National Tremor Foundation
National Tremor Foundation
  • Видео 25
  • Просмотров 54 665
Celebrating 30 years of the NTF
This year the National Tremor Foundation (NTF) is celebrating three decades of supporting people with neurological tremors. Established in 1994 the NTF provides help, support and advice to all those living with all forms of tremor irrespective of age.
Просмотров: 62

Видео

Shake Up The World Recording of 1st in a new series
Просмотров 135Год назад
Shake Up The World Recording of 1st in a new series
NTF Essential Tremor Open Day, 1st October 2022, Liverpool
Просмотров 625Год назад
On 1st October we were delighted to be joined by leading experts from across the neurology field at our annual open day. The ability to meet face-to-face - at the iconic Liver building in Liverpool - for the first time in over two years made the event all the more valuable. To find out more about neurological tremor go to tremor.org.uk
2021 National Tremor Foundation Support Groups Review
Просмотров 1602 года назад
The National Tremor Foundation (or NTF as we are known) is an organisation where we aim to provide help, support and advice to all those living with all forms of tremor irrespective of age. The foundation is a charity dedicated to people with tremors - its mission is to provide advice, support, publish information and promote research. If you are interested in coming to our online events go to ...
Explain the science
Просмотров 9152 года назад
An animated video explaining how Focused Ultrasound Surgery (MRgFUS) works featuring Ian Sharp, who is among the first people in Scotland to be treated with MRgFUS at Ninewells Hospital from the University of Dundee. Find out more about MRgFUS: tremor.org.uk/about-tremor-menu/focused-ultrasound
Kitty's marathon training: part four
Просмотров 1063 года назад
Kitty Reilly, Trustee & Children’s Liaison Officer, whose son Shea has essential tremor, has taken on the challenge of running two marathons for the NTF. Support her: Support Kitty on Virgin Money Giving uk.virginmoneygiving.com/KittyReilly1
Kitty's marathon training: part three
Просмотров 343 года назад
Kitty Reilly, Trustee & Children’s Liaison Officer, whose son Shea has essential tremor, has taken on the challenge of running two marathons for the NTF. Support her: Support Kitty on Virgin Money Giving uk.virginmoneygiving.com/KittyReilly1
Kitty's marathon training update part two
Просмотров 733 года назад
Kitty Reilly, Trustee & Children’s Liaison Officer, whose son Shea has essential tremor, has taken on the challenge of running two marathons for the NTF. Support her: Support Kitty on Virgin Money Giving uk.virginmoneygiving.com/KittyReilly1
Lord Julian Fellowes Honorary President of the National Tremor Foundation
Просмотров 7903 года назад
Lord Julian Fellowes, Honorary President of the NTF and writer of Downton Abbey shares his experience of living with essential tremor and welcomes you to National Essential Tremor Awareness (NETA) month 2021. For more information on NETA or essential tremor, go to www.tremor.org.uk/events
Scottish Parliamentary Committee hearing on focused Ultrasound scanner for essential tremor
Просмотров 1824 года назад
The Scottish Parliamentary Committee hearing more submissions on Thursday 10 September on an Inverness campaigner’s petition supporting the introduction of a Focused Ultrasound scanner to Scotland to treat people with essential tremor.
The Journey Week 6 & 7
Просмотров 184 года назад
The Journey Week 6 & 7
The Journey Review: Week 4 and 5
Просмотров 1614 года назад
The Journey Review: Week 4 and 5
Journey week 3
Просмотров 194 года назад
Journey week 3
Journey week 2
Просмотров 264 года назад
Journey week 2
The Journey: Week 1 review
Просмотров 574 года назад
The Journey: Week 1 review
Mental Health Awareness Month coping tips and mindfulness
Просмотров 784 года назад
Mental Health Awareness Month coping tips and mindfulness
Recording of NTF Webinar 16th May 2020: ET - Geoff's Journey
Просмотров 1,1 тыс.4 года назад
Recording of NTF Webinar 16th May 2020: ET - Geoff's Journey
Essential Tremor: Geoff’s Journey
Просмотров 5 тыс.4 года назад
Essential Tremor: Geoff’s Journey
NTF online meet up introduction
Просмотров 494 года назад
NTF online meet up introduction
Tony Foulds shares his story about living with essential tremor
Просмотров 1,4 тыс.5 лет назад
Tony Foulds shares his story about living with essential tremor
The Mayor of Sutton at the Essential Tremor Awareness Day, Sutton 2019
Просмотров 3355 лет назад
The Mayor of Sutton at the Essential Tremor Awareness Day, Sutton 2019
Jamie shares his experience of living with essential tremor
Просмотров 10 тыс.6 лет назад
Jamie shares his experience of living with essential tremor
Chloe shares her experience of living with essential tremor
Просмотров 14 тыс.6 лет назад
Chloe shares her experience of living with essential tremor
Ryan Williams shares his experience with essential tremor.
Просмотров 18 тыс.6 лет назад
Ryan Williams shares his experience with essential tremor.

