Видео

All that and now there going to stop pip what a joke

Agreed uhm most days I go lite on my meds but afew times of the month I have to cheat and take extra. I worry when the day comes that it doesn't work as I have heard, not sure if it is true. But thanks for the video!

Ive heard of this.

Im in australia and have PD this last summer nearly killed me, im either too hot or too cold. It suks balls. Thanks for ur videos.

Reading the comments on here breaks my heart. It saddens me to see those that really qualify for pip are refused it yet a drug user I know qualified last week.

Appeal and fight it what they do is so wrong.I wish you good luck.

I have thought that myself many times over the years 😕

Spot on... everything you post spookily applies to me!!! Amongst many others I am sure...

Being an Aussie I have no idea what pip is

Disgusting.i went to tribunel for my condition.ask how many potatoes can i peal.took the piss out of me.take care ❤

I have got MS for 34 years now. I was on high rate care and mobility DLA for many years,then PIP came along and i had to apply for it,as soon as the assessor walked through my door i knew i would loose my high rate award. She tripped me up on all questions,confusing me and stressing me such a lot,she was awful.I got her report she had done a week later and it was lies all the way. She even lied about a walk test,she said i had refused to do one,when in-fact she had said to me 'i can see you don't look well so i will not ask you to walk for me!!!!! I was awarded standard rate mobility from high rate,so i lost my mobility car,and i lost my high rate care,that was lowered to standard care. I was too ill to fight for it back at the time so did not bother .My award has just been up for renewal in January this yr and i knew it was going to be a phone assessment so i was prepared and i told them i wanted them to record it,they said ok but my assessment would be delayed until they got an assessor that agreed to it being recorded,some dont and we all know why 😏. The assessor i got this time was the nicest person,very fair and it was not half as bad as the last assessment i had.I put the phone down after 90 minutes feeling like she was very fair and hoped i was right. Within 2 days i got 2 copies of the recorded assessment and also the printed report and i worked out with my points i should have enhanced rate on both care and mobility,wihin a week i got the letter saying this was the case and my award was a 10 year award too. I cried with relief,only to be told like the rest of us that we might loose it with the changes coming. So my tip is if you have a phone assessment ring them and arrange to have them record it,they have to agree to it. i also recorded it myself too just incase.I do think if you have it recorded you have a better chance of getting an honest assessor.

@QALibrary is correct, it will only be when government penalises companies for irrational decisions that the system will get some balance, they even fail MND sufferers! (Diagnosed at 53 4 years ago and I too am scared to apply)

Madness. I have yet to tackle this madness ....

The company that runs assessment PIP for the government get paid more the more times they turn down PIP to people. Thus one reason why there is an appeal win rate of 78% with the DWP for many results.

Are you a builder,ie own company. We are next door to the Suspensión Bridge in the West Country . Four flights of stairs. Need to get gone. I am so glad I had my children when I was young. But its not fair to make them beholden to me. There is no way that I would go into the care system and I wouldn’t advise anyone in their right mind to do so. The abuse is horrific

I hope you don’t mind me asking. How long have you been living with Parkinson’s? Does the disease run in your family? If you didn’t have dependants and it all std getting a bit uncomfortable and difficult to bare. Please, how would you end your life ? Thank You

Fair play to you mate I have had parkinsons 12 years now been to embarrass to ask for help DONT even know where to look when I was discovered I had it my wife kicked me out We had two children I have them every weekend and all holidays now there getting older but I’m slowing down can’t walk with stomach cramps doctors and parkinsons nurses are a waste of time what advice would you give on seeking help

I often look like I am waving at people

Brother if that isn't the truth. PD and PTSD have my by the short hairs! Please respond if you find anything that helps, no meds please

You are so spot on to the exact description of what I go through everyday. I have YOPD and I am one year into this horror of a disease. I have a wonderful husband whom is my best friend,my amazing support system. I feel sad a lot because my disease hold him in a constant battle on how he can help me feel better. Parkinson’s is so complex the is never any consistency.

