Amyloidosis Alliance
Amyloidosis Alliance
  • Видео 136
  • Просмотров 18 117

Видео

Amyloidosis, a path to diagnosis - World Amyloidosis Day 2024🌏
Просмотров 4521 день назад
Amyloidosis, a path to diagnosis - World Amyloidosis Day 2024🌏
AmyloStories - Marylou
Просмотров 652 месяца назад
AmyloStories - Marylou
AMYLOIDOSIS AL MEETING - 6TH OF JULY - PATIENTS & DOCTORS CHANNEL - Conclusion👩🏼‍⚕️
Просмотров 3044 месяца назад
CONCLUSION Frank Bridoux (Poitiers, France), Barbara Mazzolini, Nathalie Meuleman, Stefan Schönland, Ben Woltering
AMYLOIDOSIS AL MEETING - 6TH OF JULY - PATIENTS & DOCTORS CHANNEL - Session 8👩🏼‍⚕️
Просмотров 1624 месяца назад
Session 8 / Treatments in 2024 and beyond Chairmen: Frank Bridoux (Poitiers, France), Ric-Paul Hammink (Amyloidosis Alliance, The Netherlands) 02:15 Initial patient-tailored treatment strategy Marie-Christiane Vekemans (Brussels, Belgium) 02:35 Relapse treatment strategy Ashutosh Wechalekar (London, Great Britain) 02:55 Ongoing clinical trials Ute Hegenbart (Heidelberg, Germany) 03:15 Position ...
AMYLOIDOSIS AL MEETING - 6TH OF JULY - PATIENTS & DOCTORS CHANNEL - Session 8👩🏼‍⚕️
Просмотров 1504 месяца назад
Session 8 / Treatments in 2024 and beyond Chairmen: Frank Bridoux (Poitiers, France), Ric-Paul Hammink (Amyloidosis Alliance, The Netherlands) 02:15 Initial patient-tailored treatment strategy Marie-Christiane Vekemans (Brussels, Belgium) 02:35 Relapse treatment strategy Ashutosh Wechalekar (London, Great Britain) 02:55 Ongoing clinical trials Ute Hegenbart (Heidelberg, Germany) 03:15 Position ...
AMYLOIDOSIS AL MEETING - 6TH OF JULY - PATIENTS & DOCTORS CHANNEL - Session 8👩🏼‍⚕️
Просмотров 2204 месяца назад
Session 8 / Treatments in 2024 and beyond Chairmen: Frank Bridoux (Poitiers, France), Ric-Paul Hammink (Amyloidosis Alliance, The Netherlands) 02:15 Initial patient-tailored treatment strategy Marie-Christiane Vekemans (Brussels, Belgium) 02:35 Relapse treatment strategy Ashutosh Wechalekar (London, Great Britain) 02:55 Ongoing clinical trials Ute Hegenbart (Heidelberg, Germany) 03:15 Position ...
AMYLOIDOSIS AL MEETING - 6TH OF JULY - PATIENTS & DOCTORS CHANNEL - Session 8👩🏼‍⚕️
Просмотров 1464 месяца назад
Session 8 / Treatments in 2024 and beyond Chairmen: Frank Bridoux (Poitiers, France), Ric-Paul Hammink (Amyloidosis Alliance, The Netherlands) 02:15 Initial patient-tailored treatment strategy Marie-Christiane Vekemans (Brussels, Belgium) 02:35 Relapse treatment strategy Ashutosh Wechalekar (London, Great Britain) 02:55 Ongoing clinical trials Ute Hegenbart (Heidelberg, Germany) 03:15 Position ...
AMYLOIDOSIS AL MEETING - 6TH OF JULY - PATIENTS & DOCTORS CHANNEL - Session 7👩🏼‍⚕️
Просмотров 1644 месяца назад
Session 7 / Treatment management Chairmen: Nathalie Meuleman (Brussels, Belgium), Barbara Mazzolini (Association Française contre l’Amylose, France) 11:30 The goals of treatment Paolo Milani (Pavia, Italy) 11:50 Potential side effects and how to manage them Michel Delforge (Leuven, Belgium) 12:10 Why and when to stop the treatment Monique Minnema (Utrecht, The Netherlands) 12:30 Discussion
AMYLOIDOSIS AL MEETING - 6TH OF JULY - PATIENTS & DOCTORS CHANNEL - Session 7👩🏼‍⚕️
Просмотров 1584 месяца назад
Session 7 / Treatment management Chairmen: Nathalie Meuleman (Brussels, Belgium), Barbara Mazzolini (Association Française contre l’Amylose, France) 11:30 The goals of treatment Paolo Milani (Pavia, Italy) 11:50 Potential side effects and how to manage them Michel Delforge (Leuven, Belgium) 12:10 Why and when to stop the treatment Monique Minnema (Utrecht, The Netherlands) 12:30 Discussion
AMYLOIDOSIS AL MEETING - 6TH OF JULY - PATIENTS & DOCTORS CHANNEL - Session 7👩🏼‍⚕️
Просмотров 1724 месяца назад
Session 7 / Treatment management Chairmen: Nathalie Meuleman (Brussels, Belgium), Barbara Mazzolini (Association Française contre l’Amylose, France) 11:30 The goals of treatment Paolo Milani (Pavia, Italy) 11:50 Potential side effects and how to manage them Michel Delforge (Leuven, Belgium) 12:10 Why and when to stop the treatment Monique Minnema (Utrecht, The Netherlands) 12:30 Discussion
