- Видео 118
- Просмотров 9 030
Daniel Antonissen
Нидерланды
Добавлен 7 окт 2011
In June 2015 I was hospitalized for 2 months. I am diagnosed with PML and Sarcoidosis. Left-side coordination problems and balance problems and speech gone. This is my struggle to get back in shape...Please join me.
Vlog update
A long overdue update on how I am doing now getting a rare deadly disease, 2,5 years later.
Просмотров: 425
Видео
Update : Vocal Chord Injection
Просмотров 2,3 тыс.7 лет назад
Today I'll show you with a little update the before and after result from the vocal chord injection I had.
Friday - daily moment 108
Просмотров 587 лет назад
Today was Friday. Went to the gym. Weighted myself. Another daily moment of course. Find me on Twitter: @DanielAlexandr For more info on PML: en.wikipedia.org/wiki/Progres... Music used Hotlife - Beween These Walls www.youtube.com/watch?v=RCKye... Before I Sleep - Muciojad Before I Sleep by Muciojad soundcloud.com/muciojad Creative Commons - Attribution-ShareAlike 3.0 Unported- CC BY-SA 3.0 cre...
Thursday - daily moment 107
Просмотров 217 лет назад
Today is Thursday. Weighted myself. It has been a slow day otherwise. Another daily moment of course. Find me on Twitter: @DanielAlexandr For more info on PML: en.wikipedia.org/wiki/Progres... Music used Hotlife - Beween These Walls www.youtube.com/watch?v=RCKye... Warm - Joey Pecoraro Warm by Joey Pecoraro soundcloud.com/joeypecoraro Creative Commons - Attribution 3.0 Unported- CC BY 3.0 creat...
Tuesday - daily moment 106
Просмотров 367 лет назад
Today was Tuesday. Weighted myself. Another daily moment of course. Find me on Twitter: @DanielAlexandr For more info on PML: en.wikipedia.org/wiki/Progres... Music used Hotlife - Beween These Walls www.youtube.com/watch?v=RCKye... Rap Dreams - LOWERCASE n Rap Dreams by LOWERCASE n soundcloud.com/lowercasen Creative Commons - Attribution 3.0 Unported- CC BY 3.0 creativecommons.org/licenses/b...
Monday - daily moment 105
Просмотров 437 лет назад
Today was Monday. Went to the gym. Had speech therapy. Weighted myself. Another daily moment of course. Find me on Twitter: @DanielAlexandr For more info on PML: en.wikipedia.org/wiki/Progres... Music used Hotlife - Beween These Walls www.youtube.com/watch?v=RCKye... Life Is - Cosimo Fogg 201 Life Is by Cosimo Fogg (201) soundcloud.com/cosimo-fogg Creative Commons - Attribution 3.0 Unported- CC...
Saturday - daily moment 104
Просмотров 137 лет назад
Today was Saturday. Weighted myself. went to see a movie with my boys yesterday. Another daily moment of course. Find me on Twitter: @DanielAlexandr For more info on PML: en.wikipedia.org/wiki/Progres... Music used Hotlife - Beween These Walls www.youtube.com/watch?v=RCKye... Like Apollo - jimmysquare Like Apollo by jimmysquare soundcloud.com/jimmysquare Creative Commons - Attribution 3.0 Unpor...
