- Видео 62
- Просмотров 2 396 404
Kelli & Kyle
США
Добавлен 23 окт 2020
Everyone has a story to tell. We tell our story to help caregivers of special needs children feel encouraged and less alone.
I'm Kelli and I'm mom to Kyle, who was born in 2006 and has a rare genetic condition called SYNGAP1, which causes his special needs (intellectual disability, developmental delays, epilepsy, hypotonia, nonverbal, autism spectrum disorder, ...). By sharing our story of challenges, perseverance, and joy, we help families feel less isolated in their own journeys.
I'm Kelli and I'm mom to Kyle, who was born in 2006 and has a rare genetic condition called SYNGAP1, which causes his special needs (intellectual disability, developmental delays, epilepsy, hypotonia, nonverbal, autism spectrum disorder, ...). By sharing our story of challenges, perseverance, and joy, we help families feel less isolated in their own journeys.
Life Update | Graduation & Golf Cart | Kelli and Kyle
Life Update! We share a big milestone for Kyle and his surprise gift of a golf cart!
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Kyle was born in 2006 and has SYNGAP1, a rare genetic disorder that causes epilepsy, global developmental delays, intellectual disability, autism, etc. I share more about his diagnosis in this video: ruclips.net/video/GkuUMttDLfk/видео.html
#syngap1
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Find my COLORING BOOK for Caregivers here: amzn.to/3hVa6kt
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LEARN MORE ABOUT SYNGAP1:
www.syngapresearchfund.org/
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FTC Disclaimer: This description contains an Amazon Affiliate Link that allows me to earn a ...
________________________________________
Kyle was born in 2006 and has SYNGAP1, a rare genetic disorder that causes epilepsy, global developmental delays, intellectual disability, autism, etc. I share more about his diagnosis in this video: ruclips.net/video/GkuUMttDLfk/видео.html
#syngap1
_________________________________________
Find my COLORING BOOK for Caregivers here: amzn.to/3hVa6kt
_________________________________________
LEARN MORE ABOUT SYNGAP1:
www.syngapresearchfund.org/
_________________________________________
FTC Disclaimer: This description contains an Amazon Affiliate Link that allows me to earn a ...
Просмотров: 4 739
Видео
Kyle’s 18th Birthday | The End | Kelli and Kyle
Просмотров 10 тыс.5 месяцев назад
We celebrate Kyle’s 18th Birthday with a train theme! We also end our RUclips Channel with this video. Thank you for following along the last few years! Kyle was born in 2006 and has SYNGAP1, a rare genetic disorder that causes epilepsy, global developmental delays, intellectual disability, autism, etc. I share more about his diagnosis in this video: ruclips.net/video/GkuUMttDLfk/видео.html #sy...
Christmas 2023 | Kelli & Kyle | Kings Island WinterFest
Просмотров 6 тыс.8 месяцев назад
A collection of all the Christmassy things we did in December! Also includes what we got Kyle for Christmas and him opening some of his presents. Kyle was born in 2006 and has SYNGAP1, a rare genetic disorder that causes epilepsy, global developmental delays, intellectual disability, autism, etc. I share more about his diagnosis in this video: ruclips.net/video/GkuUMttDLfk/видео.html #syngap1 O...
Caregiver Stress & Kyle Updates | SYNGAP1
Просмотров 8 тыс.9 месяцев назад
It’s been over 4 months since we shared a video because the last few months have been stressful. I share some of the stressors I’ve been experiencing as a caregiver but also share some fun updates and recent clips. Kyle was born in 2006 and has SYNGAP1, a rare genetic disorder that causes epilepsy, global developmental delays, intellectual disability, autism, etc. I share more about his diagnos...
Kyle's Summer Break - Summer Break & Back to School 2023
Просмотров 21 тыс.Год назад
Kyle’s Summer Break is just over 2 weeks long since he goes to a year-round school for children with special needs. Watch to see all of the activities we did during his break! Kyle was born in 2006 and has SYNGAP1, a rare genetic disorder that causes epilepsy, global developmental delays, intellectual disability, autism, etc. I share more about his diagnosis in this video: ruclips.net/video/Gku...
