- Видео 136
- Просмотров 18 117
Amyloidosis Alliance
Добавлен 8 окт 2021
To make significant contributions focused or about the quality of cure and care of Amyloidosis patients by exchange of experiences and constructive interaction with other players at an international level.
Replay Multiplex World Amyloidosis Day - 2024 🌎
Replay Multiplex World Amyloidosis Day - 2024 🌎
Просмотров: 32
Видео
Amyloidosis, a path to diagnosis - World Amyloidosis Day 2024🌏
Просмотров 4521 день назад
Amyloidosis, a path to diagnosis - World Amyloidosis Day 2024🌏
AMYLOIDOSIS AL MEETING - 6TH OF JULY - PATIENTS & DOCTORS CHANNEL - Conclusion👩🏼⚕️
Просмотров 3044 месяца назад
CONCLUSION Frank Bridoux (Poitiers, France), Barbara Mazzolini, Nathalie Meuleman, Stefan Schönland, Ben Woltering
AMYLOIDOSIS AL MEETING - 6TH OF JULY - PATIENTS & DOCTORS CHANNEL - Session 8👩🏼⚕️
Просмотров 1624 месяца назад
Session 8 / Treatments in 2024 and beyond Chairmen: Frank Bridoux (Poitiers, France), Ric-Paul Hammink (Amyloidosis Alliance, The Netherlands) 02:15 Initial patient-tailored treatment strategy Marie-Christiane Vekemans (Brussels, Belgium) 02:35 Relapse treatment strategy Ashutosh Wechalekar (London, Great Britain) 02:55 Ongoing clinical trials Ute Hegenbart (Heidelberg, Germany) 03:15 Position ...
AMYLOIDOSIS AL MEETING - 6TH OF JULY - PATIENTS & DOCTORS CHANNEL - Session 8👩🏼⚕️
Просмотров 1504 месяца назад
Session 8 / Treatments in 2024 and beyond Chairmen: Frank Bridoux (Poitiers, France), Ric-Paul Hammink (Amyloidosis Alliance, The Netherlands) 02:15 Initial patient-tailored treatment strategy Marie-Christiane Vekemans (Brussels, Belgium) 02:35 Relapse treatment strategy Ashutosh Wechalekar (London, Great Britain) 02:55 Ongoing clinical trials Ute Hegenbart (Heidelberg, Germany) 03:15 Position ...
AMYLOIDOSIS AL MEETING - 6TH OF JULY - PATIENTS & DOCTORS CHANNEL - Session 8👩🏼⚕️
Просмотров 2204 месяца назад
Session 8 / Treatments in 2024 and beyond Chairmen: Frank Bridoux (Poitiers, France), Ric-Paul Hammink (Amyloidosis Alliance, The Netherlands) 02:15 Initial patient-tailored treatment strategy Marie-Christiane Vekemans (Brussels, Belgium) 02:35 Relapse treatment strategy Ashutosh Wechalekar (London, Great Britain) 02:55 Ongoing clinical trials Ute Hegenbart (Heidelberg, Germany) 03:15 Position ...
AMYLOIDOSIS AL MEETING - 6TH OF JULY - PATIENTS & DOCTORS CHANNEL - Session 8👩🏼⚕️
Просмотров 1464 месяца назад
Session 8 / Treatments in 2024 and beyond Chairmen: Frank Bridoux (Poitiers, France), Ric-Paul Hammink (Amyloidosis Alliance, The Netherlands) 02:15 Initial patient-tailored treatment strategy Marie-Christiane Vekemans (Brussels, Belgium) 02:35 Relapse treatment strategy Ashutosh Wechalekar (London, Great Britain) 02:55 Ongoing clinical trials Ute Hegenbart (Heidelberg, Germany) 03:15 Position ...
