- Видео 489
- Просмотров 157 662
The Life Of Me Smile Magee !
США
Добавлен 17 авг 2015
“ Megan Marjorie “.
Documenting #chronicillness , #chronicpain , chronic #faith . and chronic #joy. #thechurchofjesuschristoflatterdaysaints #smileon🐷
Along with this RUclips channel , You can follow my journey daily on Facebook and Instagram under “ The Life of Me Smile Magee “
Very random videos I have made on Tik tok under the same name
And to See articles I have written about experiences With my health you search for Megan Majorie
on themighty.com
#raredisease #chronicillness
Documenting #chronicillness , #chronicpain , chronic #faith . and chronic #joy. #thechurchofjesuschristoflatterdaysaints #smileon🐷
Along with this RUclips channel , You can follow my journey daily on Facebook and Instagram under “ The Life of Me Smile Magee “
Very random videos I have made on Tik tok under the same name
And to See articles I have written about experiences With my health you search for Megan Majorie
on themighty.com
#raredisease #chronicillness
Care Mail , from Making “Lymeonade
I was planning on posting this WEEEKKKSSSS ago.
But life has been crazy!
I got this package right before my last IVIG ( which we all know led to a hospital stay)
2024 has been FAR from my year ( I feel like all I accomplished was “not dying “ and it’s been a DANG Hard goal to accomplish . Like way harder th. It needs to be !! ( knock on wood cause the year isn’t over just yet 😂😂😂). , But the love and support I have been given this year has been unmatched .
So this Christmas morning ( painsomnia distraction for the win 😅🙃❤️🩹 ) I wanna share the sweetest package I got from a internet friend , BLAKELY at @makinglymeonade on IG who litterally lives her life to give to others
( seriously Blakeley...
But life has been crazy!
I got this package right before my last IVIG ( which we all know led to a hospital stay)
2024 has been FAR from my year ( I feel like all I accomplished was “not dying “ and it’s been a DANG Hard goal to accomplish . Like way harder th. It needs to be !! ( knock on wood cause the year isn’t over just yet 😂😂😂). , But the love and support I have been given this year has been unmatched .
So this Christmas morning ( painsomnia distraction for the win 😅🙃❤️🩹 ) I wanna share the sweetest package I got from a internet friend , BLAKELY at @makinglymeonade on IG who litterally lives her life to give to others
( seriously Blakeley...
Просмотров: 20
Видео
Recap On My 10 Year High School Reunion with #chronicillness
Просмотров 792 месяца назад
Recap On My 10 Year High School Reunion with #chronicillness
The Beginnings of my Tragic Garden 2024
Просмотров 243 месяца назад
The Beginnings of my Tragic Garden 2024
Going to a MALL For The First Time In 10 Years
Просмотров 633 месяца назад
Going to a MALL For The First Time In 10 Years
Copper Infusion Update ( It’s Not Great News )
Просмотров 273 месяца назад
Copper Infusion Update ( It’s Not Great News )
She Use To Be Mine @sarabareilles @WaitressMusical “‘Hospital Cover “
Просмотров 523 месяца назад
She Use To Be Mine @sarabareilles @WaitressMusical “‘Hospital Cover “
Question For Those With Mast Cell Activation Syndrome
Просмотров 454 месяца назад
Question For Those With Mast Cell Activation Syndrome
Thoughts On My First Sleep Therapy Session #insomnia
Просмотров 65 месяцев назад
Thoughts On My First Sleep Therapy Session #insomnia
Nail Art With Worsening Weakness In My Left Hand #4thofjulynails
Просмотров 76 месяцев назад
Nail Art With Worsening Weakness In My Left Hand #4thofjulynails
Book Basket Party And Neuro Flare Chaos
Просмотров 216 месяцев назад
Book Basket Party And Neuro Flare Chaos
I’m A Finalist In The “ Social Health Awards “ 🤯🥰 #patientadvocate
Просмотров 76 месяцев назад
I’m A Finalist In The “ Social Health Awards “ 🤯🥰 #patientadvocate
Craft Time During Copper Infusions #miniverse
Просмотров 137 месяцев назад
Craft Time During Copper Infusions #miniverse
Mothers Day and Motherhood , From Someone Who May Never Be One “
Просмотров 197 месяцев назад
Mothers Day and Motherhood , From Someone Who May Never Be One “
One Of My Favorite Stories About My Mom . Mothers Day 2024
Просмотров 237 месяцев назад
One Of My Favorite Stories About My Mom . Mothers Day 2024
FINALLLY Have An Answer On My “ Fractured (?) Foot !