Комментарии

  • @RohitSingh-jw1lc
    @RohitSingh-jw1lc 3 месяца назад

    How Ryan got fixed, i mean he seems fine, how ??

  • @georgecottam2387
    @georgecottam2387 6 месяцев назад

    im 25, i’ve noticed my tremor since i was about 12 but didnt know it till about 16-17 the shaking has effected me with getting good jobs because i would rather hide away than actually be seen especially with my hands but when i was playing football i was also playing darts a lot and i felt good being seen more, then i got a bad knee injury and has stopped me from exercising and playing football so that has made my anxiety blow up really bad, i just feel like im going insane all the time tbh

  • @HBD777
    @HBD777 6 месяцев назад

    I’m 33 and have et. Had to leave a dispatch job because of that and depression. I was put on propranolol as well which contributed to depression. Recently got off propranolol and put on primidone. I’m hoping at 50mg it will help. It’s funny because I could go skateboard and do some crazy and tedious tricks and not shake at all. Then I could be at a store and my hands and head start to shake. Even if I’m not anxious. People have thought I was hungover or on drugs as well lol it’s funny because I quit drinking over a year ago. Anyway, thanks for the vid, cheers man!

  • @happylife4734
    @happylife4734 7 месяцев назад

    Bad recording low voice volume

  • @felixotoo4361
    @felixotoo4361 11 месяцев назад

    This is reassuring to watch considering I also am dealing with essential tremor. My first experience long before I had a diagnosis was struggling to write the number 3.

  • @metiafmohamed3919
    @metiafmohamed3919 Год назад

    كيف تخلصت منها أو كيف عالجتها

  • @JamesDThomas1981
    @JamesDThomas1981 Год назад

    I am 41 years old and have ET. I got mine from my mother. One natural way to reduce is effect is to stay in good shape working out. Running reduces your resting hear rate and this will reduce the tremmor. Mine is geetting worst as i get older. So i literally just got prescribed propanolol. Hopefully is works pretty good. In any case, i will not let ET stop me from doing what i want to do in this lifetime 😊.

  • @lilhadnmavn4486
    @lilhadnmavn4486 Год назад

    Its just so hard when youre younger and you get the tremors in an interview cause you get automatically passed on

  • @lilhadnmavn4486
    @lilhadnmavn4486 Год назад

    I just turned 19 bro im in fucking tears. You have named everything that has happened in my life. Im scared to get a job cause of the inerview. No one has ever brought this up to me and everyone makes so much fun of me for it

    • @JamesDThomas1981
      @JamesDThomas1981 Год назад

      I am so sorry this happened to you. I have ET too. Fuck those people. I often think there are so many people who have worse problems and still get stuff done.

  • @christinehoytaylor3026
    @christinehoytaylor3026 Год назад

    So glad this treatment worked for him. My husband had severe tremors in both hands, shoulders and head. DBS unfortunately didn’t work and affected his balance quite severely.

  • @christinehoytaylor3026
    @christinehoytaylor3026 Год назад

    I had no idea this forum existed. I have a partner with essential tremor. He had DBS with minor success and after surgery developed a severe balance problem. This has greatly impacted his quality of life and is on par with the severity of his hand tremors. He also has shoulder tremors and a yes yes head tremor. We are desperate for knowledge and/or help. Is there any research ongoing into the effect of B vitamins, particularly B1, helping essential tremor does anyone know?

