When Down Syndrome Meets Autism
When Down Syndrome Meets Autism
  • Видео 24
  • Просмотров 32 293
Golden Hollywood: Gene Tierney and Baby Daria
Gene Tierney was absolutely one of the most beautiful women to grace the silver screen in golden Hollywood. Gene married dress designer Oleg Cassini and found herself pregnant with her first child in early 1943.
With World War II raging in Europe and the Pacific, Hollywood stars contributed to the war effort by working shifts at the Hollywood Canteen, signing autographs, posing for pictures, pouring coffee, and passing out donuts. Right before a move to Kansas for her husband's army training, Gene pulled one last shift at the Canteen.
She woke up days later with German Measles or Rubella. Keep in mind, there was no vaccination for measles, mumps, or rubella at this time. After a week of bed...
Просмотров: 3 196

Видео

Down Syndrome in Vietnam
Просмотров 2746 лет назад
I was out and about the other day, and met a wonderful lady from Vietnam. Of course, I always have to whip out the pictures of Dale to show everyone, since he is the most handsome kid in the world (from a super biased mama lol). The woman smiled and instantly recognized the fact Dale has Down Syndrome. That surprised me, since most people simply smile, but never say anything about Dale's recogn...
Paranormal and Special Needs Kids
Просмотров 1956 лет назад
HAPPY EARLY HALLOWEEN EVERYONE!!!!!! We've all heard the rumors about Paranormal and our kids with special needs. I've heard them all, and I'm sure you have too! You know, the rumors about kids with special needs being closer to the veil, being able to see ghosts, being able to see things that we boring, stuffy adults cannot, and all that fun stuff. Of course, since Dale can't talk, I'll never ...
Chewy Tubes
Просмотров 9146 лет назад
For my child, Chewy Tubes are the best thing in the world! We never leave home without one!! These things come in a variety of flavors, shapes, smells, colors, textures, and sizes. You can find one for every need, from a child who is just starting to teeth to an adult who has a full set of teeth. Dale is particularly fond of the double grabbers that have textures and flavors. Chewy Tubes help i...
Miracle League Baseball
Просмотров 2366 лет назад
This season, Dale is totally rocking the Miracle League team! Miracle League is such an awesome way for your child to play baseball on a team, and it is an exerpeince both you and your little one will never, ever forget! Google Miracle League in your area, and you will come up with your local teams. If you have any questions, I would be happy to answer and help out! Of course, if your child is ...
The Early Years - Birth to 3
Просмотров 956 лет назад
The early years with a child with special needs feel a lot like being tossed into the deep end of a swimming pool when you have no idea how to swim. Your child's pediatrician can be a lifeline in providing suggestions on how to find services that will help! For info on your state's birth to three program, go to google and type in birth to three program and your state's name. That should be a st...
Dream Factory Wish Trip
Просмотров 3397 лет назад
Hello everyone! In February, the Dream Factory gave us the greatest gift! Our family was lucky enough to travel to Orlando, Florida to Give Kids the World Village. It was the most amazing week of our lives, and it changed all of us in ways we could never have imagined! My son, Dale, was given a special wish from the wonderful, wonderful organization The Dream Factory. He wanted to go to Disney ...
An Apology
Просмотров 677 лет назад
