M.S? Lets talk!
M.S? Lets talk!
  • Видео 6
  • Просмотров 18 653
IM BACK!!! Lets chat!
Hey everyone! Quick video to catch up, I have so much to talk about and I can’t wait to hear from you! These last two years have been a doozy! Let me tell you!
Просмотров: 1 115

Видео

UPDATE! Almost 3 months after ocrevus
Просмотров 1,3 тыс.3 года назад
We are in this together! How are you feeling!??
Ocrevus round 2!
Просмотров 6143 года назад
Today was my 2nd round of Ocrevus. Went in feeling positive and excited to see what more this medicine can do for me after experiencing such great results in just the 1st two weeks.
Day after 1st Ocrevus Infusion
Просмотров 2,8 тыс.3 года назад
First morning after ocrevus infusion! How I’m feeling and how it all went! :)
Telling people you have Multiple Sclerosis
Просмотров 2 тыс.3 года назад
How did you feel telling people you have MS? Did you tell people? Did you feel you had the support? And explaining to them what MS is!
When I found out I had Multiple Sclerosis...The beginning
Просмотров 11 тыс.3 года назад
My first video talking to the world about my life with multiple sclerosis. In this video I talk about what happened from day one when I found, and how my life had to change. More to come! Sorry it cuts off at the end, my sister called :)

Комментарии

  • @vmiximv
    @vmiximv 24 дня назад

    While you got paid unemployment and forgivable loans for your business….

  • @DawnRussell-x6i
    @DawnRussell-x6i 2 месяца назад

    I've had mutiples scerisos

  • @D0NNAGRAINGER-w3u
    @D0NNAGRAINGER-w3u 2 месяца назад

    You will get lots of utis

  • @dscott2387
    @dscott2387 2 месяца назад

    Not everyone who has ms has someone to fall back on. Once your sick it seems people slowly disappear

  • @dscott2387
    @dscott2387 2 месяца назад

    Yes it is exhausting having to explain all the details again and again

  • @justathought274
    @justathought274 2 месяца назад

    Off topic - and thank you for your videos- you are Heather MacDonald’s dopleganger! #juicyscoop :)

    • @m.sletstalk8500
      @m.sletstalk8500 2 месяца назад

      Hahah no but she must be Italian 😂

  • @quansue1480
    @quansue1480 3 месяца назад

    I've had it for 16 years my I told all my friends and family that I had it

  • @MoMo-mo8bg
    @MoMo-mo8bg 3 месяца назад

    I hope you are ok. I will tell you after implants for 20 yrs, I had them removed as my symptoms were getting worse. Some got better but that is one thing I think of, did these implants make me sick. I’m not MS diagnosed yet, have 1 yr follow up end of this month with neurologist. Vision issues very scary. I work as an office manager and nursed pt for 5 yrs, ran myself ragged so I can relate to your feelings of ‘I did this’. Single mom too…..scary thinking about being alone or having to rely on people for help. I left second job with hopes of relaxing more, menopause certainly sucks and doesn’t help but hang in there. I’ve never appreciated the ability to move and see more than now. I try very hard to meditate and enjoy the little thing. I really do hope you are doing well on your meds. To everyone below, I wish you all the best.

  • @jiala1979
    @jiala1979 3 месяца назад

    I’m new to your channel and have watched all of your videos. It helps me to hear about your experience with Ocrevus. I was diagnosed in February 2023. After 3 different neurologists I’m finally starting a DMT. Hope you are well. Can’t wait for your next video. God bless. ((Hugs))

  • @zappamann
    @zappamann 3 месяца назад

    Just watched your first video, skipped to this video. Glad to see you are doing well. I’m experiencing weird things: Numbness, Tingling Pins and needle, Itching and Electric shocks and major fatigue which led me down the MS rabbit hole. I have an apt in 2 weeks with the neurologist. I’m so scared lol. I’m a healthy 45 year old male, in the gym daily, always healthy, and suddenly my world has been flipped upside down. Doesn’t make it any better that I’m single now for the first time and now, the stress and fear of “not finding anyone that would want to to be with me if I have ms ” is replaying in my mind and legit taking me out emotionally. Like you said in your first video, feeling alone and scared is where I’m at. I’m hoping you can make more videos so we can keep up on your journey.

