LivingthedreamwithMS
LivingthedreamwithMS
  • Видео 77
  • Просмотров 34 696
MS and Covid 19
MS and Covid 19
Просмотров: 260

Видео

I'm baaaack...kind of
Просмотров 3296 лет назад
MS Vlog
Taking a break
Просмотров 2307 лет назад
ME Blog
Humor and MS
Просмотров 1827 лет назад
Weekly MS Vlog
Being humbled
Просмотров 1817 лет назад
Weekly MS Vlog
Muckfest MS
Просмотров 1107 лет назад
Weekly MS Vlog main.nationalmssociety.org/site/TR/MuckFest/MAMMUCKEvents?team_id=528872&pg=team&fr_id=28834
The most terrifying 4 minutes of my life
Просмотров 4017 лет назад
Weekly MS Vlog
Why can't I even just be "normal"?!
Просмотров 3177 лет назад
Weekly MS Vlog
Make the effort
Просмотров 1127 лет назад
Weekly MS Vlog
Use it or lose it
Просмотров 1377 лет назад
Weekly MS Vlog
Quick hello
Просмотров 677 лет назад
Quick hello
Breaking point
Просмотров 2317 лет назад
Breaking point
Spasticity
Просмотров 3117 лет назад
Spasticity
MS and the Epstien Barr Virus?
Просмотров 3007 лет назад
MS and the Epstien Barr Virus?
Left handed
Просмотров 1537 лет назад
Left handed
MS Awareness Month- Get involved
Просмотров 877 лет назад
MS Awareness Month- Get involved
Early spring with MS
Просмотров 1007 лет назад
Early spring with MS
Pain causing pain
Просмотров 1607 лет назад
Pain causing pain
Tinctures, edibles, and life examples
Просмотров 1457 лет назад
Tinctures, edibles, and life examples
Vertibro cochlear nerve inflammation
Просмотров 4197 лет назад
Vertibro cochlear nerve inflammation
Lack of sensation and self care
Просмотров 2307 лет назад
Lack of sensation and self care
Topic pot pourri
Просмотров 767 лет назад
Topic pot pourri
Week 52 (yup, that's a year)
Просмотров 997 лет назад
Week 52 (yup, that's a year)
MS and the dreaded man cold
Просмотров 1867 лет назад
MS and the dreaded man cold
The chip on my shoulder
Просмотров 1307 лет назад
The chip on my shoulder
Bells Palsy (and facial nudity)
Просмотров 1337 лет назад
Bells Palsy (and facial nudity)
Late and over did it
Просмотров 767 лет назад
Late and over did it
MS support groups
Просмотров 1897 лет назад
MS support groups
MS and fashion choices
Просмотров 907 лет назад
MS and fashion choices
Faith and MS
Просмотров 937 лет назад
Faith and MS

Комментарии

  • @baronghede2365
    @baronghede2365 6 месяцев назад

    Try the Mediterranean diet, try Herb's like turmeric, ginger and Asian ginsing and speak to a chiropractor, Blessed Be.

  • @brigittescott2438
    @brigittescott2438 Год назад

    Does the MS hug feel like a cramp in your legs but it’s around your ribs?

  • @angelathompson3820
    @angelathompson3820 2 года назад

    I am interested to know how you know that this is like wearing a ladies corset🤔😉

  • @danduran2860
    @danduran2860 2 года назад

    Love your videos!

  • @danduran2860
    @danduran2860 2 года назад

    Thank you for the many great videos! They explain our illness very well and show that you are not alone.

  • @SO-te5cl
    @SO-te5cl 2 года назад

    ruclips.net/video/EHVXJpDBcmU/видео.html In this video, Alan Macdonald, FCAP, A pathologist from Florida, and a well respected researcher goes over some impressive findings regarding Spinal Fluids of patients with Multiple Sclerosis. In particular, nematode worms observed under Dark Field microscopy, or even with the naked eye.

  • @SO-te5cl
    @SO-te5cl 2 года назад

    ruclips.net/video/EHVXJpDBcmU/видео.html In this video, Alan Macdonald, FCAP, A pathologist from Florida, and a well respected researcher goes over some impressive findings regarding Spinal Fluids of patients with Multiple Sclerosis. In particular, nematode worms observed under Dark Field microscopy, or even with the naked eye.