After years and years of saying the same thing about Amniocentisis and AFP testing, one simple message was all it took to change my way of thinking. To anyone who I might have hurt by saying I didn't have the testing because the results "didn't matter," I am so sorry. To contact us: Email: downsyndromemeetsautism@gmail.com Twitter: @downsyndromeautism Instagram: @downsyndromeautism Subscribe to...
Skyzone and Special Needs
Просмотров 1357 лет назад
We found such a GREAT place to take Dale.......SkyZone!!!! If you have one in your area, you should totally try it out! It's one of those trampoline parks, with a few different perks, like Trampoline Basketball, an obstacle course, ultimate dodgeball (ouch), and all sorts of classes and camps for kids and adults both. Ours even has glow jump, which is where they turn on the black lights and eve...
Flying with my Autistic Child
Просмотров 4827 лет назад
In February, 2017, we were the luckiest family ever! The Dream Factory gave Dale a six night trip to Orlando, where we stayed at the magnificent beyond words Give Kids the World Village. This video is the first in my series about traveling with a child who has special needs! Travel is difficult for anyone, child or adult, special needs or not. Since we only had six days in Florida, and a LOT to...
Our Melt Down Helment
Просмотров 1,8 тыс.7 лет назад
Hi everyone! I hope you are having a fantastic week so far! One of the more trying by-products of Dale's autism are the meltdowns. Thankfully, they are few and far between now, but at one time, he would have upwards of seven a day. They were very trying times, and our main concern was keeping him safe until the meltdown was over. Generally, a full blown meltdown consisted of a lot of self injur...
Swim Diapers
Просмотров 5 тыс.7 лет назад
Hello! I hope you are all managing to stay cool during this hot, hot summer! Our favorite way to cool off is heading to our local indoor pool and splashing around. Dale would live there if he could! He LOVES the water! Of course, given Dale's colon problems, the pool can be a dangerous place for us......if you know what I mean! I never, ever want to deal with a Caddyshack moment in real life! W...
Our life with Autism - Part 2
Просмотров 3997 лет назад
Hello everyone! I hope your summer is wonderful, happy, warm, and fun! I wanted to explain what our life was like after autism came into the picture, and how it feels to wake up one morning to find your child significantly different than when he went to bed. At least that's how it feels. The change is sudden and drastic, and you find yourself searching for anything to explain why what happen di...
Our life with Autism
Просмотров 2517 лет назад
Hello everyone! I hope your summer is wonderful, happy, warm, and fun! I wanted to explain what our life was like after autism came into the picture, and how it feels to wake up one morning to find your child significantly different than when he went to bed. At least that's how it feels. The change is sudden and drastic, and you find yourself searching for anything to explain why what happen di...
New Escape Proof Bed!
Просмотров 1 тыс.7 лет назад
New Escape Proof Bed!
What is Down Syndrome?
Просмотров 1387 лет назад
What is Down Syndrome?
Admitting Things Get Really Hard
Просмотров 1527 лет назад
Admitting Things Get Really Hard
When You Child Can't Speak
Просмотров 5647 лет назад
When You Child Can't Speak
DIY Food Catching Bibs for Any Age!
Просмотров 14 тыс.7 лет назад
DIY Food Catching Bibs for Any Age!
Embarassing Mommy Moments!
Просмотров 1607 лет назад
Embarassing Mommy Moments!
Ten Things I Hate Rant
Просмотров 1677 лет назад
Ten Things I Hate Rant
Mom's Relax Time - Take Care of Yourself!
Просмотров 1507 лет назад
Mom's Relax Time - Take Care of Yourself!
Down Syndrome and Autism - Our story
Просмотров 2,3 тыс.7 лет назад
Down Syndrome and Autism - Our story