Friday - daily moment 103
Просмотров 207 лет назад
Today is friday. Went to the gym. Weighted myself. Went to the movies with my boys. Another daily moment of course. Find me on Twitter: @DanielAlexandr For more info on PML: en.wikipedia.org/wiki/Progres... Music used Hotlife - Beween These Walls www.youtube.com/watch?v=RCKye... Joakim Karud - Twerk Check Out Joakim Karud soundcloud.com/joakimkarud JoakimKarud
Bought tickets to see Rogue One
Просмотров 177 лет назад
Today is Wednesday. Went to the gym. Weighted myself. Bought tickets to see Rogue One. Find me on Twitter: @DanielAlexandr For more info on PML: en.wikipedia.org/wiki/Progres... Music used Hotlife - Beween These Walls www.youtube.com/watch?v=RCKye... Joakim Karud - Vibe With Me Check Out Joakim Karud soundcloud.com/joakimkarud JoakimKarud
Tuesday - daily moment 101
Просмотров 117 лет назад
Today was Tuesday. Went out for a walk. Looked at the vocal chord injection procedure. Weighted myself. Another daily moment of course. Find me on Twitter: @DanielAlexandr For more info on PML: en.wikipedia.org/wiki/Progres... Music used Hotlife - Beween These Walls www.youtube.com/watch?v=RCKye... Joakim Karud- Hurricane (feat. Andrew Applepie) Check Out Joakim Karud soundcloud.com/joakimkarud...
Monday - daily moment 100
Просмотров 207 лет назад
Today is Monday. Went to the gym. Had speech therapy. Weighted myself. Another daily moment of course. Find me on Twitter: @DanielAlexandr For more info on PML: en.wikipedia.org/wiki/Progres... Music used Hotlife - Beween These Walls www.youtube.com/watch?v=RCKye... Joakim Karud - Great Days Check Out Joakim Karud soundcloud.com/joakimkarud JoakimKarud
Saturday - daily moment 099
Просмотров 187 лет назад
Today is Saturday. My oldest son turned champion with soccer. Weighted myself. Another daily moment of course. Find me on Twitter: @DanielAlexandr For more info on PML: en.wikipedia.org/wiki/Progres... Music used Hotlife - Beween These Walls www.youtube.com/watch?v=RCKye... Joakim Karud - Mighty Love Check Out Joakim Karud soundcloud.com/joakimkarud JoakimKarud
One last time
Просмотров 567 лет назад
Today was Friday. Talked to one of the writers of "One Last Time' and found out he made an acoustic version of the track, when he found out about my sickness. I am very honored. Another daily moment of course. Find me on Twitter: @DanielAlexandr For more info on PML: en.wikipedia.org/wiki/Progres... Music used Hotlife - Beween These Walls www.youtube.com/watch?v=RCKye... Hotlife & Tomo Hirata F...
Thursday - daily moment 097
Просмотров 77 лет назад
Today was Thursday. Did weigh myself again. Another daily moment of course. Find me on Twitter: @DanielAlexandr For more info on PML: en.wikipedia.org/wiki/Progres... Music used Hotlife - Beween These Walls www.youtube.com/watch?v=RCKye... Joakim Karud - Butterfly (feat. Jeff Kaale) Check Out Joakim Karud soundcloud.com/joakimkarud JoakimKarud
How you brother?
How are you bro
I tested positive due to taking the Tysabari infusion Nd 7 yearl later im jc free. 🎉
had it post lyme , do u think once gone thr neurotoxins and mcas takes lomg to leave ? having a hard time
That gave me hope my mom is is suffering from same terrible situation, it is a mental trauma to see my mom in this terrible state
As my sister is with same terrible illness, you are a light in a darkness. She got this jc virus through medication against her reumatism. Thoose medicines lowered her immune system so it developed virus in her brain and PML as a result. Doctors in Sweden says that they dont know what to do. This can be the hope that we search for. Take care and ceep your immune system on top.
can u help me sir my uncle has this virus
Hello are you still clear from the JC Virus?
what is your condition ryt now??
Hi Daniel, Glad to hear that u have overcome this disease,plz let me know how u overcame this disease as my uncle is also diagnosed with this virus & he is in the same state as u were, all doctors have said no for him. Plz do reply as soon as possible
Unfortunately there s no known cure. I was given Mefloquine, Mirtazapine and every 3 weeks a Cidofivur infusion. Of course i do not know if that was what cured me. All the best for your uncle
@@danielantonissen5109 Thanks Daniel for ur reply..Plz pray for my uncle...