AMYLOIDOSIS AL MEETING - 6TH OF JULY - PATIENTS & DOCTORS CHANNEL - Session 7👩🏼‍⚕️
Просмотров 1124 месяца назад
Session 7 / Treatment management Chairmen: Nathalie Meuleman (Brussels, Belgium), Barbara Mazzolini (Association Française contre l’Amylose, France) 11:30 The goals of treatment Paolo Milani (Pavia, Italy) 11:50 Potential side effects and how to manage them Michel Delforge (Leuven, Belgium) 12:10 Why and when to stop the treatment Monique Minnema (Utrecht, The Netherlands) 12:30 Discussion
AMYLOIDOSIS AL MEETING - 6TH OF JULY - PATIENTS & DOCTORS CHANNEL - Session 6👩🏼‍⚕️
Просмотров 1044 месяца назад
Session 6 / 2024 ISA news Chairmen: Bouke Hazenberg (Groningen, The Netherlands), Stefan Schönland (Heidelberg, Germany), Ben Woltering (Amyloidosis Alliance, The Netherlands) 09:15 Introduction: standards of care in 2024 and current challenges Arnaud Jaccard (Limoges, France) 09:35 Discussion 09:45 Latest developments in treatment Efstathios Kastritis (Athens, Greece) 10:05 Discussion 10:15 Ne...
AMYLOIDOSIS AL MEETING - 6TH OF JULY - PATIENTS & DOCTORS CHANNEL - Session 6👩🏼‍⚕️
Просмотров 1424 месяца назад
Session 6 / 2024 ISA news Chairmen: Bouke Hazenberg (Groningen, The Netherlands), Stefan Schönland (Heidelberg, Germany), Ben Woltering (Amyloidosis Alliance, The Netherlands) 09:15 Introduction: standards of care in 2024 and current challenges Arnaud Jaccard (Limoges, France) 09:35 Discussion 09:45 Latest developments in treatment Efstathios Kastritis (Athens, Greece) 10:05 Discussion 10:15 Ne...
AMYLOIDOSIS AL MEETING - 6TH OF JULY - PATIENTS & DOCTORS CHANNEL - Session 6👩🏼‍⚕️
Просмотров 1524 месяца назад
AMYLOIDOSIS AL MEETING - 6TH OF JULY - PATIENTS & DOCTORS CHANNEL - Session 6👩🏼‍⚕️
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 5👩🏼‍⚕️
Просмотров 704 месяца назад
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 5👩🏼‍⚕️
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 5👩🏼‍⚕️
Просмотров 1204 месяца назад
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 5👩🏼‍⚕️
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 5👩🏼‍⚕️
Просмотров 714 месяца назад
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 5👩🏼‍⚕️
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 5👩🏼‍⚕️
Просмотров 874 месяца назад
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 5👩🏼‍⚕️
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 4👩🏼‍⚕️
Просмотров 454 месяца назад
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 4👩🏼‍⚕️
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 4👩🏼‍⚕️
Просмотров 634 месяца назад
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 4👩🏼‍⚕️
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 4👩🏼‍⚕️
Просмотров 784 месяца назад
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 4👩🏼‍⚕️
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 4👩🏼‍⚕️
Просмотров 894 месяца назад
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 4👩🏼‍⚕️
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 3B👩🏼‍⚕️
Просмотров 734 месяца назад
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 3B👩🏼‍⚕️
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 3B👩🏼‍⚕️
Просмотров 824 месяца назад
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 3B👩🏼‍⚕️
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 3B👩🏼‍⚕️
Просмотров 584 месяца назад
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 3B👩🏼‍⚕️
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 3B👩🏼‍⚕️
Просмотров 664 месяца назад
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 3B👩🏼‍⚕️
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 3B👩🏼‍⚕️
Просмотров 1014 месяца назад
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 3B👩🏼‍⚕️
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 3B👩🏼‍⚕️
Просмотров 814 месяца назад
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 3B👩🏼‍⚕️
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 3B👩🏼‍⚕️
Просмотров 474 месяца назад
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 3B👩🏼‍⚕️