  • @christinaadamou3311
    @christinaadamou3311 4 месяца назад

    Hi.How are you? I would like to ask you if ten years before you had depression and stress

  • @tylerb2830
    @tylerb2830 4 месяца назад

    Hi Ashley, I have RRMS as well. I was diagnosed in January of 2023. I have been on Kesimpta and it has been working well for me. I had double vision for 7 months roughly and had to get surgery to correct it. If and when you get the live chat figured out you should let all of us know.

  • @Ane127
    @Ane127 5 месяцев назад

    Get a homeopath

  • @mykamorgan5287
    @mykamorgan5287 5 месяцев назад

    You give light at the end of the tunnel for myself. Was diagnosed two days ago and waiting to see if insurance will cover Ocrevus or if I have to do another drug. Thanks for sharing

  • @mykamorgan5287
    @mykamorgan5287 5 месяцев назад

    Would love to have more connections to know life goes with this. Was just confirmed yesterday that I for sure have multiple sclerosis. Lost my sight in the right eye and never realized my walking uses had a name. I never knew what for drop was until now. Just thought I was super clumsy. So glad you post about your issues.

  • @mykamorgan5287
    @mykamorgan5287 5 месяцев назад

    Just confirmed yesterday that I have ms. I’m not for sure if I want to tell anyone yet.

  • @R-skl
    @R-skl 6 месяцев назад

    ultiple sclerosis for almost 10 years, it seems to me that simple exercises slow down its development, I am an example of this obvious. This is why the channel on RUclips started htps ://youtube.com/@ R-skl? si = P8tAJaob-e6uyaeW