It is amazing that you survived the disease!! This gives many people hope.
Good luck my friend.
God bless you. Keep on fighting!
My mom just got diagnosed with PML. Your story gives my hope, thank you for bringing awareness to this terrifying virus.
Great news Daniel glad your doing well.
You are a very brave soul!
Hi Daniel. Its good to see you are doing well . i have recently swtiched from one ms diease modifying drug to another. Both pml risk. I am having issues with my left side and falling that way and now slurred speech, these are old ms symptoms for me. Doc is keeping an eye on it. You look fantastic, which i know may be a little different then how u feel. Are u back to some daily activities? I hope you are doing well.
That is great news I hope it lasts
In June 2015 I was hospitalized for 2 months. I am diagnosed with PML and Sarcoidosis. Left-side coordination problems and balance problems and speech gone. This is my struggle to get back in shape...Please join me.
just stopping by buddy..see you in your next video.. stay safe..Also i use vinigar and dishwashing liquid in a spray bottle for my weeds... mush easer and it's cheep..
Hi Daniel i have PML as well my left side is not working much and i have a bit of hard time puting words together..Great video..subbed
Seems we re in this together. Thank you for the kind words.
can you tell me the meds you took I have the same thing n I can't walk please hel
21Xplayer mirtazapine daily, mefloquine weekly and cidofovir infusion every 3 weeks. But I’m not a doctor obviously so please consult first. Try to join a very helpful Facebook group called “ PML survivors exchange” with people in it just like you!
Daniel Antonissen thank you so much! Daniel. at lease I can show my doctor n go from there.
How are you feeling Daniel? I had a pml scare recently, all is good but still have confusion issues. must just be MS.
Hi Teresa, so sorry, must have missed your reaction. Hope all is well.
Cool man, I really hope you live a very long life.
Godspeed Car Audio thanks!
i hope you are feeling better
I have MS and i am on tysabri for my MS drug. When i relapse i do worry about pml. How did you get pml?
Teresa Nigro I got it thru the JC virus and when my immunesystem was low due to a Predinsone infusion, it kinda progressed quicker. I don't have MS fortunately. Guess I just got ' lucky'. You re probably on Tysabri for a reason and please consult with your doctor first but PML is linked to that drug I believe.
yes , with my ms drug pml is a risk. more so because i am jcv positive. right now im going through what i hope is just a relapse and not pml possibility. i have an mri scheduled for wed
You definitely sound more clear after the injection
DeAndre' Flyboi Thanks man!
Hi! I´m a survivor from PML too, diagnosed in 2014. Have a dysarthria problem too. Can you tell me more about this vocal injection since i never heard of it ? Big hug from Portugal.
Hey man, first off: Congratulations!! There aren't many survivors so consider yourself to be very lucky! It's the same injection they give to people that have spasmodic dysphonia, hope that helps. There s a Facebookgroup of survivors, very helpful and know that you're not alone! If you'd like I could inbox the link to you.
Yes please! inbox me the link ! So proud to see your fight, so inspiring! Thank you!
Hey can't seem to be able to inbox you so just search for a closed group on facebook and apply. PML Survivors Exchange.
Sound alot better brother!!! :D
hey nice video:) . I really enjoyed it. ive subscribed to you too. by the way I do videos too :) My recent video is about where I have been for two years and what I have been. the video also has some hidden messages. Maybe you could find them :)it was so fun to record but took forever to edit haha. if you could be very nice to check out my video and if you like it. maybe subscribe back to me :P:):p
Thanks bro :)
And this friend thousands of miles away wishes like hell he could be near you. Keep it up man!!
Daniel, you are my hero and my inspiration bro. To think that you could work so hard with such a debilitating disease blows my mind!! Keep it up brother, you're doing GREAT!!!
Thanks so much! Really appreciate it!
Awesome stuff! These type of videos motivate me to work harder on mine! Thanks, keep hustling!