Видео

I've had these for 17 years and my heart goes out to you dear. Try ice on it. It gives me a little relief.

Thumbs up for sharing. Not for the pain. I did 20 yrs, then 14 without. Now back from nowhere

Kid i want to help you get the word out. What can i do

Devi fare la respirazione diaframmatica

I feel your pain mate💙

If anyone thinks this is fake.. I can assure you it's not.. had them for 10 years.. You literally cannot imagine the pain..You have no benchmark.. at minute 15 ..You're having suicidal thoughts.. They don't call them suicide headaches because someone thought it was a bitch'n name..

What is wrong 😞

I really don't want to give this a like, because I know that pain all too well. Check in to emgality, it changed my life from dealing with this 2 times a day to zero times a day.

That looks like just about the worst thing ever. I got a wad of brain removed and i thought that was painful.

I had ONS in June 2022 and have not looked back. My life is totally different having suffered with chronic cluster headaches for 10 years. I am medication free and get barely any pain, certainly not at a level that would disrupt or impact on my day to day activities or sleep - wow i can sleep now at any time of day and not be woken by that excrutiating pain! Will say it does take time to get full benefit following surgery and it was hell the first 3 months as frequeny and intensity of pain experienced during attacks were far worse. I persevered and am so thankful that this treatment was offered to me, it really has changed my life - long may it last.

Well presented thanks - end missing. Oxygen tips from retired anaesthetist. Demand valve best. Tight fitting mask with reservoir bag - never let it completely empty - next. The slower one breathes in the closer oxygen gets to 100%

"Cluster headache is the worst known pain to man, has significant risk of suicide and is often not taken seriously enough" Just seeing that on a slide at the conference helped me to stop feeling guilty for having Cluster Headaches after 25 years of misdiagnosis. Thank you to Dr Silver for allowing his presentation on this platform so that those who were unable to attend the conference can see it.

Shame it gets cut off at the end

I’ve been with my gamma for three months now. My BOC oxygen use has gone from 6 large and 6 travel every month to ZERO ! ❤

Summer Conference 9th July London is a great opportunity to meet other sufferers and join in the Q&A with the experts ouchuk.org/civicrm/event/info?id=36

Excellent job...bravo

Rang them today, Thank you so much for shining a light on to a problem. i don't feel so alone with this anymore :)

Can you provide link to the booklet that Dr Silver mentioned, Thanks

A note in advances in (neuro)osteopathy including my own experiences which align with osteopathic works over at New York Institute of Technology, College of Osteopathic Medicine. ------🌿 I don't know whether I was a cluster headache sufferer but my headaches were suicidal. I discovered sub-occipital massage and performed this form of osteopathic manipulative medicine and also cranial massage ---+with a rolling pin+--- and when something in 2 week old headache fractured, it didn't kill me. When I woke the next day my brain was ---open---. After 2 years of treatments including tying up my sub-occipital and cranium with a thin fabric scarf / shawl during episodes, I now rarely ever get episodes. I had to deal with the odours and the dizzyness, rolling my head on the wall with my body weight pushing pressure onto the bones of my brain case. I had to deal with the clogged lymphatic system and the feeling that there was still sticky brain material that I couldn't reach and remove. Dr Sheldon Yao and other osteopaths at NYITcom are exploring the use of OMM as a treatment for Parkinson's. After I self treated, it was the work being done here that gave me insight into the possible causes and treatments of a variety of headaches. Most doctors won't know what I've told you Many osteopaths still aren't allowed to tell you what I've told you The studies at NYITcom as of 2022 are analysing vertigo in Parkinson's patients. I can't tell you when professionals will know what I have shared. I hope I have been your guiding angel and using the method that I found you can get your life back.

Thank you Professor Goadsby. I'm lucky, I have episodic clusters but not since 2016, i still get warning shots that it hasn't gone away, just hiding due to masses of Verapamil. I'm encouraged by the research, its going to take time and brains but i'm confident that with yours and your colleagues brains given time you will have a good understanding of the malicious little creeps habits and good ways of dealing with it! I find Sumatriptan inj. give it a good spanking, but just for one night.

I had stem cell from my own bone marrow. Next month I will be 3 years complete remission of severe chronic clusters. Chronic migraines. Tensions and a 4th headache that they couldn’t diagnose. After having DBS and ONS which made me worse and left me with a TBI and PTSD. Proof is in the days in remission. Take note. I am the first on the globe to have stem cell for clusters. I filmed the procedure.ruclips.net/video/TH0Sk3PL3CE/видео.html

I'm absolutely flabbergasted at this shambles, I have subscribed hoping there would be loads of videos, information, etc...this is 1yr Aniversary ? Live stream, ok live is tricky but seriously, ur upload video content, at best are unprofessional, your website, request £13 membership for 1yr, not a optional donation, your a charitable Organisation, you apparently have 2000 members, you are dismissing potential members, yet want to raise awareness? I want to know what your 2000 paying members get in return? Your RUclips channel, is bare bones, no content, of any substance, I have yet to view FB, Twitter etc, hopefully an improvement, what do members get for the fee where does it go ? Your run by volunteers? I've been viewing this anniversary stream, just to hear nonsense watch a bloke, trustee give benefit advice?? Is he qualified? or just giving advice on his experience, no mention of laws, acts, etc, 1year and not one, professional medical speaker?? Your not highlighting CH, or giving members, sufferers value for your membership fee, your site looks all professional, but membership fee? For access to your charitable support and advice? Alienates , other sufferers, medical research candidates, more knowledge, experiences shared, more voices to highlight CH?? your discriminating against your charity, research, sufferers that cant pay, tough find another CH charitable organisation???