  • @martinmatko6401
    @martinmatko6401 6 месяцев назад

    What is the role of CCSVI Venous Hypertension and proper/improved Cerebrospinal Blood flow?? #CCSVI #BloodFlowMatters CCSVI is definitely one of the causes of MS. The novelty for some years is that we are certain that, after studying at the La Sapienza University of Rome, there are 3 types of CCSVI: * a 1 type with patients suffering from an obstacle to the endovacular venous discharge, i.e. due to congenital or acquired anomalies that restrict and block the drainage of the investigated veins (jugular, vertebral, azygos) * a 2nd type with patients suffering from an extra-vascular venous obstruction, i.e. due to external compression of the vessel * a 3 type with patients suffering from endo-vacular and extra-vascular venous obstruction So to simplify we can say that there is a CCSVI of the "hydraulic" type (1 type), a CCSVI of the "mechanical" type (2 type) and a "mixed" CCSVI of the two previous types (3 type), the 2 and the 3 type represent about 85% of cases. A patient with type 1 CCSVI will have a greater indication for angioplasty treatment, a patient with type 2 CCSVI will have a specific indication for specific physiotherapy decompressive treatment (RIMA Method), a patient with type 3 CCSVI it will have an indication for both an endo-vascular dilatation treatment and an extra-vascular decompression treatment. The RIMA Method devised by Dr. Domenico Ricci of Bari is able to release compressed veins throughout their course, as shown by a publication of June 2015 after a one-year study (Internal jugular Venous Compressione Syndrome: hemodynamic outcomes after cervical vertebral decompression manipulations-Pubmed). For information: Dr. Domenico Ricci cell.3393828399 MRI IN MS VASCULAR PATHOLOGY www.dropbox.com/s/m0yvgmufgfcys1v/MRI%20IN%20MS%20-%20VASCULAR%20PATHOLOGY%20.pdf?dl=0 This quantification of the disease pathology will help! #CCSVI Venous Hypertension >microbleedings >iron >inflammation >free radicals >neurodegeneration #multiplesclerosis M.S. - Mystery Solved Mysterious Autoimmunity = CCSVI Neurodegeneration M.S. - Mystery Solved Mysterious Autoimmunity = CCSVI Neurodegeneration Keep in mind! Also venous hypertension ➡️ impaired CSF absorption ➡️ reduced G Lymphatic drainage ➡️ interstitial peptides accumulation ➡️ NEURO INFLAMMATION #CCSVI Eliminating cause of the Symptoms of so called Multiple Sclerosis will End MS. Apparently it is unquantifiable the length of time Symptom$ can be treated! If you hadn't noticed Who Knew?? #BloodFlowMatters What is the role of proper/improved Blood flow? #CCSVI Apparently #BloodFlowMatters Stroke common occurrence in Individuals diagnosed with Diabetes, unproven autoimmune THEORY so called MS Supplying Oxygen and Nutrients to Cell in a Body. Blood Circulation through and including activity/exercise. Building Blocks of life, having made yourself what you are functioning today! #CCSVI #Healthcare game changer when the cause The doctor of the future will give no medicine, but will interest his patient in the care of the human frame, in diet and in the cause and prevention of disease. -THOMAS EDISON Best possiblity easing/eliminating cause of SymptoMS! You can relate! If your veins are blocked they should be opened if you have SymptoMS or not! MRI IN MS VASCULAR PATHOLOGY www.dropbox.com/s/m0yvgmufgfcys1v/MRI%20IN%20MS%20-%20VASCULAR%20PATHOLOGY%20.pdf?dl=0 Who Knew?? #BloodFlowMatters What is the role of proper/improved Blood flow? #CCSVI Apparently #BloodFlowMatters Stroke is a common occurrence in Individuals diagnosed with Diabetes Neurovascular Disease Multiple Sclerosis is being referred 'slow Stroke'. What is the role of proper/improved Blood flow in both conditions as much CCSVI has been Scientifically confirmed a causative factor in Symptoms of so called MS! Supplying Oxygen and Nutrients to every Cell in a Body. Blood Circulation through and including activity/exercise. Building Blocks of life, having made yourself what you are functioning today! #CCSVI #Healthcare game changer when the cause of the Symptoms of Medical conditions are eliminated! The doctor of the future will give no medicine, but will interest his patient in the care of the human frame, in diet and in the cause and prevention of disease. -THOMAS EDISON Best possiblity easing/eliminating cause of SymptoMS! You can relate! If your veins are blocked they should be opened if you have SymptoMS or not! A Vascular problem led to the crippling nightmare of Multiple Sclerosis The real Multiple Sclerosis nightmare started at the point of NeuroDx The disaster of diagnosis being made by general physical observation over time,. Especially when Time is something you can’t afford #CCSVI Multiple Sclerosis is strong and you often need help. Make you be worthy of this help, don't stand in a corner complaining, do your part! 💪 #Symptoms often ease/DISAPPEAR Facilitate Collaboration Neurovascular Disease Research! #CCSVI FB Group: MSS facebook.com/groups/4939355…!

  • @mikeymouawad2769
    @mikeymouawad2769 7 месяцев назад

    Meditate and Diet. That’s all

  • @AndreaNeubrand-x7v
    @AndreaNeubrand-x7v 7 месяцев назад

    Thank you for posting! I have a hard time with taking a shower especially if I have to wash my hair. It totally wipes me out. I only do makeup now then I go somewhere which doesn’t happen very much. I used to be so active, totally into bodybuilding, on my feet all day and enjoying it.

  • @andreag.6977
    @andreag.6977 8 месяцев назад

    I am on ocrevus also but with no bad side effects. Thank god.

    • @chrisc7670
      @chrisc7670 6 месяцев назад

      Well good for you, let's all hope your PPMS is restricted from progression (which I believe is why it was created). It's great that your own personal attitude has changed already (I'm a big believer in positive mental attitudes to help any person through difficult times. Good luck in feeling so fortunate and the benefits of Ocrevous. Long may it continue. Chrissie x ..