Комментарии

  • @maureengregory9524
    @maureengregory9524 Год назад

    Thank you Lucinda. I found this extremely helpful as my husband is now at the stage of ‘word finding’ and can be more anxious than before.

  • @ricardor922
    @ricardor922 Год назад

    Promo-SM

  • @michalreinberg
    @michalreinberg Год назад

    Powerful! Thank you for sharing your story! The only way to get the awareness this terrible disease need

  • @lucianobalbi3632
    @lucianobalbi3632 2 года назад

    Translation in italiano.thank's

    • @amyloidosisalliance8696
      @amyloidosisalliance8696 2 года назад

      We will try to translate later in multiple languages. Otherwise you can put the subtitles to better understand directly in the parameters of the videos. Thank you.

  • @Clovis2469
    @Clovis2469 2 года назад

    Bora divulgar!!!

  • @adampearson2113
    @adampearson2113 2 года назад

    As a newly diagnosed AL Amyloidosis patient this is an excellent video to bring some perspective (and I also experienced the initial shock of confusing information being available on the internet). Luckily I also have found the right doctors and treatments (I am in the UK). Toda!

  • @rosalinecallaghan4079
    @rosalinecallaghan4079 2 года назад

    Thank you, Keith, for sharing.

  • @rosalinecallaghan4079
    @rosalinecallaghan4079 2 года назад

    Thank you, Vince, for sharing.

  • @rosalinecallaghan4079
    @rosalinecallaghan4079 2 года назад

    Thank you, Lucy, for sharing.

  • @carineverhaeren4348
    @carineverhaeren4348 2 года назад

    Thanks for sharing. From a 61 year old Amyloidosis AL patient diagnosed in 3 months (thanks God) 4 years ago

  • @carineverhaeren4348
    @carineverhaeren4348 2 года назад

    Thank you for sharing.

  • @tanyamatveeva2263
    @tanyamatveeva2263 2 года назад

    thank you so much for sharing such important information!

  • @MavenGirlPH
    @MavenGirlPH 3 года назад

    Thank you for this such inspiring