- Видео 43
- Просмотров 29 099
Wisdom of the Bear
Добавлен 2 мар 2019
We are here to share our journey,
Raise awareness for PWS,
Bring encouragement & hope to families
Provide a space for providers to access up to date info.
......
We're so thankful you are here and we hope in the joy set before us.
OKP
Raise awareness for PWS,
Bring encouragement & hope to families
Provide a space for providers to access up to date info.
......
We're so thankful you are here and we hope in the joy set before us.
OKP
Видео
OKP- Running For Research 2024
Просмотров 347 месяцев назад
Running for Research For Prader Willi Syndrome @University of Florida Health
OKP Hikes The Slide
Просмотров 117Год назад
OKP hiked this 3 times to slide down this enormous slide! 100 feet up 200 feet down #Koinonia #icandoallthingsthroughchrist #pws #hope #KoinoniaConferenceGrounds
PWS Nutrition- Michael Tan, RD PWSA USA Convention 2023
Просмотров 302Год назад
Michael Tan is a Registered Dietician who works with Dr. Jennifer Miller @University of Florida Health. He spoke on quality nutrition for those living with PWS and helpful tips on "PWS Friendly" options. This was VERY inspirational and the end slide says it all! #PWS #PWSA #HOPE
BALTIMORE SHINES BRIGHT - Rare Disease Day/PWS 2022
Просмотров 372 года назад
BALTIMORE SHINES BRIGHT - Rare Disease Day/PWS 2022
PWSA Conference 2019 in Orlando, Florida ~ Dr. Miller, Endocrinologist [Global Expert]
Просмотров 6444 года назад
PWSA Conference 2019 in Orlando, Florida ~ Dr. Miller, Endocrinologist [Global Expert]
Prader Willi Conference 2019 - Griffin's Story
Просмотров 2,4 тыс.4 года назад
Prader Willi Conference 2019 - Griffin's Story
Prader Willi Conference 2019 - Justice's Story
Просмотров 9954 года назад
Prader Willi Conference 2019 - Justice's Story
What kind of smartphone is this ? Nokia 1 from 1990 ? WTF ?
Griffin, you are a hero. I know you will go on to do many incredible and impactful things in your life. Thank you so much for sharing your story and giving us hope for our son.
I love hearing you encourage her! Such a beautiful moment
So beautiful!!!!!
Is that an elderly walker collapsed? Brilliant
It isn't but what a great idea! It's actually: www.inspiredbydrive.com/product/nimbo/
❤
It was so cute🥰
☺️ "PromoSM"
So cute
Does anyone know what song is playing in this video? It sounds I know I’ve heard it and I have in my playlist. I just can’t remember it.
Rebirthing
Benson came here looking like a fake ass gangster and shoved up
i definitely miss Korey on vocals.
😂 Around 39:45. Ellie was crying for a snack - must’ve been all the talk about food and all those food slides.
They always get a pop from the crowd which I agree with they're one of the happiest band couple in history
No wonder why John said that she is feicte
fiesty?
@@texascclp1445yes
Rebirthing(Comatose) btw
You go
ROCK on doggie and korey
They are so sweet ❤️💜 and they rock so hard!! I wish Korey would sing more! 🤘🏻🔥
Great job mammas!!!!!!
Oh my word she is adorable in that sweater!!!! Giddy up cow girl! Yay!!!
Thank you so much for sharing this! Thank you Griffin, you are amazing! And thank you Griffin’s family for allowing your son to be such an encouragement!!