  • @chrisharris1705
    @chrisharris1705 2 года назад

    hi im Chris I've had essential tremors since I was 6 years old I'm now 39 you give hope and encouragement to all of us thank you

  • @ExacoMvm
    @ExacoMvm 2 года назад

    I relate a lot, but my problem is full body shaking induced by stress, excitement or fear/phobia just as intense as hands so when at doctor I might not even shake if I feel alright. Not sure if it's common in Essential Tremor but pretty sure it started mostly with hands, which I've noticed first time when I was 9yo using a laser on airsoft gun. I was also 17 when trying to get diagnosis, but doctors didn't found anything, maybe they ignored it because I was doing it at the same time as doing health check for future military service, so ppl usually lie and complain about various things just to get denied but ofc I got approved and years later denied when the actual service was about to start because of all the psychological issues such as GAD and Depression I've developed thanks to the tremor.

  • @swatikhatuwalahongkong4165
    @swatikhatuwalahongkong4165 2 года назад

    Hello do u have this treatment in India or hongkong

  • @kimfab1973
    @kimfab1973 2 года назад

    Thanks for sharing your experience, you're a handsome and attractive young man! I hope you all the best.

  • @kimfab1973
    @kimfab1973 2 года назад

    Thanks Ryan. I have myself an essential tremor, my head is shaking and It's becoming a big social problem. You're handsome and attractive and I wish you all the best!

  • @anjanaperera4689
    @anjanaperera4689 2 года назад

    This is inspiring.

  • @HamaBenji
    @HamaBenji 2 года назад

    Get right with the lord Jesus Christ before it’s too late repent and put ur faith in Christ. Jesus Christ died on the cross for our sins and risen on the third day he’s the only way to salvation John 14:6 John 3:36 John 3:16 Romans 10:9.

    • @kimfab1973
      @kimfab1973 2 года назад

      If you were a true believer you would respect and be compassionate. Learn to listen and not judge.

    • @HamaBenji
      @HamaBenji 2 года назад

      @@kimfab1973 how am I judging? I am simply sharing the gospel because I love everyone enough to warn them and tell them the truth I don’t want anymore people to go to hell especially knowing how to get to salvation and who you get salvation from. God bless u, have a wonderful rest of your day, and remember Jesus Christ loves you

  • @kimspringall5128
    @kimspringall5128 2 года назад

    This is really comforting to hear. I’ve recently started a degree in nursing and It’s heightened how much my hands tremor and it’s making me question if I’ve chosen the right career. I’ve been shaky in my hands since about 16 but its been easier to mask and rather mild. I haven’t got a diagnosis yet but have recently had my bloods taken to rule out anything else, although it’s not caused by anxiety it does make it significantly worse and I find a few glasses of alcohol reduces my tremors to that of someone without tremors. It’s causing a lot of anxiety but hearing other peoples experiences really helps. Especially from younger generations. Thanks for the video

    • @elvin2374
      @elvin2374 2 года назад

      I’m a nurse and I shake and a lot of nurses do as well. You will do great 😉

    • @raniasham3176
      @raniasham3176 Год назад

      @@elvin2374me too I’m a nurse and I have it … it get worse when someone around me and they say why you shaking 😢I get nervous and I start to shake more …. Also when I need to start iv or withdraw blood 😢

    • @Gyomei_the_strongest_hashira
      @Gyomei_the_strongest_hashira 9 месяцев назад

      ​@@raniasham3176parkinson maybe cause also my father has and he started consuming alcohol recently often

    • @hexxjayonyt_ismyepic
      @hexxjayonyt_ismyepic 7 месяцев назад

      @@raniasham3176 wow! I’m a nurse & I’ve recently started doing IVs & I’m shaking like crazy!! I spoke with my primary care doctor last week & she prescribed propranolol & it helped. I even noticed my heart rate lower, at work my heart rate was 104 at rest 😳 we’ll get through this strong 💪🏾

  • @gowthami7701
    @gowthami7701 2 года назад

    Even I have tremors since my childhood

    • @dhandekrushna4055
      @dhandekrushna4055 2 года назад

      Are you from India?