Комментарии

  • @domingogemigniani6785
    @domingogemigniani6785 11 месяцев назад

    It would have helped if you had shown pictures as you were telling the story.

  • @dittohead7044
    @dittohead7044 Год назад

    My mom was very touched by Genes tragedy over baby Doria. My mom wasn’t like a rabid type of fan of actresses but this bothered her so much. My mom studied music and actually went to high school with Ellen Bernstein aka Burstyn. Even seeing her at a HS reunion. Mom was nice, just not all gushy if you know what I mean

  • @cindyzak6817
    @cindyzak6817 Год назад

    Theses are so easy to make!! Thank you for this!!!

  • @tracey4137
    @tracey4137 2 года назад

    Thanks for posting. We've had this same bed for MANY moons. It has surely stood up to the test of time! It has also traveled through 4 states with us..can't leave home without it!

  • @theirmom4723
    @theirmom4723 2 года назад

    Not to be rude...but my mom made these for my son back in the 90s when he was 10. He has cerebral palsy, autism and IDD. She put stretch binding around the neck hole to where they would fit a bit tighter and now allow drool and food to fall down into them.

  • @cindyzak6817
    @cindyzak6817 2 года назад

    First time seeing your channel! You are awesome! I’m going to try making one of those adult bibs!!!

    • @cindyzak6817
      @cindyzak6817 Год назад

      Made adult ones for my Aunt! She is crazy 11:19 about it! I bought a cheap beach towel in her FAVORITE color, BRIGHT ORANGE! Ribbing was super as the neck lining! That took a bit of practice. Pinned it at all 4 quarters first. I wish I’d taken a picture of the finished bib. As soon as she saw it, she grabbed it & took it home!! THANK YOU SO MUCH FOR THE IDEA!

  • @ambergranger7486
    @ambergranger7486 3 года назад

    Aww I love that u included a clip of him in the video. My son is 12 and has cerebral palsy and he makes a disaster when he eats but really food is what he probably enjoys most. I have been looking for months for an easy to make bib for him and I think if I can manage to see this one I’d like to make one for the kids at his school too

  • @cindynok
    @cindynok 3 года назад

    Thank you so much. I will be making for my hubby with brain cancer. Have a blessed Easter!

  • @collegegymvidsfan
    @collegegymvidsfan 4 года назад

    Subbed you.

  • @collegegymvidsfan
    @collegegymvidsfan 4 года назад

    I am a borderline high functioning autistic with iq of 72 mild retardation.I went to sky zone sensory jump from 9-11@m but sky zone in Baton Rouge closed.I guess you can say I have aspergers if I had been diagnosed before 2013.I was born June 28 1978.I met a boy named Sean at sensory jump who is autistic.He goes to beyond gymnastics offers special needs gymnastics classes in Baton Rouge.I suggest find a gymnastics school and ask them to start a special needs program if they don’t already have one.I love gymnastics and trampoline parks.Airbourne extreme in Denham has sensory jump that I go to.

  • @jahsiah_44
    @jahsiah_44 4 года назад

    Fuck you

  • @darinshoemaker1840
    @darinshoemaker1840 4 года назад

    I have Down syndrome and I don’t have autism but I have insomnia I don’t sleep but I stay all night until 2:34 o’clock in the morning

  • @barleybond6912
    @barleybond6912 4 года назад

    a ufc helmet?😭🤣

  • @naakter6746
    @naakter6746 4 года назад

    Can you please tell from where you buy chewing thing? What’s called

  • @rubyjakl4317
    @rubyjakl4317 4 года назад

    I wanted to make for an adult and wondered about how big the width

  • @bencaldecott6583
    @bencaldecott6583 4 года назад

    Merry Christmas from Canada. Im Ben, and my girlfriend is Madison with Love syndrome. My email is ben.caldecott101@gmail.com Sometimes when I eat, i tuck a tea towel in my shirt so i wont have food on my shirt. Hope to hear from you.

  • @mysticindigo
    @mysticindigo 5 лет назад

    Both of my children have autism. I totally understand where you’re coming from. I did everything “by the book”. I hope that you and your son are doing well. Thank you for the video.

  • @shirleygorbutt3613
    @shirleygorbutt3613 5 лет назад

    Great Idea. I am making clothes protector for adults and plan to use an inexpensive thin bath towel. Thanks for sharing your story

  • @SpecialStrong
    @SpecialStrong 6 лет назад

    At Special Strong, we LOVE the special needs population. Colossians 1:11

  • @FrostyFoxy14
    @FrostyFoxy14 6 лет назад

    Thank you so much for sharing this!!!! I am going to make a bunch of these for my grandma!!!!!

    • @whendownsyndromemeetsautis4830
      @whendownsyndromemeetsautis4830 5 лет назад

      Did you get the bibs made for your grandma? I hope everything is going well!

    • @FrostyFoxy14
      @FrostyFoxy14 5 лет назад

      @@whendownsyndromemeetsautis4830 Yes I did!!!!!! She loves them!!!! Thank you!!!!!!!

