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What exactly is wrong with living at home when you're nearly 30? I'm 28, don't have CFS, but live at home due to financial reasons. I could afford to move out, but I do not wish to give money to a private landlord when my family could benefit. Please keep your social judgments to yourself.

I am so glad to see you updated, even though it took me a year to realize it, and that you have found improvement. Support is everything. I wish you continued happiness and continued improvements in your health.

Which HUD addon is that?

Awesome to see you've made such improvements! I'm planning on moving out next year and as terrifying as that seems I believe it will also help me progress in many ways too :)

Absolutely delighted for you and I wish you all the happiness in the world in your new life in Scotland.x

I'm so glad things are better and you've made leaps and bounds. I'm glad you found love as well. I also have improved things and I had residual agoraphobia and it was weird being alone and scary but I also fixed it through therapy. I'm glad things are better for you have a great Christmas :)

Cant find your name on battlenet, those transmogs are awesome :D

YOU ARE NOW PREPARED

Your a fucking loser u will never get a girlfriend

I'm not going to waste what little energy I have on replying to lentax2. Totally understand you G, I'm my own worst enemy and once I'm doing something I don't want to stop to rest yet I know I should. I was also found to be severely deficient in Vit D and am on tablets which have given me a real energy boost - I hope you found it was beneficial to you too :)

Self-compassion can be hard; I've found the work of Dr Kristen Neff helpful in that regard. Google her and the term 'self-compassion'. Also Pema Chodron's The Places That Scare You has been powerful in reminding me how normal having fears, anxieties, feelings of failure are - and having such things normalised is, in itself, very healing :) x

I can relate so much to what you are going through! Sometimes it's just hard to stay postive... But I think you are pretty awesome :) And have you heard of the F*ck It philosphy? It's a book by John c. Parkin. I haven't actually read the book yet, but the idea of it and the philosophy behind it helped me a lot with letting go of my perfectionism and accepting things just the way they go and not how you think they are supposed to go. It made me much more relaxed and made my life a bit easier.

I think the troughs we experience with ME is a sign of total mental and physical exhaustion. They also make me feel the need to try and fix it(!) - but what I find best, is to just let it be, and completely rest - because that's what the body is crying out for. The feelings will soon lift and strength returns allowing you to then start prioritising and doing the things in life which make you happy. Take it easy.

Hello. Yes its very difficult to motivate ourselves to use the tools we have been taught with this illness, & that inner critic does give us a hard time about it. But the tools are there & the inclination does come back, we just have to be gentle on ourselves & get back on track when we can. All the best

I agree with geebs - I reckon Max does love it :D

Hi, Nice to see you back! I know where your coming from, I have joined a nursing agency this week in order to try to get back to work as I have improved alot since the new year, but I'm anxious as have tried to get back twice now and had to take 6 months to recover each time! I just keep trying to give myself positive pep talks about how much I've improved in the last two years, etc. Glad you're improving and being kind to yourself, well done!

I am a fellow sufferer age 25. I live in south west england. Please look into the guaifenesin protocol, I can help to get you well. Email me: lacesca07@gmail.com

Just thought I'd say Hi as you've made some great videos on ME/CFS. I've not much to add but I find trying listen to my body and doing what I want when I feel like it gives me the best quality of health. Obviously life gets in the way(!) But on the whole helps me. Pushing yourself, as has been suggested in comments, is very damaging - I'm sure caused my health to deteriorate in the early days when I was in denial! There is a mountain of research exposing the physical causes of ME. Best Wishes!

Hi Graham, it's good to have you back. Your videos continue to be of great help to me.

Fellow CFS'er here. Nice to meet you!

amen about the stress, worry and anxiety - try mixing Bi-polar wth M.E.. phew! brilliant explanations mate, keep it up!

Hmmm, night elf or human female hunter?

I put this, your first vid, on my "chronic fatigue and pain" list so hopefully more people can find and support you. I have this too as part of my FM and Lupus, etc. you're in my thoughts now and I'm sending you good vibes from here in Ottawa, Ontario:) I went gluten free vegan three weeks ago and believe it or not it's helping - tough but worth it. Wish I could help you!

Hello. I have ME aswell and play wow. Have to lvl 90 chars, a rogue and a feral druid. lvling up others atm. It is the perfect game for ppl stuck in ME limbo :)

Just caught up with all your vlog posts. Enjoyed them greatly. I am 30 years ill now, 20 disabled, but I have managed to find a version of normalcy and happiness. Keep hope alive.

Sounds like you forgot about the spoons ;P I can't talk though, did exactly the same thing last week and now paying the price...I could kick myself for being so stupid!

