Видео

Thankyou for this video! Ive just been diagnosed. Very helpful 😊

Hope you are doing much better. I have one 2.5mm. Going with gamma knife since I have no issues with my hearing..in fact hearing was excellent despite my tinnitus. Sending prayers. Yes, researching is emotionally draining. I want to see neurosurgeon as answers are needed. Thank you for your story. Yes, I grieved & was in total shock. Oddly, I found mine after 1st dose Pfizer. Had adverse reaction with numbness in face. I am concerned with watch & wait as I do not want to deal with it being bigger later. Hope you do another post about an update as to how you are doing now. Many prayers for excellent results to you. 🙏🙏🙏

Hi. I had mine removed back in September. Successful removal, they got the whole tumor. Life after the surgery has its challenges, but I’m doing okay. I hope you are too.

Awesome progress!

Legend is that the 295/42 interchange project is still nowhere near completion

Your amazing 👏 ✨

You mentioned getting the entire tumor out, but if you leave a sliver, and NOT take out the entire tumor, you can protect your 7th cranial nerve. I have surgery scheduled very soon. I like the Acoustic Neuroma Association "kit", with the excellent pamphlets, and I have called six or seven individuals on their peer list. Good luck. to you!

Hi thank you for sharing your experience! I've recently been diagnosed and am going to talk to a surgeon ent later this week. I'm glad you have a great attitude. Your story and attitude give me strength thank you.

do you have tinnitus after all these

Oh Goddess!!! It is amazing and wonderful to see you progressing so well. Most people do not understand the joy of being able to shower by yourself unless they have been there. WOOT HOOT!!! Glad you are doing so well. Much love to you!

cute little muppet!

Here is the link for the Meal Train www.mealtrain.com/trains/4ldg07

Here is the link for the Go Fund Me www.gofundme.com/f/lucia-disimone039s-fund-for-acoustic-neuroma-journey?+share-flow-1&fbclid=IwAR1UeVdDEm_8Go1BXbVPzI9r8fS3ZJNZAr8x5SDe1J5fh-6X7doxNjxldmQ

You're awesome! You got this and we got you 💜😘

I'll go find the GoFundMe and share it. Wishing you all the best.

I'm so sorry to hear this but I have full faith that you'll come through this better than ever and completely tumor free. Prayers, love, light, positivity and the best intentions are coming your way

If you’re guided to contribute a financial donation, here is the link to my Go Fund Me page. Much love ❤️ www.gofundme.com/f/lucia-disimone039s-fund-for-acoustic-neuroma-journey?+share-flow-1

I subscribed 🥑🥑🥑

Prayers coming your way.