Our Favorite Children’s Books - Kyle’s Top 5 Books - Children’s Book Reviews
Просмотров 9 тыс.Год назад
We share and review five of Kyle’s favorite books: Parrot Tico Tango: amzn.to/43sgbKY There Was an Old Lady Who Swallowed a Fly: amzn.to/3WX89r0 Chicka Chicka Boom Boom: amzn.to/3WVDEBQ Goldilocks and the Three Dinosaurs: amzn.to/3qDgHre Silly Lullaby: amzn.to/3J6oKD3 Kyle was born in 2006 and has SYNGAP1, a rare genetic disorder that causes epilepsy, global developmental delays, intellectual d...
Hanging out with Our Teenage Son with SYNGAP1 - Multiple Disabilities
Просмотров 22 тыс.Год назад
How we spend a typical weekend day with Kyle, our teenage son who has #syngap1 (a genetic diagnosis resulting in multiple disabilities). If there are elevators where we’re going, Kyle’s happy! Which means we’re happy! Kyle was born in 2006 and has SYNGAP1, a rare genetic disorder that causes epilepsy, global developmental delays, intellectual disability, autism, etc. I share more about his diag...
Celebrating 10K Subscribers! - 10,000 Subscribers
Просмотров 4,9 тыс.Год назад
We are celebrating 10,000 Subscribers on our channel! In this video, you can see how we celebrated and why we started this channel. Thank you for following our story! Kyle was born in 2006 and has SYNGAP1, a rare genetic disorder that causes epilepsy, global developmental delays, intellectual disability, autism, etc. I share more about his diagnosis in this video: ruclips.net/video/GkuUMttDLfk/...
A Hotel Tour: Kyle’s 17th Birthday Experience Gift! - SYNGAP1 - Special Needs Birthday
Просмотров 73 тыс.Год назад
A Hotel Tour: Kyle’s 17th Birthday Experience Gift! - SYNGAP1 - Special Needs Birthday
SYNGAP1 Questions and Answers - Q&A #3 with Kelli & Kyle - Disabilities and Special Needs Q&A
Просмотров 7 тыс.Год назад
SYNGAP1 Questions and Answers - Q&A #3 with Kelli & Kyle - Disabilities and Special Needs Q&A
Christmas Day with Kelli & Kyle - SYNGAP1 - Special Needs - Christmas 2022
Просмотров 21 тыс.Год назад
Christmas Day with Kelli & Kyle - SYNGAP1 - Special Needs - Christmas 2022
House Tour - One Level Living (Almost) - Condo Living
Просмотров 22 тыс.Год назад
House Tour - One Level Living (Almost) - Condo Living
Happy Halloween | Hayride | Referee Costume | Fall Fun
Просмотров 13 тыс.Год назад
Happy Halloween | Hayride | Referee Costume | Fall Fun
Special Needs Morning Routine - No School Day - SYNGAP1 - Disabilities - Barmy Weighted Blanket
Просмотров 110 тыс.2 года назад
Special Needs Morning Routine - No School Day - SYNGAP1 - Disabilities - Barmy Weighted Blanket
Hippotherapy - Horse Therapy - Therapeutic Riding - Kyle’s Back in the Saddle!
Просмотров 14 тыс.2 года назад
Hippotherapy - Horse Therapy - Therapeutic Riding - Kyle’s Back in the Saddle!
