The Children's Heart Foundation
The Children's Heart Foundation
  • Видео 105
  • Просмотров 118 882
CHD Research: A Path to Brighter Tomorrows
Watch this powerful and moving video that debuted at The Children's Heart Foundation's 10th Annual Red Tie Ball on December 14, 2024.
In this heartfelt feature, Heart Moms Kelly and Jeri share personal stories about their children’s CHD journeys. With raw honesty, they open up about the daily challenges they face, the uncertainties that weigh heavily on their minds, and their unwavering hope for a brighter future-all made possible by research.
Adding a vital medical perspective, Dr. Nancy Ghanayem, a leader in pediatric cardiology, shares her insights on the critical role of innovation and research in transforming outcomes for children living with congenital heart defects. Don’t miss this i...
Просмотров: 70

Видео

CHD Research is Saving Lives
Просмотров 23Месяц назад
At The Children's Heart Foundation, we want all babies born with congenital heart defects (#CHDs) - America's most common birth defect - to have a fighting chance. That's why our mission is to fund the most promising congenital heart defect research. Melissa Nater, MD, of Advocate Children's Hospital, sees a direct correlation between babies surviving to adulthood and continued CHD research.
Hope for Every Heartbeat - Join our Congenital Heart Walk!
Просмотров 35Месяц назад
The Congenital Heart Walk is the nation's premier walk series dedicated to raising funds for research on congenital heart defects - America's most common birth defect. Register for a walk near you today! Visit chfwalk.org/
Dr. Mark Rodefeld's Fontan Pump Prototype
Просмотров 221Месяц назад
The Children’s Heart Foundation was an early and repeated funder of Dr. Mark Rodefeld's research to create a Fontan Blood Pump that simulates a heart pump and could reduce the need for heart transplants. Dr. Rodefeld went on to receive a $5 million grant from the National Institutes of Health to continue his research on this revolutionary device. Watch him explain how the pump works - and his v...
2024 Cleveland Congenital Heart Walk
Просмотров 1312 месяца назад
An amazing recap of the 2024 Cleveland Congenital Heart Walk, Presented by Cleveland Clinic Children's, by Shelby K studio. The 2024 Cleveland walk was the TOP FUNDRAISING Congenital Heart Walk in the COUNTRY! We are so grateful for this incredible show of support from our walkers, sponsors, and donors! We'd also like to give a very special thank you to our AMAZING walk committee and volunteers...
Walking for Little Hearts
Просмотров 533 месяца назад
The Children's Heart Foundation's Congenital Heart Walk series is the country's premier walk series dedicated to raising funds for life-saving congenital heart defect research. Join us at a walk near you and help us change the future for babies born with America's most common birth defect.
Get ready to walk, Columbus!
Просмотров 403 месяца назад
The Children's Heart Foundation's Congenital Heart Walk series is coming to Columbus on September 28th! Join us as we walk to raise funds and awareness for congenital heart defect research. Visit secure.qgiv.com/event/columbus to sign up or donate!
Join us as we walk to save lives!
Просмотров 213 месяца назад
The Children's Heart Foundation is dedicated to funding the most promising CHD research. Every donation we receive brings us closer to groundbreaking discoveries that provide hope and improve the quality of life for Heart Warriors everywhere. We encourage everyone to sign up and fundraise for the walk closest to you! chfwalk.org/
Dr. Rodefeld's Self-Powered Fontan Pump
Просмотров 1134 месяца назад
In 2023, The Children's Heart Foundation funded a research project by Dr. Mark Rodefeld (Indiana University) titled, "Self-Powered Fontan Pump". This research project was funded in part by The Haley Foundation. The aim of this research is to carry out proof-of-concept feasibility studies for an implantable Fontan pump that is internally powered and does not require external energy. The findings...
2024 Pittsburgh Congenital Heart Walk Highlights
Просмотров 3325 месяцев назад
THANK YOU PITTSBURGH!🤩❤️ We had an INCREDIBLE day at the 2024 Pittsburgh Congenital Heart Walk Presented by U. S. Steel, raising over $154,000 for congenital heart defect research! Thank you to all of our walkers, teams, volunteers, donors, and sponsors for making this year's event such a huge success.