  • @Oceanxx12
    @Oceanxx12 2 года назад

    Can I ask I have these symptoms after covid do yours pass ?

  • @Oceanxx12
    @Oceanxx12 2 года назад

    Can you get this without ms

  • @smmcb647
    @smmcb647 2 года назад

    Thanks for that report. I really appreciate your honesty. May God bless you and keep you healthy.

  • @adamh7947
    @adamh7947 3 года назад

    Acupressure

  • @sandynelson918
    @sandynelson918 3 года назад

    missing you

  • @TrueThingsPrevail
    @TrueThingsPrevail 3 года назад

    I have this only on one side. Is that typical?

  • @tinam2696
    @tinam2696 3 года назад

    July 2020 the tightness was so bad I thought I was having a heart attack. Went to ER... Cardiologist, Gastroenterologist ( he found a small gallstone, but DOES NOT think my pain is related). Long story short (too late), I still have this pain almost every night. Like a belt is TIGHTLY wrapped around my bra line. NOTHING HELPS. Doctors & I haven't got a clue 😥

  • @jaimeraya1170
    @jaimeraya1170 3 года назад

    How are you ?

  • @livingthedreamwithms862
    @livingthedreamwithms862 3 года назад

    USA

  • @daisiecritch844
    @daisiecritch844 3 года назад

    What country is this please?

  • @chriswilliams7824
    @chriswilliams7824 3 года назад

    Thanks for the upload and transparency. You insight brings hope. I was diagnosed October 2019 and entirely taken aback. This condition is mysterious and a blow to the self-confidence. Pain is more than physical. To go from working and active to significantly challenged sucks. I'm curious to know if you've had success with, or heard of the Terry Wahls Protocol/ diet? She's a Dr. who went a wheelchair to walking by eating differently. What works for you besides medicines? Again, thanks for the post. Stay💪and🥗

    • @macclift9956
      @macclift9956 2 года назад

      Sounds interesting - I'm going to look this up.

  • @janakujawa1629
    @janakujawa1629 3 года назад

    I use ice to numb it!

  • @thelastjohnwayne
    @thelastjohnwayne 3 года назад

    That was a beautiful thing that your boys did.

  • @qaisaraslam8196
    @qaisaraslam8196 4 года назад

    Brave man

  • @babbswallis3120
    @babbswallis3120 4 года назад

    Great video, humour is what gets me through everyday.

  • @qaisaraslam8196
    @qaisaraslam8196 4 года назад

    Really a motivational person

  • @zach9930
    @zach9930 4 года назад

    Can this go away

  • @Boris-xs2eq
    @Boris-xs2eq 4 года назад

    Your Dad is only 63 ??!!.....Did he have you when he was 12 ?!

  • @demandyourhealth4293
    @demandyourhealth4293 4 года назад

    I think most people who live with pain understand pain the most/ I 100 percent agree family comes first no matter how bad you hurt

  • @demandyourhealth4293
    @demandyourhealth4293 4 года назад

    I appreciate you telling this so I want feel crazy when I tell my ms doctor 😃

  • @demandyourhealth4293
    @demandyourhealth4293 4 года назад

    I have this problem a whole lot like at night or in the mornings

  • @thepersian204
    @thepersian204 4 года назад

    I can't believe you didn't even lament about the Bruins! Glad the vids are back

  • @Tns85
    @Tns85 4 года назад

    Hey. How are you doing! Been a long time!

  • @AJHR77
    @AJHR77 4 года назад

    Good to see you back. Yes,I think some of us MS'ers are not taking this seriously. It can be lethal as they say it is 10 x more lethal than the flu and they are still attempting to figure out if is airborne. Everyone stay safe and healthy.

  • @michaeldial4449
    @michaeldial4449 4 года назад

    Thank you for posting this. This one helped answer some questions I had. I haven’t seen vids from you in a while, it’s good to see you doing well. .

    • @livingthedreamwithms862
      @livingthedreamwithms862 4 года назад

      I'm so glad it helped. I'm trying to come up with some more content. I dont want to film unless there is value. Thanks for subscribing.

  • @wembley_2086
    @wembley_2086 4 года назад

    Hi! I have been experiencing the exact symptoms for several months. I’ve been waiting to see a neurologist I see him the end of May. Everything you talked about related to me perfectly. I’d like to chat about it!