Epilepsy & The Ketogenic Diet - Atonic Seizures - SYNGAP1
Просмотров 15 тыс.2 года назад
Epilepsy & The Ketogenic Diet - Atonic Seizures - SYNGAP1
Bloopers & Behind the Scenes with Kelli & Kyle: Things Don’t Always Go According to Plan
Просмотров 9 тыс.2 года назад
Bloopers & Behind the Scenes with Kelli & Kyle: Things Don’t Always Go According to Plan
So Many Appointments! - Special Needs Doctor Appointments - Special Needs Healthcare
Просмотров 53 тыс.2 года назад
So Many Appointments! - Special Needs Doctor Appointments - Special Needs Healthcare
Special Needs and SYNGAP1 Questions and Answers - Q&A #2 with Kelli & Kyle - Disability Q&A
Просмотров 10 тыс.2 года назад
Special Needs and SYNGAP1 Questions and Answers - Q&A #2 with Kelli & Kyle - Disability Q&A
Kyle’s 16th Birthday PLUS a Birthday Cameo Announcement from Bruce Buffer
Просмотров 30 тыс.2 года назад
Kyle’s 16th Birthday PLUS a Birthday Cameo Announcement from Bruce Buffer
SYNGAP1 - What Kyle Knows & Can Do - Special Needs Student - Special Education
Просмотров 21 тыс.2 года назад
SYNGAP1 - What Kyle Knows & Can Do - Special Needs Student - Special Education
SYNGAP1 Questions and Answers - Q&A #1 with Kelli & Kyle - Disability and Special Needs Q&A
Просмотров 11 тыс.2 года назад
SYNGAP1 Questions and Answers - Q&A #1 with Kelli & Kyle - Disability and Special Needs Q&A
SYNGAP Safety - Special Needs Safety Strategies - How We Keep Kyle Safe - SYNGAP1
Просмотров 28 тыс.2 года назад
SYNGAP Safety - Special Needs Safety Strategies - How We Keep Kyle Safe - SYNGAP1
Christmas - What Kyle got for Christmas - Special Needs Gifts - Special Needs Teenager - SYNGAP1
Просмотров 20 тыс.2 года назад
Christmas - What Kyle got for Christmas - Special Needs Gifts - Special Needs Teenager - SYNGAP1
Christmas Season Snapshots - Vlogmas - SYNGAP1 - Special Needs - Egg Nog Taste Test
Просмотров 15 тыс.2 года назад
Christmas Season Snapshots - Vlogmas - SYNGAP1 - Special Needs - Egg Nog Taste Test
Special Needs Morning Routine - Weekend Edition - SYNGAP1 - Autism - Special Needs Teenager
Просмотров 57 тыс.2 года назад
Special Needs Morning Routine - Weekend Edition - SYNGAP1 - Autism - Special Needs Teenager
10 Fun Activities for Teenagers with Special Needs - What Kyle does for Fun - SYNGAP1
Просмотров 27 тыс.2 года назад
10 Fun Activities for Teenagers with Special Needs - What Kyle does for Fun - SYNGAP1
Keep Calm - Special Needs - 5 Strategies to Keep Calm - Barmy Weighted Blanket - Syngap1
Просмотров 25 тыс.2 года назад
Keep Calm - Special Needs - 5 Strategies to Keep Calm - Barmy Weighted Blanket - Syngap1
Special Needs Art - Adult Coloring Book for Special Needs Moms and Caregivers - SYNGAP1
Просмотров 19 тыс.2 года назад
Special Needs Art - Adult Coloring Book for Special Needs Moms and Caregivers - SYNGAP1
I like help my family
Oh thank you for this! I’ve so missed Kyle! I thought I’d just check in case there was an upload, yay! Congratulations Kyle❤ Please, please do upload once in a while, even if it’s once a year. We love Kyle.
❤
HI Kelli and Kyle nice to meet you I have special needs to I have been diagnosed with prader Will syndrome when I was a baby and my favorite thing is also hipo therapy nice to meet you! Also wishing Kyle a happy 18th 🎈🎂 and the best to all of you
Awww this is so awesome! He is cruising in that golf cart!
I love y’all 🥹
Congratulations Kyle!!!!
Hey kyle I love your channel I am an old man and then working on lawnmowers for years and you have taught me more in three days and I haven’t learned in 60 years keep doing what you do buddy
❤❤❤
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His reaction was so sweet ❤
What part of ohio are you guys from. I am from Dayton/Vandalia Ohio
We're near Cincinnati!
