- Видео 129
- Просмотров 108 536
PSC Support
Великобритания
Добавлен 10 мар 2014
PSC Support is the leading organisation for anyone affected by primary sclerosing cholangitis (PSC)
PSC is a rare, immune-mediated liver disease that can affect anyone, at any age. PSC is complex and current evidence suggests that people with a genetic makeup may be susceptible to some sort of (as yet unknown) environmental trigger, which causes their immune system to effectively 'attack' the bile ducts.
The PSC Support RUclips channel features the latest talks and live Q&As from leading PSC authorities as well as carefully curated liver and research videos.
We are registered with the Charity Commission: 1175427
PSC is a rare, immune-mediated liver disease that can affect anyone, at any age. PSC is complex and current evidence suggests that people with a genetic makeup may be susceptible to some sort of (as yet unknown) environmental trigger, which causes their immune system to effectively 'attack' the bile ducts.
The PSC Support RUclips channel features the latest talks and live Q&As from leading PSC authorities as well as carefully curated liver and research videos.
We are registered with the Charity Commission: 1175427
Kieron Dyer: Football, PSC Diagnosis, Liver Transplantand Recovery
Kieron Dyer, footballing legend and PSC patient, joined Nick Kane and Paula Hanford from PSC Support in between training sessions at Chesterfield FC.
This video covers:
- Getting a PSC Diagnosis
- Living with PSC
- Journey to Transplant
- Life After a Liver Transplant
Trigger Warning: This video contains content that may be distressing for some viewers, including discussion of PSC disease progression, going on the transplant list and having liver transplantation.
#psc #KieronDyer #LetsBeatPSC #organdonation #livertransplantation #chesterfield #ipswichtown
Recording date: 15 March 2024
Check out our completely re-written, comprehensive PSC information, fully referenced at www.pscsupport.or...
This video covers:
- Getting a PSC Diagnosis
- Living with PSC
- Journey to Transplant
- Life After a Liver Transplant
Trigger Warning: This video contains content that may be distressing for some viewers, including discussion of PSC disease progression, going on the transplant list and having liver transplantation.
#psc #KieronDyer #LetsBeatPSC #organdonation #livertransplantation #chesterfield #ipswichtown
Recording date: 15 March 2024
Check out our completely re-written, comprehensive PSC information, fully referenced at www.pscsupport.or...
Просмотров: 549
Видео
PSC Support Ask the Expert: Dr Emma Culver, updates from the International Liver Congress
Просмотров 33728 дней назад
This video was taken from Dr Emma Culver's Ask the Expert live Q&A, originally broadcast on Zoom. Dr Emma Culver is a Consultant Hepatologist & Senior Lecturer, John Radcliffe Hospital Recording date: 25 June 2024 Check out our completely re-written, comprehensive PSC information, fully referenced at www.pscsupport.org.uk/ Key information for healthcare professionals www.pscsupport.org.uk/HCPs
Paralympian and Parasurfer Hannah Dines shares her experience with PSC
Просмотров 313Месяц назад
This video was taken from a conversation with Hannah Dines held via Zoom on 21 March 2024 with Paula Hanford, PSC Support CEO. Hannah is a decorated Paralympian and Parasurfer who was born with cerebral palsy and was later diagnosed with PSC as an adult during the COVID-19 pandemic. She kindly shares her experience with PSC, discussing extreme PSC fatigue and her coping mechanisms. Check out ou...
Oxford Man's Midnight Ride for a Cure for PSC
Просмотров 65Месяц назад
In the early hours of July 5th, 2024, Oxford resident James Lawton and his two friends, Tim and Al, will embark on a unique cycling journey. Starting at 1:30 am from Oxford, they will ride to the Royal Free Hospital in London, retracing the exact timeline of James’s call for a life-saving liver transplant two years ago. The trio aims to arrive by 11:00 am, coinciding with the time James was tak...
PSC Support Ask the Expert: Dr Simon Rushbrook, PSC Symptoms and Routine Care
Просмотров 4932 месяца назад
This video was taken from Dr Simon Rushbrook’s Ask the Expert live Q&A, originally broadcast on Zoom. Dr Simon Rushbrook is a Consultant Hepatologist and Clinical Lead for Hepatology, Norfolk and Norwich University Hospital. Recording date: 16 May 2024 Check out our completely re-written, comprehensive PSC information, fully referenced at www.pscsupport.org.uk/ Key information for healthcare pr...
