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Salivary Gland Cancer UK
Великобритания
Добавлен 24 ноя 2018
Salivary Gland Cancer UK is a charity for those with rare salivary gland cancers such as adenoid cystic carcinoma.
Our aim? To build an information and support network for people affected by, or treating, these conditions.
We organise regular networking meetings in the UK for patients, caregivers, clinicians and researchers.
We give you opportunities to input into ground-breaking research projects.
We’re working to improve access to the newest therapies.
We support all salivary gland cancers.
We’re focused on patients and clinicians working together to drive research and increase knowledge.
So why not join our network? Visit our website for more details.
Our aim? To build an information and support network for people affected by, or treating, these conditions.
We organise regular networking meetings in the UK for patients, caregivers, clinicians and researchers.
We give you opportunities to input into ground-breaking research projects.
We’re working to improve access to the newest therapies.
We support all salivary gland cancers.
We’re focused on patients and clinicians working together to drive research and increase knowledge.
So why not join our network? Visit our website for more details.
Tips On Communicating With An Electrolarynx With Jim | Salivary Gland Cancer UK
Jim talks about using an electrolarynx and shares some valuable communication tips for new electrolarynx patients.
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Salivary Gland Cancer UK is a charity for those with rare salivary gland cancers such as adenoid cystic carcinoma.
Our aim? To build an information and support network for people affected by, or treating, these conditions.
We organise regular networking meetings in the UK for patients, caregivers, clinicians and researchers.
We give you opportunities to input into ground-breaking research projects.
We’re working to improve access to the newest therapies.
We support all salivary gland cancers.
We’re focuse...
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Salivary Gland Cancer UK is a charity for those with rare salivary gland cancers such as adenoid cystic carcinoma.
Our aim? To build an information and support network for people affected by, or treating, these conditions.
We organise regular networking meetings in the UK for patients, caregivers, clinicians and researchers.
We give you opportunities to input into ground-breaking research projects.
We’re working to improve access to the newest therapies.
We support all salivary gland cancers.
We’re focuse...
Просмотров: 106
Видео
Improving The Quality Of Life For Salivary Gland Cancer Patients With Joseph Haigh | SGCUK
Просмотров 1744 месяца назад
Joseph Haigh talks to us about his role at the Christie Hospital in Manchester as a researcher for salivary gland cancer, what it involves, and what motivates him to contribute to this area of research. Salivary Gland Cancer UK is a charity for those with rare salivary gland cancers such as adenoid cystic carcinoma. Our aim? To build an information and support network for people affected by, or...
How Does Maggie's Support Cancer Patients? With Lucy Canning | Salivary Gland Cancer UK
Просмотров 3894 месяца назад
Lucy Canning, cancer support specialist, talks to us about her work at the Maggie’s in Manchester. Maggie's is a UK wide charity providing cancer care and support. www.maggies.org/ Salivary Gland Cancer UK is a charity for those with rare salivary gland cancers such as adenoid cystic carcinoma. Our aim? To build an information and support network for people affected by, or treating, these condi...
Karen's Story | The Experience Of Salivary Gland Cancer - SGC UK
Просмотров 6124 месяца назад
Karen shares her experience of salivary gland cancer diagnosis, how her relationship with food has completely changed, and what she thought of the latest SGCUK gathering. Salivary Gland Cancer UK is a charity for those with rare salivary gland cancers such as adenoid cystic carcinoma. Our aim? To build an information and support network for people affected by, or treating, these conditions. We ...
Jim's Story | The Experience Of Salivary Gland Cancer - SGC UK
Просмотров 1274 месяца назад
Jim talks about his diagnosis of ACC, why he is using an electrolarynx and his most recent SABR treatment. Salivary Gland Cancer UK is a charity for those with rare salivary gland cancers such as adenoid cystic carcinoma. Our aim? To build an information and support network for people affected by, or treating, these conditions. We organise regular networking meetings in the UK for patients, car...
SGC UK Gathering March 2024 Highlights | Salivary Gland Cancer UK
Просмотров 2385 месяцев назад
Here are some highlights from our gathering in Manchester in March 2024. Salivary Gland Cancer UK is a charity for those with rare salivary gland cancers such as adenoid cystic carcinoma. Our aim? To build an information and support network for people affected by, or treating, these conditions. We organise regular networking meetings in the UK for patients, caregivers, clinicians and researcher...
