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Okay, I found my people. I'm 57 years old and have never been able to smell! My family is amazed and test me all the time. Can you smell this? Can you smell that? HaHa that's amazing that you can't. Well, now I want an official diagnosis to find out if it's all in my head! I've always wondered why I can't smell farts and lemons and all that stuff. Thanks for the fun video.

I’ve had the similar experiences ranging from lilacs to skunks, and my stinky feet in between. Thank you for sharing… and advising… very helpful!

Thank you from a fellow congenital anosmic. Great speech. We are sorely lacking support and understanding.

Thank you so much for this, Dia!

Before COVID everyone was shocked to learn it was possible to not smell. After COVID, everyone assumes I can be cured.

I allmost cried hering you speak. Thank you :)

Thanks for sharing your story! I didn't realize the difference between the acquired and congenital anosmia experience!

Thank you for sharing your experience and advocating for our community! I have never smelled either other than very strong freshly ground coffee beans if I stick my nose very close to them. It’s faint but heavenly.

I would love to try!! 😁

Это было бы так смешно если не было бы так грустно .😢

Эти люди так близко нагибаются тебе в подмышку что можно было им предложить там тебе лизнуть 😃

Я тоже врождённый аносмик, скажите это лечится ?

It’s sweet how you girls all got tattooed

I quite like durian, and jackfruit, they both taste pretty mild. I lived in Asia for years and ate rhem regularly. There are lots of establishments that have signs up not to bring them in. A lot of South Asian people love to feast on them when they're in season.

I'm also congeniality anosmic, I wondered what it would be like to try this. Thanks for clearing that one up. I've always imagined there must be the perfect money making job out there for people like us. Our talents are wasted. Haha

I'm not aloud to wash my pits or feet morthan ones a week my girlfriend love licking the musk 😢

Sei bella

I guess there's no neutral or objective perception. 😂 maybe you smell well enough. But you had bad or good luck with people smelling around you. Sincerely, this is like CVID. The whole world may say it exists and that you got it. But if you don't feel sick, then you're healthy.

I just found you on you tube !!! You're SO. Awesome !!!! I have congenital anosmia . It is awful however I've always been thankful that I can't smell farts or poop or gross stuff. Anyway just wanted to say hey and keep doin what you're doing girl

My 4 year old granddaughter can't smell because during surgery for her malignant brain tumour the nerve that allows us to smell had to be sacrificed. I am on Fifth Sense but not getting much help with what it's like for a 4 year old - her appetite and desire for food has been affected - what kinds of food taste good to a child who can still ostensibly taste sweet, sour, spicy but can't be tempted to eat much? I can't find a child's experience and I would like to understand what her world is like. And thank you for bringing your experience to the public's attention

I also have been born with congenital anosmia, my name is Austin Kline and I am interested to learn if we are related at all.

I was diagnosed at the age of 7 with congenital anosmia by a doctor having me close my eyes and putting a spoon of peanut butter under my nose. This was 1971 and probably cost my parents just a few dollars. 51 years later, his diagnosis is still 100% correct.

Your videos on anosmia have been life changing thank you!!! So much. 30 years it took me to learn the official name of my funny broken snorkle, and you helped me there legend! I’m a filmmaker and can’t stop thinking about a congenital anosmia documentary either haha side note!

This is fun...Good for you! Quick question: Do you taste food? Do you enjoy food? Keep up the good work! Peace.

They called the almond and maybe the oat 'milk' because it was a means to replace animal milk during Lent. They don't call it juice because it's not juice. It's just the stuff ground up really, really fine and left to soak in water until the powder got soft and kind of creamy. Except the coconut milk, that's a little closer to juice.

Hey lume, why are you wasting your time with paid commercials when you can pay this lady?

I've repeatedly had the conversation where someone says I'm not disabled. I remind them scent is one of the five major senses, so I'm no different than someone blind or deaf. They get real quiet after that. I don't even have to bring my neurodiversity into the conversation.

