MND Australia
MND Australia
  • Видео 138
  • Просмотров 393 801
Introduction to the mndconnect.org.au website
A short overview of www.mndconnect.org.au, including types of content and resources available to people with motor neurone disease (MND). Also includes content for family and carers as well as for healthcare professionals and service providers.
Просмотров: 109

Видео

Why we need more data and what we are doing to get it
Просмотров 92Месяц назад
Our May 2024 edition of State of Play will feature Anjali Henders (SALSA-SGC) and A/Prof Paul Talman (neurologist and MiNDAUS) to discuss the importance of MND data collection in Australia.
How do we get new treatments into the clinic? Clinical trials and the approval process in Australia
Просмотров 892 месяца назад
Our April 2024 edition of State of Play will feature Associate Professor Rob Henderson from the Royal Brisbane and Women’s Hospital and Lucas Tocchini from Biogen Australia. Rob will discuss how clinical trials operate in Australia in the MND space and Lucas will provide an overview of the drug approval process.
How tech research can help people living with MND
Просмотров 974 месяца назад
For the March 2024 edition of State of Play we are joined by Dr Taylor Dick from the University of Queensland, and Dr Ben O'Mara from MND Australia
Exercise and motor neurone disease (MND)
Просмотров 1,1 тыс.4 месяца назад
Exercise can make a positive difference in the lives of people living with motor neurone disease. Recent research has shown that specific exercises can help people with MND maintain strength, mobility, balance and overall wellbeing, for longer. MND Clinic health professionals and physiotherapists can help people with MND get started with a specially designed exercise program.
Diagnosing motor neurone disease (MND)
Просмотров 1,6 тыс.7 месяцев назад
Every day two Australians are diagnosed with motor neurone disease (MND). Early signs can be mild at first and include stumbling, difficulty holding objects and slurring speech. A GP will usually refer someone to neurologist for a diagnosis, but the process can be long and complex. Usually a neurologist will need to confirm symptom progression and test for other diseases which present with simi...
Big Ideas Session
Просмотров 627 месяцев назад
A quick fire session to hear from early and mid career researchers, in lay terms, about their hopes and dreams for their MND research now and into the future.
Clinical Care sessions
Просмотров 447 месяцев назад
This session features 8 presentations from researchers and allied health professionals from across the globe
Dr Rachel Yerbury and Dr Darren Saunders
Просмотров 1487 месяцев назад
Lived Experience insights and a tribute to Professor Justin Yerbury
Professor Rick Bedlack, Duke ALS clinic, USA
Просмотров 3,2 тыс.7 месяцев назад
ALS Clinical Research Update November 2023: Signs of Progress, Reasons for Hope.
Cognitive Changes in MND
Просмотров 1428 месяцев назад
For the November 2023 edition of State of Play we are joined by Dr Emma Devenney from the University of Sydney
Eating and speaking in MND: how are researchers targeting appetite and speech decline?
Просмотров 1139 месяцев назад
September 2023 State of Play featuring Dr Derik Steyn and Dr Brooke-Mai Whelan
Bringing new treatments through the pipeline
Просмотров 14211 месяцев назад
The August 2023 edition of State of Play features Professor Brad Turner from the Florey Institute of Neuroscience and Mental Health, and Dr Rita Mejzini, from the Perron Institute. Rita and Brad will discuss the process of bringing new treatments through the pipeline.
Bringing new approaches to developing treatments for MND
Просмотров 22111 месяцев назад
This webinar features Dr Margreet Ridder and Professor Trent Woodruff, who are both MNDRA-funded researchers from the University of Queensland.
Treatment for MND
Просмотров 2,5 тыс.Год назад
Although there is no cure for motor neurone disease, there are several treatment strategies that can help both extend life and improve quality of life.
Genetics in MND - therapies, testing and the future
Просмотров 145Год назад
Genetics in MND - therapies, testing and the future
New and Old Treatments in MND
Просмотров 358Год назад
New and Old Treatments in MND
Can we target muscle to develop treatments for MND?
Просмотров 233Год назад
Can we target muscle to develop treatments for MND?
Identifying and targeting disrupted systems in MND
Просмотров 156Год назад
Identifying and targeting disrupted systems in MND
CRLI 2022: Day Two
Просмотров 55Год назад
CRLI 2022: Day Two
CRLI 2022: Day One
Просмотров 27Год назад
CRLI 2022: Day One
Changing the Game for People Living with MND
Просмотров 229Год назад
Changing the Game for People Living with MND
Genetics and MND
Просмотров 842Год назад
Genetics and MND
Technology Advances in MND
Просмотров 150Год назад
Technology Advances in MND
Living with MND
Просмотров 16 тыс.Год назад
Living with MND
What goes wrong in the brain in MND?
Просмотров 85Год назад
What goes wrong in the brain in MND?
June 2022 State of Play
Просмотров 402 года назад
June 2022 State of Play
MND Associations in Australia
Просмотров 2772 года назад
MND Associations in Australia
MND Research Australia
Просмотров 5072 года назад
MND Research Australia
What goes wrong with nerve cells?
Просмотров 812 года назад
What goes wrong with nerve cells?