Whole Genome Sequencing With Dr Matt Church For Salivary Gland Cancer UK | March 2024 Gathering
Просмотров 905 месяцев назад
Dr Matt Church gives a talk on cancer genomics; whole genome sequencing, for our gathering in March 2024. Salivary Gland Cancer UK is a charity for those with rare salivary gland cancers such as adenoid cystic carcinoma. Our aim? To build an information and support network for people affected by, or treating, these conditions. We organise regular networking meetings in the UK for patients, care...
Acinic Cell Carcinoma With Dr Rob Metcalf For Salivary Gland Cancer UK Charity | SGCUK
Просмотров 7575 месяцев назад
Dr Rob Metcalf provides a webinar on acinic cell carcinoma in February 2024 for Salivary Gland Cancer UK. Salivary Gland Cancer UK is a charity for those with rare salivary gland cancers such as adenoid cystic carcinoma. Our aim? To build an information and support network for people affected by, or treating, these conditions. We organise regular networking meetings in the UK for patients, care...
Genomics And Salivary Gland Cancers With Dr Rob Metcalf From The Christie In Manchester | SGCUK
Просмотров 1185 месяцев назад
Dr Rob Metcalf, from the Christie hospital in Manchester, gives a talk about genomics and how it relates to salivary gland cancers during our March 2024 event in Manchester. Salivary Gland Cancer UK is a charity for those with rare salivary gland cancers such as adenoid cystic carcinoma. Our aim? To build an information and support network for people affected by, or treating, these conditions. ...
Supportive Oncology Care With Emma Hallam For The Salivary Gland Cancer UK Event In March 2024
Просмотров 405 месяцев назад
Emma Hallam provides a talk on ‘Supportive Oncology Care’ for the Salivary Gland Cancer UK gathering in March 2024. Salivary Gland Cancer UK is a charity for those with rare salivary gland cancers such as adenoid cystic carcinoma. Our aim? To build an information and support network for people affected by, or treating, these conditions. We organise regular networking meetings in the UK for pati...
Living With And Beyond Cancer With Lucy Canning From Maggie's Cancer Charity | Salivary Gland Cancer
Просмотров 815 месяцев назад
Lucy Canning, cancer support specialist, gives a talk called 'Living with and beyond cancer' at our gathering in Manchester during March of 2024. Lucy talks to us about her work at the Maggie’s in Manchester. Maggie's is a UK wide charity providing cancer care and support. www.maggies.org/ Salivary Gland Cancer UK is a charity for those with rare salivary gland cancers such as adenoid cystic ca...
Rare Disease Day 2023 Salivary Gland Cancer UK Presentation To The University Of Buffalo
Просмотров 4219 месяцев назад
In this presentation to Jacobs School of Medicine and Biomedical Sciences, University of Buffalo, Emma Kinloch from Salivary Gland Cancer UK talks about salivary gland cancer for Rare Disease Day 2023. Salivary Gland Cancer UK is a charity for those with rare salivary gland cancers such as adenoid cystic carcinoma. Our aim? To build an information and support network for people affected by, or ...
Alex's Story | The Experience Of Salivary Gland Cancer - SGC UK
Просмотров 1,2 тыс.9 месяцев назад
In this short video Alex talks about her diagnosis with ACC after 'honking like a goose', her treatment and how motherhood and salivary gland cancer have shaped her views on life. Salivary Gland Cancer UK is a charity for those with rare salivary gland cancers such as adenoid cystic carcinoma. Our aim? To build an information and support network for people affected by, or treating, these condit...
Tips For Salivary Gland Cancer Patients Living With Radiotherapy Late Effects
Просмотров 3299 месяцев назад
Emma Hallam shares some tips for head and neck cancer patients living with radiotherapy late effects. Salivary Gland Cancer UK is a charity for those with rare salivary gland cancers such as adenoid cystic carcinoma. Our aim? To build an information and support network for people affected by, or treating, these conditions. We organise regular networking meetings in the UK for patients, caregive...
What Is Radiation Induced Fibrosis? And How To Reduce Its Effects With Emma Hallam
Просмотров 2049 месяцев назад
Emma Hallam discusses radiation induced fibrosis. Salivary Gland Cancer UK is a charity for those with rare salivary gland cancers such as adenoid cystic carcinoma. Our aim? To build an information and support network for people affected by, or treating, these conditions. We organise regular networking meetings in the UK for patients, caregivers, clinicians and researchers. We give you opportun...