So true Carl.. last few days I've been feeling great.. no idea why? Who knows what each day will bring!! Complex is 100% right..

Spot on.

Totally get it carl,have commented before about my mum who i care for full time,14 years and its a bugger of a disease, nightmare fir the sufferer,love your videos mate and keep fighting the good fight,i totally feel for you mate,be strong brother👍

I think it’s hard to except I have had parkinsons twelve years now I sit in the chair sometimes can’t move nothing I stay calm until I can move I don’t have any carers I do everything my self some how life is all good

Hi sorry to bother you, I applied for pip in march had my phone call 2nd may, had a txt on 3rd may saying my assessment is with the assessor and then a txt on the 20th saying the still haven't made a decision, so I requested my assessment phone call letter and at the back page it says based on the claimant's likely future circumstances it would be appropriate to review the claim in 2 years what does that mean? Thank you

It is a very complex disease, there are several symptoms that bring you many Symptoms blessings

Hey 👋 Bazz here I’ll be praying for you every day bro - Bendigo what a great night

Definitely helpful! I use trekking poles when hiking or walking it help tremendously and also improves arm swinging

Have you tried 2 sticks Nordic style works for me buddy

I don’t understand…I have complete autonomy to take my meds however I wish. My MDS says “whatever works”.

Appeal the decision

Brilliant. I doubt there is enough demand for product development, though, because we’re a relatively small slice of Parkinson’s pie.

I had the same problem as you initially. The Parkinson's medicine wouldn't work when I ate protein even after several hours. I now eat all the protein I want including eggs, chicken, and beef. The trick is to not eat any protein during the day. I wait until late in the evening until one or two hours after my last dose of levocarb. This gives my brain a chance to absorb all the medicine. The protein doesn't stop the medication from working when taken this way.

100% more heavily you work, not physical but mental. Does not work. My job, required using my daily meds all in 8 hours. To perform or else not able.

Thanks for bringing this up. It is fact for me. I no longer work but anything more than my normal routine seems to shorten the efficacy of my normal meds.

I have Adhd and mental health issues ,but i got turnt down twice.People said it was probably because your an unpaid carer and they think if you care for someone else you must be able to care for yourself ,its not that simple .They dont understand or care .i feel like were just a number to them .

I hope you win on appeal sweetheart. My heart aches for everyone who is suffering because of this tory party doctrine. They are kicking people who have enough crap to contend with because of their illness, its truly evil. Good luck with your appeal ❤

I got awarded standard rate two years ago but i did a change of circumstances as my condition worsened. I sent it in on Tuesday this week. Next day they sent a text saying they have received it . Day after they texted again saying a decision has been made i will be sent a letter in two weeks. I haven't even had an assessment. Worried to say the least 😢.

Sorry to hear brother its such a ball ache to get PIp sorted. Hope you can get a better decision 👍

Gotta cut our benefits to pay for our visitors.

it’s disgusting yet they pay for people who are obese which is there own fault or alcoholism it’s shocking you have s medical disease through no fault of your own i hope the assessors go through something similar do they no what it’s like x they make me sick x

Thank you Carl. You have been such a positive help to me. Love your attitude and approach to PD. Keep up the good work. One day at a time.

Just helping there friend rishi hope you shame pip people

Always appeal and always get someone to take you to the assessment

They disgust me....that's all I can say....

You have to appeal.My father who had a stroke,partially sighted and can hardly walk had it taken away.He attended at court and won.

Riotogine ? Better than Roperol? i

When you started to read your reply from them I thought you had a copy of mine sounded very very close to what they replied to me .....copy and paste .....hmm I wonder

I would never think of that 🤗🏴󠁧󠁢󠁷󠁬󠁳󠁿🫶

Hi Carl first time here have subscribed they have made it so hard for people to get benefits im on pip disability and esa people think we get a lot but its only enough to survive 🤗🫶🏴󠁧󠁢󠁷󠁬󠁳󠁿