  • @maryannconroy9372
    @maryannconroy9372 8 месяцев назад

    How long did it take for numbness to go away I have numbness for 6 weeks now I am scared that it will never go away I have rrms also ❤

  • @Chelle0729
    @Chelle0729 8 месяцев назад

    I do want ask, the more ocrevus infusions you have? Do you feel better? I'm on ocrevus as well

  • @Chelle0729
    @Chelle0729 8 месяцев назад

    Thank you for posting your videos and giving others who don't have multiple sclerosis a little understanding of this disease. I was diagnosed December 2022

  • @juliealston1417
    @juliealston1417 8 месяцев назад

    Appreciate you being so open and sharing your story❤ My mom was Type A (as I am) and it was devastating to her when she began to deal with MS. You aren’t alone. I’ve often wondered if “she brought it on herself” too as you said. And I worry I will too. Love your honestly when you met your eventual hubby- glad you have a wonderful support system. Thanks again for sharing and explaining. Sounds like a blessing you were so close to the Mayo Clinic to get diagnosed in such a short time from that major debilitating episode!! There is no shame in taking meds- they may add quality and quantity of life if they slow the disease down. My mother wasn’t listened too and believed enough to get that option. By the time we realized what it was, she was already becoming disabled by it. Stay positive! Mind over matter❤

  • @Jess-kn8vl
    @Jess-kn8vl 8 месяцев назад

    Thanks for making these videos! Ive been researching the genetic predisposition/ autoimmune/epstein barr/chronic stress component with MS. I was diagnosed with PTSD in 2018 and now just had optic neuritis (chronic fatigue and pain for 10 years) and in the process of MS diagnosis. Brain MRI not many lesions but 14 oligiclonal bands. Anyway, you mentioned having personality change a little bit with being short with people. I feel the same way! I think its just a mixture of being misunderstood with PTSD and not from the military and having chronic pain plus my optic nerve damage has myelin degeneration so I think we can have less patience from a structural standpoint because of this. Its not our fault! 🕊

  • @lundenburnett
    @lundenburnett 9 месяцев назад

    I just finished my Florida real estate course when my symptoms started! Had to move to TN to live with my retired parents! Ha! But the market here is booming so I might get my Tn license! You go girl! I’m so proud of you 🙏🏻 You’re such an inspiration to all

    • @Ane127
      @Ane127 5 месяцев назад

      Get a homeopath.

  • @lundenburnett
    @lundenburnett 9 месяцев назад

    Thank you so much for this video. I’m undiagnosed but I have an uncle and a great uncle that have MS and I’m concerned due to tingling/numbness in my feet. Can’t thank you enough for sharing about being afraid of what your now husband would think. I can’t even get myself to date because I’m 29 and feel like I’m broken. I cried listening to that, happy tears. You gave me hope I can’t thank you enough. I used to live in Melbourne and Fort Myers I miss Florida so much. I hope you’re well❤️

  • @scmassa
    @scmassa 9 месяцев назад

    Well said

  • @oliviagraham9523
    @oliviagraham9523 9 месяцев назад

    I was diagnosed July 23rd 2023 so I'm new to all this MS stuff. Come to find out through my MRI that apparently I've had MS for the last 7 years. My neurologist recommended Ocrevus right away so I started that in October and I go for my second infusion in April. My life has completely changed since being diagnosed. It's tough but I'm still walking even if I can't cook anymore... Hopefully that changes

    • @m.sletstalk8500
      @m.sletstalk8500 9 месяцев назад

      Hi Olivia, isn’t so wild being told you’ve had it for so long and no one knew! It sounds like you have a good team working with you to help you which is awesome. The first year was the hardest. My life definitely changed in almost every aspect but I was so hell bent on getting myself back that’s all I could focus on. I hope the treatment is helping you! You sound strong which is so hard to stay that way sometimes with this disease but we have to. I myself had a bit of a break down this morning about wanting to make sure I accomplish everything I want to do while I’m still young enough, just in case this body of mine gives out. I have never admitted that out loud and it brought me to tears this morning. But now I am getting my butt off the couch and going to work out and keep my head on straight. Can’t let this beat me! lol

  • @bestnana66
    @bestnana66 9 месяцев назад

    Hi Ashley, congratulations on your new career. Looking forward to hear more about your journey

  • @bestnana66
    @bestnana66 9 месяцев назад

    I don't know how i came upon your channel, but im glad. I know this video is 3 years old, but im wondering how you are now. I hope you are well! Thank you for sharing

