- Видео 39
- Просмотров 13 358
Rock CF Foundation
Добавлен 27 ноя 2018
Rock CF is a community thousands-strong changing the face of what living with cystic fibrosis looks like and giving those living with CF the tools to not only survive but thrive.
Reba & Kylea - Rock CF Boltcast, Ep. 18
"We have to start with the very basics of getting out of the box of what we thought cystic fibrosis looks like."
Mother/daughter duo, Reba and Kylea have an incredibly unique perspective on what it's like living with CF. Learn about Kylea's ongoing experiences growing up with CF, Reba's long journey to a late-stage diagnosis, and advocating for each other's health, as well as BIPOC representation within the CF community.
This episode of the Rock CF Boltcast is sponsored by #Vertex.
Mother/daughter duo, Reba and Kylea have an incredibly unique perspective on what it's like living with CF. Learn about Kylea's ongoing experiences growing up with CF, Reba's long journey to a late-stage diagnosis, and advocating for each other's health, as well as BIPOC representation within the CF community.
This episode of the Rock CF Boltcast is sponsored by #Vertex.
Просмотров: 143
Видео
Dylan Mortimer - Rock CF Boltcast, Ep. 17
Просмотров 69Месяц назад
Dylan Mortimer’s story is nothing short of incredible. As an artist, Dylan has repurposed his experiences and life events with visual storytelling as a medium to continually advocate for the cystic fibrosis community. Learn about his journey through two double lung transplants, becoming a father, experiencing the rapid changes within the world of CF, and what led him to pursue his passion of cr...
Frankie Avila - Rock CF Boltcast, Ep.16
Просмотров 2 тыс.4 месяца назад
Throughout a life with cystic fibrosis that has been met with life-altering challenges, transplants, and adversity, Frankie Avila has persevered. Across the ups and downs, Frankie has continued to live life to the fullest and advocate for those within the CF and transplant communities. Watch the full episode of Frankie’s Rock CF Boltcast 💜 This episode is sponsored by #Vertex. #rockcf #cfawaren...
Skyler Petty - Rock CF Boltcast, Ep. 15
Просмотров 706 месяцев назад
“I never knew I was supposed to breathe like this.” Cystic fibrosis is most commonly diagnosed before the age of two, but not in all cases. Learn about Skyler Petty’s adult CF diagnosis, her journey to adjusting to a new normal, and becoming a part of the CF community. Watch the full episode through our link in bio! This episode of the Rock CF Boltcast is sponsored by #Vertex.
Rock CF's Thunder Bay Thriller - Full Course Walk-Through
Просмотров 1906 месяцев назад
Welcome to the THUNDER BAY THRILLER! Take on the challenge of a brand new 62-mile multi-surface gravel grinder through the scenic Northeast Michigan countryside and trail system on June 1st, 2024. This fun and challenging route will take riders from rolling gravel backroads onto exciting snowmobile two-track against the picturesque Devils Lake, then weave through the woods of the Norway Ridge P...
MILES OF CHANGE - Running with Cystic Fibrosis
Просмотров 2247 месяцев назад
Listen to Brandon Miller's journey of growing through life with cystic fibrosis, discovering a passion for running, and his experience at the 2024 Rock CF Rivers Half Marathon in Grosse Ile, Michigan. About Rock CF: What began as one woman on a mission to educate her peers has evolved over the course of 16 years into a multi-faceted organization inspiring people living with CF to lead more heal...
Kevin Dwyer - Rock CF Boltcast, Ep. 14
Просмотров 14110 месяцев назад
“Don’t compare yourself to a ‘normal life’ because what you’re living is normal. It’s just your normal.” Listen to Kevin Dwyer’s incredible journey from growing up with cystic fibrosis before advanced medical treatments, discovering a love for ballet and making a career in dance, and becoming a father. Learn more about the Rock CF Foundation at letsrockcf.org. This episode of the Rock CF Boltca...
Seated Cat & Cow - Yoga Therapy
Просмотров 711 месяцев назад
The holiday season can bring times of incredible excitement and joy, but for some they may also arrive with increased levels of stress or anxiety. Take a few minutes out of your day to join Certified Yoga Therapist, and CF caregiver, Missi Chenier for a quick mindfulness reset and find a bit of composure and stability as you head further into the closing days of the year. Mindful Meditation w/ ...
Somer Love - Rock CF Boltcast, Ep. 13
Просмотров 224Год назад
“Cystic fibrosis is on my mind the minute I wake up to the minute I go to sleep because it has to be.” Somer Love knows what it takes to continue showing up with cystic fibrosis. Listen to Somer’s journey growing up with CF, becoming a voice for the community, and finding the strength to continually adapt to each new challenge that presents itself. Watch the full episode through our site letsro...
Steven Strickland - Endure More
Просмотров 1,5 тыс.Год назад
Steven Strickland knows what it means to endure a life with cystic fibrosis. After multiple bouts with mycobacterium avium, abcessus, and heart failure, he now finds himself awaiting a new set of lungs on the transplant list. But with each new challenge, Steven consistently finds a way to push forward with a powerfully optimistic attitude while investing time into growing his own company, Giant...
