- Видео 100
- Просмотров 37 772
ECMTF European CMT Federation
Франция
Добавлен 4 ноя 2020
Welcome to the European CMT Federation official youtube channel.
Here you will find videos and news on the Charcot Marie Tooth disease.
For more information on this rare neurological disease, visit the ECMTF website, and follow us on Facebook, Twitter, and Instagram.
Here you will find videos and news on the Charcot Marie Tooth disease.
For more information on this rare neurological disease, visit the ECMTF website, and follow us on Facebook, Twitter, and Instagram.
A Scientist's Perspective
Watch our 5th exclusive webinar with renowned CMT expert Dr. Vincent Timmerman!
Get ready to dive into Charcot-Marie-Tooth (CMT) Disease: A Scientist's Perspective, where Dr. Timmerman will share groundbreaking insights from his decades of research.
Learn about the latest genetic discoveries, advancements in diagnosis, and the future of CMT treatment. Whether you're living with CMT, supporting a loved one, or interested in the science, this is an opportunity to connect with one of the world’s leading minds in CMT research.
Get ready to dive into Charcot-Marie-Tooth (CMT) Disease: A Scientist's Perspective, where Dr. Timmerman will share groundbreaking insights from his decades of research.
Learn about the latest genetic discoveries, advancements in diagnosis, and the future of CMT treatment. Whether you're living with CMT, supporting a loved one, or interested in the science, this is an opportunity to connect with one of the world’s leading minds in CMT research.
Просмотров: 85
Видео
ClC-1 inhibition for improvement of muscle function in CMT
Просмотров 18714 дней назад
Join us as we explore innovative treatments for Charcot-Marie-Tooth disease with experts from NMD Pharma, a biotech leader in neuromuscular disorder research. 🌟 🔬 Learn about cutting-edge research aimed at restoring muscle function for CMT patients. Don’t miss this chance to hear from pioneers in neuromuscular disease innovation! 🌍💙
The conclusions of the 1st European Charcot-Marie-Tooth Specialists Conference
Просмотров 5114 дней назад
Hear about the conclusions drawn during the 1st European Charcot-Marie-Tooth Specialists Conference. This conference was organized in Paris in 2023 by the European CMT Federation to bring all the CMT's stakeholders and promote research. Plenary III Strategies: Creating synergies of three approaches (president: Michaela Auer-Grumbach) Podium: Reports from the working groups Presenters : (00:55) ...
Mobilizing the Patients: Scientists’, Clinicians’ and Therapists’ expectations and advice
Просмотров 3514 дней назад
During the 1st European Charcot-Marie-Tooth Specialists Conference, three working groups were created to design new strategies, creating synergies of three approaches. This video is related to the topic "Mobilizing the Patients: Scientists’, Clinicians’ and Therapists’ expectations and advice". This conference was organized in Paris in 2023 by the European CMT Federation to bring all the CMT's ...
Data management for CMT: Towards an Integrated European CMT Patient Registry
Просмотров 4814 дней назад
During the 1st European Charcot-Marie-Tooth Specialists Conference, three working groups were created to design new strategies, creating synergies of three approaches. This video is related to the topic "Data management for CMT: Towards an Integrated European CMT Patient Registry". This conference was organized in Paris in 2023 by the European CMT Federation to bring all the CMT's stakeholders ...
Cooperation: Establishing a « European CMT Research Association (ECRA)»
Просмотров 1914 дней назад
During the 1st European Charcot-Marie-Tooth Specialists Conference, three working groups were created to design new strategies, creating synergies of three approaches. This video is related to the topic "Cooperation: Establishing a « European CMT Research Association (ECRA)»". This conference was organized in Paris in 2023 by the European CMT Federation to bring all the CMT's stakeholders and p...
II Plenary session referring the three disciplinary approaches to problem solving
Просмотров 4314 дней назад
During the 1st European Charcot-Marie-Tooth Specialists Conference, three working groups were created to design disciplinary approaches to problem solving. This plenary session draws the conclusions of the groups work. This conference was organized in Paris in 2023 by the European CMT Federation to bring all the CMT's stakeholders and promote research.