This is Why We Walk
Просмотров 1138 месяцев назад
“When I was born the doctors told my parents I was born with something called a congenial heart defect. But thanks to my amazing doctors, and all the researchers, I've been able to do so many things I love. Every year, my family and I participate in the Pittsburgh Congenital Heart Walk in support of more life-saving research. Nothing can stop us when we come together with love and hope." - Mila...
Walk With us!
Просмотров 1538 месяцев назад
Congenital Heart Walk season is here! Now is the perfect time to register for a walk near you and invite your friends and family to join you! With 33 family-friendly events happening nationwide, these walks represent more than just steps; they signify our dedication to championing this cause-raising essential funds and awareness for congenital heart defect research. Visit chfwalk.org/
Charles Omenihu Supporting The Children's Heart Foundation
Просмотров 299 месяцев назад
Charles Omenihu, defensive end for 2024 Super Bowl Champions, the Kansas City Chiefs, epitomizes resilience. Over his five-year NFL career, Omenihu has amassed an impressive 92 tackles and 18.5 sacks, contributing significantly to the Chiefs' journey to the Super Bowl. However, amidst his achievements on the field, Omenihu draws inspiration from his childhood best friend Newton "Newt" Ananti, w...
Michael Montgomery, CHF Ambassador
Просмотров 6110 месяцев назад
We're thrilled to have Michael Montgomery, former NFL player for the Green Bay Packers, as a Mission Ambassador! "Thanks to organizations like The Children’s Heart Foundation, I have been able to live a healthy, productive life - and even play a little football!" Watch this video to hear why our mission is so personal to Michael. ❤
2023: Year in Review
Просмотров 608Год назад
As the year comes to an end, we're looking back at 2023 with gratitude. So many incredible fundraisers and events have taken place, and many of you have generously donated your time or money to help further our mission. We're also proud to now be recognized as a Four-Star Charity on Charity Navigator! From all of us at The Children's Heart Foundation, THANK YOU for all you continue to do. ❤️
A look at the importance of CHD research
Просмотров 809Год назад
A look at the importance of CHD research
Walk With Us!
Просмотров 694Год назад
Walk With Us!
Importance of CHF funding
Просмотров 99Год назад
Importance of CHF funding
Walk For One More Heartbeat
Просмотров 46Год назад
Walk For One More Heartbeat
The Young Family's CHD Story
Просмотров 134Год назад
The Young Family's CHD Story
We're coming to a city near you! Join us!
Просмотров 72Год назад
We're coming to a city near you! Join us!
A message to our volunteers from our Board Chair
Просмотров 51Год назад
A message to our volunteers from our Board Chair
Dr. Caitlin Rollins on her Research
Просмотров 87Год назад
Dr. Caitlin Rollins on her Research
Advancements in surgery for babies with CHDs
Просмотров 1,1 тыс.Год назад
Advancements in surgery for babies with CHDs
Funding Research is our Mission
Просмотров 399Год назад
Funding Research is our Mission
Funding the Groundbreaking Research of Tomorrow
Просмотров 81Год назад
Funding the Groundbreaking Research of Tomorrow
Ethan's story
Просмотров 87Год назад
Ethan's story
Matters of the Heart: The Children's Heart Foundation
Просмотров 483Год назад
Matters of the Heart: The Children's Heart Foundation
Join us in our walk!
Просмотров 101Год назад
Join us in our walk!
Research Spotlight: Dr. Nancy Ghanayem
Просмотров 135Год назад
Research Spotlight: Dr. Nancy Ghanayem

Комментарии

  • @bellamillicent7358
    @bellamillicent7358 23 дня назад

    Hi Pls my son needs help He has TOF of the heart n requires heart surgery but am not financially capable.Pls come to his rescue am ready to give u all his medical informations🙏

  • @Amy-m9s
    @Amy-m9s Месяц назад

    Heads will roll, because Teddy bears nead xtra attention

  • @bellamillicent7358
    @bellamillicent7358 Месяц назад

    Hi Doctor My Son has TOF of the heart n He is 10yrs now.Am so worried about him help me pls🙏

    • @elliottfireice4394
      @elliottfireice4394 Месяц назад

      How is he doing Bella? I have CHD but different to your son. Would be good to connect

    • @bellamillicent7358
      @bellamillicent7358 Месяц назад

      @elliottfireice4394 He is fine but always get tried easily.OK so how do we connect?

