Видео

Watch the recording of the LHON Awareness Day 2024 Webinar. Speakers included pharmaceutical companies involved in the development of gene therapy for people with LHON, the EMA, a researcher and clinician, and a patient who has received gene therapy as part of a clinical trial. Following the presentations the speakers answered questions from the audience.

Hear members of the international LHON community talk about the effect the disease has on them and their family.

LHON and the Family provides an insight into the impact Leber hereditary optic neuropathy (LHON) has on families. LHON is a type of mitochondrial disease, where those affected lose their sight - often within weeks.

Find out the latest update on the CureMILS project.

Meet Associate Professor Wong who will tell us about his exciting research into LHON, and how it could change the lives of many. What is rehabilitation after vision loss? Hear from a rehabilitation expert, Krister Inde about what is possible.

Watch Professor Alessandro Prigione provide an update on the CureMILS project.

Watch this thought-provoking and informative discussion about technology and devices that can improve the lives of people with LHON around the world. Find out more about the devices that work, and about how acceptance of help in the form of assistive technology can have a huge positive impact. Thank you to all the participants and to everyone who watched the event. LHON Awareness Day falls on 1...

IMP Founder, Elja van der Veer shares her thoughts on the last decade with IMP.

Watch Prof. Dr. Alessandro Prigione from the University Hospital Düsseldorf / Heinrich Heine University Düsseldorf explain the CureMILS project. This exciting research project aims to develop therapies for mitochondrial DNA-associated Leigh syndrome (MILS). IMP is a partner in the project, which is part of the European Joint Programme on Rare Diseases.