Oral Hygienist Mouthcare Tips For Head And Neck Cancer Patients For Salivary Gland Cancer UK
Просмотров 1079 месяцев назад
Oral Hygienist Mouthcare Tips For Head And Neck Cancer Patients For Salivary Gland Cancer UK
Mattias Andersson talks about the MYB gene For SGCUK
Просмотров 1069 месяцев назад
Mattias Andersson talks about the MYB gene For SGCUK
SGCUK October 2023 Gathering Highlights
Просмотров 1379 месяцев назад
SGCUK October 2023 Gathering Highlights
Oral Hygienist Tips For Hygienists Treating Salivary Gland Cancer Patients for SGC-UK
Просмотров 499 месяцев назад
Oral Hygienist Tips For Hygienists Treating Salivary Gland Cancer Patients for SGC-UK
Radiotherapy Late Effects With Emma Hallam For Salivary Gland Cancer UK
Просмотров 1259 месяцев назад
Radiotherapy Late Effects With Emma Hallam For Salivary Gland Cancer UK
The Late Effects Of Radiotherapy Treatment With Emma Hallam For SGCUK
Просмотров 28110 месяцев назад
The Late Effects Of Radiotherapy Treatment With Emma Hallam For SGCUK
Clinical And Molecular Significance Of MYB And 1p/6q Rearrangements In Adenoid Cystic Carcinoma
Просмотров 24110 месяцев назад
Clinical And Molecular Significance Of MYB And 1p/6q Rearrangements In Adenoid Cystic Carcinoma
Oral Hygiene After Salivary Gland Cancer Treatments With Frances Robinson For SGCUK
Просмотров 30410 месяцев назад
Oral Hygiene After Salivary Gland Cancer Treatments With Frances Robinson For SGCUK
How To Support Someone With Salivary Gland Cancer With Dawn | SGC UK
Просмотров 212Год назад
How To Support Someone With Salivary Gland Cancer With Dawn | SGC UK
Where Do Tumour Samples For Genetic Profiling Come From For Salivary Gland Cancer? | SGC UK
Просмотров 62Год назад
Where Do Tumour Samples For Genetic Profiling Come From For Salivary Gland Cancer? | SGC UK
How Does The Salivary Gland Cancer Research Team Help Patients? | SGC UK
Просмотров 73Год назад
How Does The Salivary Gland Cancer Research Team Help Patients? | SGC UK
Research Into MEC And Adenoid Cystic Carcinoma ('ACC') With Dr Vivian Petersen Wagner | SGC UK
Просмотров 275Год назад
Research Into MEC And Adenoid Cystic Carcinoma ('ACC') With Dr Vivian Petersen Wagner | SGC UK
What Are The Main Treatments For Salivary Gland Cancer? With Dr Rob Metcalf | SGC UK
Просмотров 226Год назад
What Are The Main Treatments For Salivary Gland Cancer? With Dr Rob Metcalf | SGC UK
Tips For Radiotherapy Treatment With Dawn | SGC UK
Просмотров 135Год назад
Tips For Radiotherapy Treatment With Dawn | SGC UK
Dawn's Story | The Experience Of Salivary Gland Cancer - SGC UK
Просмотров 1,7 тыс.Год назад
Dawn's Story | The Experience Of Salivary Gland Cancer - SGC UK
Thank you for your kindness in sharing your experience
My Pain Is On My Left side submandibular gland I'm Seeing An ENT Then Getting A MRI. Hopefully it's not cancer.
❤ all the best to you ty for sharing
Recently diagnosed, nice to hear your story 😊 thank you for sharing.
Thank you for supporting our channel. Best wishes.
Thank you . I wish I had the chance to see this video in 2022 when I was first diagnosed . It would have greatly helped me .
We're really glad to hear it was helpful. We hope that our videos support SGC patients, carers, clinicians and researchers alike. Thanks for supporting our channel.
We pray for ur good health.May the creator give u full recovery soon
Thanks for your support.
God bless sir
Thanks for your support.
Brave 👩🏻 woman x
Thanks for supporting our channel.
I love how you bravely talk with positivity. I’m diagnosed with MUCOEPIDERMOID carcinoma and had a couple of surgeries and soon will start my Proton therapy in UK. How can I be part of the community?
Hello, we hope you find support by being a part of our community. You're able to join our network on the SGC-UK website here: www.salivaryglandcancer.uk/get-involved/join-our-network/
You also might like to know that we are having our next gathering on Sat Oct 19th in London, UK and online. Our gatherings are attended by patients and their caregivers, as well as treating clinicians and those doing research into SGC's. It would be great to have you join us. Details are on the website www.salivaryglandcancer.uk/get-involved/our-events/.