    • @livingthedreamwithms862
      @livingthedreamwithms862 4 года назад

      You can dm me on Facebook if youd like. Nathan Bilotta. Thanks for watching.

  • @riddlerthe9547
    @riddlerthe9547 4 года назад

    Hi, thought Id share my story. It started in Nov 18, I thought bugs were biting me whilst I was watching TV, but when I looked there was nothing there. It really freaked me out, as it only happened when I relaxed on an evening, this happened now and again for a couple of months, I'd have a few weeks off and then the symptoms would return. It was about May 19 that I remember walking around and my t shirt feeling odd, like my skin was sun burnt and I had the intense itching all over, my face, chest, back, legs and feet, groin and lower back. I went to the docs and they prescribed me antihistamine which I took for a month but it didn't help. I started getting the itching more often like something was running across my face, like being tickled with a feather. It was like pin pricks and sharp stabs and electric shocks. These symptoms got worse and worse until it was happening every day. I went to the docs and they said my nerves sounded like they were getting too excited, so I was prescribed Amitriptyline, I took 10mg then 20mg over a few months but got frustrated that they weren't helping and ended up going 30mg, and that seemed to work. It didn't take my symptoms of the itch and pain away completely but it reduced it by about 80% which was great. This lasted about 3 months because I ended up having a random flare up in Dec 19 which went eventual died back down. But I'd say for 3 to 4 months I was symptom free taking the medication. But it wasn't all was good, I started to notice I was getting extremely anxious in situations I normally wouldn't, like I was getting nervous and I couldn't look people in the eye. I realised it must be the meds. I reduced back down to 20mg and immediately I felt back to normal but my symptoms came back bad. I went back to the docs again and they said it was anxiety and prescribed me some anxiety meds but they said I had to get off Amitriptyline first. Over a few weeks I reduced down and experienced some pretty bad withdrawal symptoms as well as having the itchiness come back. After doing some research I knew I didn't have anxiety plus the tablets they wanted me to try would have no effect on my suspected nerve pain, so I went back to the docs. They kind of fobbed me off again and prescribed me Gabapentin. I researched the tablets and read some horror stories, so decided against it but the itchiness was intense. So again I went back to the docs and demanded I see a neurologist. Out of my own research I asked if I could try Nortriptyline which is similar to Amitriptyline but newer and slightly different make up. And that's where I am today, I await my appointment for the neurologist and until then I'll keep on the Nortripyline. I started on 10mg which worked at first but I'm currently going through a bad flare up and not even 20mg seems to be helping. Will be going up to 30mg soon and I hope it helps. I really hope I don't get the nasty paranoia side effect either. I will say this, some days are better than others, sometimes I can get distracted and mostly forget the itching is there but some days it's so intense its all I think about. Other symptoms cold hands and feet, forgetful when talking to people.

    • @AlanWakesPookie
      @AlanWakesPookie 2 года назад

      I feel the same thing I freaked out bugs were on me too I havnt seen a doctor yet but I’m feeling the exact stuff u are and it’s really bugging tf outta me

    • @junkdnareviews2515
      @junkdnareviews2515 2 года назад

      @@AlanWakesPookie mri showed us wasn’t ms. Doctors think it’s my brain putting my sensations on high alert. There is medication out there to help. I’m moving on to gabapentin or something similar. Releasing and moisturiser helps.

  • @larryhofer8853
    @larryhofer8853 4 года назад

    Lawrence here from Dinsmore Colony in Saskatchewan Sir those damn DRUGS I was in same situation my neurologist gave me another drug it's called Lemtrada it helped me

  • @aneia6353
    @aneia6353 5 лет назад

    Never knew this was a symptom I have SPMS and I’ve been suffering from this on my scalp like bugs and my skin. I’m itching all night. I have been vaping CBD tonight and it’s helped. Now I’m itching all over again since I’ve stopped vaping and about to go to bed. Thx for your video!

  • @karrigirl
    @karrigirl 5 лет назад

    Can you help me? Not me but my husband. He’s been diagnosed since 2010, refuses a wheelchair and all of his neurologist have told him he needs to be in a wheelchair. Who am I to say he needs to be in a wheelchair, when my sweet Hubster isn’t ready.

