Видео 27
Просмотров 6 365

0:13

Massage and flexibility - EDS UNPLUGGED

2:26

Intimacy with a chronic condition.

2:44

Dating! When do you tell your date about your health?

3:16

Sleep! Do you ever have a good one??

6:33

EDS Unplugged Ergonomic Aid

3:08

Mindset Edition - 30 Day Chronic Health Journal

Hey Zebras and Co.
After living with chronic illnesses for most of our lives, we both know how important our mindset is to our survival.
That’s why we’ve created this journal, which we hope will encourage and empower you. More information at Linktr.ee/EDS_unplugged
Purchase directly here : www.paypal.com/instantcommerce/checkout/WFQK7GTZ5ZQSE
Have a wonderful day 🧡
#EDSAwarenessMonth
#EDS #chronicpain #chronicillness #chronicillnessjournal #spoonie #spooniesupport #zebra #edszebra #zebras
#ehlersdanlossyndrome #hsd #chronichealthjournal #30daychronichealthjournal
#mindsetedition #mindset
#EDSunplugged
#BrokenButOK #BrOKen

Видео

0:13

The 30 Day Chronic Health Journal

Просмотров 126 месяцев назад

Linktr.ee/eds_plugged #EDSawarenessmonth

2:26

Massage and flexibility - EDS UNPLUGGED

Просмотров 1112 года назад

Massage and flexibility. Having a chronic condition can affect all areas of your life. EDSUNPLUGGED are sharing tips which they have found helps them. Purchase our book at: BrOKen book via Amazon amzn.eu/d/58nd9ye #BrOKen #BrOKenButOK Press coverage: www.voice-online.co.uk/entertainment/books/2020/06/02/authors-unite-to-prove-they-are-not-broken-after-fight-with-eds/ #EDS #EhlersDanlos #EDSIII ...

2:44

Intimacy with a chronic condition.

Просмотров 842 года назад

Intimacy. Having a chronic condition can affect all areas of your life. Intimacy can be effect by this. EDSUNPLUGGED are sharing tips which they have found helps them. Purchase our book at: BrOKen book via Amazon amzn.eu/d/58nd9ye #BrOKen #BrOKenButOK Press coverage: www.voice-online.co.uk/entertainment/books/2020/06/02/authors-unite-to-prove-they-are-not-broken-after-fight-with-eds/ #EDS #Ehle...

Dating! When do you tell your date about your health?

3:16

Dating! When do you tell your date about your health?

Просмотров 3202 года назад

Dating with a chronic illness... When do you tell them about your health? When is the right time? Is there a time limit? Cassandra and Marcia talk their truth and reality on their dating experiences. Purchase our book at: BrOKen book via Amazon amzn.eu/d/58nd9ye #BrOKen #BrOKenButOK Press coverage: www.voice-online.co.uk/entertainment/books/2020/06/02/authors-unite-to-prove-they-are-not-broken-...

6:33

Sleep! Do you ever have a good one??

Просмотров 483 года назад

EDS, chronic pain and sleep! What challenges do you have getting a good night's sleep? In this episode Cassandra and Marcia discuss challenges and solutions. What works for you? Purchase our book at: BrOKen book via Amazon amzn.eu/d/58nd9ye #BrOKen #BrOKenButOK Press coverage: www.voice-online.co.uk/entertainment/books/2020/06/02/authors-unite-to-prove-they-are-not-broken-after-fight-with-eds/ ...

3:08

EDS Unplugged Ergonomic Aid

Просмотров 553 года назад

Everyday tasks can be really challenging when you live with #chronicpain and #loosejoints In this episode, Cassandra and Marcia share their experiences of using ergonomic aids and which ones they'd like to try. In support of EDS awareness, Cassandra A Campbell and Marcia Brock have come together to share how they cope with hEDS - Hypermobile Ehlers Danlos Syndrome and other chronic conditions. ...

3:42

Shopping with an invisible disability

Просмотров 553 года назад

In this episode Marcia shares one of many experiences of the challenges of going shopping and not "looking disabled". In support of EDS awareness, Cassandra A Campbell and Marcia Brock have come together to share how they cope with hEDS - Hypermobile Ehlers Danlos Syndrome and other chronic conditions. Purchase our book at: BrOKen book via Amazon amzn.eu/d/58nd9ye #BrOKen #BrOKenButOK Press cov...

Socialising with an invisible disability

3:52

Socialising with an invisible disability

Просмотров 503 года назад

Socialising with people can be really challenging when you have a #invisibledisability especially among strangers. In this episode Cassandra shares one of many experiences of how oblivious people can be about what physical difficulties someone else may have. In support of EDS awareness, Cassandra A Campbell and Marcia Brock have come together to share how they cope with hEDS - Hypermobile Ehler...

1:32

Sunflower Lanyards

Просмотров 693 года назад

Invisible disabilities don't get anywhere near enough exposure and it's a big part of what prompted us to write our book BrOKen. However, some supermarkets are on board with enlightening their customers and we discuss it in this video. In support of EDS awareness, Cassandra A Campbell and Marcia Brock have come together to share how they cope with living with hEDS - hypermobile Ehlers Danlos Sy...

7:44

EDS Toolkit review

Просмотров 1234 года назад

Review feed back for The EDS ToolKit - www.rcgp.org.uk/clinical-and-research/resources/toolkits/ehlers-danlos-syndromes-toolkit.aspx Purchase our book at: BrOKen book via Amazon amzn.eu/d/58nd9ye #BrOKen #BrOKenButOK Press coverage: www.voice-online.co.uk/entertainment/books/2020/06/02/authors-unite-to-prove-they-are-not-broken-after-fight-with-eds/ www.Linktr.ee/EDS_unplugged EDS_u...

1:03:44

BrOKen the launch

Просмотров 3594 года назад

Check out the replay of our book launch, with special guests Professor Ian Chikanza (Hypermobility and Rheumatology specialist), Dr Emma Reinhold (GP researcher & Clinical Champion for EDS), and Anoushè Husain (EDS UK Ambassador). Purchase our book at: BrOKen book via Amazon amzn.eu/d/58nd9ye #BrOKen #BrOKenButOK Press coverage: www.voice-online.co.uk/entertainment/books/2020/06/02/authors-unit...

We have a book coming out - help with the book cover.

2:29

We have a book coming out - help with the book cover.

Просмотров 454 года назад

Book cover votes for our new book - EDS Unplugged - Book BrOKen - Authors Marcia Brock and Cassandra A Campbell. We nee your help using a book cover for our new book for people with a chronic condition or for people who has family or friend with a chronic condition. Purchase our book at: BrOKen book via Amazon amzn.eu/d/58nd9ye #BrOKen #BrOKenButOK Press coverage: www.voice-online.co.uk/enterta...

3:54

EDS UNPLUGGED- Pacing

Просмотров 2126 лет назад

#EDSunplugged Cassandra and Marcia answer an EDS’er question regarding “pacing”. The two share a bit of their life experience regarding this and the associated conditions of Elhers Danlos Syndrome and chronic illness. In support of EDS awareness, Cassandra A Campbell and Marcia Brock have come together to share how they cope with hEDS - Hypermobile Ehlers Danlos Syndrome. Purchase our book at: ...