  • @tinahatcher5186
    @tinahatcher5186 9 месяцев назад

    Hi Ashley Im on Ocrevus as well. I got diagnosed in aug 2021 and i have rrms. I had a major relapse in oct 22 . I work out daily and my balance and everything is ok. The one thi k that depresses me is that my speech was affected. I think thats what depresses me the most. I can tell right now that im in need of my 6 month infusion and my balance i feel a little awkward internally if that makes sense. Im still able to drive etc other than the talking i feel great. In the beginning my speech improved but lately its gotten worse. I hope that my infusion which is due in another week will improve the spasicity in my voice . I know i hear that it does in your walking in which it does

    • @m.sletstalk8500
      @m.sletstalk8500 9 месяцев назад

      Hi Tina, I’m sorry to hear about your speech, I get stuttery when mine is wearing off :/ it’s really is tough. My brother actually just sent me Info from a podcast where a guy was talking about his MS and he has been getting NAD Infusions that help him and he’s off meds. I’m thinking about checking it out and see if it helps when I’m in between infusions and feeling off. I do always feel like super woman right after mine ocrevus infusion. I tell people I’m just going in for a tune up lol #oilchange.

  • @royspencer4323
    @royspencer4323 9 месяцев назад

    Have you heard of paleomedicina and Dr zsophia Clemens they specialise in cancer and autoimmune diseases they have a clinic in Hungary but they have an online service as well they treat people with a metabolic approach diet only they have treated 7000 patients with a high level of success good luck

  • @karenpny
    @karenpny 9 месяцев назад

    Don't feel silly. Ever! So great that you were able to change careers. Congrats on the home and the dogs 🐾 🐾

  • @marcolopez6389
    @marcolopez6389 10 месяцев назад

    I’m glad you are back and are doing ok

  • @jannmattox2012
    @jannmattox2012 10 месяцев назад

    I was just diagnosed with Ms. on October 8th, 2023. a couple of days before this, I was at work and felt drunk while walking down the hall the night I went to the emergency room I drove home a 20 min drive at the most took me 60 mins pulled Into the driveway parked my car opened my door to climb out and fell got up with my husband's help and fell again down the stairs he looked at me and said I needed to go in and I agreed thinking I had a stroke

    • @m.sletstalk8500
      @m.sletstalk8500 10 месяцев назад

      That is so scary!! I remember that feeling when mine first really showed itself also. I was using sea sickness medicine thinking maybe I have vertigo and felt like I was drunk walking on a boat!

  • @jenniferroshto7377
    @jenniferroshto7377 10 месяцев назад

    I have gone through lot of the things you mention here. Luckily I was already married with 3 kids when I was diagnosed or I don't know if I would have had all of them. The unknown is scary, but ignorance truly is bliss! My dad tells me the reason I'm so tired all the time is because I don't do any hard work to tire myself out and get a good night's sleep. My aunt tells me I could do this job, that job, she has lots of job ideas for me. If it wasn't for MS, I'd be a high school English teacher, something I worked my butt off getting twenty years after graduating HS, but my first symptoms showed up while student teaching, and I wasn't diagnosed for 1.5 years later. Another relative told me I needed to use my brain more because the brain is a muscle. When I told her, no... She insisted it was. Unfortunately my brain muscle has too many lesions to work properly because I don't do enough hard work, I guess! Sorry to vent. Thanks for sharing your experiences. Ive been taking Rebif injections 3x weekly and have had no new symptoms or changes on MRI for 8 years, but still have vertigo, balance issues, cognitive issues, extreme fatigue, etc, etc. 😇

    • @shireenramnarain4005
      @shireenramnarain4005 9 месяцев назад

      I have similar symptoms taking rebif My husband wants to leave me No support except for my 2 kids n their narcissist father gets jealous if they help me😢

    • @jenniferroshto7377
      @jenniferroshto7377 9 месяцев назад

      I'm so sorry you are dealing with this! Have you tried counseling? I'm thankful for my supportive husband, but MS has definitely strained our relationship. I have faith in God to help me through. 😘

  • @TH-ib7zz
    @TH-ib7zz 10 месяцев назад

    Hey Ashley I have RRMS too for about 2 years now been on the O for about a year in a half! So far so good but this disease is definitely a pain in the ass mentally and physically! Always looking to connect with more people who go though this! It can feel extremely frustrating and isolating at times but you’re not alone, maybe we can make some kind of MS group chat or something? Anyway just found your channel and wanted you to know I appreciate your videos and updates always here for support, we’re all in this together!