    • @gowthami7701
      @gowthami7701 2 года назад

      @@dhandekrushna4055 yes brother

    • @dhandekrushna4055
      @dhandekrushna4055 2 года назад

      @@gowthami7701 aapne treatment nahi liya ?

    • @dhandekrushna4055
      @dhandekrushna4055 2 года назад

      Mujhe bhi ET hai jab mai 18 complete hua tab se yeh badh Raha hai

    • @gowthami7701
      @gowthami7701 2 года назад

      @@dhandekrushna4055 iam taking propranolol & no more treatment

  • @maryjones8726
    @maryjones8726 2 года назад

    Get tested for a vitamin B12 deficiency.

    • @KishBish
      @KishBish 2 года назад

      I have tremor and my B12 was elevated..

    • @maryjones8726
      @maryjones8726 2 года назад

      @@KishBish Sally Pacholok in her book "Could it be B12?" states that there is much controversy as to what constitutes a normal result for B12. She believes the "normal" serum B12 threshold needs to be raised from 200 pg/ml to at least 450 pg/ml.

    • @KishBish
      @KishBish 2 года назад

      @@maryjones8726 mine is 1824 pg/mL lol.. I know bc I recently had labs and specifically requested my B12, magnesium, and D3 numbers.. I supplement over what is suggested, so I keep an eye on things.. I'm not really sure what is causing the tremor, but I've had it since I was a teen (I'm 46) and the only thing that ever completely stops it is Klonopin, but I haven't taken that in years.. could be my dental amalgams, who knows..

    • @colefox2882
      @colefox2882 Год назад

      Ah “B12 deficiency” . . Every ET, PD, MS & ALS patient’s dream. 🙃

    • @HBD777
      @HBD777 6 месяцев назад

      @@colefox2882wanted to say this lol. People who don’t have it totally get that it’s probably just b12. All the tests and seizures point right to the vitamins 😂

  • @williambolton4698
    @williambolton4698 2 года назад

    I have inherited Essential Tremor like Ryan from birth. I have a private theory about my tremor. Over the years I have come recognise that, counter intuitively, when I relax my tremor increases. I think that during my daily life at work and elsewhere, I subconsciously monitor my tremor and something somewhere in my mind helps to reduce the strength of the shaking. However, when I'm at home and I'm feeling very relaxed, I think I drop that subconscious monitor and as a consequence, the tremor becomes much more violent when I try to eat or drink a cup of tea. I suppose we all have different experience of ET but i'm guessing that many people have been surprised when they notice Ryan's tremor as he is otherwise quite a cool character. It's my completely unscientific theory but I do think that perhaps Ryan had the unconscious monitor switched on during the filming.

    • @kishamarang4849
      @kishamarang4849 Год назад

      Ur condition is not by ET it's a signs of Parkinson's disease it's also like ET but Parkinson causes shaking hand or body when u are in rest while essentially tumor cause shaking of hand when ur circus or do something

  • @TheHansBeekhuyzenChannel
    @TheHansBeekhuyzenChannel 2 года назад

    I had ET since my 20th. At 66 it got so worse that drinking from a cup or glass was extremely difficult since my hands were shaking severely. I also developed a head tremor over the years. I tried six types of medication but they didn't solve the problem. So in 2021 I underwent the DBS operation. I explained why in a video. Two weeks after the operation I made another video. The videos are not sponsored in any way.

  • @TheHansBeekhuyzenChannel
    @TheHansBeekhuyzenChannel 2 года назад

    2 days ago I had ET since my 20th. At 66 it got so worse that drinking from a cup or glass was extremely difficult since my hands were shaking severely. I also developed a head tremor over the years. I tried six types of medication but they didn't solve the problem. So in 2021 I underwent the DBS operation. I explained why in this video: ruclips.net/video/boAkTRHcZ8I/видео.html. Two weeks after the operation I made this video: ruclips.net/video/nYG4t9SHQYA/видео.html

  • @TamiePryor
    @TamiePryor 2 года назад

    I noticed that my son starting having them in middle school. We were told that they are hereditary but we do not know of anyone in the family who has them. Does anyone in Chloe's family have them?

  • @carikshawn4201
    @carikshawn4201 3 года назад

    cannot hear Jamie..they needed to have him talk with a mike...