  • @delekatala
    @delekatala 6 лет назад

    Alright mama. Lets discuss the penis. My guy keeps pulling the front of his diaper down so his penis is sticking out. He pees everywhere! I am at my wits end with this one, he wears one piece pjs, backwards (he fecal smears too). But he does it right through the cloth. any ideas?

    • @whendownsyndromemeetsautis4830
      @whendownsyndromemeetsautis4830 5 лет назад

      Oh delekatala I feel for you - we have gone through the fecal smearing too - it is a nightmare!!!! My little guy wears pull ups now, and I put two on him to help with the pulling on things. Maybe that could help?

  • @Randompotatoes-qs7bm
    @Randompotatoes-qs7bm 6 лет назад

    I really like your videos and your personality!

  • @beatricemoscozo187
    @beatricemoscozo187 6 лет назад

    Im a single teen mom a new mom and i have been working real hard on school and my beautiful teething baby girl and i have been so stressed but i have guilt everytime i try n sleep in or go n buy myself sometjing i end up buying her stuff and not mine this helped me really really bc ik it is okay to take care of my self too 💓 new subscriber💜

    • @whendownsyndromemeetsautis4830
      @whendownsyndromemeetsautis4830 6 лет назад

      Great - I am so glad it helped! It is so important to take care of yourself - you can't take care of your sweet baby girl if you don't take care of yourself!

  • @robinstafford935
    @robinstafford935 6 лет назад

    I made these for my babies/toddlers, but used rib trim (like for track suits) to sew around the neck hole -- easy on and off and was snug around the neck to keep their clothes clean.

  • @townsendtowers2311
    @townsendtowers2311 6 лет назад

    I’m 36 with ADHD/Autism and wear a swim diaper they are comfy and easy to buy. The Swimmates are really good

  • @margaretbecht9874
    @margaretbecht9874 6 лет назад

    Very good teacher

  • @TiffanyLuvsGreenDay
    @TiffanyLuvsGreenDay 6 лет назад

    I'm super excited to make these for my mother. Thank you for sharing. I've watched a few videos and yours explains it so much easier, I think I got this.

  • @TheMyshine09
    @TheMyshine09 6 лет назад

    Thanks you gave me good tips. My daughter has outburst so I’m really concerned about the loud noise. How will flight attendant handle that?

    • @whendownsyndromemeetsautis4830
      @whendownsyndromemeetsautis4830 6 лет назад

      I'm so sorry I just saw your message! The flight attendants on every flight we've ever been on have been so absolutely amazing! I think they deal with all sorts of things on a daily basis, so most of them are super compassionate and attentive. I hope your flight goes well!!!!

  • @tararoberts2625
    @tararoberts2625 6 лет назад

    Thank u much for the video!! I don’t have time to make the bibs-I’m leaving town tomorrow BUT I will make them when I get back. Hopefully all goes well. I’m always on the look out for money saving tips. Thank u so much! My son is just like yours very VERY messy!!

  • @aquariusawakening1381
    @aquariusawakening1381 6 лет назад

    We have 3 children who are all on the autism spectrum and we've decided to start a channel of our own. We want to offer a place where we can all meet as parents or professionals and do live support groups where we all offer advice and support. Please let us know what you think of this idea. Thanks alot Simon and Maria

  • @klodya4352
    @klodya4352 6 лет назад

    Great idea. I’m going to try this for my Mom

  • @amycmcc1
    @amycmcc1 6 лет назад

    I made similar bibs, but without any sewing. I used a vinyl fabric that is easy to wipe off, and traced one of her old bibs. I did hand sew on snaps, but the fabric doesn't fray, so that was the only sewing. We use silicone plates, so when we tuck it under her plate it sticks pretty nicely. Great video!

    • @tachaoneill3443
      @tachaoneill3443 4 года назад

      ToughTexas Angel Good way for my new to my new one soon

  • @patrickpat8878
    @patrickpat8878 7 лет назад

    Hi , you can contact them via Facebook they also make very good custom made helmet facebook.com/eastped/ I have one and they are very protective.