  • @danielmcinerney9949
    @danielmcinerney9949 10 месяцев назад

    I started ocravus too, getting the second round of the first dose soon. I was curious to know if you have a specific diet! Thank you 🙏

    • @m.sletstalk8500
      @m.sletstalk8500 9 месяцев назад

      Hi Daniel! How are you feeling after starting the meds? I do actually try and stick to an anti inflammation diet, low or no dairy, no sugar, minimal to no wheat. Mainly pescatarian paleo kind of diet. It helps a lot, I ready Dr gundrys book the plant paradox and that helped a lot too

    • @danielmcinerney9949
      @danielmcinerney9949 9 месяцев назад

      @@m.sletstalk8500 hey there thanks for checking in im doing so so. I only say this cause I in my mind thought I was going to start running out of the infusion chair. I know I know lol but ima dreamer 😁🤷‍♂️. The smoldering part of ms seems to be incrementally moving on me. That said I’m very low carb no gluten or dairy and high protein and fermented foods with a couple supplements. I also have a very large team working with me! So I fight this invisible beast with alll the faith I have as well! God bless friend 🙏…..☝️

    • @m.sletstalk8500
      @m.sletstalk8500 2 месяца назад

      I work on just trying to eat on a anti inflammation diet

  • @willo9327
    @willo9327 10 месяцев назад

    Visiting Palm Springs, from Seattle. Need to absorb some sun ☀️

  • @jeffhooper6942
    @jeffhooper6942 10 месяцев назад

    Merry Christmas !!

    • @m.sletstalk8500
      @m.sletstalk8500 10 месяцев назад

      Merry Christmas! Hope you had a great holiday!

  • @jeffhooper6942
    @jeffhooper6942 10 месяцев назад

    Hi I'm also on ocrovis

  • @roadrunnerfromhh3162
    @roadrunnerfromhh3162 10 месяцев назад

    Thank you for your videos. Best from Franziska from Germany

  • @Gjustme52
    @Gjustme52 10 месяцев назад

    Hi Ashley, I watched a couple of your videos, I just scroll through utube looking for people talking about ms symptoms, trying to find answers. My doctor says I have fibromyalgia but I'm not sure. So I search. Glad you are back

    • @m.sletstalk8500
      @m.sletstalk8500 10 месяцев назад

      Hi there! Thank you for joining in😊 I’m so sorry about the uncertainty about your health you are going through. Have you been able to get to a neurologist or have an mri? What symptoms are you experiencing if you don’t mind sharing?

  • @danielmcinerney9949
    @danielmcinerney9949 10 месяцев назад

    How are you doing?

    • @m.sletstalk8500
      @m.sletstalk8500 10 месяцев назад

      Hi! I’m back, I posted a quick update. Doing pretty well. So many changed the last two years!

  • @juliaevangelista7765
    @juliaevangelista7765 10 месяцев назад

    I did ocrevus fir a year 2020 to 2021 now i am off side effects to many

  • @juliaevangelista7765
    @juliaevangelista7765 10 месяцев назад

    So question did you get sick prior to your dx since it was covid year. I was dx same year

    • @m.sletstalk8500
      @m.sletstalk8500 10 месяцев назад

      Yes I was diagnosed a couple years prior to Covid. The drs said based on my scans I’ve had this for years, even late teenage years and had no idea. Just not enough symptoms them to think anything was wrong.

  • @euenfheiejrj
    @euenfheiejrj 11 месяцев назад

    Granted I only had like two doses but I loved ocrevus. I take public transportation and have a baby in daycare and didn’t get more sick I don’t think. Sadly I had to stop because I became neutrophic, which is super rare. I also didn’t sick ever before I got diagnosed. I even told my husband I was a pinnacle of health lol probably should have been my first sign since my immune system was too good.

  • @BernardAsagai
    @BernardAsagai 11 месяцев назад

    Go Vegan

    • @m.sletstalk8500
      @m.sletstalk8500 10 месяцев назад

      I was vegan for years and the time I was diagnosed. :( I stick to a sugar free, minimal dairy and mostly pescatarian diet now.