  • @inkdupbagman3697
    @inkdupbagman3697 5 лет назад

    I don't have ms but I do have "nerve itches" and they are very aggravating

    • @thenow5559
      @thenow5559 4 года назад

      Hi, i get that as well, did ur doctor run tests to clear for MS?

    • @inkdupbagman3697
      @inkdupbagman3697 3 года назад

      @@thenow5559 I have no other symptoms

  • @masonjohnson2376
    @masonjohnson2376 5 лет назад

    good luck

  • @blubbi2010
    @blubbi2010 5 лет назад

    At what point (if ever) did you have lesions show up on MRI and did you have a lumbar puncture?

  • @annam1905
    @annam1905 5 лет назад

    My nuero opthamologist was talking to me he thinks I have ms I have so many horrible symptoms but so far my mri of head and spine look ok and each day I get worse and worse I just had a spinal tap also after this if this comes out fine then I need to be referred to a neurologist its horrible all my symptoms all my symptoms r in my left side of my body I have dizziness swaying off balance numbness tingling burning pain in leg toes arm fingers I have double vision in my left eye I even have the same thing what they call an ms hug I have alot of back pain I'm so tired I wake up thruout the night with muscle spasms I also have urinary problems constipation I cant even take a shower without feeling off balance swaying tingling and forget that pedicure I got 2 weeks ago horrible I just hope I get the diagnosis its I have been tested for so many other things and they r all fine

    • @noelleplumer1397
      @noelleplumer1397 5 лет назад

      Did you ever geta diagnosis? I am going through all the same symptoms now. MRI results are pending. Prayers you get answers. I know how frustrating it is.

    • @annam1905
      @annam1905 5 лет назад

      @@noelleplumer1397 no no diagnosis yet still having all them bad symptoms and even more now I'm in so much pain everyday too

    • @ShepardfortheLord
      @ShepardfortheLord 5 лет назад

      Just wanted to wish you well being and softening of your symptons. Things will get better, have faith. I will pray for you.

    • @annam1905
      @annam1905 5 лет назад

      @@ShepardfortheLord thank u

    • @southernbelladonna78
      @southernbelladonna78 4 года назад

      @@annam1905 how are you doing? I'm going through the same thing. Did you ever get a diagnosis?

  • @annam1905
    @annam1905 5 лет назад

    nice job kids helping dad

  • @emeraldcity7942
    @emeraldcity7942 5 лет назад

    are there ways u can quiet your immune system?

  • @manny_mo
    @manny_mo 5 лет назад

    I have a stutter too... Hang in there... You got this

  • @manny_mo
    @manny_mo 5 лет назад

    Me too. I hate it. Any tips? :’( I’m desperate. Any way... how you’re okay. :/

  • @DickRileyTheConquistador
    @DickRileyTheConquistador 5 лет назад

    If youre 65 tho the govt foots most of the bill. If youre elderly or mentally handicapped in a care facility its free. Theres nothing fair about that when alot of us will never see those benefits. You must be VERY well off if you can afford that and still have a roof over your head, but what would happen if u cant provide, is it all free under disability?

  • @danielsuttles1960
    @danielsuttles1960 5 лет назад

    Have you ever tried using a nasal spray? I have ms also and ever since the beginning I have had a problem with inflammation in my ears(so bad that not even a q-tip could fit at all and I become very dizzy when it is at its worst. This inflammation also diminished my ability to swallow efficiently but with the nasal spray it goes away completely(for as long as the medicine is working) I just wanted to give you a head up on that if you haven't tried that before.

  • @prestonfontana8416
    @prestonfontana8416 5 лет назад

    As an amateur stand up comedian with MS, you and Richard Pryor are big inspirations for me. I'm probably one of just a VERY small group of comedians in Canada doing any circuit with MS. Hell, I wouldn't be surprised if I was the only one.

  • @andreawheatley5528
    @andreawheatley5528 6 лет назад

    Welcome back, keep fighting

  • @prestonfontana8416
    @prestonfontana8416 6 лет назад

    Good to see you again! As a fellow male with MS, it is incredible to have another guy's viewpoint on this. Been 10 years symptomatic, 3 years diagnosed, and over 2 years since last relapse. Have you tried Lemtrada? That stuff works WONDERS