Both my grandfather and my dad are congenital anosmics, if I get my hands on some Surströmming I must try it with them

I was so excited to hear you! I do not have the ability to smell, I have never felt a smell, now that I am 32 years old, with two children and the tremendous impotence of having to adapt to a whole world every day of my life and that the medical authorities do not accept that it is a sensory disability. .. I have only been told that I am lucky not to have a sense of smell! It is a horror! I was very encouraged to see and hear you, it made me want to have a blog or account to tell my day to day and visits to the doctor to see if here in Chile my country can certify congenital anosmia as a permanent sensory disability. I send you lots of hugs from Latin America! and Thank you for uploading these experiences in videos.

Totally free from shingles/anosmia with doctor iyaremoses on RUclips herbal medication.

it’s crazy how you get so many people to smell yours. They just smell good 🤷🏼‍♀️😂. Part 3 ?

I have no memory of ever having a sense of smell, I'm aged 59 and I've never missed it once. How could I miss what ''ve no experience of, great vid bye the way. I never knew having no smell has a name.

This really hits home close. As a congenital anosmic, I had been in a fire and exposed to an overnight gas leak. I was so close to lose my life in both situations. When I finally saw the smoke coming in to my unit, it was already too late. I was lucky that the design/layout of the apartment let me escape the apartment from the other end. My unit was engulfed by the smoke in a matter of seconds. I was the last one escaping from the apartment complex. In another occasion, were not my roommate who rushed in warning me that he smelled very strong gas leaking, I would have had turned on the fan. In another occasion, my roommate run into the kitchen, telling me that her food was burning. I literally sit inside the kitchen without knowing what had happened. Who said smell isn't key to human's safety and survival?

I love this & you are an anosmic *badass!* Thank you for bringing this to the forefront… about being seen, about differences, about anosmia… my 17 yo son became anosmic at age 12… it is so very misunderstood. It just goes to show me how different each person’s perceptions and realities are in this world… and we need to work to not dismiss nor diminish those❤️ I enjoy your Instagram posts & RUclips videos- keep it going❤️❤️

So sweet

2:09 LOL! His Face!

Thank you! I have always had invisible disabilities and found ways to overcome them but after Covid I still can’t smell, taste & am dealing with GBS and am going through physical therapy. It makes me want to be an advocate because so many people ignore or write off the disability they cannot see. I experienced it first hand in the ER when I was starting to show signs of paralysis but was told it was a panic attack.

Let's Fly Dia!!!

Hi Dia! Of course as my friend, you know I have congenital anosmia too. Glad for your videos!!! You always put a smile on my face :)

LOL DIA! Congenital anosmics unite! Can't believe your guy took surstromming so well!

Loll😂😂 do another part 2 ?👀

Muahaha, as a congenital anosmic, I believe I will totally have the same reactions as you did in this video. Actually I did that with durian, while all of my friends went 10 feet away from me.

This is hilarious, your personality is A+. I'm a lifelong anosmic, but not congenital like you. Unfortunately, as a newborn baby, I was exposed to intensive second hand smoke in a small NYC apartment up until around 6 years of my life. This destroyed my olfactory nerves. It really does affect our lives. We suffer from depression more than other people do. And god forbid the dread in social situations.. worrying about body odor or something else! Do you equate hot ambient temperature with possible body odor, and cold = okay body odor? Ahh, how mistaken that has turned out to be.

I too have CA and so beyond thankful that all three of my children do not have it!

I just listened to your interview on CPR. It was so interesting! I just HAVE to know, did you put a smoke alarm in your kitchen after the incident with your cat warning you something was on fire?

Love this! Great job Dia...and Mark! :)

Dia, did you make that shirt ? Do you sell them??? I want!

"When did you discover you aren't normal?" lol Maybe the person who discovered Durian was anosmic. Maybe anosmics are responsible for discovering a lot of things from which we all benefit. Disability or ability: it's all a matter of perspective!

I wish I could get an mri of my brain. I have congenital anosmia as well as other issues that I would love to see if were caused by structural issues. Insurance says no because it won’t lead to treatment

Love the analogy to the crayons for the taste/smell thing. Went to a doctor once for something unrelated. She has an intern sitting in. I mentioned that I had no sense of smell. She immediately used the teaching moment to inform the intern “that means he can’t taste”!!! I said NO. Wrong. I almost yelled it. Frustrating how doctors have no sense of sense of smell. Once asked a different doctor about it and he looked in my nose and said, “huh...”. I said “huh, what???” No answer.