CMT Therapeutic practice and feedback: Challenges and specific tasks for therapists
Просмотров 7014 дней назад
During the 1st European Charcot-Marie-Tooth Specialists Conference, three working groups were created to design disciplinary approaches to problem solving. This video is related to the topic "Charcot-Marie-Tooth Therapeutic practice and feedback: Challenges and specific tasks for therapists". This conference was organized in Paris in 2023 by the European CMT Federation to bring all the CMT's st...
Clinical diagnosis and treatment of CMT: Potentials of genetic analysis and engineering
Просмотров 2214 дней назад
During the 1st European Charcot-Marie-Tooth Specialists Conference, three working groups were created to design disciplinary approaches to problem solving. This video is related to the topic "Clinical diagnosis and treatment of Charcot-Marie-Tooth: Potentials of genetic analysis and engineering". This conference was organized in Paris in 2023 by the European CMT Federation to bring all the CMT'...
Bio- and medical sciences: From data (management and analysis) to therapies
Просмотров 4514 дней назад
During the 1st European Charcot-Marie-Tooth Specialists Conference, three working groups were created to design disciplinary approaches to problem solving. This video is related to the topic "Bio- and medical sciences: From data (management and analysis) to therapies". This conference was organized in Paris in 2023 by the European CMT Federation to bring all the CMT's stakeholders and promote r...
1st European CMT Specialists Conference Opening plenary
Просмотров 1721 день назад
Listen to the Opening plenary of the 1st European Charcot-Marie-Tooth Specialists Conference, led by the ECMTF President Daniel Tanesse and the vicepresident Ingolf Pernice. This conference was organized by the European CMT Federation to bring all the CMT's stakeholders and promote research.
The drug development process Govorestat and the INSPIRE clinical trial for CMT SORD
Просмотров 18621 день назад
Our speaker Dr. Perfetti, Applied Therapeutics Chief Medical Officer, will drive us through the path of a candidate drug from the lab to the patient, giving us an insight about Govorestat, which aims at being the first drug available on the market for a form of Charcot-Marie-Tooth, CMT SORD. #ECMTF #StepTogether #CMTawareness
Charcot-Marie-Tooth Chronicles: Patients, Art and Research
Просмотров 25528 дней назад
Join us for the second session of our webinar series, Charcot-Marie-Tooth Chronicles, featuring specialists and patients talking about CMT and how to handle it! This session brings together specialists, advocates, and those personally impacted by CMT to foster knowledge, resilience, and connection in the CMT community. #ECMTF #StepTogether #CMTawareness
Seriousness and Early Symptoms of CMT: A User Manual
Просмотров 368Месяц назад
Seriousness and Early Symptoms of CMT: A User Manual
Dr Bompart Camus and patient Martine Libany : diagnosing CMT
Просмотров 76Год назад
Dr Bompart Camus and patient Martine Libany : diagnosing CMT
Dr Bompart Camus and Martine Libany : about CMT and its symptoms
Просмотров 42Год назад
Dr Bompart Camus and Martine Libany : about CMT and its symptoms
Dr Bompart Camus and Mrs Libany discuss life with CMT
Просмотров 78Год назад
Dr Bompart Camus and Mrs Libany discuss life with CMT
Dr Véronnique Bompart Camus and Martine Libany : a talk about CMT's progression
Просмотров 53Год назад
Dr Véronnique Bompart Camus and Martine Libany : a talk about CMT's progression
CMT expert Nicolae Grecu : advise to healthcare professionals
Просмотров 28Год назад
CMT expert Nicolae Grecu : advise to healthcare professionals
Advising CMT patient : a Nicolae Grecu webinar
Просмотров 14Год назад
Advising CMT patient : a Nicolae Grecu webinar
CMT expert Nicolae Grecu : symptoms and more
Просмотров 29Год назад
CMT expert Nicolae Grecu : symptoms and more
Dr. Nicolae Grecu on Neuropathologies and heredity
Просмотров 64Год назад
Dr. Nicolae Grecu on Neuropathologies and heredity
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Thank you! It's great to get all the insights from the representative of a company developing the drug!
so important to know!
Vous pouvez traduire en français ?
Salut, il est très coûteux de traduire des vidéos dans chaque langue européenne, nous espérons avoir les ressources tôt ou tard
@@ecmtfeuropeancmtfederation Merci
💃 ᑭᖇOᗰOᔕᗰ