I am in this video. Thanks to a friend. I no longer suffer. Over 3 years in remission. First on the globe to have stem cell for clusters and it worked! Pain free wishes to fellow survivors.

Great video. We need lots more.

I am 46 and suffered with these since I was 14 I am episodic sufferer and at times it’s ruined my life. I can’t imagine being a chronic sufferer my heart goes out to people who are. The trouble I have had with doctors and chemists down the years through there lack of understanding is a headache itself but at the same time had a lot of hep from doctors an chemist who understood. The fact there’s only 500 sum thing subscribers to this channel says it all.( join ouch to help the cause)

The NHS are dumb enough to give money to this scammer.

I think it was helpful in reducing the pain and indeed the timescale of my recent episode. Paul was very helpful in getting me started. It's well worth a try. Thank you Paul. Best Regards, Graham.

This seems like pseudoscience and potentially harmful to the nerves in your face. It's also extremely expensive in the United states.

Omg I have horrible migraines like this I wonder if I have this 😣😒😩😩😩😩

Can it also help other things connected w vagus nerve - gut or anxiety?

Can it also help other issues connected w the vagus nerve, like anxiety, gut? Thanks

This has helped me immensely in terms of being able to show people to explain my condition (I’m diagnosed chronic and have lost my ‘life’ to this over the last 3 years). Thanks for making this mate.

Stun gun to neck. Nope

my daughter has suffered from this for the past seven years. it has taken everything from her not only the suffering but she has lost her job cannot drive buy a home find a partner nothing . this condition is so rotten and suffering an a scale that is unreal

Hi. very interesting knowledge and history on Cluster Headaches. Is anyone of suffering from CH willing to participate in a special clinical study? No pharmaceuticals, no device implant. W recruit actively. Thank you

Respectful documentary, objective and informative. Thank you.

You mention cutting out caffeine but I'm in a CH group and they all seem to mention that energy drinks especially those with taurine massively help.

Missed the live session, but found this very interesting. It has spurred on some more thoughts and questions which I will pose for discussion at the next session. Thank you for organising

This was not a prefect stream, but i done this a test and we will improve

Has been the fight of my life!! I was so desperate that I went for a new treatment in South Africa. I am from Portugal and for 10 years I was CH Chronic, having up to 8 attacks a day, everyday of the year. I did several head surgeries where 7 small arteries were closed and more than 20 pain spots were also treated with superficial low electric shocks directly in the pain spots. All those spots are like numb now, and I don't feel any pain. I am now 1 year pain free. The doctor who cured is Elliot Shevel and his clinic, The Headache Clinic. I spoke about my experience with several sufferers and many of them are against my doctor treatments. I can only speak about myself, it worked for me, he saved my life. I don't take any preventing medication or O2. I just don't have attacks anymore. Feel free to contact me, despite of the fact I think I am cured now, my thoughts are always linked to this curse. miguelsousinha instagram miguel-sousinha@outlook.com

Hi. I was a chronic migrainer, tension headaches and severe chronic cluster head. Had numerous brain surgeries and now a new treatment that put me into remission for over a year now.

Is there any data available on how effective the gama core is. As a long term chronic sufferer I am looking for help. I would be interested to hear from anyone who has found this device useful or not

I'm on my 6th year of episodic cluster headache and am still struggling to get my doctors to understand what I'm going threw even after being diagnosed by a neurologist. However after reading threw stuff on the website I broke down and cried for a good ten minutes, just to see in black and white that it is real and there is actual help I can recieve. knowing other suffers are actively helping each other get the help we need make it feel so much less like I'm in this alone l, though my partner does everything possible to help me,seeing and reading I'm not the only one has helped me more than anything. Thankyou for your work I'm eternally grateful

Hope this helps

This is great to hear other sufferers stories. Do more of these stories.

I'm dealing with that condition sińce I was 13 now I'm 33 so it's 20 years of terrible pain. At least my clusters are onły episodic they last to 3 months in a year I don't even want to Imagine how miserable life is when u're chronic!

Thank you for this documentary and well done !! I am also a cluster headache and migraine sufferer and there is nothing that can compare to this pain. I am also blessed to have a Son who helps me. I know how much it effects him seeing me in so much pain but without him I would be lost or worse. Good luck to your Mam and keep us updated.

I can't believe I've had cluster headaches for almost 20 years and just discovered this RUclips channel today. I also can't believe you have under 200 subscribers! Your doing a good thing here, more people need to know about this.

Worst pain ever imaginable

OMG.. that rang SO many bells.... I've had most if not all of those drugs. The nerve block injections were incredibly unpleasant, but did work for a while.... Gabapentin did not work for me.. Verapamil has the effect of making you feel like your head is full of cotton wool, so I stopped taking those. I can't believe my doctor has never recommended the OUCHUK.org site..... I use codeine mostly, but the small ones you can buy are not very effective......