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FND Awareness Day 25th March - Official
Добавлен 6 фев 2020
FND Awareness Day UK, held on the 25th March, was started in 2017. 2020 marks the first Awareness Day to have collective voices from FND charities around the globe. From the UK to Australia, we are united voices across oceans and borders in raising our #Voices4FND
Functional Neurological Disorder (FND) encompasses neurological disorders that affect the motor, movement and sensory functions of the body. They are commonly diagnosed in Neurology clinics, and present with symptoms such as seizures, paralysis, tremors, limb weakness and walking difficulties. With appropriate care and treatment, recovery levels are possible. However, due to ongoing misconceptions and lack of services, many people are left to fend for themselves and/or deteriorate.
This channel will be used to show the #Voices4FND
Hosted by UK charities FND Action, FND Dimensions and FND Friends & Australian charity FND Australia Support Services
Functional Neurological Disorder (FND) encompasses neurological disorders that affect the motor, movement and sensory functions of the body. They are commonly diagnosed in Neurology clinics, and present with symptoms such as seizures, paralysis, tremors, limb weakness and walking difficulties. With appropriate care and treatment, recovery levels are possible. However, due to ongoing misconceptions and lack of services, many people are left to fend for themselves and/or deteriorate.
This channel will be used to show the #Voices4FND
Hosted by UK charities FND Action, FND Dimensions and FND Friends & Australian charity FND Australia Support Services
Видео
Functional Neurological Disorder - An almost hidden illness
Просмотров 6474 года назад
[Silent film] Hi! My names Helen, I am a photographer with Functional Neurological Disorder (FND). My own main symptom is functional ticks. This is alongside chronic fatigue, chronic pain and various cognitive problems such as brain fog and word-drops etc. For as long as I remember, I’ve had some symptoms but thought they were completely normal. My ticks, however, started in August 2018. I trie...
FND - The Bigger Picture | Interview with Professor Jon Stone
Просмотров 4414 года назад
Steve Webster from FND Dimensions, interviewing Professor Jon Stone
Clare Nicholson - Occupational Therapy and FND
Просмотров 4204 года назад
Clare Nicholson - Occupational Therapy and FND
Professor Glenn Nielson discusses Physio4FMD
Просмотров 674 года назад
Professor Glenn Nielson discusses Physio4FMD
Patient and carer Experiences of FND in Australia
Просмотров 314 года назад
Patient and carer Experiences of FND in Australia LIved Experience Research Study 2019
Welcome to the UK and Aus Awareness Day 2020
Просмотров 184 года назад
Welcome to the UK and Aus Awareness Day 2020
FND Awareness Day UK - 25th March 2020 | 3 Myths | FND Action
Просмотров 7594 года назад
3 myths and facts relating to Functional Neurological Disorders #Voices4FND Production: Conor Kerrigan, Kim Hearne Soundtrack: Chris Zabriskie, chriszabriskie.com/
Helpful
Thank you for this video. I can totally relate to everything you are saying. I was diagnosed with FND four years ago but it took me eight years to get that! Getting stressed out is a major trigger for my NEAD and it is truly terrifying. I wish you all the very best.
🤔25th of march?🤨☝️#IDC.🤷♀️I'll keep you all in my 🙏prayers💖.#Every Day.😉⚡👍😎-me.
Was the statement "treatment is always available" one of the myths? It's near non existent. Also it's wierd that a video on FND has such hideous and constant background noise capable of triggering a reaction for those with FND!
My 'follow up care plan' was being directed to a website for information. So basically put, we are on our own!
I have Fibromyalgia and FND and I totally get this video. Thanks for helping to raise awareness.
Thank you for sharing your story and helping to raise awareness.
Thanks for this video and excellent description of what exactly neuropsychiatry involves. Here in Ontario, Canada it is appalling from my experience as an FND patient how neurologists have no interest in FND and simply don't want to follow us. I will say I've had conversations by email with Dr. Sarah Lidstone from University Health Network in Toronto who has an interest in this condition and is making inroads getting the message out to neurologists and psychiatrists and medical students to take more of an interest in this condition in Canada and particularly in the province of Ontario.
Excellent information and thanks for sharing your experience Sarah. I have some of your symptoms and others and have been diagnosed with FND but as you say, it's a heterogenous condition and presentation and yes, with more research hopefully more answers will be the result.