@@SGCancerUK sure. That will be great. Will check the website and looking forward to virtually meeting everyone. Thank you for notifying me.
I had this cancer when I was a kid. I had the tumor for 7 years before having it removed thinking it was just a growth. The odd thing at the time was the tumor grew behind my ear. I had my surgery done at Sloan Kettering. I never had any reacurrance and it will be 40 years in October. Hope this helps someone.😊
Thank you so much for sharing your experience
whats d symptoms?
I have this cancer and had 35 radiations 5 years ago. Then I had brain surgery last year because of radiation damage.
I live just north of Atlanta too and have just finished treatment for ACC. I’m binge watching these videos.
4:22 I, too, live north of Atlanta and am at Emory Winship for treatment. I search for all of this type of information
So glad to read the stories are helpful to you
My aunt has salivary gland cancer but I don't know which type - removed asap and fastly recognized. Year later metastases to lungs ---> chemotherapy + few radiation lights. Results and her feeling were good. Then... just 3 months later --- small netastases in the head... She had 2 weeks + 2 days of radiotheraphy in Febuary (except weekends). Then she felt soooo weak and had huge headaches and ... nobody knows how much these headaches came from cancer and how many from side effects after radiotherapy. Results from April after treatment --- it stopped and smaller dissapeared. But she's so stressed, so scared. She have some little lacks in memory, or not, rather she have to think slower then she used to? She doesn't want to read not to make her brain tired or not to strain it. We're all afraid. Only 2 months and now she needs help almost 24h/7. Like she can walk but she's really weak. She was in hospital amost the whole month between March and April now it's a little bit better but ... nobody knows what's gonna happen ... I live in neighbour country, so we havent see each other for a while. She's 69 with no other illnesses, among other health problems just "hypopigmentation". Generally healthy person, looks young as for her age, was always eating healthy and as she get retired she kept moving, going to sport, yoga etc. never had obesity etc. She's living not in city, in the village. I wanted to see some head metastases survivors but of this cancer it's so hard to find any videos
You don’t look 40ish at all!
Thank you for sharing your story ❤
Thanks for watching!
I have acc
I do too - I hope you are doing well.
@@Joel_Powell I had 35 radiations 5 years ago then brain surgery because of radiation damage. Please tell me how you are doing. I am here for you
@@Rockstar69000 I had surgery on my trachea (primary site) in Jan 2022 - I had radiation on my chest for about 3 months that year. Later in 2022 it showed metastasis in the lungs. I found a doctor fortunately in my area that was the lead on a study of a drug trial (Vorinostat). I met with him. My largest lesions before starting in my lungs were about 6-8mm. After taking Vorinostat for 18 or so months, my latest CTs only show very small areas < 3mm - almost too small to see. The oral chemo is tough on the body, but the results seem promising. My doctor has a patient that went this route (with much larger tumors) and she no longer has any sign of ACC. I feel great - I am 66 - I still work every day and stay active in many other ways. Thanks for checking in - it's hang in together!
I m so happy you are blessed with your baby boy. Great story. I wish there was more information given about the proton therapy. If anyone can help with more details pls I will be grateful
Thanks for your comment @ameenacrafts2249. We've noted your request re more proton therapy specific information. We always like to know what our followers need/want so we can add it into our planning. We will make sure we address this.
Wow this is good.
Really glad that you found the video helpful. Thank you so much for supporting our channel - it's really appreciated.
What are the dental recommendations with those who are affected by head and neck lymphedema? Will the numbing medicine injure the lymphatic system?
As Lymphedema of the head and neck can contribute to difficulty swallowing, breathing, or moving the head and neck - when seeking dental treatment, it would be best to discuss any difficulties or preferences with your provider prior to appointments. Providers can then tailor their treatment journey, for example, more time for regular breaks, less water, more suction etc. In terms of keeping the mouth healthy when affected by Lymphedema - that is quite a big question and one that is quite tricky to answer on a post reply as it would very much depend on the patients' individual presentation and clinical needs. On a general level the recommendations would be: fluoride toothpaste with an electric tooth brush (if possible - or small manual), maybe non foaming toothpaste and lean over sink to avoid swallowing or use a suction brush. Use a very small brush like a single tufted brush to get to areas that are tricky to get to. Mouth wash at another time to brushing to keep tissues moist and fluoride levels high. Assuming that "numbing medicine" is local anaesthetic? If so, it is injected into the nerves and not the lymphatic system so should not be a problem but again, best to discuss with the provider as there maybe the potential for other issues to come into play here. We hope this helps.