    • @elliottfireice4394
      @elliottfireice4394 Месяц назад

      @bellamillicent7358 Glad he is doing well. Are you on Facebook? I'm also a member of the congenital defects group on there.

  • @DonnaWalker-e4b
    @DonnaWalker-e4b 2 месяца назад

    Talon Gateway

  • @ShirleyFontaine-q3e
    @ShirleyFontaine-q3e 3 месяца назад

    Konopelski Pines

  • @msharifuzzaman
    @msharifuzzaman 4 месяца назад

    great innovation. Thank you Dr Rodefeld.

  • @AfsanaSumi8856
    @AfsanaSumi8856 7 месяцев назад

    Your channel videos are very interesting and the thumbnail image is also very nice but it has some problems due to which the videos are not increasing in subscribers and views.

  • @PeachStateNotaryServices
    @PeachStateNotaryServices Год назад

    THANK YOU to The Children's Heart Foundation's 9th annual Red Tie Ball on another successful year's event. We HEART WARRIOR FAMALIES are also very grateful to all of our supporters & I look forward to attending net years ball!! ~S. Bason, Atlanta #TeamBrianna

  • @bellamillicent7358
    @bellamillicent7358 Год назад

    Please my son has cyanosis since birth,he is 10yrs now and He has not gone for His heart surgery because I don't have the money.Pls we sincerely need your help🙏

  • @mat_macy8636
    @mat_macy8636 Год назад

    My daughter is pregnant in Tampa FL. Her baby will be born in just a few weeks in November. I'm praying hard and getting ready to support both her and my grandson for the journey ahead. He will be having a Fontan procedure at some point in the near future. It's scary but I just sent her this video. Thank you for all the work you do. ❤🙏🏿🙏🏿🙏🏿

  • @Hipo-vr1pc
    @Hipo-vr1pc Год назад

    ruclips.net/video/OouV-FXk5bA/видео.html&si=UXPByeOB6g7GlEp-

  • @emilyrainey4468
    @emilyrainey4468 Год назад

    My son was born with AVSD, PDA and coarctation

  • @elliottfireice4394
    @elliottfireice4394 Год назад

    Unfortunately there is a flaw in this. It won't stop left ventricular failure

  • @Yescomplicated
    @Yescomplicated 2 года назад

    I wish the world understood.

  • @elliottfireice4394
    @elliottfireice4394 2 года назад

    This is amazing. The problem is people need this NOW. I hope one day this is an option to me so I can avoid a transplant myself. I have a lateral tunnel fontan

  • @alfredotrento6073
    @alfredotrento6073 2 года назад

    Need a real cure for heart disease Contact ( Dr imenherbal ) on channel for real and complete cure His herbs saved my life from this disease.....

  • @karenwilliams978
    @karenwilliams978 2 года назад

    I pray everyday

  • @reginemonserate9014
    @reginemonserate9014 2 года назад

    I have conginital heart deases

  • @ErinLovegood73
    @ErinLovegood73 2 года назад

    When I was a baby I had meningitis. It was then that they discovered a hole in my heart affecting all four chambers. Back in the seventies, they had to wait to do surgery because I wasn't big enough. At the age of two and a half, they couldn't wait any longer. I had a second surgery in 1990 at the age of seventeen. I get the comments, but that was years ago? What do you mean you're tired, you need to keep going. Why were your children both high-risk pregnancies? However, thanks to the wonderful doctors at Texas Children's in Dallas I have lived a pretty good life and am nearly fifty. I'm blessed beyond measure.

  • @wafaaelkarn9137
    @wafaaelkarn9137 2 года назад

    waiting for this great pump to be applied soon for fontaner 's it will relief liver congestion and fibrosis

  • @kiteaddiction9332
    @kiteaddiction9332 2 года назад

    When will it get tested in human??

    • @timothyconover9805
      @timothyconover9805 2 года назад

      The current NIH-funded research schedule includes two rounds of animal testing, 2023 and 2024. After that, further progress will require either another NIH grant or some large corporate partner to proceed into human trials. So the answer is honestly "unknown" at this time.

  • @akongas
    @akongas 2 года назад

    Really great work. How often does it need to be changed? Do the parts wear out?

