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I wish I'd seen this 4 years ago! Glad I didn't see it tomorrow! I am an adult who's world just changed.

True. I have ME (/CFS) making me mostly homebound, so I don't go out much. I am, physically invisible to everyone that don't live in this house with me. They only see me those days when I'm well enough to make it outside. So many with ME don't even make it out of bed. We are after all called the invisible people. That being said, it doesn't mean that people won't take advantage of it anyways. "you're home so you could watch my kids for a few hours" or "can you recive a package for me" or "make a phonecall since you have nothing better to do" or do basically anything without regard of our physical and mental wellbeing. IF we say no we're just lazy and they get salty about it. I've had neighbours place heavy boxes on my wheelchair or place stuff infront of it and when I point that out, they get all pissy and claim "it's just sitting there collecting dust". Just because I can walk on occation doesn't mean that I'm well. I usually come home from an excursion and sleep for three hours. I also have hEDS, AuDHD and depression. At least that's what we know of so far. My son and I compete on who has the most diagnoses. So not only do I have to remind people about my situation I need to make sure he doesn't get spread too thin and can manage school as well as a social life. It's either you're too well to be home so you're just lazy or it must be contagious, we must keep our distance so we don't catch whatever that is. And the "we can't be seen near someone with a disability, even if it is invisible".

Even when my explain my "invisible disabilities" and how it limits me, people forget. Out of sight, out of mind.

I think, sadly, it’s probably due to evolution and survival of the fittest.

Very true 😢

Thank you for video my LA have refused saying my son Ed child should go back to the said school but still feel EOTAS bespoke package will be best suited for him

My youngest was recently diagnosed ADHD as an adult. Doing her psychology degree alerted her to it. She's certain that I have it too. After looking into it I think she's right. 30 years ago I thought the new label was invented by those who hadn't a clue how to handle the more energetic kids. Now I know better. Though my solution of finding something to occupy and engage them was right. I also have c-PTSD which masks ADHD symptoms. I totally agree with you on visibility. No walking aid means we don't stand out in a queue. Have social interaction with us and our vulnerability shows, particularly on a regular basis like working in the same place. Perhaps the discussion with the politically correct agitators needs to be around what they consider to be visible and also on what are the real ways of being both helpful and supportive. Like letting us speak for ourselves. All the best.

I have a family member who many times have had others taken advantage of them due to there Autism but they do have a habit of informing all who will listen of there differences I feel that doesnt help them.

Thank you, needed that reminder today

Thank you Chrissa ❤️😘🙏

My child will say something offensive and it is not for manipulation but to equalize their status and autonomy. For whatever reason they feel a power struggle this helps them to equalize that feeling. I politely respond with a non rattled “is that appropriate ?” Or “do we feel better?”

You're making the assumption everyone is aware they are traumatized 🤔 interesting

What makes a good parent? Tell us your thoughts!

It's called hoops and hurdles....

It's modern day psychological torture, the SEND underworld..i

It's modern day psychological torture, the SEND underworld..

❤

I stumbled across this by accident, but great, and such a widespread problem...Surrey and nationally.... Good morning...sadna xx

Surrey

Sadna, hi.xx

Thanks, and I need your support,🙏

Wonderful ❤️ I'm a newbie member of Sunshine and can't wait to get educated on these topics as I can relate to both of these x

Join our related webinar on 23/07/24 - The Connection Between RSD, PDA, and Trauma - 
www.eventbrite.co.uk/e/867446454697

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I've definitely experienced judgement, I still get a lot of 'maybe it's your parenting or you're not strict enough' comments. Absolutely zero understanding of the bigger picture. Your experience says more about the person saying it, lack of education, understanding and empathy.

Awesome ❤

Pda link please

We'd love to hear about your experiences navigating different types of school!

really don’t like the pathologizing of pda. “bizzare” and saying that were essentially problems “spend a day at these families homes and you’ll see”. pda is also internalized. and someone can have pda and no autism either

Do your children find school attendance difficult? Did YOU ever find school attendance difficult? We'd love to hear from you and have a chat in the comments.

#RobertBuckland

I don't know. I think in various ways. Sometimes I visualise things. Sometimes I just think in text. Sometimes I just think in sounds. I don't recall if I've thought in music or not. I probably have and just haven't taken note of it. But I don't know if this is a adhd thing or not. It might as depending on my state I think differently. If I'm not in the moment and am very unfocused and bored I'll just think in a more dopamine inducing way. So you thinking in song might be adhd but again I'm not an expert. Btw your both bringing "sexy back" xD Keep up the good work. This has made my day.

🧡20/06/24 - EOTAS (Education Other Than At School) & The Laws Around EHCPs in EOTAS www.eventbrite.co.uk/e/841375776597

Does anyone have a specific preference in terms of type of holiday - cruise, camping, flying, all inclusive, villa & self catering... Tell us in the comments!

How do YOU holiday as a SEND family?

The statistic that disabled parents of disabled children are FOUR TIMES more likely to be accused of FII than non-disabled parents made my stomach drop. Oh my god. 😢🤢

This was an intense watch. FII is quite genuinely one of my worst fears as a neurodivergent SEND parent. Thankfully, nobody has ever batted an eyelid when I've suggested specific suspicions of condtions to professionals involved with my son, I've never been wrong and I've always been listened to & respected but I NEVER take this for granted. It takes one bad person, one bad appointment. This knowledge and awareness raising is SO VALUABLE. ❤❤

Yes!! Glad you mentioned the slippery slope to FII accusations.

Something that needs to be spoken about more. Not something I've experienced but I know people who have, who've been blamed, gaslit and shamed for it. Thanks for bringing attention to this. ❤

So relatable. I had a 'vision' but what unfolded was very, very different! We just make it work for us. Learning the law, learning the medical side of things, SALT, OT etc, it's intense but look where we are now!! A life we never dreamt of for ourselves but being able to craft something beautiful out of it is a skill! ❤

"I know it because I had to learn it." - words I can relate to so much. Carers Allowance, DLA, making it work for us. It really is all-consuming.

This was a great watch. Shocking how many miles parents drive to get their child to their provision!!

SEND family holidays really arent addressed very well so thanks for this. It feels like they really fall by the wayside. There's very little SEND provision for childcare, holiday clubs etc, almost like we are brushed under the carpet which is nothing new but stings a tad when I see all of these great clubs advertised but unable to cater for SEND in any capacity.

Dyslexia is so complex and fascinating - such a learning journey!

See you there! ❤

What is your favourite mocktail/cocktail? Tell us in the comments!

Watching this having being accused of FII? You're not alone. Let us know you're here with a comment. 💛

How do you #SEND parents approach quality time?

We'd love to hear from anyone who relates to this in the comments - we're here for you.

Hello to anyone viewing our content! Please let us know what you think in the comments and share any feedback, experiences and advice with other families, we'd love to see what you have to say.