AMYLOIDOSIS AL MEETING - 6TH OF JULY - PATIENTS & DOCTORS CHANNEL - Session 7👩🏼⚕️
Просмотров 1644 месяца назад
Session 7 / Treatment management Chairmen: Nathalie Meuleman (Brussels, Belgium), Barbara Mazzolini (Association Française contre l’Amylose, France) 11:30 The goals of treatment Paolo Milani (Pavia, Italy) 11:50 Potential side effects and how to manage them Michel Delforge (Leuven, Belgium) 12:10 Why and when to stop the treatment Monique Minnema (Utrecht, The Netherlands) 12:30 Discussion
AMYLOIDOSIS AL MEETING - 6TH OF JULY - PATIENTS & DOCTORS CHANNEL - Session 7👩🏼⚕️
Просмотров 1584 месяца назад
Session 7 / Treatment management Chairmen: Nathalie Meuleman (Brussels, Belgium), Barbara Mazzolini (Association Française contre l’Amylose, France) 11:30 The goals of treatment Paolo Milani (Pavia, Italy) 11:50 Potential side effects and how to manage them Michel Delforge (Leuven, Belgium) 12:10 Why and when to stop the treatment Monique Minnema (Utrecht, The Netherlands) 12:30 Discussion
AMYLOIDOSIS AL MEETING - 6TH OF JULY - PATIENTS & DOCTORS CHANNEL - Session 7👩🏼⚕️
Просмотров 1724 месяца назад
Session 7 / Treatment management Chairmen: Nathalie Meuleman (Brussels, Belgium), Barbara Mazzolini (Association Française contre l’Amylose, France) 11:30 The goals of treatment Paolo Milani (Pavia, Italy) 11:50 Potential side effects and how to manage them Michel Delforge (Leuven, Belgium) 12:10 Why and when to stop the treatment Monique Minnema (Utrecht, The Netherlands) 12:30 Discussion
AMYLOIDOSIS AL MEETING - 6TH OF JULY - PATIENTS & DOCTORS CHANNEL - Session 7👩🏼⚕️
Просмотров 1124 месяца назад
Session 7 / Treatment management Chairmen: Nathalie Meuleman (Brussels, Belgium), Barbara Mazzolini (Association Française contre l’Amylose, France) 11:30 The goals of treatment Paolo Milani (Pavia, Italy) 11:50 Potential side effects and how to manage them Michel Delforge (Leuven, Belgium) 12:10 Why and when to stop the treatment Monique Minnema (Utrecht, The Netherlands) 12:30 Discussion
AMYLOIDOSIS AL MEETING - 6TH OF JULY - PATIENTS & DOCTORS CHANNEL - Session 6👩🏼⚕️
Просмотров 1044 месяца назад
Session 6 / 2024 ISA news Chairmen: Bouke Hazenberg (Groningen, The Netherlands), Stefan Schönland (Heidelberg, Germany), Ben Woltering (Amyloidosis Alliance, The Netherlands) 09:15 Introduction: standards of care in 2024 and current challenges Arnaud Jaccard (Limoges, France) 09:35 Discussion 09:45 Latest developments in treatment Efstathios Kastritis (Athens, Greece) 10:05 Discussion 10:15 Ne...
AMYLOIDOSIS AL MEETING - 6TH OF JULY - PATIENTS & DOCTORS CHANNEL - Session 6👩🏼⚕️
Просмотров 1424 месяца назад
Session 6 / 2024 ISA news Chairmen: Bouke Hazenberg (Groningen, The Netherlands), Stefan Schönland (Heidelberg, Germany), Ben Woltering (Amyloidosis Alliance, The Netherlands) 09:15 Introduction: standards of care in 2024 and current challenges Arnaud Jaccard (Limoges, France) 09:35 Discussion 09:45 Latest developments in treatment Efstathios Kastritis (Athens, Greece) 10:05 Discussion 10:15 Ne...
AMYLOIDOSIS AL MEETING - 6TH OF JULY - PATIENTS & DOCTORS CHANNEL - Session 6👩🏼⚕️
Просмотров 1524 месяца назад
AMYLOIDOSIS AL MEETING - 6TH OF JULY - PATIENTS & DOCTORS CHANNEL - Session 6👩🏼⚕️
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 5👩🏼⚕️
Просмотров 704 месяца назад
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 5👩🏼⚕️
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 5👩🏼⚕️
Просмотров 1204 месяца назад
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 5👩🏼⚕️
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 5👩🏼⚕️
Просмотров 714 месяца назад
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 5👩🏼⚕️
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 5👩🏼⚕️
Просмотров 874 месяца назад
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 5👩🏼⚕️
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 4👩🏼⚕️
Просмотров 454 месяца назад
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 4👩🏼⚕️
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 4👩🏼⚕️
Просмотров 634 месяца назад
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 4👩🏼⚕️
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 4👩🏼⚕️
Просмотров 784 месяца назад
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 4👩🏼⚕️
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 4👩🏼⚕️
Просмотров 894 месяца назад
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 4👩🏼⚕️
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 3B👩🏼⚕️
Просмотров 734 месяца назад
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 3B👩🏼⚕️
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 3B👩🏼⚕️
Просмотров 824 месяца назад
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 3B👩🏼⚕️
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 3B👩🏼⚕️
Просмотров 584 месяца назад
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 3B👩🏼⚕️
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 3B👩🏼⚕️
Просмотров 664 месяца назад
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 3B👩🏼⚕️
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 3B👩🏼⚕️
Просмотров 1014 месяца назад
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 3B👩🏼⚕️
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 3B👩🏼⚕️
Просмотров 814 месяца назад
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 3B👩🏼⚕️
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 3B👩🏼⚕️
Просмотров 474 месяца назад
AMYLOIDOSIS AL MEETING - 5TH OF JULY - PATIENTS CHANNEL - Session 3B👩🏼⚕️
Thank you Lucinda. I found this extremely helpful as my husband is now at the stage of ‘word finding’ and can be more anxious than before.
Promo-SM
Powerful! Thank you for sharing your story! The only way to get the awareness this terrible disease need
Translation in italiano.thank's
We will try to translate later in multiple languages. Otherwise you can put the subtitles to better understand directly in the parameters of the videos. Thank you.
Bora divulgar!!!
As a newly diagnosed AL Amyloidosis patient this is an excellent video to bring some perspective (and I also experienced the initial shock of confusing information being available on the internet). Luckily I also have found the right doctors and treatments (I am in the UK). Toda!
Thank you, Keith, for sharing.
Thank you, Vince, for sharing.
Thank you, Lucy, for sharing.
Thanks for sharing. From a 61 year old Amyloidosis AL patient diagnosed in 3 months (thanks God) 4 years ago
Thank you for sharing.
thank you so much for sharing such important information!
Thank you for this such inspiring