  • @_blew_a_fuse_7372
    @_blew_a_fuse_7372 3 года назад

    Lack of dopamine causes this take vitamin d for it it raises this crucial chemical in the brain and crosses the blood brain barrier these stupid dr aren't going to tell you this for the sake of profit

  • @bobbybaucom9440
    @bobbybaucom9440 3 года назад

    In high school, I began to notice that my handwriting was so laborious. It was necessary for me to grip the pencil so tightly. In my twenties, it manifested itself just as I got a good job here in Las Vegas that required a lot of writing. I can't begin to tell you how difficult that made my job. I went to a renowned medical facility to see a neurologist who diagnosed my problem as an essential, or familial tremor. It has only effected me for tasks like handwriting, never for holding a cup, typing, or other things. Finally, the tremor got so bad that my PCP put me on propanolol, a blood pressure medication that, oddly enough, helps a lot of people suffering from this type of tremor. That has helped a bit but not a great deal. Simple tasks like filling our forms at doctor's office or updating my information for a passport or driver's license renewal were difficult. For a couple of years on my job, I changed over to using my left hand, but the tremor gradually began to affect that hand as well. It was with a great deal of relief the day I retired and knew that I would never have to earn a living where writing was a necessary part of it. My heartfelt sympathies go out to Ryan and the others who suffer from any type of tremor. I wish he had given us more information on his problem now as he didn't seem to be shaking in the video he made. Whatever, I wish him the best and thank him for posting. Oh, does anyone know what causes these tremors? What is the defect in the body that results in this problem?

  • @vanessaharling1957
    @vanessaharling1957 3 года назад

    I was dealing with full on head tremors at age 12 ,I wish my tremors had been in my hands only

  • @mary-annebarnett654
    @mary-annebarnett654 3 года назад

    I have had this since my late teens/early twenties & I am 68. I am going through a bad phase of tremor up through my head, which makes it almost impossible, even with mindful breathing and yoga relaxation techniques to get any rest. My head shakes, so do my arms and hands. I am currently taking 40mg of propanalol twice a day which has little or no effect. Any suggestions would be gratefully received as I am struggling to cope with daily tasks & doing my computer based job is a struggle.

    • @anishsharma2485
      @anishsharma2485 3 года назад

      There is surgery option deep Brain stimulation and gamma knife

    • @jamesryan9137
      @jamesryan9137 2 месяца назад

      Look into guided ultrasound, non invasive and really effective.

  • @richardsharpe5878
    @richardsharpe5878 3 года назад

    Thank you Ryan. This is very helpful. My teenage grandson has essential tremors, I am searching for ways to support him. Lately he has been going to acupuncture which seems to help.

    • @dvijay461
      @dvijay461 2 года назад

      Hi, That's very nice of you! Any update on your grandson? I am trying acupuncture to see if it helps mine.

    • @remykisjes821
      @remykisjes821 11 месяцев назад

      Is it working? will look it up hope it works.

    • @richardsharpe5878
      @richardsharpe5878 11 месяцев назад

      It definitely helped and lessened the symptoms@@remykisjes821

  • @jaisekotaissa
    @jaisekotaissa 3 года назад

    This is so encouraging. I have just started getting shaky hands and my work involves heavy use of computers. But slowly I have started using my feets to type as a workaround in case it gets very worse.

    • @Joey71420
      @Joey71420 2 года назад

      Are you serious? I'm scared now.

    • @acs2735
      @acs2735 Год назад

      Yes it gets worse. My typing/texting is slowing. Also repetitive tasks with hands - organising papers, carrying boxes is becoming very difficult.