    • @zumbawithalexa
      @zumbawithalexa 2 года назад

      It looks really large. Would it fit a child, or an adult?

    • @timothyconover9805
      @timothyconover9805 2 года назад

      The pump is proposed to be a permanent implant in adolescents, near adult size. The mechanical design is to exceed normal human lifespan. As with any blood-handling device, a main topic of ongoing research is to prevent formation of blood clots. In the event it does stop rotating, it causes little to no more resistance to blood flow than the patient's existing Fontan circulation.

    • @kiteaddiction9332
      @kiteaddiction9332 2 года назад

      @@timothyconover9805 when will this be tested in human??any idea.??

  • @racheltorres9067
    @racheltorres9067 2 года назад

    I was born with a congenital heart defects i am now 40 and have been living with heart failure. Over the years iv had 3 open heart surgeries for my aorta valve. The last sugary was to replace the valve in 2016 I have two bad values. I can feel my self going down every thing I do takes alot out of me. Everything I go to the er they say everything is normal. I can feel my heart straining..the way my rhythm changes from day to day I feel its not much longer. I'm always weak and its not fun but I still keep going no matter what. Because I am young I have to fight for SSI I don't look sick and people don't understand or really see the reality of heart failure in young people. Its a struggle 😪

  • @MelB868
    @MelB868 2 года назад

    I wasn’t born with heart problems but I had a heart condition last year an enlarged left atrium from having covid I had moderate covid and double covid pneumonia which effected my lungs and later on found out it effected my heart but I’m better now my heart is better too. I got healed last year on February 5th after being sick for 25 days I finally got to come out of quarantine snd was better it took me a while to get my strength back and my heart got better in I think July I got checked out because I was having chest pains

    • @kerrynicholls6683
      @kerrynicholls6683 10 месяцев назад

      So did you have any of the Covid vaccines when they were available. I have had 6, because I didn’t have any reactions and I have a 94 year old grandad. I don’t want him to catch anything because of me. But I know a lot of people who only had the first 2 shots, because they had reactions to the vaccine. I’m not sure if those people had gotten the new vaccine, Idk. They probably didn’t since it made them feel sick for a few days. But I’d prefer being sick for a few days to dying, but that is just my opinion. Love ❤️ from Australia 🇦🇺

  • @MelB868
    @MelB868 2 года назад

    She’s so cute

  • @1208Shell
    @1208Shell 2 года назад

    Thank you Everyone! We truly appreciate each of You. #CHDAwareness #HeartWarriors #chdmoms #fundingresearch #Children'sHeartFoundation #AtlantaHeartWalk

  • @joyemeka6408
    @joyemeka6408 3 года назад

    Honestly when my Doctor told me I had Herpes virus I almost gave up in life because I was so afraid but then I came online and saw a lot of testimonies from people here in US talking about Dr IGUDIA on RUclips who has the natural herbs medication to cure Herpes virus infection once and for all. After ordering the herbs medication that was the end of my Herpes Virus infection.

  • @charlottelandon4948
    @charlottelandon4948 3 года назад

    Finally my wife got cured from cardiovascular disease using an herbal mixture from Dr. Gbenga, after 9 years of battling with this illness which almost claim the joy of our marriage, Get a permanent cure today using Dr. Gbenga herbal mixture.

  • @felipebdavid8066
    @felipebdavid8066 3 года назад

    Hellow I am from the Philippines and I am just hoping that you could help me with my son. He is currently confined here in the Philippines. Philippine heart center to be exact. They conduct open heart surgeryThey switched his great artery. We are having trouble financially and would really appreciate it if you could help me with that. Thank you so much. My baby boy name Jeremiah Dylann B. David Birthday June 02 2021 20 Days old I hope someone can reach me..godbless

  • @Italian_girl89
    @Italian_girl89 3 года назад

    I am a CHD survivor. I was born with a partial AV canal, which included a large septal atrial defect and a severe mitral regurgitation. My parents didn’t know anything about my condition until I went to heart failure at 11 months. I had my first open heart surgery when I was 14 months old; after surgery I had a complication called hemolysis... after 5 blood transfusion and 3 months in hospital, I went home. My mitral valve wasn’t completely repaired and I had my second open heart surgery at the age of 9. Now I am 31 years old and I am fine. Thank you for you video about CHD awareness. Hugs to you, Anna from Italy 🇮🇹

  • @PinkHawk191
    @PinkHawk191 3 года назад

    I have TOF/APV. I have had two open heart surgeries. I suffered a brain injury during my open heart surgery in 2013. I still have really stiff muscles in my legs that causes trouble with walking.