Просмотров 197 месяцев назад
FINALLLY Have An Answer On My “ Fractured (?) Foot !
Noodles and Dumplings Co #foodreview
Просмотров 198 месяцев назад
Noodles and Dumplings Co #foodreview
“Day In My Life “Unplanned Appointment
Просмотров 258 месяцев назад
“Day In My Life “Unplanned Appointment
“ 5 Survive “ By Holly Jackson Book Review
Просмотров 78 месяцев назад
“ 5 Survive “ By Holly Jackson Book Review
Book Review “ The Reappearance of Rachel Price” by Holly Jackson
Просмотров 378 месяцев назад
Book Review “ The Reappearance of Rachel Price” by Holly Jackson
Fracture Misdiagnosed As A Tumor ? Foot Update
Просмотров 568 месяцев назад
Fracture Misdiagnosed As A Tumor ? Foot Update
YAY YAYYYYYY I HOPE YOU GET EVEN BETTER!!
i bet those nasal cannulas are fake lol
Why dont they give you the benadryl and solumedrol before your IVIG?
They usually do give it to me before and after the infusion , this time they didn’t . The doc changed the regimen without letting me know
@thelifeofmesmilemagee8511 Ok, that makes sense. I recently assisted with an IVIG infusion 2 weeks ago, and the woman was telling me her biweekly infusion is anywhere from 27,000 to 47,000 dollars (covered by insurance). Absolute insanity. Still, interesting to see it on my feed now! 😊
@ they don’t call it “liquid gold “ for nothing 😂😅 super effective , and SUPER expensive . The sad part is , like people with my condition ( and alot of conditions) need it to survive and if they can’t …. Well . They don’t . I was talking to my nurse and she has seen countless examples of this , absolutely broke my heart and blew my mind
Skibidi😮
God bless❤❤😂😂🎉🎉
Preach 😂🙌🏻
you lip synced it so good!!!!
❤❤❤❤❤❤
my cat likes the texture of fabric clothing tags, and shower curtain. so those and anything in between those textures shell try to lick a hole in it lol i got her one of those baby tag rags and an empty phone case bc she also tries to crunch my phone screen, ive lost one like that 😂 shes also a gray nd white long hair lol
Wat is he liking ?????????????????😮
She is licking my cane of all things 😂
I can't believe I'm the frist comment!!!
Hiiii
I personally thought of Disney but you do you😂😂
Haha well I would never say no to a good Disney trip 🤣.
get off that galaxy gas bro!
Give yourself the grace you deserve. It’s okay to not feel okay but don’t let the feelings of worthlessness hold any weight during your recovery. You’re incredibly powerful and inspiring! Wishing you all the best on your journey
She beautiful
I love your humor 😂 have fun at the reunion
thanks Pfizer!
Haha Pfizer actually came in clutch for me 😂. I have CVID where my body doesn’t produce the proteins that build an immune system .. and I have auto immue diseases , so the parts of an immune system I do have , fight my healthy tissues instead of infections
Due to personal reasons *RAAAAAAAÆÆÆÆ*
you are so Pretty 🎀
You are to kind! ❤️
🧢
@gxeditz4 no cap lol, this is my life 😂
Cant fit in the screen
They did hurt my veins so badly, they had to stick a new canula in every two to three days. It also hurt my veins permanently. It is 16 years and my veins still are bad and disappear or rupture more often than them cooperating with the needles.
What illness do you have?
@@nightshadetalestoo I’m a bit of a problem casserole 😂😅. I have CVID, UCTD, and MCAS , along with asthma, epilepsy , fibrosis in my lungs , gastroparesis glaucoma , ITP , and a history of sarcoma cancer . I share way more about all that on my instagram and Facebook under the same name
@@thelifeofmesmilemagee8511thats so much i genuinly thinking you’re faking, lol if youre not, im sorry, if you are, I hope you realize that youre crazy.
@austinwhitehead9107 dude ., I WISH I was faking 😂❤️ . Basically my immune system attacks itself causing a lot of these diseases. And I have 2 diseases where my immune system just misfires or doesn’t produce what it needs to produce . Most people with complex health sadly usually have multiple health conditions. If you have any curiosity seriously feel free to look at my content and ask me any questions . Hope this little interaction helped you learn something you didn’t know before ! ❤️ have an awesome night !