It’s so nice to hear from you again. I got a notification about this video when I was doing an intense summer-school job and saved it to watch once that was over. The display for Kyle’s graduation was just lovely. You expressed so well how you were proud of him even if he didn’t totally understand that he was crossing a life threshold himself. The golf cart looks such good quality too! Even if you only post every year or two from now on I’m so glad that you will. When other channels have suddenly stopped posting I’ve felt rather bereft. Good luck to Kayley(sp.?) for her last year of high school! I hope she has some exciting plans for university or otherwise after she finishes.
Congrats Kyle! ❤The best wishes to the entire family!
Wow! They bought three different kinds of egg nog! Never seen that before! Fun Fun Fun
Thank 🎉 you for the beautiful update. Congratulations Kyle! I was so happy to see this video. God Bless your family ❤❤❤❤
Oh my !!! What a beautiful surprise , Kyle’s graduation party. How beautiful! When Kyle put his head on your shoulder, was priceless. How beautiful. Thank you for sharing . Your family is amazing ❤️❤️❤️
I'm at congratulations for Kyle
❤❤❤🎉
Hope you have a great day and I hope you’ve had a good Independence Day
Can't Believe Kyle is 18 so exciting!!!!!!! I loved Kyle's reaction for his new golf cart so exciting! I really do love this channel it's very uplifting and fun seeing Kyle!!! 😄😄😄😄😄😃
Slam Dunk!🏀⛹️
Boating is fun! I like boating in Lake Lanier. I haven’t done it in ages.
Great song Kyle!
Bless your family
How very nice to celebrate him he deserves it. What a great video update when Kyle placed his head on your shoulder Kelly I was brought to happy tears thank you for sharing.
Congratulationskyle hope you have a great day ❤❤❤
Seeing Kyle having so much fun on his golf cart made me so happy.
Thanks for the update! I wondered where you were and how he was doing!! ❤❤❤
Congratulations Kyle! Kelli, thanks so much for the update! So glad to see Kyle so happy and living his best life! Please keep us updated. ❤
🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙍♂️
Congrats & much love to you & your beautiful family! ❤️
Congratulations to Kyle & the very best wishes to him & the entire family
I love your vodeo's.. Its great to see you all & congrats 2 Kyle on his graduation.. Plz update us on how the day program goes once he starts plz..
How absolutely marvelous to hear from you again. Congratulations on your graduation Kyle. I am so pleased tgat you enjoyed your farewell. What a beautiful golfcart you received as a reward for your good work. I do hope you enjoy it for a long time to come. Bless you Kyle as well as your family. Do keep in touch sweet fellow.
Congratulations Kyle! This video made me smile the whole time. I loved seeing him so excited riding the golf cart. I've missed your videos. It was so nice to see the family, and I hope you're having a wonderful summer🎉😁❤️👍!!!
Kylie looks and sounds excited
Congratulations
Congratulations Kyle 🎉. So, so happy to you❣️. Thought I’d never get to see you again 😢. Smiling and laughing in your new golf cart … made me cry … happy tears… of course 🤗. Miss seeing you Kyle, but I know in my heart that you’ll be doing the best you can in this world 😘. Take care buddy 🥰.
Thanks Kelli for the update. I miss the regular updates, but it is exciting knowing will still get to see milestone updates. Congrats to Kyle on graduating and I could see his excitement with the new golf cart.
Congratulations Kyle 🎉
Congratulations, Kyle! That is so awesome and exciting for you, Kyle!
Congratulations; Kyle!!🎉🎉🎉
It was a happy surprise to see your update, Kelli. Thank you so much for posting it. ❤ Congratulations to Kyle!
Congratulations Kyle best of luck on your next adventure
Congratulations I pray for kyle hope have a great day and hope you have a great day ❤❤❤
I pray for Kyle every day 3times a day it is a special prayer🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙍♂️
Hi Kelli, You just made my day with this news! CONGRATS KYLE! 🎉❤️ I love your golf cart, and I love you too! Proud of you Kyle, and thanks so much for sharing your beautiful family, Kelli. 🙏😊
🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏💌💖😊🙍♂️
Hi Kelli, welcome back!! Congratulations Kyle 👨🎓we love you. How are you doing?
Congratulations Kyle I am very happy for you and I love the golf cart