Комментарии

  • @Cruella-Deville
    @Cruella-Deville 26 дней назад

    PLS help

  • @sharifow9998
    @sharifow9998 Месяц назад

    L😊

  • @stephenpoe8277
    @stephenpoe8277 Месяц назад

    As long as there are people like Dr. Bedlack, there is HOPE for those of us with ALS. I am grateful.

  • @mientay8255
    @mientay8255 Месяц назад

    my wife had ALS

  • @MdAbdullahBinTaohid
    @MdAbdullahBinTaohid Месяц назад

    I saw your MND Australia channel, And your channel content is very good. But video views are not good. Your channel has some issues due to which your videos are not getting good views. The main problem is SEO.

  • @mavischadwick6445
    @mavischadwick6445 Месяц назад

    All thanks to DR ALAHO OLU on RUclips Channel who finally cured me and my wife from MS and ALS. He cures HPV, HSV, Lungs Disease, Cancer, HIV and many more…

  • @mavischadwick6445
    @mavischadwick6445 Месяц назад

    All thanks to DR ALAHO OLU on RUclips Channel who finally cured me and my wife from MS and ALS. He cures HPV, HSV, Lungs Disease, Cancer, HIV and many more.

  • @trudyboschert4472
    @trudyboschert4472 2 месяца назад

    What are the supplements that people with refersal are using?

  • @user-vy4kh6jk1t
    @user-vy4kh6jk1t 2 месяца назад

    PS: Covid vaccine connection???

  • @user-vy4kh6jk1t
    @user-vy4kh6jk1t 2 месяца назад

    My heart already always went out to ALS sufferers, & then my brother aged 80 got late onset MND - ALS Bulbar. The anguish of watching him rapidly decline, a shell of himself, swallow & speech impairment, etc. a truly horrific scenario. What puzzles me is surely such late onset is rare? It’s the most vicious & cruel disease out there and as a family we are stunned & heartbroken for our dear family member. No treatment of any significance, terminal. WHAT ‘S BIG PHARMA DOING? Not much in terms of trials. Not a great money spinner for them. Shame on you.

  • @samwisedonegan
    @samwisedonegan 3 месяца назад

    Yall made me choke on my breakfast when I saw “POOP” as your first wordle choice lol

  • @user-vy4kh6jk1t
    @user-vy4kh6jk1t 3 месяца назад

    The cruelest disease out there. It’s when you hear there’s no cure or treatment that your heart sinks. Torture is the only word that comes to mind.

  • @myjesustv
    @myjesustv 4 месяца назад

    Pls👍🏽help

  • @Zakariah1971
    @Zakariah1971 4 месяца назад

    root cause is herpes virus

  • @patriciahancock1966
    @patriciahancock1966 4 месяца назад

    Thank you Dr. Bedlack and to your whole team for your work!! It does indeed bring hope and courage being part of the pALS community with all the information and support and opportunities to contribute. Your leadership is precious.

  • @Uttkarsh_facts
    @Uttkarsh_facts 4 месяца назад

    Spg 302 coming date

  • @yadnyeshbawaskar2168
    @yadnyeshbawaskar2168 5 месяцев назад

    Check stem cell therapy

  • @wnc_BRONCOS_fan
    @wnc_BRONCOS_fan 5 месяцев назад

    I feel like the breakthrough in this disease is very close. Praise God. We must keep praying for these scientists, doctors!!!

  • @markfrederick3854
    @markfrederick3854 5 месяцев назад

    I HAVE ALS!

  • @michaelrowland1794
    @michaelrowland1794 5 месяцев назад

    I have had bulbar ALS for 2 years and 9 months. Three minutes into video telling what you need, I received none. All iI got were lies. Virginia

  • @melmcbroome8726
    @melmcbroome8726 6 месяцев назад

    contact me for your studies. i have ALS

  • @user-mz7og3qy7h
    @user-mz7og3qy7h 6 месяцев назад

    My boss ia also suffering from MND since almost two years bt it just one week we discovered it's mnd,,is there anything update

  • @marthapenha
    @marthapenha 6 месяцев назад

    Fantástico 🎉

  • @MrRenee19921
    @MrRenee19921 6 месяцев назад

    I feel that I am a very good candidate for these programs mentioned. What is the process? Thank you kindly for more information. Mrs. Richardson

  • @mkc252
    @mkc252 9 месяцев назад

    Wow so empowering for so many of us battling with mnd, thank you xo

  • @carolswift3958
    @carolswift3958 Год назад

    Very interesting and understood you very well sister dr Margreet Ridder…

  • @metalmitch
    @metalmitch Год назад

    Are there any forums where i can talk to other mnd sufferer's?

    • @Deerky23
      @Deerky23 4 месяца назад

      I know this is 8 months after you posting, but there is a MND support group on facebook i’m in, includes people affected with and by this cruel disease

  • @nagoronfire3802
    @nagoronfire3802 Год назад

    very helful video

  • @AliRaza-nm6tz
    @AliRaza-nm6tz Год назад

    Our governments can waste billions of dollars on weapons and nukes and space projects but guess what they don’t care about such deadly diseases like this.