  • @carolasbury5290
    @carolasbury5290 3 года назад

    Thanks Ryan my son has just started shaking in his hands and he is very scared about it, can you get a hold of me

  • @doglover7377
    @doglover7377 3 года назад

    I got essential tremor and live in Scotland I have it in my legs at the top and I allso have it in my arms and hands I would like. to find a group near me in clackmanninshire to meat people just like me

    • @anishsharma2485
      @anishsharma2485 3 года назад

      Bro I also have tremors in my hands, arms and legs but my tremors are not present during movement or rest. They are only present when my body part is completely still

    • @dhandekrushna4055
      @dhandekrushna4055 2 года назад

      @@anishsharma2485 hi Bhai I have essential tremer since I was 18

    • @dhandekrushna4055
      @dhandekrushna4055 2 года назад

      @@nivedita.9089 In pichale 5-6 months se kafi mehsus kar raha hu jyada social places par Jana bhi kam kar diya hai

    • @dhandekrushna4055
      @dhandekrushna4055 2 года назад

      Mai abhi msc kar raha hu but ab college Jane me bhi sharam aati hai

    • @dhandekrushna4055
      @dhandekrushna4055 2 года назад

      @@nivedita.9089 Kafi negative thoughts aate rehte hai agar medicines na lu toh hand writing bhi achi nahi aati

  • @wanderer5581
    @wanderer5581 4 года назад

    Let's hope they can accelerate the program and make it available to more people. I am not far behind Geoff condition wise, and am desperate to get this debilitating condition reduced. Thanks for all the good work !

  • @ari220884
    @ari220884 4 года назад

    I’m 35 years old and I have shaky hands since I was 9 years old. I tried to get help over the years, but I was always told by doctors that my hands shook because I was a nervous and anxious person. The tremors have got worse along the years, this week I decided to some search on RUclips about shaky hands, that’s when I found out about essential tremors. I talked to my doctors about essential tremor and I’ll start taking medication for it soon. Hopefully it will help, it’s difficult not knowing how bad the tremor will be in few years and how it will keep affecting my life.

    • @Gemby13
      @Gemby13 3 года назад

      Hey, I have essential tremors also, is your medicine is works?

    • @marlonjaimes5420
      @marlonjaimes5420 3 года назад

      @@Gemby13 it helps but not to much

    • @wilsondoguiles931
      @wilsondoguiles931 2 года назад

      What medication do you take

    • @ari220884
      @ari220884 2 года назад

      @@Gemby13 Propranalol, it's usually used to control high blood pressure. It works for me, but if I forget to take, I feel headache.

    • @ari220884
      @ari220884 2 года назад

      @@wilsondoguiles931 Propranalol, it's usually used to control high blood pressure. It works for me, but if I forget to take, I feel headache.

  • @MrPhilipjenkins1966
    @MrPhilipjenkins1966 5 лет назад

    Well done tony

  • @nowayjose9564
    @nowayjose9564 5 лет назад

    How did he treat it? He looks fine!

    • @Gemby13
      @Gemby13 3 года назад

      Yea, I also curious

    • @rosiebarajas6741
      @rosiebarajas6741 11 месяцев назад

      Yes curious since he states he took Propranol for 1 yr. My husband is currently on it and it makes him feel nauseous and drowsy and insomnia at night..😢

  • @jackiefarrell6089
    @jackiefarrell6089 5 лет назад

    Thank you to Mayor of Sutton for opening the Essential Tremor awareness day March 9th, 2019 and Sutton neighbourhood grant for their support. Around 70 people attended, many who had the disorder had never met others before and some not even aware of National Tremor Foundation. But they left having made new friends and knowing there is a support group in Sutton . Contact: Jackie Farrell for more group information at jackie@tremor.org.uk or NTF at www.tremor.org.uk

  • @lindahe8195
    @lindahe8195 6 лет назад

    How did you treat the tremor? please

  • @laurenrootham7868
    @laurenrootham7868 6 лет назад

    Hey, Chloe! I don't know if you remember me from some of your German classes at Uni, but hope you're well! Just wanted to say that I think it's fab that you're speaking out and talking more about your essential tremor and I have a lot of admiration for that! Keep doing what you're doing, and don't let it stop you from achieving all you dreams and wishes! Und ich hoffe auch, dass deine Zeit in Deutschland Spaß gemacht hat! Take care, girl! :) P.S. And if it's any consolation, I barely even noticed your tremor!

    • @lindahe8195
      @lindahe8195 6 лет назад

      Lauren Rootham How did you treat the tremor?

  • @jackiefarrell4894
    @jackiefarrell4894 6 лет назад

    Thanks Ryan for sharing your Essential Tremor experiences. So pleased you were able to attend the NTF Open Day. It was great to meet you in Oxford.