PSC Support Ask the Expert: Alice Freer - Fatigue in PSC: What it is and how to manage it
Просмотров 6063 месяца назад
This video was taken from Alice Freer’s Ask the Expert live Q&A, originally broadcast on Zoom. Alice Freer is a senior physiotherapist at the QE Hospital, Birmingham Recording date: 10 April 2024 Check out our completely re-written, comprehensive PSC information, fully referenced at www.pscsupport.org.uk/ Key information for healthcare professionals www.pscsupport.org.uk/HCPs
PSC Quality of Life
Просмотров 1433 месяца назад
This video was created by PhD fellow Ryan James who is running stage 2 of the PSC Quality of Life Study. pscsupport.org.uk/research-weve-funded/psc-quality-of-life-measure/ This study has been funded by the British Liver Trust and PSC Support. Special thanks to Professor Douglas Thorburn, Professor Shivani Sharma, Professor Keith Laws and Dr Emily Beadle and supporting universities Aston Colleg...
PSC Support Ask the Expert: Dr Palak Trivedi and Dr Sarah Al-Shakhshir, PSC Research - FARGO Trial
Просмотров 4114 месяца назад
This video was taken from Dr Palak Trivedi and Dr Sarah Al-Shakhshir’s Ask the Expert live Q&A, originally broadcast on Zoom. Dr Deepak Joshi is a Transplant Hepatologist and Lead for Pancreatico-Biliary Medicine (King's College Hospital, London) Dr Sarah Al-Shakhshir is a Clinical Research Fellow at University Hospitals Birmingham NHS Foundation Trust Recording date: 19 March 2024 Check out ou...
PSC Support Ask the Expert: Charlene Oke - Managing Chronic Conditions at Work
Просмотров 2165 месяцев назад
This video was taken from Charlene Oke’s Ask the Expert live Q&A, originally broadcast on Zoom. Charlene Oke (BSc Hons, MA Merit FCIPD) is an established global HR practitioner with over 15 years experience across several industries. She is also HR Trustee at PSC Support. Recording date: 19 February 2024 Check out our completely re-written, comprehensive PSC information, fully referenced at www...
PSC Support Ask the Expert: Dr Deepak Joshi - PSC Q&A
Просмотров 4075 месяцев назад
This video was taken from Dr Joshi's Ask the Expert live Q&A, originally broadcast on Zoom. Dr Deepak Joshi is a Transplant Hepatologist and Lead for Pancreatico-Biliary Medicine (King's College Hospital, London) Recording date: 27 January 2024 Check out our completely re-written, comprehensive PSC information, fully referenced at www.pscsupport.org.uk/ Key information for healthcare profession...
PSC Support Ask the Expert: Dr James Ferguson - Liver Transplantation for PSC
Просмотров 4737 месяцев назад
This video was taken from Dr Ferguson's Ask the Expert live Q&A, originally broadcast on Zoom. Dr James Ferguson is a Transplant Hepatologist, Queen Elizabeth Hospital, Birmingham. Recording date: 6 December 2023 Check out our completely re-written, comprehensive PSC information, fully referenced at www.pscsupport.org.uk/ Key information for healthcare professionals www.pscsupport.org.uk/HCPs
PSC Support Ask the Expert: Dr Palak Trivedi - All Things PSC
Просмотров 5587 месяцев назад
This video was taken from Dr Trivedi's Ask the Expert live Q&A, originally broadcast on Zoom. Dr Palak Trivedi is a Consultant Hepatologist at the Queen Elizabeth Hospital, Birmingham, Chair of the BASL Immune Special Interest Group, and Chief Investigator for UK-PSC. Recording date: 29 November 2023 Check out our completely re-written, comprehensive PSC information, fully referenced at www.psc...
