to do it again on je.

You destroy your rear teeth because in the very early stages because migrane type head ache, you clench your teeth and force them loose over time. Most of my rear teeth are gone because they got so loose. When the pain appeared over the whole side of face, from the temple area and down along face to almost ever tooth on that side at once. The pain frequency went almost non stop. GP recognised the symptoms he had a few patients before. Got a catscan which was clear and had me on max dose of carbamazepine and took effect over 24 hrs. Nerve failed on the left side of face 3 yrs later, this nerve responded to Gabapentin (neurontin) l wouldn't touch surgery to many negative effects. And theirs still more anticonvulsant medications available aside the two l use. And l lead a normal working life in a risk environment no problem. And l am taking the medication twice a day never stopped. 10 yrs now.

i suffer for more then25 years i am looking for a MD in dallas n.c

I’m currently taking 600mgs of oxcarbazepine and this has worked for 5 days. What is the difference between oxcarbazepine and carbazepine?

Thank you.

Im 31 and i have a big history with this problem. I wish with all of my heart to no-one have this death pain You cant touch your face, you cant eat, you cant sleep, you cant wash your teeth you cant talk easy. For these all habits you must be so careful to avoid the pain or at least to be more mild. The standard cure is the medication with no sure result's . It depends on the person .and also these all pils at least the ones i get they effects on the liver .its only for a few months.

I had an powerful electric shock on the left side of my neck and head, upon waking up. I even saw many lights when it happens, and lost my senses, and fell on the floor. Became very dizzy afterwards, went to the ER but the internist never heard of such a thing, gave me w dizziness pills, and I went back home still dizzy. Two weeks later the hospital sent me a 22K ER visit. WHAT A PATHETIC COUNTRY THE US IS. I will not pay that bill as I have no insurance and live on survivors benefits, which is slightly above de Medicaid requirement.

Watching for a friend.

It is so horrible that you feel you could just blow your head off. Tegretol has helped me so much, I just wanted to die, no one compare the pain, the pain is so bad I pass out the pain wants you want to blow your head off! It is a curse. It also take the quality of live from you its like you have been cursed.

I pray God heals everyone going through this pain right now in Jesus mighty name. Amen!

I have it I’m 54 just got diagnosed. I thought I was going crazy ,I’m relieved that I finally have an answer!!! Going for a MRI soon

My wife had all the symptoms of trigeminal neurological disease...rather she had had some shrinkage of two spots on the affected side of of the face (left side) on temple and between the ear and cheek, A small leison (Manangeoma) was traced in contrast MRI of brain. We were referred for gamama knife radiation which we did here in DOW Institute of health and science at Karachi (city name)... Six months passed we sent a follow up MRI that was declared okay by the Dr concerned.. But our problem still persists... Headache, triggering, numbness, pain on the jaw, cheek, eat, eye and above them all shrinkage on the face are still there... Now we don't know what to do... Continued medication is Tegral200 1+1 Zee gap 50 mg 0+1 Inderal 20 mg 1+1

“Known to man” and WOMEN!!!!

Watch eric berg he tells you how to take pain away immediately

This Doctor is so uninformed or he is lying. These procedures my help in the short run, but are seldom a lasting fix. Save your money, or hope you will become wealthy so you can pay these charlatans.

Finally the dentist has ripped you off and made enough money and says that he has mis diagnosed you and says he can't do anything more for you.

I have just recently have the symptoms of Trigeminal Neuralgia, never felt pain like it.

I have had that for years Its brings you to your knees. I still have that but lately last 5 months its has been Silent. My Dr gave me oxcarbazepine the other day as it waa going to start again.I have my pray that it will completely stop. Thank you for the video

Sir, what's the recurrence rate after RFTC.?Pl let me know.Thanks

Need a follow up on these people to see the today!

Since 1998 I suffered with Trigeminal-Neuralgia I have multiple sclerosis a lesion was found in my cerebellum. My dentist said I need to see a neurologist. Dx 2006. Carbamazepine many tears till it stopped working. Now on a high dose of oxcarbazepine. Neurosurgery told me I have MS. And Trigeminal neuralgia not good for any procedure's. Losing hope.

i was diagnosed year 2018 ..yet sad to say doctors cannt give exact medication.Tegretol tablet and pain killer yet it doesn't help.

p00

I was diagnosed 3 weeks ago and I'm really struggling with the side effects of Carbamazepine, but here in the UK the NHS is reluctant to do anything other than keep me on drugs despite the side effects which are really impacting my life :(

I am suffering from 3 years,

I'm a disabled veteran and I need help and I need it now. The pain is really bad on my right side of my jaw. The following meds are not even touching or relieving the pain. Naproxen 500mg, Oxycodone 5mg, Tramadol HCL 50mg, Ibuprofen 800mg or Methocarbamol 500mg.

I'm going through this now I was misdiagnosed by dental also and by the Er until my regular doctor just gave me real diagnosis 2 days ago it's so painful please keep me in ur prayers as I wait for treatment

So sorry. Have you tried massage on the unaffected side and CBD oil? Prayers.

I take 400mg of tegretol and 20mg of amitriptyline but it's not working. Is it safe to have surgery when you have epilepsy I take 1000 mg of keppra and 500mg of lamictal for my epilepsy so they said they can't raise my dosage of tegretol because I am on the other medication for my epilepsy

Terrible disease, I'm glad I found a cure for it.

My son has bilateral TN He is 16 and just got diagnosed 1 year ago after suffering for 4 years. Tegretol has helped currently at 600mg a day. Temperature changes is a trigger, a kiss on the cheek, smiling, chewing. His vision get affected as well.

So after calling my doctor, I was advised a dental visit to rule out having this. If the pain continues then yeah, pretty sure I have this.

I am having horrific pain in my lower and bottom top teeth, into my jawbone, wrapping into my lower front gums and chin, into my temple, and sometimes the corner of my eye. It seems to be made worse by chewing and certain movements. If I tilt my head back, I get pain in my top right farthest back molar. I also have had symptoms of POTS for 13 years but haven't been diagnosed. I believe I have craniocervical instability, which is putting pressure and irritation on nerves and blood flow. This pain is worse than broken ribs, which I had 4-5 months ago. I sit on the couch and rock back and forth in pain

This sounds like everything I've had. But I have swelling in throat and tongue. I definitely know it's nerve damage😥

My neuro knew exactly what this was and had confirmation with an MRI (showed a blood vessel wrapped around the nerve). I was on Tegretol for a few years but came off because of the side effects. The last flare up I had, I sat and cried, it hurt so much.