@@thelifeofmesmilemagee8511just watched some more, OOF….. i feel so bad for you, im glad you are doing a lot to be ok, sorry if you feel offended by that, i saw it as too much, i hope you get better soon. 😃
@@thelifeofmesmilemagee8511also have a awesome night
When your doctor tells you that you need to lose weight then walks in with you making a TikTok eating pizza
@@oaken8431 pretty much sums up my life 😂😂😂😂
@@thelifeofmesmilemagee8511 lmao
Congrats!❤ you made it!💕
peace.. peaca!🍕
@@iSlayHehehehe the best combo 😂❤️
@@thelifeofmesmilemagee8511 tysm for commenting!
Yessss!Your a fighter ❤
@@KAMkitty-cl4sv ❤️🥹 thank you. And I have just been so incredibly blessed . God is good ❤️
@@thelifeofmesmilemagee8511 Your welcome.Keep on being amazing!
Did it leave a scar behind? My lip doesn't feel same anymore 😢
Yeah mine is partially numb. So angry the dr hit the nerve!😡
GL and it's because some people are sad or not content with their life whether it be through the hate of other religions or just religion in general or they just dislike when they see true kindness because they didn't get it when they considered they needed it most. most of us unknowingly project something else onto something we think has no repercussions.
Hey! Usually if someone is offended by this they know the person sending the thoughts and prayers doesn’t actually mean it and is being malicious. They could also have religious trauma or are just frustrated by people saying the are sending thoughts and prayers that make them feel better about themselves and not actual support the person needs! It can feel patronizing or dismissive and demeaning to some
In a world that praises masculine physical action, it's easy to view feminine energetic action as less effective and less valuable. Btw, I wish you well 🙏
Good vibes and good health, girl. Said a prayer for you ❤
Thank you 🥹❤️!! I will take each and every prayer I can get !
Keep fighting love ❤❤❤
❤️❤️❤️
My prayers are with you,and praying that Jesus will heal you.
I had to pull the emergency cord in the bathroom as my call button had pulled out of the wall. I was hooked up to a monitor and on bed rest but needed help. When you pull that cord, people appear from everywhere and they were all out of breath!
Right ! When they come running it makes me feel SO Bad 😅
I’m not an expert. But have they checked your esophegus? My mom had trouble swallowing and it turned out to be a tumor. Prayers for healing. ❤️🩹
@@heathero.1323 They have checked it a little bit and I know the motility of it isn’t so great . ( I have gastroparesis that affects my whole GI tract ) but besides that I don’t know much about it! I’ll have to ask more questions about that
Add a bit of levity, but my moms gastric person came and they tried to check the wrong end! 😂 thank God my dad was there to course correct that situation. I pray for you and healing. Make those doctors be thorough, and find the ones that like challenges. 🙏🏼❤️
@@heathero.1323 😂😅 that litterally made me lol!! Bless your sweet dad!! And thank you! I will take all the prayers I can get !
Ye, speech therapists do swallow studies 😂
See .. now that’s something they should teach you in highschool 😅😂 I felt like such a dummy
@@thelifeofmesmilemagee8511 tbf, I didn't know until I got into a career that required me to know 😂 but yeah, I can't imagine how many confused patients that therapist sees, the paperwork should have been more clear (also I hope you're ok!)
No nodes on the vocal cords? Difficulty in swallowing with muscle weakness sounds neurological. CT or MRI the brain and spine.
I actually have one of those scheduled for next month ( thank goodness ! ) I’m also starting PT and OT once my pnemonia has stoped and my lungs aren’t so flared because the weakness in my left hand and left leg are getting pretty bad
@@thelifeofmesmilemagee8511My mother in law had something called myasthenia gravis. It caused muscle weakness and she had a hard time swallowing also.
@@bethlanious4092 I’m actually getting checked out by a neuromuscular doc next month to look into more diseases like that ❤️
100% you/mother/grandmother took a vxxxine or birth control.
You got this, Philippines 4:13❤!!!
One of my FAVORITE verses !
(:
It is so cute 😍
Thank you!! 🥰❤️ I can’t stop looking at it lol 😂❤️ I love it !
GoOsE oN dA LoOsE😂😂
🤣🤣🤣. And it wasn’t until I posted this I realized she was wearing a “silly goose “ shirt 🤣🐱
😮😂🎉hej😊
BRO ITS 2024 IABAKDJFHAI😊
I’m the first commenter Yay Also the black and white filter looks so good on the vid idk why And why do you get copper infusions
Amen. Thanks for also reminding me that the lord is there for all of us.
Have you ever listened to FM radio? What do you call that hiss sound?
Hi
❤❤
Omg that’s such good news!!! I know I don’t personally know you but that is absolutely amazing to hear ❤❤❤❤
Thank you so much!!
Laughing so hard only air comes out