PSC Support Ask the Expert: Dr Palak Trivedi - PSC Research
Просмотров 4278 месяцев назад
This video was taken from Dr Trivedi's Ask the Expert live Q&A, originally broadcast on Zoom. Dr Palak Trivedi is a Consultant Hepatologist at the Queen Elizabeth Hospital, Birmingham, Chair of the BASL Immune Special Interest Group, and Chief Investigator for UK-PSC. Recording date: 23 October 2023 Check out our completely re-written, comprehensive PSC information, fully referenced at www.pscs...
Research Update from PSC Support (Martine Walmsley)
Просмотров 1868 месяцев назад
Update on our research work over summer 2023 from Martine Walmsley, Head of Research Strategy at PSC Support. Thank you for watching! Recording date: 26 October 2023 Read about Mission 2030 and research we're funding: pscsupport.org.uk/mission-2030/ Take part in PSC research: pscsupport.org.uk/find-psc-research-studies/ Donate to PSC Support: pscsupport.org.uk/donate/
Dr Simon Rushbrook - Should I see a specialist if my PSC is complicated?
Просмотров 1959 месяцев назад
This video was taken from our November Ask the Expert session with Dr Simon Rushbrook (Consultant Hepatologist, Senor Honorary Lecturer UEA, Norfolk & Norwich University Hospitals NHS Foundation Trust). Would you suggest that a patient with complicated PSC transfers to being under the care of a specialist PSC hospital rather than a local hospital without a dedicated liver department?? Recording...
PSC Support host A Conversation With: Professor David Adams and Professor Douglas Thorburn
Просмотров 34610 месяцев назад
PSC Support host A Conversation With: Professor David Adams and Professor Douglas Thorburn
PSC Support Ask the Expert: Dr Deepak Joshi - All Things PSC
Просмотров 56310 месяцев назад
PSC Support Ask the Expert: Dr Deepak Joshi - All Things PSC
PSC Support Ask the Expert: Dr Jess Dyson - All Things PSC
Просмотров 41711 месяцев назад
PSC Support Ask the Expert: Dr Jess Dyson - All Things PSC
James' Liverversary and stair climb challenge one year after his liver transplant at The Royal Free
Просмотров 200Год назад
James' Liverversary and stair climb challenge one year after his liver transplant at The Royal Free
PSC Support Ask the Expert: Dr Emma Culver - PSC Research
Просмотров 686Год назад
PSC Support Ask the Expert: Dr Emma Culver - PSC Research
PSC Support Ask the Expert: Dr Nabil Quraishi - PSC and Vancomycin
Просмотров 582Год назад
PSC Support Ask the Expert: Dr Nabil Quraishi - PSC and Vancomycin
PSC Support Ask the Expert: Dr James Ferguson - Waiting for a liver transplant?
Просмотров 487Год назад
PSC Support Ask the Expert: Dr James Ferguson - Waiting for a liver transplant?
Dr Andrew Yeoman - Managing your Healthcare (PSC Support)
Просмотров 202Год назад
Dr Andrew Yeoman - Managing your Healthcare (PSC Support)
Dr Deepak Joshi - Clinical Trials in the UK (PSC Support)
Просмотров 189Год назад
Dr Deepak Joshi - Clinical Trials in the UK (PSC Support)
Dr Andrew Yeoman - Managing care and delays to appointments and test results (PSC Support)
Просмотров 67Год назад
Dr Andrew Yeoman - Managing care and delays to appointments and test results (PSC Support)
Dr Andrew Yeoman - Does PSC run in families? (PSC Support)
Просмотров 110Год назад
Dr Andrew Yeoman - Does PSC run in families? (PSC Support)
Dr Andrew Yeoman - What is IQILS and why is it important? (PSC Support)
Просмотров 89Год назад
Dr Andrew Yeoman - What is IQILS and why is it important? (PSC Support)
PSC Support Ask the Expert: Dr Palak Trivedi - PSC Research: FARGO and the Microbiome
Просмотров 587Год назад
PSC Support Ask the Expert: Dr Palak Trivedi - PSC Research: FARGO and the Microbiome
Can people with PSC take part in clinical trials if newly diagnosed? PSC Support
Просмотров 107Год назад
Can people with PSC take part in clinical trials if newly diagnosed? PSC Support
Diets and supplements in PSC with Dr Rushbrook (PSC Support)
Просмотров 379Год назад
Diets and supplements in PSC with Dr Rushbrook (PSC Support)