Rock CF's Bubbles & BowTies 2024
Просмотров 5Год назад
Back by popular demand! Rock CF's Bubbles & BowTies is an evening of fun that includes drinks, food, music, raffles, and new this year, karaoke, all to celebrate the milestones in the fight against cystic fibrosis. Hosted at Two Birds Detroit. 100% of all proceeds will go towards the Rock CF Foundation's mission of changing the face of what living with cystic fibrosis looks like and giving tho...
Changing a Flat Tire - Recycled Cycling
Просмотров 131Год назад
We stopped by this year's Rock CF RadTour Safety Sponsor, Recycled Cycling Bike Shop for a quick flat tire tutorial! Jeremy runs us through the process of wheel removal, identifying the puncture, tube change, and putting it all back together. Learn more about this year's ride: runsignup.com/Race/MI/Detroit/RockCFRide
Hike2Breathe 2023 Recap
Просмотров 6Год назад
We're reminiscing over our incredible time during this year's Hike2Breathe for #CFAwarenessMonth in May. Be on the lookout for information regarding next year's event! Another special thank you to our sponsors Vertex & Viatris and to everyone who participated in the hike event from all over the country: whether it was a stroll around the block or a trek up the mountain, YOU ROCK!🤘
Rock CF RadTour 2023
Просмотров 32Год назад
The Rock CF RadTour is BACK and we want to see how far you can ride! Join us this September 15-21, 2023 as an individual or team to compete in a virtual challenge for jerseys and sweet gear. Register & learn more today: runsignup.com/Race/MI/Detroit/RockCFRide This event is sponsored by Vertex, Bonk Breakers, Saltstick, Recycled Cycling of Warrenville, and Trek of Grosse Pointe. Music by QubeSo...
Steph Hansen - Rock CF Boltcast, Ep. 12
Просмотров 375Год назад
“Do what you can with what you’ve got.” In a time where modern medicine and treatments have continued to advance lives in the world of CF, Steph Hansen offers their voice to advocate for those in the 10% with a rare or nonsense mutation who have not qualified for these advancements to ensure nobody gets left behind. The work isn’t done until it’s done for everyone. This episode of the Rock CF B...
Brandon Miller - Rock CF Boltcast, Ep. 10
Просмотров 298Год назад
Brandon Miller - Rock CF Boltcast, Ep. 10
Gavin Groettum - Rock CF Boltcast, Ep. 9
Просмотров 1042 года назад
Gavin Groettum - Rock CF Boltcast, Ep. 9
Kayla English - Rock CF Boltcast, Ep. 8
Просмотров 2252 года назад
Kayla English - Rock CF Boltcast, Ep. 8
Chris Van Tiem - Rock CF Boltcast, Ep. 6
Просмотров 8042 года назад
Chris Van Tiem - Rock CF Boltcast, Ep. 6
Colleen Lewis - Rock CF Boltcast, Ep. 5
Просмотров 8852 года назад
Colleen Lewis - Rock CF Boltcast, Ep. 5
Haddon Anthony - Celebrating the Decades
Просмотров 202 года назад
Haddon Anthony - Celebrating the Decades
Briana Caldwell - Rock CF Boltcast, Ep. 4
Просмотров 1022 года назад
Briana Caldwell - Rock CF Boltcast, Ep. 4
Heather McCoy - Celebrating the Decades
Просмотров 762 года назад
Heather McCoy - Celebrating the Decades
Bowman Brothers Trade School Scholarship
Просмотров 592 года назад
Bowman Brothers Trade School Scholarship
Kyle Watanabe - Rock CF Boltcast, Ep. 3
Просмотров 1342 года назад
Kyle Watanabe - Rock CF Boltcast, Ep. 3
Amen! Thanks for sharing your stories....I pray that it helps someone ❤
Thank you for sharing Frank's story. Frank is a beautiful, determined, and courageous human being. He's full of faith and love and has true grit!
Thank you for sharing my Son's journey ❤
Welcome to our CF community! Since you already know Em, then you have made an invaluable connection to support your health and growth to live with CF. Keep crushing it! Great story.
Thank you for the information! This will be my first gravel race (usually more of a single track rider), so this helps ease my anxious mind! ;)
Hi
Wow, What an amazing story, young man is one strong individual. I wish you the best in the future!
Love you brother, my prayers are with you!
Awesome video !
Steven ❤ we love you!!
Promo-SM
❤
Steph you are an Amazing young women. We are all proud of you, your perseverance and intelligence.. A voice for the future
You guys are doing a great job of spreading awareness of CF and the existence of CF in communities of color, I would love to see a future collab with the NOAACF [National Organization of African Americans with Cystic Fibrosis]. Definitely get in contact with Terry Gene Wright and his wife Michele.
Great video, keep up the good work Nick!
This is a wonderful presentation the videography is top-notch. Colleen has such an amazing story! We at the CFLF hope that your podcast continues to grow and reach more and more people. Great job Emily!!! 💜💜💜
First comment hi Emily!!!!!