  • @1208Shell
    @1208Shell 4 года назад

    Thank you for all you do you ❤ #HeartsThatHope #CHDAwarness #HeartWarriors #HeartAngels #fundingresearch #GivingTuesday

  • @BlackMonkey69738
    @BlackMonkey69738 4 года назад

    My 8 weeks daughter passed away with CHD 😭

    • @alfredotrento6073
      @alfredotrento6073 2 года назад

      So sorry take heart

    • @danielleg1504
      @danielleg1504 Год назад

      Terribly sorry for your loss. CHD changed our family’s life too… our warrior is still here, by nothing short of a miracle… but I’m so well aware that there’s one test, one stitch, one heartbeat between your experience and mine. ❤️❤️❤️❤️

  • @barbarabower5775
    @barbarabower5775 4 года назад

    I am the mother of a 53 y/o CHD survivor. This documentary is marvelous and a good instrument to get the information out to the public. I know if many of my son's friends see this, they too will be interested along with family members who have been along for the ride for all these many years. Thank you so much for producing this. It certainly gives me more knowledge to explain CHD to my own friends who ask about it, or who would be interested.

    • @alfredotrento6073
      @alfredotrento6073 2 года назад

      Need a real cure for heart disease Contact ( Dr imenherbal ) on channel for real and complete cure His herbs saved my life from this disease

  • @thepowers2862
    @thepowers2862 4 года назад

    GO MOM!!!!!!

  • @thepowers2862
    @thepowers2862 4 года назад

    That is Awsome!

  • @heavensentheartsfoundation7201
    @heavensentheartsfoundation7201 4 года назад

    We Love The Children’s Heart Foundation’s and will forever be volunteers because "I Have A Heart That Hopes" - Team Brianna, Atlanta

  • @lindenellingson9923
    @lindenellingson9923 4 года назад

    So proud of you, Chase! You’re AMAZING!

  • @debbielyman
    @debbielyman 4 года назад

    That's my son! That's our lives! CHF is our rock and always will be!

  • @debbielyman
    @debbielyman 4 года назад

    That's my boy! That's my son! This is his life and our lives!! CHF is our rock and always will be.

  • @tamarajazwinski6354
    @tamarajazwinski6354 4 года назад

    Every part of this is so fantastic! Thank you for sharing your stories!

  • @ToriHartman
    @ToriHartman 4 года назад

    Thank GOD for people who support them!

    • @valantenadiab3317
      @valantenadiab3317 4 года назад

      Amen and thank God for them doing this heroic JOB!

  • @Chronicallyginger
    @Chronicallyginger 5 лет назад

    This channel NEEDS more viewers and subs

  • @ambergolden5474
    @ambergolden5474 5 лет назад

    Fantastic documentary! I am a 28 year old CHD survivor and it was a joy to watch this awesome documentary!

    • @alfredotrento6073
      @alfredotrento6073 2 года назад

      Need a real cure for heart disease Contact ( Dr imenherbal ) on channel for real and complete cure His herbs saved my life from this disease..........

  • @monkie-cmonkie-do3561
    @monkie-cmonkie-do3561 5 лет назад

    I’m 39 and I have D-TGA. I had the Schumacher repair in 1980 (slightly different than the mustard and the sennings procedures). I have a hard time breathing, I have SVT’s and my heart function is at 35%. But I’m still hear. My doctors kept telling my parents she might only make it to age... it started to a max of 25.

  • @PinkHawk191
    @PinkHawk191 6 лет назад

    I am 28 with CHD. I man medication for atrial tachycardia and heart function issues.

  • @s_sisters2883
    @s_sisters2883 7 лет назад

    I also have a CHD, I am 11 now and I got a pacemaker when I was only a few weeks old

  • @davidbuchanan6594
    @davidbuchanan6594 7 лет назад

    I am #1in100 I was born with a CHD I am now 32 but I have a pacemaker