Chapter 33 of Hillary Johnson's: Osler's Web: Inside the Labyrinth of the CFS Epidemic is "HIV-NEGATIVE AIDS." Neenyah Ostrom's book "America's Biggest Cover-up: 50 More Things...CFS & Its Link To AIDS" cites: "Some CFS Patients May Be Non-HIV AIDS Cases." Will CFS make any progress unless we acknowledge this fact? Published 12 times on 4 continents, my life w/ NON HIV AIDS: w ww.ukprogressive.co.uk/the-aids-like-disease-seldom-mentioned/article20891.htm l Or simply google “NON HIV AIDS”

Hi Bradley, sorry to hear about the trouble you're having over there. I have a friend in the States with Lupus and the whole insurance fiasco sounds like a nightmare for her. At least you've been through the process before, hopefully with that knowledge of how the system works, the next time will be easier on you. Good luck and be 'well' :)

Thanks for helping raise awareness!

Also, your analogy to the Titanic is a good one, but flawed. If the engine were running slower, would the iceberg still have been there when the Titanic crossed its path? If the impact was slower? But I see your point. If you are travelling in the wrong direction, you're still headed in the wrong direction. I don't think I was. I was happy, healthy and active until I contracted glandular fever (which I didn't know I had at the time).

On the contrary, there is research and evidence showing that mitochondrial malfunction (which I mentioned and blogged about) is related to fatigue and I hope there continues to be more research into physical causes. Perhaps yours was psychological, as are many others. But with this illness it is insulting to assume that your case and its causes is the same as everyone else's. It was the will to continue living a happy, active lifestyle which caused my exhaustion as my body couldn't keep up.

Not extremely wealthy, nor rich. Wealth is related to the cost of living in a particular area, income, disposable income etc etc. So many different factors go into play, especially when you begin comparing. Almost everyone is wealthy compared to someone else. But, whilst it may not change your opinion, no, I am not wealthy.

Oh absolutely, sociologically speaking, you're quite right. However, I like to hope the things I talk about in my videos regarding coping with CFS aren't linked to money and something anyone can empathise with - and, considering the feed back I've had, I'm content with the way they're going. I'm sorry you seem to be the only one focused on my wealth.

This is one of the best explanations of CFS I've ever heard - thanks for making such a great video! I have type 1 diabetes as well as CFS, so at times it feels like I'm fighting a losing battle, but next time someone questions why being "a bit tired" is such a big deal, I'll make sure to direct them to this video. Thank you. :)

Hi Alice, thanks for the comments. I'm sorry to hear about your situation but I am glad I can help in bringing a little good cheer to you :) I hope you're having a 'better' day :) x

I would love to be able to work. I have tried in the past but found it too tiring and I cannot wait until I'm fit and healthy enough to maintain a job. In the meantime, however, my parents' incomes barely cover the cost of living here and as I have no income or savings I was advised to claim to help living costs and pay for my treatment. I would not have been able to claim had I been wealthy as the DWP look at financials.

I don't like talking about money, and frankly it is none of your business. However, the area and house in which I live is down to personal and family circumstance rather than 'wealth'. The village in which I live is not full of wealthy people. The wider area, however, does contain a number - this can be seen in a number of places throughout the UK. If a person considers themselves to be privileged it does not necessarily mean they are wealthy. I am lucky & feel privileged but I am not wealthy.

I have indeed said there are psychological elements which are contributing to my condition and my recovery, which I am working with as part of said recovery. However, as I've mentioned before there are also physical elements to the condition, which are being worked with as well. I'm glad you managed to continue working despite your ME, many people do, which is great. However, it was will-power, amongst other things, which was a factor in me developing CFS. New approach required.

...so there is both auditory and visual concentration in personal interactions; I like to be presentable and engaging, and my body finds it stressful as well, due to the maladaptive stress response so there is adrenal fatigue and suchlike also associated with it. CFS is not physical OR psychological, it is sometimes/often a combination of both and I have evidence for the physical aspects which contribute to my case in particular. Hope this helps answer your questions.

Okay, let's get all this cleared up as it seems to be kicking off in the comments here. The amount of tiredness I feel is related to the activity or stimulus and its severity. For example, an hour on World of Warcraft, mining or pottering about, is far less strenuous and requires much less concentration than 10 minutes on Call of Duty. Talking with people I find particularly tiring for a number of reasons; I'm not used to it, I like to pay attention and concentrate on what people are saying...

Your dog is adorable!

Oh my gosh! You are so ignorant! Seriously... -_-

'whoever thought of giving ME sufferers insomnia is a cruel person... that's just mean!' This! So much!

*cuddles* sorry you have to deal with this as well <3

Thank you for your videos, as a sufferer of severe ME (I am bedbound) they really cheer me up and it's so nice to feel I have a friend who knows what I'm going through :) xxxx

You're seriously funny Geebs :)

YAY! :D

Merry Christmas!

How do you know he's wealthy?! Because he speaks properly?! Also, if you play computer games yourself you'll know that you can play for hours and it doesn't use much energy unless its a wii but talking uses a lot more energy. If you had to talk to someone for a long time that would probably tire you out even though youre well. Different activities just use different amounts of energy. If you had flu you might be able to go on tge computer 4 an hour but would find it harder to chat for an hour...