  • @Local_commentor
    @Local_commentor 7 лет назад

    "Captions" Is brandy and i make shitty vlogs a about my shitty life i only get 69 views so its time to wear my helmet

  • @ashmash5973
    @ashmash5973 7 лет назад

    I have a few helmets as well they help me.

  • @TaylorRaine
    @TaylorRaine 7 лет назад

    We love going to skyzone. My autistic brother loves it too. He uses a trampoline in OT so it is like his therapy on steroids :) lol. Its an awesome combo of physical movement and sensory stimulation. I love taking my daughter there too because I can jump with her and get a little workout while reliving my childhood! :)

  • @delekatala
    @delekatala 7 лет назад

    I have an idea! Tell me about toothbrushing. It is still the bane of our existence.

    • @whendownsyndromemeetsautis4830
      @whendownsyndromemeetsautis4830 7 лет назад

      That is a great, great, great idea!!!! We still have problems with tooth brushing, but over the years it's gotten easier. I remember when those stupid "Tooth Tunes" toothbrushes came out, and I thought they would be the greatest things in the world. Not even close - Dale wouldn't let me get NEAR him with it, lol!!!! Now, between tooth brushing, shaving, and trying to keep his skin clear, we spend a lot of time primping in the bathroom!

    • @tachaoneill3443
      @tachaoneill3443 4 года назад

      delekatala was a great way to come and see the

  • @delekatala
    @delekatala 7 лет назад

    I am going to try these! What I've always done for William is a cloth diaper cover. There's a woman on etsy (MissingKinks) she makes them for the fetish community. But she also has a shop making cloth diapers for babies, so she knows what she is doing. She made me a custom one that fits william and will for some time. I never imagined there would be swim diapers that fit our bigger kids.

  • @delekatala
    @delekatala 7 лет назад

    Amen mama! We got a safety bed also and it is a life changer! We worried about fecal smearing on the netting, so we went with the Sleep safer bed with the extension and padding. It was a lot of work getting it covered, but it was worth it. I made a light with Christmas lights and put that above it, so he has some twinkle at night, and we are all so much more rested. I can't imagine anyone with a severely autistic child sleeping at night without a safety bed.

  • @pookisautismjourney8438
    @pookisautismjourney8438 7 лет назад

    Thanks so much for sharing your life with us. The bib is a great idea.

  • @jasoncarpp7742
    @jasoncarpp7742 7 лет назад

    I think it's a good idea for anyone who likes being in the water to wear swim diapers. However potty trained one may be, it's not always possible to make it in a timely manner to the toilet when you need to go. I'm a 44 yr old male, and I still wet myself, sometimes I've even pooped myself when I don't want to.

  • @bridgetlangdale9059
    @bridgetlangdale9059 7 лет назад

    These are amazing and very easy to sew. Thanks so much!

  • @bridgetlangdale9059
    @bridgetlangdale9059 7 лет назад

    Great fun!

  • @NAT-qo6mz
    @NAT-qo6mz 7 лет назад

    Life is an emotional rollercoaster at times. God has blessed the right mom, You !

  • @poodlegirl14
    @poodlegirl14 7 лет назад

    I love your personality!! You seem to be a really great advocate for your child, your channel is so fun to watch :)

  • @kathleenharris3485
    @kathleenharris3485 7 лет назад

    Hello, Brandi! I'm so glad I found you! I promised your husband, earlier, I'd search. I'm so glad I kept my promise. I'm letting everyone know about this. I have family who are autistic (some severe), and this is such a support. Tell Kevin I said hello! And I'm praying for you all! Hugs and kisses! 😍😇😍

    • @whendownsyndromemeetsautis4830
      @whendownsyndromemeetsautis4830 7 лет назад

      Thank you so much Kathleen! I appreciate your kind comments! We are praying for you and your family and I will definitely tell Kevin you said hi!

  • @bridgetlangdale9059
    @bridgetlangdale9059 7 лет назад

    So proud of you! These were some good points to reflect upon for all of us.