  • @tim_bublitz
    @tim_bublitz Год назад

    Unbelievably good cause and well played. But when will they stop autotuning beautiful voices like Tim's? Imperfection is beauty.

  • @J1122
    @J1122 Год назад

    I lost a very very special person to MND in 2007. I miss them beyond words. After some nurses came and spoke with me & assured me not to worry as it was not hereditary. I now think how could they have made such an assumption. Anyway, it is what it is. I miss you more than all the oceans combined in space and time Es. I'm attempting to do a coffee, cake & natter morning soon to raise funds for MNDA UK.

  • @james7749
    @james7749 Год назад

    Just found out one my old school mates just passed away from this cruel illness he was a extreme athlete too so so cruel

  • @kirankumarpapavath9924
    @kirankumarpapavath9924 Год назад

    My father suffering from MND disease since 7 months . any updates and treatment about MND?

    • @bhupalprajapati7886
      @bhupalprajapati7886 9 месяцев назад

      My father was suffering from MND. Plz give ur connect details I want to connect u

    • @prettysecret6236
      @prettysecret6236 8 месяцев назад

      @@bhupalprajapati7886 my uncle also

  • @islamicway1920
    @islamicway1920 Год назад

    nice sharing

  • @ehrinlong8213
    @ehrinlong8213 Год назад

    Thank you so much xxxxx

  • @MDSamim-ny5ph
    @MDSamim-ny5ph Год назад

    Plz help me sir my country Bangladesh and me MND present plz muja bachya

  • @MDSamim-ny5ph
    @MDSamim-ny5ph Год назад

    Sir plz help me MND treatment Feast medicine

  • @rezvanmohammadi9834
    @rezvanmohammadi9834 Год назад

    THANKS IN ADVANCE

  • @MDSamim-ny5ph
    @MDSamim-ny5ph Год назад

    Plz fast madichin MND

  • @tranredmann2958
    @tranredmann2958 Год назад

    I was once an ALS patient, but now I have finally got rid of it with the help of DR ALAHO OLU on RUclips herbal medicine you can also get yourself cured with the help of this same man, his herbal medicine works perfectly, well thanks so much…

  • @monasharma2011
    @monasharma2011 Год назад

    Hi I m Indian many people suffring from mnd my sis also pls do something in that of people.there is no cure no solution all patients are very hopeless situation.pls do something

    • @amantiwari6035
      @amantiwari6035 Год назад

      Hii my dad also mnd patents any treatment

    • @mittalanuraggajbhiye2794
      @mittalanuraggajbhiye2794 Год назад

      In India MND patient are increasing but no cure of this diagnose I would to say please right medicine available for this My mom also diagnosed this problem so I know how that situation..

  • @peterfarrugia6794
    @peterfarrugia6794 Год назад

    I lost my wife in 2015 to MND. She was diagnosed in June 2014. Keep up the fight to find a cure.

    • @indigodiva5403
      @indigodiva5403 5 месяцев назад

      I’m very sorry you lost your beautiful wife to this horrific disease 😢❤️

  • @veneration1
    @veneration1 Год назад

    Why does he need to give that woke speech at the beginning about aborigine land ?? Is this a disclaimer they have to say all the time in Australia now ??? Sheesh.

  • @aswadatinagaiah3600
    @aswadatinagaiah3600 Год назад

    Medicine please Doctor

  • @aswadatinagaiah3600
    @aswadatinagaiah3600 Год назад

    Madcion

  • @Vorash00
    @Vorash00 Год назад

    Heard for the first time today - this morning. I sobbed on the way to work and I’ve listened to it multiple times and cried each and every time. When I’m paid after this week everything not budgeted I’ll donate for this amazing song. 2 year late to the party but it’s amazing and clever and illustrative. Shut up and take my money. Paid as promised - it’s not much but it’s all I can spare.

  • @vijaytripathi7661
    @vijaytripathi7661 Год назад

    Si humko bhi problem hai MND finger weak ho gaya hai 🙏

  • @mavischadwick6445
    @mavischadwick6445 2 года назад

    Thanks so much Dr Alaho Olu on RUclips first of all for who you are as a person thank you for the wonderful work that you do for people in general no matter where you are I will always listen to your podcast and refer people to you because you care about people and the human body I listen to other people but you talk about the true disturbances disorders that means things that are out of order in the human system thanks 🙏 for curing my Amyotrophic lateral Sclerosis disease (ALS)…..

  • @dicksonlizzy5932
    @dicksonlizzy5932 2 года назад

    Good morning I’m Lizzy from Connecticut USA 🇺🇸. I got cured from my Cancer Disease after using Doctor Elemomodu herbs 🌿. You can get more information by contacting Dr Elemomodu on RUclips Channel. Thanks to Mrs Monalisa for referring me to the traditional herbalist….

  • @elvinashourn4673
    @elvinashourn4673 2 года назад

    Dr Ehimare on RUclips have a permanent cure for (Al's) motor neuron disease and other sickness like FiBROID,HPV,H PYLORI,HERPES.!!! He reverse my husband from Al's naturally with herbal medicine, Contact Dr Ehimare on on RUclips channel for more details